Center for Hospice, Palliative Care & End-of-Life Studies at USF

13201 Bruce B. Downs Blvd., MHC 1305A, Tampa, FL 33612 813-974-9808

Center for Hospice, Palliative Care & End-of-Life Studies at USF

2005 Annual Report Mission Statement

The mission of the Center is to optimize care and systems of care for patients and families faced with non-curable diseases by generating new knowledge through interdisciplinary research, using that knowledge to educate health and human service professionals, DQGLQÁXHQFLQJSXEOLFSROLF\VXSSRUWLQJ quality end of life care.

The USF Center for Hospice, Palliative Care & End-Of-Life Studies

Executive Summary TKH&HQWHUIRU+RVSLFH3DOOLDWLYH&DUHDQG (QGRI/LIH6WXGLHVDW86)KDVHQMR\HGDQRWKHU \HDURIJURZWKDQGQHZDFFRPSOLVKPHQWV 2QHRIWKH&HQWHU·VJRDOVLVWRWUDLQJUDGXDWH VWXGHQWVLQWKHÀHOGRISDOOLDWLYHFDUHDQGHQGRI OLIHVWXGLHVDQGZHFHOHEUDWHGWKHVSHFLDODF FRPSOLVKPHQWVWKLV\HDURIWZRIRUPHUGRFWRUDO students associated with our Center. Allison Burton, PhD, Center Graduate Research Assistant in 2001, has been appointed as  D3RVWGRFWRUDO5HVHDUFK)HOORZ  DWWKH'XUKDP9$SDUWRIWKH  'XNH8QLYHUVLW\0HGLFDO&HQWHU  'U%XUWRQFUHGLWVWKH&HQWHUIRU helping her to develop a training program dur LQJKHUGRFWRUDOVWXGLHVLQWKH6FKRRORI$JLQJ 6WXGLHVDW86)DQGLVJUDWHIXOIRUWKHUHVHDUFK opportunities made available to her. Dr. Burton is DSURPLVLQJUHVHDUFKHULQHQGRIOLIHVWXGLHVDQG DFUHGLWWRWKH&HQWHUDQGWR86) Elissa Foster, PhD, IRUPHUGRF toral student in the Department RI&RPPXQLFDWLRQDW86)UHFHLYHG a Center Pilot Research Grant in  LQVXSSRUWRIKHUVWXG\  ´&RPPXQLFDWLRQDWWKH(QGRI  /LIH/HVVRQVIURP+RVSLFH9RO unteers.” Dr. Foster has written a book about her experiences entitled, “Communication and 5HODWLRQVKLSVLQ+RVSLFH9ROXQWHHUVDQG3DWLHQWV Finding Magic in the Mundane,” which will be published in June 2006 by Lawrence Erlbaum Publishers. Dr. Foster is currently an Assistant 3URIHVVRULQWKH'HSDUWPHQWRI&RPPXQLFDWLRQ DW6DQ-RVH6WDWH8QLYHUVLW\

Other Center members are making headlines as well. Kathleen Egan, MA, BSN, CHPN, Community Director of the Center, ZDVDZDUGHGWKH-RVHÀQD Magno Excellence in Education and Leadership Award at the 7th  $QQXDO-RVHÀQD0DJQR&RQIHU  HQFH6HULHVKHOG1RYHPEHU 2005, at Capital Hospice, Falls Church, Virginia.  

7KHSXEOLFDWLRQRIWKHUHVXOWVRID JURXQGEUHDNLQJUDQGRPL]HGFOLQL cal trial conducted by Susan McMillan, PhD, ARNP, FAAN in the journal Cancer in December  KDVDOVRUHFHLYHGDORWRI  ZHOOGHVHUYHGDWWHQWLRQ7KH VWXG\HYDOXDWHGWKHLPSDFWRIDFRSLQJVNLOOV LQWHUYHQWLRQZLWKIDPLO\FDUHJLYHUVRIKRVSLFH patients with cancer, and was conducted in col laboration with Center members Brent Small, PhD; Ronald Schonwetter, MD; and William E. +DOH\3K'7KHVWXG\ZKLFKZDVIXQGHGE\WKH National Cancer Institute and the National Insti WXWHRI1XUVLQJ5HVHDUFKIRXQGWKDWWKHFRSLQJ LQWHUYHQWLRQZDVHIIHFWLYHLQLPSURYLQJFDUHJLYHU TXDOLW\RIOLIHDQGUHGXFLQJFDUHJLYHUEXUGHQUH lated to patients’ symptoms and caregiving tasks. The Center is increasingly visible in our local area as well as regionally and nationally. An article about the Center and hospice care was published in MD News in November 2005. The Center’s FRQIHUHQFH“Quality and Meaning at the Endof-Life: Practice, Research and Policy,” was attended E\RYHUUHVHDUFKHUVDQGFOLQLFLDQVIURPWKH Southeast region and around the country.

7KHFRQIHUHQFHZDVKHOG0DUFKDQG IHDWXUHGWZRSUHFRQIHUHQFHZRUNVKRSV6XVDQ McMillan, PhD, RN, FAAN presented a work VKRSRQGHVLJQLQJHQGRIOLIHUHVHDUFKSURMHFWV 'U0F0LOODQLVDPHPEHURIWKH&HQWHU·V([HFX WLYH&RPPLWWHHDQGDOVR&KDLURIWKH5HVHDUFK &RPPLWWHH5REHUW1HLPH\HU3K'8QLYHUVLW\RI Memphis, presented a workshop on process in WHUYHQWLRQVIRUJULHIWKHUDSLVWV2WKHUFRQIHUHQFH KLJKOLJKWVLQFOXGHGWKHSUHVHQWDWLRQRIVL[FRP petitively selected research papers, and plenary DQGEUHDNRXWVHVVLRQVWKDWGLVVHPLQDWHGVWDWHRI WKHDUWUHVHDUFKÀQGLQJVRQWKH)ORULGDPRGHORI KRVSLFHFDUHWKHUROHRIVSLULWXDOLW\LQHQGRIOLIH FDUHDQGLPSOHPHQWLQJLQSDWLHQWSDOOLDWLYHFDUH services.

