Chinese Association for Cancer Care Annual Report 2014/15
Annual Report 2014/15
Contents Introduction Milestones & Achievements Regular activities Other special activities - to promote cancer awareness and services of CACACA at Chinese communities and churches 5. Training opportunities 6. Strategic development & publicity 7. Support to individual cancer patients and families 8. Summary of activities organised and participated by CACACA from Jan 2014 to May 2015 9. Treasury 10. Future Plan 11. Appendix 1. 2. 3. 4.
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Annual Report 2014/15 1. Introduction Chinese Association for Cancer Care (CACACA) was established in June 2013 and has been registered in England and Wales as a charitable organisation. We aim to provide care and support primarily, but not exclusively, to Chinese cancer patients and their families. The services we provide include the following: ●
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To help cancer patients cope with problems in terms of medical treatments, emotions and life changes through offering friendship, hospital visits and counselling To provide cancer information and refer patients to relevant cancer support organisations To provide translation service and help with recording personal medical history To organise cancer talks, workshops and regional support groups To advocate wellness and positive lifestyle of cancer patients and their families
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Annual Report 2014/15 2. Milestones & Achievements Before CACACA was established in June 2013, one of the founders, who was also a cancer patient, was invited to present a five minute speech at National BME Cancer Alliance ‘Calls for Action’, held at the House of Lords on 13 Dec, 2012. Since the establishment of CACACA in June 2013, we have reached a number of milestones ●
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Aug 2013 – CACACA Monthly Cancer Support Group was formed, which aims at facilitating mutual support for cancer patients through the monthly meetings held in London. Nov 2013 – The Chief Executive of CACACA was appointed by NHS England to be a London Clinical Senate, responsible for providing a source of independent, strategic advice, guidance to commissioners and other stakeholders, assisting them to make the best decisions about healthcare for the populations they represent. Jan 2014 – CACACA Council was formed to be responsible for the operation and strategic development of the association. Feb 2014 - Two Council members were invited to join BME Cancer Voice Launch at the House of Lords. Mar 2014 – CACACA Clinical Advisory Panel was formed by a group of medical professionals responsible for providing professional knowledge and advice to the association and cancer patients. May 2014 – CACACA received a letter of appreciation from the Mayor of London for our involvement in supporting cancer care in the community. Jun 2014 – CACACA’s 1st anniversary. Aug 2014 - A GP Experience Focus group discussion was held jointly with NHS to reflect the needs of Chinese patients. Jan 2015 - A council member was elected to the Cancer Patient and Public Advisory Group at University College London Hospital. Feb 2015 – CACACA received support from Maggie’s Centre, Charing Cross Hospital, London, and their permission to use the premises of Maggie’s Centre to hold weekly meetings, in order to reach out and support cancer patients. Feb 2015 – A branch of CACACA in the region of Liverpool was established. April 2015 - A council member was appointed by Macmillan Cancer Support as a Macmillan Ambassador. Jun 2015 – CACACA’s 2nd anniversary.
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Annual Report 2014/15
3. Regular activities The work of CACACA was initiated in London. We have been running two regular meetings for cancer patients and carers: 1. Monthly Cancer Support Group (MCSG) Meeting held mainly in Chinatown, London, once every month on the second Saturday, at 10:30am-1:30pm. 2. Weekly Meeting at Maggie’s Centre, Charing Cross Hospital, London, every Wednesday (Feb 2015 –Apr 2015) at 11:00am-1:00pm / every Thursday (from May 2015) at 12:00pm-2:00pm.
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Annual Report 2014/15
4. Other special activities - to promote cancer awareness and services
of CACACA in Chinese communities and churches One of CACACA’s goals is to expand the caring services to cancer patients across the UK. We often deliver cancer/health talks to organisations in the Chinese community, and also to Chinese Christian churches in different regions including Brighton, Belfast, Canterbury, Doncaster, London (Colindale, Haringey, East London and Central London, Kingston ), Liverpool, Reading, Woking (see section 8 for the summary of CACACA activities). We aim to arouse awareness of caring and supporting cancer patients, as well as to call on people across the UK to establish regional cancer support groups. A branch of CACACA in the region of Liverpool was established in February 2015.
