POSITION PROFILE

CYSTIC FIBROSIS CANADA CHIEF PHILANTHROPY OFFICER January 2016

Client Organization: Position Title: Reports to: Location:

Cystic Fibrosis Canada Chief Philanthropy Officer President and Chief Executive Officer Toronto, ON

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THE OPPORTUNITY AND THE ROLE Cystic Fibrosis Canada is seeking an experienced, successful and talented fundraising professional to join in a leadership role as the Chief Philanthropy Officer for our Canadian fundraising team. This is a new and exciting opportunity to work with a highly motivated staff and group of volunteers across the country to raise funds to support research and care for those living with cystic fibrosis. Reporting to the President and CEO, the Chief Philanthropy Officer will provide strategic leadership to build and grow Cystic Fibrosis Canada’s Canadian philanthropic programs including a $15 million, 5 year major and leadership gifts campaign, planned giving, direct marketing, and philanthropic foundation and corporate giving. In the last few years Cystic Fibrosis Canada has successfully undergone significant transformation and strategic change, inclusive of a modernized governance structure and revised regional operating structure. A new strategic plan has just been developed until 2020 with a renewed focus on fundraising in order to meet the increased healthcare needs of a growing adult CF population and investment in accelerated research. This is an exciting time for a seasoned fundraising professional to join an organization that is evolving, open to change, and is committed to the personal development of its employees.

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THE ORGANIZATION Cystic Fibrosis Canada is a national charitable not-for-profit corporation established in 1960, and is one of the world’s top three charitable organizations committed to finding a cure for cystic fibrosis (CF). As an internationally recognized leader in funding innovation and clinical care, we invest more in life-saving CF research and care than any other non-governmental agency in Canada. CF Canada has six regions and 50 volunteer chapters across the country that help to raise funds for vital cystic fibrosis research and care. The mandate of Cystic Fibrosis Canada is to help those living with cystic fibrosis, principally by funding cystic fibrosis research and by supporting high quality clinical and transplant care. Cystic Fibrosis Canada also provides educational materials for the cystic fibrosis community and the general public; undertakes advocacy initiatives with, and on behalf of Canadians with cystic fibrosis, to enhance their quality of life; and raises funds to support its programs Since establishment, Cystic Fibrosis Canada has invested more than $226 million in leading research, innovation and care. As a result, Canadians with cystic fibrosis have one of the highest median survival rates in the world. We rely on the generous support of our volunteers, donors, and partners in our shared mission to improve the lives of Canadians living with cystic fibrosis, and ultimately to find a cure for this devastating disease.

CYSTIC FIBROSIS Cystic fibrosis (CF) is the most common fatal genetic disease affecting Canadian children and young adults. There is no cure. Cystic fibrosis causes various effects on the body, but mainly affects the digestive system and lungs. The degree of cystic fibrosis involvement differs from person to person. However, the persistence and ongoing infection in the lungs, with destruction of lungs and loss of lung function, eventually causes death in the majority of people who have cystic fibrosis. Typical complications caused by cystic fibrosis are difficulty in digesting fats and proteins; vitamin deficiencies due to loss of pancreatic enzymes; and progressive loss of lung function. It is estimated that one in every 3,600 children born in Canada has cystic fibrosis. More than 4,000 Canadian children, adolescents, and adults with cystic fibrosis attend specialized CF clinics. With newborn screening available in most provinces across Canada, the 2014 median age of survival is now 51.8 however those who passed away in 2014 were of a median age of 35 years of age. Mission To End Cystic Fibrosis (CF). We will help all people living with CF by funding targeted world-class research, supporting and advocating for high-quality individualized CF care and allocating funds for these purposes. Vision A World Without Cystic Fibrosis. 2

In order to further extend the median age of survival, we will be launching our new strategic plan ONE CFocus 2020 – Our Plan to End Cystic Fibrosis in February 2016. Strategic Directions are: E: N: D: C: F:

Excel in the Advancement of cystic Fibrosis Care and Advocacy for Patients and Families Network and Grow Revenues Drive Community and Volunteer Engagement Communicate Effectively and Demonstrate Impact Focus on Accelerating Breakthroughs in Cystic Fibrosis Research and Development