Diverse Conditions (Cancer, Dementia and Heart Disease),ZKLFKZLOOEHKHOG2FWREHUDW the Renaissance Tampa Hotel International Plaza LQ7DPSD)ORULGD2XUSDUWQHUVKLSFRQIHUHQFH SURPLVHVWREULQJVWDWHRIWKHDUWUHVHDUFKDERXW HQGRIOLIHDQGSDOOLDWLYHFDUHIRUWKHVHKHDOWK FRQGLWLRQVWRFRQIHUHQFHSDUWLFLSDQWVDQGZLOO IHDWXUHNH\QRWHVSHDNHUVZKRDUHOHDGHUVLQRXU Center—Susan McMillan, PhD, RN, FAAN; Wil liam Haley, PhD; and Ladislav Volicer, MD, PhD. The Center has a new website, www.eolcenter. usf.edu,ZKLFKKDVXSWRGDWHLQIRUPDWLRQRQ WKHDFWLYLWLHVDQGPHHWLQJVRIWKH&HQWHUDVZHOO as links to our community partners and other UHVRXUFHVLQHQGRIOLIHDQGSDOOLDWLYHFDUH

7KH&HQWHU·V&RQIHUHQFH3ODQQLQJ&RPPLWWHH chaired by Lori Roscoe, PhD, is planning our WKFRQIHUHQFHBuilding Bridges: Interdisciplinary Paths to Palliative & End-of-Life Care for People with

7KDQN\RXIRU\RXUFRQWLQXHGLQWHUHVWLQWKH &HQWHUIRU+RVSLFH3DOOLDWLYH&DUH (QGRI/LIH 6WXGLHVDW86)Q

Kathleen Egan, MA, BSN, CHPN Center Community Director Vice President, The Hospice Institute of the Florida Suncoast

William E. Haley, PhD Center Academic Director Professor and Director, School of Aging Studies

Executive Committee & Staff The Center is governed by an Executive Committee representing community providers and university IDFXOW\IURPYDULRXVGLVFLSOLQHVWKDWUHSUHVHQWWKHFRQWLQXXPRIFDUHXWLOL]HGLQKRVSLFHSDOOLDWLYHFDUH DQGHQGRIOLIHVWXGLHV

2006 Executive Committee Academic Partners

2006 Executive Committee Community Partners

William Haley, PhD Academic Director 6FKRRORI$JLQJ6WXGLHV 8QLYHUVLW\RI6RXWK)ORULGD

Kathleen Egan, MA, BSN, CHPN Community Director 7KH+RVSLFH,QVWLWXWHRIWKH)ORULGD Suncoast

Iraida Carrion, MSW, LCSW 6FKRRORI6RFLDO:RUN 8QLYHUVLW\RI6RXWK)ORULGD

Kristine Donovan, PhD +/HH0RIÀWW&DQFHU&HQWHU Research Institute

June Leland, MD James A. Haley Veterans Hospital 8QLYHUVLW\RI6RXWK)ORULGD Susan McMillan, PhD, ARPN, FAAN &ROOHJHRI1XUVLQJ 8QLYHUVLW\RI6RXWK)ORULGD Hana Osman, PhD Community and Family Health 8QLYHUVLW\RI6RXWK)ORULGD Lori Roscoe, PhD 6FKRRORI$JLQJ6WXGLHV 8QLYHUVLW\RI6RXWK)ORULGD

Christina Gallagher, PhD Hope Hospice and Palliative Care, Inc. Sehwan Kim, PhD /LIH3DWK+RVSLFHDQG3DOOLDWLYH&DUH,QF Joseph Polubinski, PhD 7KH+RVSLFH,QVWLWXWHRIWKH)ORULGD Suncoast Ronald Schonwetter, MD /LIH3DWK+RVSLFHDQG3DOOLDWLYH&DUH,QF Debra French, RN, MS, CS TideWell Hospice and Palliative Care David Weiland, MD 7KH+RVSLFHRIWKH)ORULGD6XQFRDVW

Staff Nancy Hallford 6FKRRORI$JLQJ6WXGLHV 8QLYHUVLW\RI6RXWK)ORULGD

Center Partners • Founding Partners •

• Sponsors •

University of South Florida Health Sciences Center

H. Lee Moffitt Cancer Center & Research Institute

KWWSKVFXVIHGX

KWWSZZZPRIÀWWXVIHGX

Lifepath Hospice & Palliative Care, Inc.