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5. Training opportunities To equip CACACA members and volunteers with the relevant knowledge and skills to effectively help and support cancer patients and their families, we constantly organise training workshops. We also encourage our workers to attend training events provided by cancer care organisations such as Macmillan Cancer Support, Cancer Research, NHS and CancerLink Hong Kong. A remarkable example is one that took place in May 2014, where three Council members of CACACA attended a ‘Cancer Activist Training’ course on ‘Cancer Prevention’. After such event, CACACA was authorised by Cancer Research UK to deliver talks using their materials. The trainings that CACACA offers for volunteers are not limited to the London city only but also to other regions across the UK.
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6. Strategic development & publicity For CACACA to benefit from a strategic development, our Chief Executive and Council members regularly attend meetings and conferences run by the NHS, the London Clinical Senate Forum for example, a local hospital’s ‘Patient and Public Voice’ programme, and with regional Healthwatch organisations. By doing so, we aim to acquire the latest information on cancer care and to express the needs and concerns of cancer patients especially those with a Chinese background. The Chief Executive has also been equipping himself with skills in project team leadership and project management by attending various training courses. On the other hand, CACACA is devoted in drawing collaboration, and is seeking support from well-established general/cancer support organisations. To name a few, Maggie’s Centre, Macmillan Cancer Support, Cancer Research UK, BME Health Forum, Westminster Action for Voluntary Engagement, National Chinese Healthy Living Centre, Chinese Information and Advice Centre etc. We greatly value the partnership and the benefit gained from the experience and the resource shared by such organisations. In order to arouse awareness of caring and supporting for cancer patients among the Chinese community in the UK, we have set up the CACACA website and Facebook page: ● ●
http://CACACA.org.uk/ (Website) https://www.facebook.com/pages/Chinese-Association-for-CancerCare/412551642193589 (Facebook page)
The cancer care works of CACACA has raised interests of local media. In 2014, CACACA was interviewed by TVB-Europe, a Chinese TV channel in the UK. Articles have been published in Herald UK and other local UK newspaper.
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7. Support to individual cancer patients and families In addition to organising regular support group meetings for cancer patients and their family, CACACA is devoted to provide practical help to individual patients in need: ● ● ● ● ● ●
CACACA has been actively providing services to more than twenty patients including those from cities other than London. CACACA helped with four memorial services for patients we served. To assist/advise cancer patients to apply for housing, utility, clothing, vacation, travelling benefits To support patients by regular visits and building friendship To provide interpretation service and help patients with recording personal medical history To refer patients to relevant cancer support units or organisations for complementary treatments
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8. Summary of activities organised and participated by CACACA from
Jan 2014 to May 2015 Abbreviations for type of activities: ● MS— Milestones ● SD—Strategic development ● VT— Volunteer training ● RA— Regular activities ● OTH — Other special activities ● PA — Publicity activities including interviews by media and publications Activity Dates 15 Jan 2014
Details of Activities
Type of Activities
Four members of CACACA took part in the “Speaking up for patients” workshop organised by the Health Education, North Central and East London. At the workshop, our members took the opportunity to express the needs and concerns of patients especially those of Chinese origin.
SD
We are very encouraged as our contribution to support cancer patients was acknowledged. We would like to encourage more Chinese cancer patients to participate in the future. 19 Jan 2014
The Chief Executive of CACACA attended the London Clinical Senate Forum. He experienced the enthusiasm and the passion for debating issues pertinent to the structure and quality assurance of NHS
SD
19 Jan 2014
The Chief Executive of CACACA was invited to share about the mission and services of CACACA with the congregation at Amazing Grace Christian Chinese Church, Reading.