Values Excellence - Accountability – Caring - Teamwork

DUTIES AND RESPONSIBILITIES: Fundraising -

Develop and execute a successful 5 year major gifts campaign that supports the overall mission of the organization and involves staff, volunteers, and other key stakeholders. Develop positive relationships with current donors and volunteers using a donor-centered fundraising approach. Provide leadership in the cultivation and solicitation of major contributors and campaign leadership. Working closely with CFC’s Healthcare, Research and Advocacy team finalize the campaign Case for Support based on the identified organizational priorities. Provides strategic direction, mentorship and support to Regional Executive Directors who are responsible for campaign major gift fundraising. Takes a leadership role in the identification of prospective donors by working with regional staff, chapter volunteers and senior campaign volunteers. Key relationship manager on Cystic Fibrosis Canada’s most significant donors and volunteers. Personally manages the donor cycle with those donors. Works closely with the Chief Community Engagement Officer to ensure a solid organizational wide fundraising strategy. With the support of staff and external consultant, oversee and grow Cystic Fibrosis Canada’s national direct marketing, and monthly giving strategy. Establish and enable a culture of philanthropy throughout the organization. Work closely with the Chief Finance and Operations officer to build the systems and disciplines necessary to ensure a donor centered approach to our fundraising practices throughout the country.

Human Resources and Volunteer Leadership -

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Oversees the staff responsible for Major / Leadership gifts, direct marketing, and planned giving. Oversees Campaign Advisory Committee and Campaign Cabinet. As a member of the Executive Leadership Team the Chief Philanthropy Officer Works closely with the other members of the leadership team (Chief marketing and Communications Officer, Chief Scientific Officer, Chief Community Engagement Officer, and the Chief Finance and Operations Officer). Provides subject matter expertise, and leadership to the regional staff and volunteers. 3

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Establishes individual and team fundraising goals and metrics.

Financial, Systems and Operations -

Champion for implementation and internal usage of Raisers Edge. Creates and implements a prospect clearance, moves management, and donor stewardship process. Subject matter expert on Gift Acceptance Policy, CRA Charity rules and regulations, Imagine Canada’s Standards Program, and AFP’s Code of Ethics. Oversee Campaign, Direct Mail, and Planned Giving revenues and expenses. Reports effectively on Campaign goals, plans and achievements

CANDIDATE QUALIFICATIONS Education  University degree or equivalent  CFRE preferred Experience and Qualifications  Proven track record as a senior leader in fundraising and resource development (7 to 10 years), ideally at a national level with a strong ability to work effectively with regions across Canada.  Minimum of 6 years in a leadership capacity.  Successful leadership with a major gifts or capital campaign, and significant experience with major gifts fundraising.  Experience working with senior volunteers (Board of Director’s / Campaign Cabinet).  Demonstrated experience in identifying, stewarding and securing gifts of $100K plus from individuals, foundations and corporations.  Exceptional interpersonal relationship building experience.  Proven strong leadership and management skills to coach, mentor and inspire a diverse group of professionals towards achieving the organizational and departmental goals, while supporting and working through them as a solid team player.  Superior strategic planning experience in developing and successfully executing creative multi-year fund development programs.  Integrative, holistic thinking of both business and donors needs (internal and external), program and service offerings, and delivery.  Demonstrated professional, innovative, approachable management style.  Ability to handle multiple priorities and meet deadlines.  Understanding of values-based, volunteer-driven, not-for-profit organizations.  A commitment to ethical and accountable fundraising and personal integrity. Skills (Technical)  Current knowledge of best practices in development and donor database management ( Raisers Edge)  Strong research, writing, and verbal and written communication skills.  Superior strategic planning experience in developing and executing fund development plans. 4

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Superior communication skills including effective presentation skills with the ability to “close a deal”. Able to analyze and interpret trends, results, with demonstrated business acumen. Good financial acumen and in-depth knowledge and practice of budget analysis and transparent reporting. Fluency in both English and French is an asset.

Personal Characteristics  Team player/motivator  Someone who loves to ask  Ego in check  Authentic relationship builder; effective stakeholder manager  Engaged and engaging  Can deal with ambiguity  Affinity for Cystic Fibrosis Canada  Strategic thinker/innovative and creative  Positive, ‘can do’ attitude  Inspiring  Dynamic and energetic / sense of urgency  Results-oriented  Presence in both the public and private sectors  High integrity/strong ethics  People person  Respected in the industry  Forward Thinker  Solution Oriented  Agile with strong organization skills

CONTACT INFORMATION Should you have an interest in exploring this further or have any questions regarding this initiative, please contact: Jack Penaligon, Partner Direct: 1 416.640.4307 Email: [email protected]

Chris Sawyer, Senior Consultant Direct: 1 416-640-4312 Email: [email protected]

Sherry D’Costa, Project Coordinator Direct: 1 416.928.4612 Email: [email protected]

Amrop Knightsbridge PO Box 20, 250 Yonge Street, Suite 2800 Toronto, Ontario, M5B 2L7 www.amropknightsbridge.com

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