Hope of Southwest Florida

KWWSZZZOLIHSDWKKRVSLFHRUJ

KWWSZZZKRSHKRVSLFHRUJLQGH[KWP

The Hospice of Florida Suncoast

TideWell Hospice and Palliative Care

KWWSZZZWKHKRVSLFHRUJLQGH[KWP

KWWSZZZ7LGH:HOORUJ

The Center’s Community Partners The Center’s Community Partners are com SULVHGRIIRXUKRVSLFHV³7KH+RVSLFHRIWKH )ORULGD6XQFRDVW/LIH3DWK+RVSLFHDQG3DOOLD WLYH&DUH,QF+RSHRI6RXWKZHVW)ORULGDDQG TideWell Hospice and Palliative Care—as well at WKH+/HH0RIÀWW&DQFHU&HQWHUDQG5HVHDUFK,Q VWLWXWH0RUHLQIRUPDWLRQRQHDFKRIWKH&HQWHU·V SDUWQHUVFDQEHIRXQGE\FOLFNLQJRQWKHLUZHE VLWHVVHHSDJH (DFKRIRXU&RPPXQLW\3DUW QHUVLVGHVFULEHGEULHÁ\EHORZ

H. Lee Moffitt Cancer Center & Research Institute 7KH+/HH0RIÀWW&DQFHU&HQWHUDQG5HVHDUFK ,QVWLWXWHDWWKH8QLYHUVLW\RI6RXWK)ORULGDLV )ORULGD·VRQO\1DWLRQDO&DQFHU,QVWLWXWHGHVLJ nated Comprehensive Cancer Center and serves DSRSXODWLRQEDVHRIRYHUPLOOLRQLQGLYLGXDOV

7KH&HQWHUUDQNVWKLUGLQWKH8QLWHG6WDWHVLQ WHUPVRIWRWDOSDWLHQWYROXPH$PRQJ0RIÀWW·V many exemplary research and clinical depart ments is its Psychosocial and Palliative Care Program. The program is designed to address the emotional, social, spiritual, and physical needs RISHRSOHDIIHFWHGE\FDQFHU&OLQLFDOVHUYLFHVDUH provided by a multidisciplinary team comprised RISURIHVVLRQDOVZLWKH[SHUWLVHLQFOLQLFDOVRFLDO work, hospital chaplaincy, clinical psychology, FRQVXOWDWLRQOLDLVRQSV\FKLDWU\SKDUPDF\QHX rology, and pain management. Other services provided through the Psychosocial and Palliative &DUH3URJUDPLQFOXGHSURIHVVLRQDOO\OHGVXSSRUW groups, rehabilitative services, the Arts in Medi cine Program, the Integrative Medicine Program, and Families First Program, a program designed IRUFKLOGUHQRIFDQFHUSDWLHQWVDQGWKHLUIDPLOLHV

The Center’s Hospice Partners The hospices that are partners in the Center KDYHRQHRIWKHODUJHVWKRVSLFHSDWLHQWSRSXOD WLRQVLQWKH8QLWHG6WDWHVDQGWRJHWKHUKDGDQ DYHUDJHGDLO\FHQVXVRI5,790 patients in 2005. $YDVWDUUD\RIVHUYLFHVDUHRIIHUHGWRWKHLUKRV SLFHSDOOLDWLYHFDUHDQGHQGRIOLIHFRQVWLWXHQWV WKURXJKRXW:HVW&HQWUDO)ORULGDDQGHDFKRIRXU community partner hospices is described below.

The Hospice of Florida Suncoast 7KH+RVSLFHRIWKH)ORULGD6XQFRDVWZDVIRXQGHG QHDUO\\HDUVDJRE\FRQFHUQHGFLWL]HQVRI Pinellas County who were dedicated to improv LQJWKHTXDOLW\RIOLIHRIORYHGRQHVDQGQHLJKERUV DVWKH\QHDUHGOLIH·VHQG1RZPRUHWKDQ SDWLHQWVDQGIDPLOLHVDUHVHUYHGGDLO\E\7KH +RVSLFH·VFRPSDVVLRQDWHVWDIIDQGQHDUO\ committed volunteers. The Hospice mission centers on patients and IDPLOLHVKRQRULQJWKHLUZLVKHVDQGGLJQLW\DV well as providing comprehensive hospice and SDOOLDWLYHFDUH:KDWDUHVRPHRIWKHPRVWLP SRUWDQWDVSHFWVRISDOOLDWLYHFDUH",QEULHIcomfort

– relief from pain and suffering – lessening anxiousness – enhancing quality of life. Counseling and VSLULWXDOVXSSRUWDUHDYDLODEOHDVZHOODQGIDPL lies are assisted as they become caregivers and VXSSRUWHGLQWLPHVRIJULHI As a community hospice in tune with its neighbors, The Hospice provides individual DQGJURXSFRXQVHOLQJIRUUHVLGHQWVRI3LQHOODV County, as well as various training and education RSSRUWXQLWLHV$OHDGHULQLWVÀHOG7KH+RVSLFH has always been directed by the philosophy that SODFHVSDWLHQWVDQGWKHLUIDPLOLHVDWWKHKHDUWRI its mission, developing innovative programs and services based upon their expressed needs and desires.

LifePath Hospice & Palliative Care, Inc. /LIH3DWK+RVSLFH 3DOOLDWLYH&DUH,QFLVDQRW IRUSURÀWFRPPXQLW\EDVHGRUJDQL]DWLRQHVWDE OLVKHGLQ/LIH3DWK+RVSLFHDQG3DOOLDWLYH &DUH,QF/+3& GRHVEXVLQHVVDV/LIH3DWK+RV pice in Hillsborough County and Good Shepherd