OTH
28 Jan 2014
The Chief Executive of CACACA attended a training course on Project Implementation and Management.
SD
29 Jan 2014
CACACA formed a Council to advance our service to the community. The Council consists of eight members of different backgrounds. We aim to expand our capacity in specific areas
SD, MS
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Annual Report 2014/15 like administration, training to volunteer workers, education, information & communication, etc. We welcome Christians in the UK and abroad to join in and contribute to achieve our goals. Feb 2014
Two council members of CACACA were invited to join BME Cancer Voice Launch at the House of Lord.
SD
08 Feb 2014
Monthly Cancer Support Group (MCSG) Meeting
RA
16 Feb 2014
The Chief Executive of CACACA was invited to preach and share about the mission and services of CACACA with the congregation at Ebenezer Chinese Christian Church, Liverpool. The title of the sermon was “Care for Cancer Patients”.
OTH
27 Feb 2014
The Chief Executive of CACACA was invited to preach and share about the mission and services of CACACA with the congregation at Sutton Group of Croydon Congregation, the Chinese Church In London.
OTH
04 Mar 2014
CACACA had a meeting with Miss Polly Lim, Project Manager of the CancerLink, Hong Kong (http://www.cancerfund.org/en/howwehelp_community_cancerlink.html). Miss Lim shared with us about the services and experience of CancerLink, giving us encouragement and support.
SD, VT
08 Mar 2014
Monthly Cancer Support Group (MCSG) Meeting
RA
16 Mar 2014
The Chief Executive of CACACA was invited to preach and share about the mission and services of CACACA with the congregation at South London Alliance Church, South London.
OTH
27 Mar 2014
The core team of CACACA held a workshop to share about their knowledge and experiences in the following areas:
VT
1. Planning and implementation of a project 2. Change management 3. Safeguarding Page 10 of 20
Annual Report 2014/15 4. Leaders and team players The participants commented on the workshop as encouraging and practical. 31 Mar 2014
CACACA formed the “Clinical Advisory Panel” which is composed SD, MS of people of various medical professions including medical doctors, nurses, pharmacists, etc. The Panel greatly support the development of CACACA by providing professional knowledge and advice.
12 Apr 2014
Monthly Cancer Support Group (MCSG) Meeting
12 Apr 2014
The Chief Executive of CACACA shared about the mission and services of CACACA with the fellowship group of Chinese Church In London, London.
OTH
17 Apr 2014
The Chief Executive of CACACA attended the London Clinical Senate Forum. This time the discussion was focused on the improvement of self-care of cancer patients.
SD
27 Apr 2014
The Chief Executive of CACACA shared about the mission and services of CACACA with the Chinese Congregation of Methodist Church, Woking.
OTH
30 Apr 2014
The Chief Executive of CACACA attended a meeting on NHS development plan of “Care Data” which concerns the patients' record of multidisciplinary medical and community care history. The Head of Intelligence of NHS explained the issues related to data protection and rights to access by the patients and clinical parties.
SD
8 May 2014
Three council members attended a Cancer Activist Training course on “Cancer Prevention”, after which CACACA was authorised by Cancer Research UK to give talk using their materials.
VT
RA
In this meeting, a short talk on “Hospice and Palliative Care” was delivered. Some cancer patients also shared about the experience on their journey of treating cancer.
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Annual Report 2014/15 10 May 2014
Monthly Cancer Support Group (MCSG) Meeting
RA
14 May 2014
Four volunteer workers from CACACA attended a training course on “How to run cancer support groups” given by Macmillan Cancer Support. Besides basic knowledge, the workers benefited from the sharing of experience by other cancer care groups similar to CACACA.
VT
20 May 2014
The Chief Executive of CACACA attended a training course on Project Team Leadership.