Hospice in Polk, Highlands and Hardee counties. 7KHPLVVLRQRIWKHDJHQF\LVWRSURYLGHTXDOLW\ SDOOLDWLYHFDUHDQGUHOLHYHWKHVXIIHULQJRIWKRVHLQ RXUFRPPXQLWLHVDIIHFWHGE\OLIHOLPLWLQJLOOQHVVHV DQGHQGRIOLIHLVVXHVZKLOHPDLQWDLQLQJWKH KLJKHVWHWKLFDOVWDQGDUGVVRDOOPD\OLYHDVIXOO\ DQGFRPIRUWDEO\DVSRVVLEOH/LIH3DWK+RVSLFH·V VHUYLFHVDUHDYDLODEOHIRUSDWLHQWVZKRKDYHEHHQ GLDJQRVHGWREHLQWKHODVWPRQWKVRIDOLIHOLP LWLQJLOOQHVV7KHFRUHSXUSRVHRI/LIH3DWK+RV pice and Palliative Care, Inc. is to make the most RIOLIH $VWKHODUJHVWIUHHVWDQGLQJQRWIRUSURÀWKRV pice in the nation, LHPC continues to be a leader in program development, research and other LQQRYDWLRQVLQWKHTXDOLW\RIOLIHWKDWPHHWWKH SDOOLDWLYHQHHGVRIRXUSDWLHQWV'XULQJ ZHKDGIXOOWLPHUHJXODUO\VFKHGXOHGSDUW WLPHDQG´DVQHHGHGµSRROHPSOR\HHVDV ZHOODVYROXQWHHUV/LIH3DWK+RVSLFHFDUHG IRURIDOOGHDWKVLQ+LOOVERURXJK&RXQW\LQ ZKLOH*RRG6KHSKHUG+RVSLFHFDUHGIRU RIDOOGHDWKVLQ3RON+LJKODQGVDQG+DUGHH counties. 'XULQJWKHVDPH\HDUZHVHUYHGSDWLHQWVRI ZKLFKZHUHQHZDGPLVVLRQV7KHDYHUDJH GDLO\FHQVXVKDVEHHQSDWLHQWVUHDOL]HGE\ JURZWKUDWHRIDYHUDJHGDLO\FHQVXVLQ+LOOV ERURXJKDQGLQRWKHUFRXQWLHVFRPSDUHGWR WKHSUHYLRXV\HDU,QSK\VLFLDQVUHIHUUHG patients to LHPC and 172 nursing homes and DVVLVWHGOLYLQJIDFLOLWLHVSDUWQHUHGZLWK/+3& +LJKOLJKWVRIWKH\HDULQFOXGHGRSHQLQJDEHG acute inpatient unit in Temple Terrace, ground EUHDNLQJIRUDVHFRQGEHGXQLWLQ6XQ&LW\ &HQWHUDVZHOODVDUHRSHQLQJRIRXUEHG+RV pice House at Palm Terrace in Lakeland, which was damaged and closed due to the devastating KXUULFDQHVHDVRQ$KRVSLWDOEDVHGSDOOLDWLYHFDUH consult service opened in 2005 with a partnership ZLWK8QLYHUVLW\&RPPXQLW\+RVSLWDOLQ7DPSD A partnership with the National Hospice and Pal OLDWLYH&DUH2UJDQL]DWLRQSURYLGHGWKHIRXQGD WLRQIRU3URMHFW/,9(ZKLFKKHOSHGWRH[SDQGWKH GHYHORSPHQWDQGXVHRIDGYDQFHGLUHFWLYHVLQRXU communities. A $100,000 grant was awarded by WKH8QLWHG:D\LQ3RON&RXQW\WRVXSSRUWEH reavement and caregiver programs in that area.

/LIH3DWK+RVSLFHFRQWLQXHVWREHDOHDGHULQFOLQL cal, psychosocial and etiological research that HQKDQFHVWKHTXDOLW\RIOLIHDQGSDOOLDWLYHQHHGV RIRXUSDWLHQWVDQGWKHLUIDPLOLHV0RVWRIRXU NQRZOHGJHLVJHQHUDWHGIURPRXUÀHOGEDVHGUH VHDUFKDQGWKHÀQGLQJVDUHSDFNDJHGDVWUDLQLQJ FXUULFXOXPPDWHULDOVE\RXU(GXFDWLRQ'HSDUW PHQWIRUSURJUDPLPSURYHPHQW,Q/LIH3DWK +RVSLFHVWDIISUHVHQWHGSDSHUVRQSDOOLDWLYH FDUHIRUWKHG\LQJLQVHYHUDOQDWLRQDODQGUHJLRQDO FRQIHUHQFHVDQGWZRSDSHUVZHUHSXEOLVKHGLQ SHHUUHYLHZHGMRXUQDOV:HKDYHHQJDJHGLQIRXU clinical trials in cooperation with major uni versities and a pharmaceutical company. Other intramural research projects conducted in 2005 LQFOXGHG&RQJHVWLYH+HDUW)DLOXUH3DWLHQWVDQG (PHUJHQF\5RRP9LVLWV6WDII6SLULWXDOLW\DQG-RE 6DWLVIDFWLRQDQG'HWHUPLQLQJ3UHGLFWRUVRI)DOOV among Hospice Patients.

Hope of Southwest Florida Hope of Southwest Florida LVDQRWIRUSURÀW FRPPXQLW\EDVHGKHDOWKFDUHDJHQF\WKDWSUR YLGHVDYDULHW\RIVHUYLFHVWRDOOSHRSOHZLWK complex needs related to transitions, loss and HQGRIOLIHLQFOXGLQJ Hope Hospice, which enables seriously ill pa WLHQWVDQGWKHLUIDPLOLHVWRH[SHULHQFHWKHÀQDO VWDJHRIOLIHWRJHWKHULQDVHWWLQJPRVWFRPIRUW DEOHWRWKHPDQGZKLFKHPSKDVL]HVTXDOLW\RI OLIHLQVWHDGRILWVGXUDWLRQ6HUYLFHVDUHSURYLGHG UHJDUGOHVVRIDSDWLHQW·VDELOLW\WRSD\ Pathways of Hope, a community counseling SURJUDPWKDWSURYLGHVRQHRQRQHFRXQVHOLQJ support groups, psychotherapy, crisis manage ment, burnout prevention, consultation, training and education and supports schools, businesses, ODZHQIRUFHPHQWKHDOWKFDUHSURIHVVLRQDOVDQG other community organizations. Hope LifeCare,ZKLFKSURYLGHVVHUYLFHVIRULQGL YLGXDOVZKRQHHGVRPHDVVLVWDQFHLQWKHLUGD\WR GD\DFWLYLWLHVEXWGRQRWUHTXLUHWKHIXOOWLPHFDUH provided by a nursing home.

TideWell Hospice and Palliative Care TideWell Hospice and Palliative Care is a private, QRWIRUSURÀWRUJDQL]DWLRQRIIHULQJFRPSUHKHQ sive care and services in hospice and palliative

FDUHWRUHVLGHQWVRI&KDUORWWH'HVRWR0DQDWHH and Saratsota counties. Emphasizing choice and GLJQLW\WKHVWDIIDQGYROXQWHHUVDUHFRPPLWWHG WRDGYDQFLQJTXDOLW\HQGRIOLIHSURJUDPVE\ rpoviding direct support, education, and research at local state, and national levels. In addition, WKHRUJDQL]DWLRQSURYLGHVKRPHEDVHGVHUYLFHV through Journeys HomeCare and through Transitions,DYROXQWHHUVXSSRUWHGSURJUDPIRUQRQ hospice clients.

TideWell Hospice and Palliative Care believes in VKDULQJNQRZOHGJHDERXWWKHEHQHÀWVRIKRVSLFH and palliative care with all its communities. Gen HUDOLQIRUPDWLRQLVVKDUHGLQDYDULHW\RIVHWWLQJV LQFOXGLQJDVSHFLDOL]HGSURJUDPGHVLJQHGIRU IDLWKEDVHGFRPPXQLWLHV(GXFDWLRQLQVWUXFWLRQ LVSUHVHQWHGWRPXOWLSOHPHGLFDOSURIHVVLRQVZLWK a new emphasis on experiential learning oppor WXQLWLHVIRUPHGLFDOVWXGHQWVHQUROOHGLQWZRORFDO medical colleges.

TideWell Hospice and Palliative Care is diligent in its commitment to the communities it serves. +RVSLFH+RXVHVZLWKDGMDFHQWDGPLQLVWUDWLYH WHDPEXLOGLQJVKDYHEHHQHVWDEOLVKHGLQÀYHYDUL RXVVLWHVLQDQHIIRUWWRNHHSFDUHDWDORFDOOHYHO 7ZRDGGLWLRQDOVLWHVDUHLQGLIIHUHQWSKDVHVRI FRQVWUXFWLRQWRIXUWKHUH[SDQGWKLVXQLTXHRXW reach.

7LGH:HOO+RVSLFHDQG3DOOLDWLYH&DUHRIIHUVGL verse bereavement programs to all communities. Children and adolescents participate in school programs, camps, and individual and group sup port programs. Adults are supported with their JULHIWKURXJKWUDGLWLRQDOEHUHDYHPHQWJXLGDQFH programs and in specialized classes including ex SUHVVLYHDUWDQGOLIHVNLOOVOHDUQLQJRSSRUWXQLWLHV

Members I

Q&HQWHUPHPEHUVLQFOXGHGDSSUR[LPDWHO\LQGLYLGXDOPHPEHUVFRPSULVHGRIXQLYHUVLW\ IDFXOW\DQGVWXGHQWVDQGKHDOWKDQGKXPDQVHUYLFHSURIHVVLRQDOVLQYDULRXVVSHFLDOWLHVUHODWHGWR KRVSLFHSDOOLDWLYHFDUHDQGHQGRIOLIHVWXGLHV7KH&HQWHUPHPEHUVUHSUHVHQWDFDGHPLFDQGFRPPX QLW\LQWHUHVWVZKLFKZRUNWRJHWKHUWRLPSURYHWKHTXDOLW\RIOLIHIRUSDWLHQWVDQGWKHLUIDPLOLHVGXULQJ VHULRXVFKURQLFLOOQHVVDQGDWWKHHQGRIOLIH 0HPEHUVKLSLVRSHQWRDQ\LQGLYLGXDOZLWKDQLQWHUHVWLQKRVSLFHSDOOLDWLYHFDUHDQGHQGRIOLIH research and practice.

Committees Deborah French, RN, MS, CS, Administrative 'LUHFWRURI(GXFDWLRQMRLQHGWKH&HQWHU·V ([HFXWLYH&RPPLWWHHDVDUHSUHVHQWDWLYHRI 7LGH:HOO+RVSLFHDQG3DOOLDWLYH&DUHIRUPHUO\ +RVSLFHRI6RXWKZHVW)ORULGD LQ

,QDGGLWLRQWR'U5RVFRHRWKHUPHPEHUVRIWKH FRQIHUHQFHSODQQLQJFRPPLWWHHLQFOXGH:LOOLDP +DOH\3K'1DQF\+DOOIRUG6HKZDQ.LP3K' Susan McMillan, PhD, ARPN, FAAN; Hana Os man, PhD; Joseph Polubinski, PhD; Mary Lou Proch, EdD; Jocelyn Rowe, MD; Ronald Schon wetter, MD; and Ladislav Volicer, MD, PhD.