SD
14 Jun 2014
CACACA 1st anniversary thanksgiving celebration was held on 14 Jun 2014. The celebration event was reported by a news program of TVB-Europe. The news clip is now uploaded on to YouTube channel:
MS, PA
An informative workshop on bowel cancer was delivered.
https://www.youtube.com/watch?v=IhMDY2DOgJ8 29 Jun 2014
The Chief Executive of CACACA was invited to preach and share about the mission and services of CACACA with the congregation of Rhenish Church, London.
OTH
01 July 2014
The Chief Executive of CACACA attended an internal training course provided by NHS on “Influencing System Leaders”. The training event aimed to enhance communication skill, personal quality and analytical power as a patient representative.
VT, SD
12 July 2014
Monthly Cancer Support Group (MCSG) Meeting
RA
15 July 2014
A team of six from CACACA visited Haringey Chinese Community OTH Centre in London, to introduce our services and to promote the understanding of cancers.
09 Aug 2014
Monthly Cancer Support Group (MCSG) Meeting
RA
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Annual Report 2014/15 10 Aug 2014
The Chief Executive of CACACA shared about the mission and OTH services of CACACA with the congregation of the Oxford Chinese Christian Church, Oxford.
15 Aug 2014
CACACA held a “GP Focus Group” meeting to encourage Chinese SD patients and their families to voice their views on GP service. This is the first focus group meeting held in partnership with NHS and the aim was to improve the GP service. We had a constructive discussion and we hope to continue working for the welfare and medical care for cancer patients of Chinese backgrounds.
14 June CACACA was interviewed by the TVB-Europe. We shared about 2014 the needs and struggle of Chinese cancer patients and their families as well as the mission and services of CACACA. The video clips of the interview can be found on YouTube Channel:
PA
https://www.youtube.com/watch?v=1nYD_lVqGKs https://www.youtube.com/watch?v=MbPzDCebEhA 31 Aug 2014
CACACA was invited to give a talk on cancer awareness at the Kingston Chinese Association, Surrey.
OTH
13 Sept 2014
Monthly Cancer Support Group (MCSG) Meeting
RA
19 Sept 2014
A training program on “How to be a life carer” with the first of the three sessions was undertaken. About 20 people turned up.
VT
6-9 Oct 2014
The Chief Executive represented CACACA to attend a European Chinese Church Conference at Dublin, Ireland
OTH
Oct 2014
CACACA provided three training sessions for volunteer workers in Liverpool.
VT
11 Oct 2014
Monthly Cancer Support Group (MCSG) Meeting
RA
Dr Janice Lo gave a talk on the topic of “How to use clinical services” which was followed by a Q&A session.
Dr Rebecca Tang gave a talk on the topic of “Sleeping Disorders”. Page 13 of 20
Annual Report 2014/15 04 Nov 2014
CACACA workers were invited to the East London Chinese Community Centre to share about the services of CACACA and to raise awareness of cancer care.
OTH
08 Nov 2014
Monthly Cancer Support Group (MCSG) Meeting
OTH
15 Nov 2014
CACACA and the Ebenezer Chinese Christian Church in Liverpool hosted together a cancer talk in the church.
OTH
Nov 2014
CACACA published a Chinese article “Do you believe in folk remedies?” in “Herald UK”, a Christian monthly paper target at Chinese audience in the UK.
PA
10 Jan 2015
Monthly Cancer Support Group (MCSG) Meeting
RA
17 Feb 2015
Weekly Meeting at the Maggie’s Centre
22 Jan 2015
The Chief Executive of CACACA attended the London Clinical Senate Forum to discuss the five year plan of NHS London.
SD
28 Jan 2015
CACACA Council Meeting was held at the Maggie's Centre, Charing Cross Hospital.
SD
14 Feb 2015
Monthly Cancer Support Group (MCSG) Meeting
RA
25 Feb 2015
Weekly Meeting at the Maggie’s Centre
RM
Dr Janice Lo gave a talk on the topic of “Regular checks for signs of breast cancer” which was followed by a Q&A session.