Conference Planning Committee

Research Committee

'XULQJWKH&RQIHUHQFH3ODQQLQJ&RPPLW tee, chaired by Lori Roscoe, PhD, was actively LQYROYHGLQSODQQLQJRXUXSFRPLQJFRQIHUHQFH ´%XLOGLQJ%ULGJHV,QWHUGLVFLSOLQDU\3DWKVWR 3DOOLDWLYH (QGRI/LIH&DUHIRU3HRSOHZLWK Diverse Conditions (Cancer, Dementia, and Heart 'LVHDVH7KHFRQIHUHQFHZLOOWDNHSODFH2FWREHU DQGZLOOIHDWXUHQDWLRQDOO\DQGLQWHU QDWLRQDOO\NQRZQH[SHUWVLQWKHLUÀHOGVZKRDUH DOVRPHPEHUVRIWKH&HQWHU:LOOLDP(+DOH\ PhD; David McGrew, MD; Susan C. McMillan, PhD, ARPN, FAAN; Cynthia Myers, PhD, LMT; Ronald Schonwetter, MD; and Ladislav Volicer, MD, PhD.

The Research Committee reviews abstracts VXEPLWWHGIRUFRQVLGHUDWLRQDVUHVHDUFKSDSHUV DQGSRVWHUVIRU&HQWHUFRQIHUHQFHVUHYLHZVSLORW JUDQWDSSOLFDWLRQVVXEPLWWHGIRU&HQWHUIXQG LQJDQGLGHQWLÀHVIXQGLQJRSSRUWXQLWLHVIRU FROODERUDWLYHHQGRIOLIHUHVHDUFK7KH5HVHDUFK Committee was chaired by Susan McMillan, PhD, ARPN, FAAN; who was then succeeded by Joseph Polubinski, PhD. Members include Susan 0F0LOODQ3K'51)$$16HKZDQ.LP3K' and Brent Small, PhD.

Executive Committee

Active Grant Projects IQYHVWLJDWRUVDIÀOLDWHGZLWKWKH&HQWHUIRU+RVSLFH3DOOLDWLYH&DUHDQG(QGRI/LIH6WXGLHVDW86) KDYHEHHQWKHUHFLSLHQWVRIIHGHUDOVWDWHDQGLQVWLWXWLRQDOJUDQWIXQGVLQPDQ\DUHDVRIHQGRIOLIH studies. Center members are indicated in bold type. Grants that were awarded or active during 2005 LQFOXGH Psychosocial Impact of Stroke on Family Caregivers 3ULQFLSDO,QYHVWLJDWRUDavid Roth, PhD, (UAB) &ROODERUDWRUWilliam Haley, PhD  VXEFRQWUDFW 1DWLRQDO,QVWLWXWHRI1HXURORJLFDO'LVRUGHUVDQG 6WURNH516$

USF Scholars in Patient-Oriented Research 3ULQFLSDO,QYHVWLJDWRU=XFNHUPDQ &ROODERUDWRUSusan C. McMillan, PhD, ARNP, FAAN   1DWLRQDO,QVWLWXWHRI+HDOWK.+/

Caregivers of Cancer Pain Patients: Coping Intervention 3ULQFLSDO,QYHVWLJDWRU Susan McMillan, PhD, ARNP, FAAN &ROODERUDWRUVBrent Small, PhD; Kristine Donovan, PhD   1DWLRQDO,QVWLWXWHIRU1XUVLQJ5HVHDUFK 515

Prospective Study of Sexual Health in Early Cervical Cancer 3ULQFLSDO,QYHVWLJDWRUKristine A. Donovan, PhD   American Cancer Society Mentored Research 6FKRODU*UDQW056*&33%

Use of Standardized Assesssments to Improve Hospice Outcomes 3ULQFLSDO,QYHVWLJDWRUSusan McMillan, PhD, ARNP, FAAN &ROODERUDWRUVWilliam Haley, PhD; Brent Small, PhD; Ronald Schonwetter, MD  $1,700,000 1DWLRQDO,QVWLWXWHIRU1XUVLQJ5HVHDUFK 515 Florida’s Minority Elders: An Assessment of Physical and Mental Health Service Needs 3ULQFLSDO,QYHVWLJDWRUVJennifer Salmon, PhD; Kathryn Hyer, PhD &ROODERUDWRUWilliam E. Haley, PhD   $GPLQLVWUDWLRQRQ$JLQJ$0

Post-doctoral Public Sector Interdisciplinary Training 3ULQFLSDO,QYHVWLJDWRUVictor Molinari, PhD &ROODERUDWRUWilliam E. Haley, PhD  $667,767 %XUHDXRI+HDOWK3URIHVVLRQV University of South Florida Education and Information Core 3DUWRIDQ$O]KHLPHU·V'LVHDVH5HVHDUFK&HQWHU Grant) 3ULQFLSDO,QYHVWLJDWRUV(ULF3IHLIIHU0' Huntington Potter, PhD &ROODERUDWRUWilliam E. Haley, PhD   1DWLRQDO,QVWLWXWHRQ$JLQJ3$* Cognitive-Behavioral Aspects of Cancer-Related Fatigue &ROODERUDWRUKristine A. Donovan, PhD   1DWLRQDO&DQFHU,QVWLWXWH5&$

Massage Therapy for Children, Adolescents, and Young Adults at End of Life 3ULQFLSDO,QYHVWLJDWRUCynthia D. Myers, PhD &ROODERUDWRUSehwan Kim, PhD   1DWLRQDO&DQFHU,QVWLWXWH5&$$ Home-Based Massage and Relaxation for Sickle Cell Pain 3ULQFLSDO,QYHVWLJDWRUCynthia D. Myers, PhD  $250,000 1DWLRQDO&HQWHUIRU&RPSOHPHQWDU\DQG$OWHUQD WLYH0HGLFLQH5$7 Examining Disparities in Advance Care Planning Among Poor Elders in Southwest Florida 3ULQFLSDO,QYHVWLJDWRUKathy Black, PhD &ROODERUDWRUVHana Osman, PhD; Sandra Reyn olds, PhD  $20,000 ,QWHUGLVFLSOLQDU\6\QHUJ\*UDQW6FKRRORI 0HGLFLQH8QLYHUVLW\RI6RXWK)ORULGD

Living with Memory Impairment—Assessing the Needs of Families with Mild Cognitive Impairment 3ULQFLSDO,QYHVWLJDWRUWilliam E. Haley, PhD &ROODERUDWRU-HVVLFD0F,OYDQH3K'  6XEFRQWUDFW 6DUDVRWD0HPRULDO+RVSLWDOIURPDJUDQWIURP the Johnnie B. Byrd Sr. Alzheimer’s Center and Research Institute Predictors of Sexual Heaalth in Early Stage Cervical Cancer 3ULQFLSDO,QYHVWLJDWRUKristine A. Donovan, PhD  $20,000 American Cancer Society Institutional Grant 3URJUDPDWWKH+/HH0RIÀWW&DQFHUFHWQHU  5HVHDUFK,QVWLWXWH$&6,5* Understanding Communication about Symptoms in Children with Serious Illness 3ULQFLSDO,QYHVWLJDWRU/RQQLH=HOWHU0' &ROODERUDWRUCynthia Myers, PhD (Consultant)  Glaser Pediatric Research Network

2005 Center Meeting Presentations Center members attend monthly meetings to get updates on projects, network about research oppor tunities, and share news about educational and policy initiatives. Every other month, a research presen WDWLRQE\D&HQWHUPHPEHURULQYLWHGJXHVWKLJKOLJKWVQHZÀQGLQJV January 25, 2005 Jennifer Salmon, PhD,6FKRRORI$JLQJ6WXGLHV and Kathleen Egan, MA, BS, CHPN, The Hospice ,QVWLWXWH+RVSLFHRIWKH)ORULGD6XQFRDVW ´%HQHÀWVRI7UDLQLQJ(QGRI/LIH&DUHJLYHUVµ March 22, 2005 Ladislav Volicer, MD, PhD 6FKRRORI$JLQJ6WXGLHV “Palliative Care for Individuals with a Progressive Degenerative Dementia” May 24, 2005 Lora Azzarello, PhD +/HH0RIÀWW&DQFHU&HQWHUDQG5HVHDUFK Institute “Depression in Geriatric Cancer Patients”

July 26, 2005 Dorothy Helen Moore, PhD 9$3DWLHQW6DIHW\&HQWHU ´3V\FKRVRFLDO,QÁXHQFHVRQWKH7LPLQJRI0RUWDOLW\µ September 27, 2005 Ronald Schonwetter, MD,/LIH3DWK+RVSLFH  Palliative Care, Inc. Lori Roscoe, PhD,6FKRRORI$JLQJ6WXGLHV86) Sehwan Kim, PhD, /LIH3DWK+RVSLFH 3DOOLDWLYH Care, Inc. “Quality-of-Life and Symptom Control in Hospice Cancer Patients Receiving Chemotherapy” November 29, 2005 Elizabeth Bergman, PhD,6WXGHQW6FKRRORI $JLQJ6WXGLHV86) “Hospice Bereavement Service Utilization and Preferences Among Spouses in Hospice”

2005 Presentations by Center Members at National Conferences MHPEHUVRIWKH&HQWHUDUHDFWLYHSDUWLFLSDQWVLQPDQ\QDWLRQDODVVRFLDWLRQVDQGPDNHQXPHURXVSUH VHQWDWLRQVDWQDWLRQDOVFLHQWLÀFPHHWLQJV7KHIROORZLQJLVDUHSUHVHQWDWLYHOLVWRISUHVHQWDWLRQVGXULQJ 2005. In addition, Center members gave numerous invited lectures and research presentations at local DQGUHJLRQDOFRQIHUHQFHVDQGKRVSLFHVDQGRWKHUKHDOWKFDUHDJHQFLHV

JANUARY American Psychosocial Oncology Society 2nd Annual Conference. Phoenix, Arizona Azzarello, L.M., Small, B.J., Weitzner, M.A.,  -DFREVHQ3% “Major Depression at the End of Life” Donovan, K.A.,7DOLDIHUUR/$ -DFREVHQ P.B. “Problems with Sexual Interest or Activity in a Sample of Ambulatory Cancer Patients Referred for Pain Management” Haley, W.E. “Family Caregiver Intervention in Hospice: Results of a Randomized Trial”  7DOLDIHUUR/$Donovan, K.A., -DFREVHQ P.B. ´5HODWLRQVKLSRI3DLQ0DQDJHPHQW,QGH[WR 4XDOLW\RI/LIHLQ$PEXODWRU\&DQFHU3DWLHQWVµ

American Association of Hospice and Palliative Medicine/Hospice and Palliative Nurses Association Annual Scientific Meeting, New Orleans, Louisiana Schonwetter, R.S.1ZRVX0=LOND% Roscoe, L.A. “Chemotherapy Use among Hospice Cancer Patients”