Dr Rebecca Tang gave a talk on the topic of “Stress relaxation”. RA
The Maggie's Centre, Charing Cross Hospital London (Fulham Palace Road, London W6 8RF) permitted CACACA to use the premise to hold activities on a weekly basis. In doing so we hope to reach out to more cancer patients of Chinese backgrounds. The launching event was held on 17th February 2015.
As well as celebrating Chinese New Year, CACACA held the first official event at the Maggie’s Centre, Charing Cross Hospital London. The room can accommodate about 30 people including the friends of our patients, their families and our volunteers. Page 14 of 20
Annual Report 2014/15 We are very grateful for the centre’s warm welcome and for letting us to use the space from 11am to 1pm every Wednesday. Many regular events and services are available at the Maggie’s Centre. It will certainly be a great place to reach out to more Chinese cancer patients. 09 Mar 2015
CACACA was invited by the Elim Full Gospel Chinese Church, Canterbury to share about our mission and works on cancer care to the Chinese community in Canterbury CACACA (Liverpool branch) and Ebenezer Chinese Christian Church in Liverpool held a cancer talk titled “Knowing chemotherapy and radiotherapy”.
OTH
14 Mar 2015
Monthly Cancer Support Group (MCSG) Meeting
RA
25 Mar 2015
Weekly Meeting at the Maggie’s Centre Volunteer workers shared about experiences and ideas on caring cancer patients. The Chief Executive of CACACA was invited by the Belfast Chinese Christian Church and Chinese Welfare Association, North Ireland to share about cancer care as well as the mission and services of CACACA.
RA
Monthly Cancer Support Group (MCSG) Meeting
RA
29 Mar 2015
3-6 Apr 2015
11 Apr 2015
OTH
In addition to the usual activities, testimony and sharing, CACACA also introduced the work and support services provided by Macmillan Cancer Support.
OTH
12 Apr 2015
We focused on the sharing and discussing the topic about depression and anxiety. The second “Cancer Awareness Day” took place in Liverpool. More than 40 people attended.
21 Apr 2015
CACACA gave a talk on “Caring for cancer patients” at Brighton Chinese Christian Church, Brighton.
OTH
22 Apr 2015
Weekly Meeting at the Maggie’s Centre
RA
29 Apr 2015
Weekly Meeting at the Maggie’s Centre
RA
OTH
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Annual Report 2014/15 5 May 2015
The Chief Executive attended a workshop on Impact Management for charity organisation.
VT
07 May 2015
Weekly gathering at the Maggie’s Centre, Charing Cross Hospital OTH
09 May 2015
Monthly Cancer Support Group (MCSG) Meeting
RA
30 May 2015
CACACA 2nd anniversary thanksgiving celebration
MS
The gathering day was changed from every Wednesday to Thursday from May 2015.
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9. Treasury
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10. Future Plan CACACA intends to deliver a better service to more people in the UK. The followings highlight some strategic focus for future development: ● ● ● ●
To form a plan for the next 5 years To set up more branches in different regions across the UK To build up a wider cancer patient supporting network throughout UK To develop a structured training program for volunteers and carers
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11. Appendix Structure of CACACA
Name of Members
Board
Rev C. K. Cheung (Chair) Mr W. P. Sham (Chief executive) Mrs Naomi Cheung (Secretary) Mr Philip Cheung Mrs May Chan
Council
Rev C. K. Cheung Mr Philip Cheung Mrs Naomi Cheung Mrs May Chan Mr W. P. Sham Miss June Leung Miss Sandy Leung Miss Josie da Roza Miss Mandy Wong
Clinical Advisory Panel
Dr Janice Tsang Miss June Leung Dr Gary Ma Mr David Ling Dr Mark Tien Miss Elsa Eng Mrs Ruly Tsang Dr K. K. Lam Mr M. V. Teo Dr Adeline Teo
Liverpool Branch
Mr Jonathan Wan Miss Susan Wong
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