FEBRUARY National Gerontological Social Work Conference at the Council on Social Work Education Annual Program Meeting, New York, New York Black, K. “Social Workers’ Death Attitudes, Experiences, and Advance Directive Communication Behavior: Implications for Training and Practice”

MARCH Quality and Meaning at the End-of-Life: Practice, Research and Policy,” Center for Hospice, Palliative Care and End of Life Studies at USF, Tampa, Florida Bergmann, E., Polubinkski, J.P. “Both Sides of the Coin: Factors in the Decision to Choose or Not Choose Hospice” Black, K. “Health Care Professionals’ Advance Directive Communication Practices with Hospitalized Elders” Egan, K. ´%HQHÀWVRI7UDLQLQJ(QGRI/LIH&DUHJLYHUµ Myers, C.D. “Integrative Medicine: Complementary Therapies in Cancer Care” Roscoe, L.A., Hyer, K., Engh, B. “Nursing and Hospice Staff Members’ Perceptions RI$ELOLW\WR,QÁXHQFH(QGRI/LIH&DUHLQ1XUVLQJ Homes”

H. Lee Moffitt Cancer Center & Research Institute, Skill Building in Psychosocial Oncology, Tampa, Florida Donovan, K. “Identifying Patients in Need of Psychosocial Intervention” Myers, C.D. “Integrative Medicine in Cancer Care”

The Academy of Elder Law Attorneys 2005 Elder Concert, Tampa, Florida Egan, K. ´7KH%HQHÀWVRI+RVSLFHµ

APRIL

The Hospice of the Florida Suncoast Cross Bayou Center, Largo, Florida

Twenty-sixth Annual Scientific Sessions of the Society of Behavioral Medicine, Boston, Massachusetts

Egan, K. “ELNEC –Nursing Care at the End of Life Community Healthcare Training for Professionals”

Ransom, S., Jacobsen, P.B., Azzarello, L.M., Weitzner, M.A. “Religious Well-being of Terminal Cancer Patients and Caregiver Quality of Life: A Mediational Model”

Society of Behavioral Medicine Annual Meeting, Boston, Massachusetts Donovan, K.A., 6PDOO%- 7DOLDIHUUR/$ “Multidimensional Subgroups of Cancer Patients Referred for Pain Management”

National Hospice and Palliative Care Organization: Clinical Team Conference VI, Atlanta, Georgia Conley, M. & Rigney, C. “Lessons Learned: Implementation of a Disaster and Recovery Plan” Egan, K. “Innovations in Community Caregiving Training” “Manager Development Program” “Spiritual Care” Polubinski, J.P. & Egan, K.A. “Developing Infrastructure and Building Capacity for Research”

American Medical Directors Association Annual Meeting, New Orleans, Louisiana Volicer, L. “Namaste: A Holistic Program For Residents With Advanced Dementia”

MAY Annual Educational Forum International, Waldenstrom’s Macroglobulinemia Foundation, Tampa, Florida Myers, C.D. “Complementary Therapies in Cancer Care”

American Geriatrics Society Annual Scientific Meeting, Orlando, Florida Schonwetter, R.S., Roscoe, L.A., Nwosu, M.,  =LOND% “Quality-of-life and Symptom Distress in Hospice Cancer Patients Taking Chemotherapy”

JUNE Johns Hopkins University, “Integration of Complementary and Alternative Medicine in to Clinical Practice” Myers, C.D. “Massage Therapies: Techniques and Indications”

Massage Therapy Foundation: Highlighting Massage in CAM Research Conference, Albuquerque, New Mexico Myers, C.D. “Levels of Evidence” Myers, C.D. %HLGHU6 “Pediatric Massage Research: Four Current Studies”

The Hospice of the Florida Suncoast Cross Bayou Center, Largo, Florida Egan, K. “ELNEC – Achieving Quality Care at the End of Life Community Healthcare Training for Professionals” “ELNEC – Cultural Considerations in End-of-Life Care Community Healthcare Training for Professionals”

AUGUST American Psychological Association Meetings, Washington, D.C.  0F,OYDQH-3RSD0 Haley, W.E. “Needs and Expectations of Care Partners for Persons with MCI”

Florida Academy of Physician Assistants, Tampa, Florida Pollett, A. “End of Life Decisions and the Hospice Choice”

NHPCO 1st National Conference on Access to Hospice & Palliative Care, St. Louis, Missouri Egan, K. “Access to Family Caregivers Upstream”

SEPTEMBER

1st National Cancer Research Institue Cancer Conference, Birmingham, England

2005 FACTors Breast Cancer Education Conference, Tampa, Florida

Perkins, E.A., Small, B.J., Balducci, L., Extermann, M.,5REE& Haley, W.E. “The Salience of Health Status and Psychosocial Factors in Overall Well-being among Older Breast Cancer Survivors”

Donovan, K. “Distinguishing Fatigue and Depression in Women with Breast Cancer”

National Hospice and Palliative Care Organization: 20th Management and Leadership Conference, Hollywood, Florida Egan, K. “Connecting to Family Caregivers Upstream – Dispelling Hospice Myths and Increasing Access” Polubinski, J.P. & Egan, K.A. “Developing Infrastructure and Building Capacity for Research”

NCRI SuPaC International Workshop of Researchers from the United Kingdom, Canada, and the U.S., National Cancer Institute, Birmingham, England McMillan, S.C. “The Need for International Collaboration in Palliative Research”

Huntington Study Group Conference, Philadelphia, Pennsylvania

Volicer, L. “The Hospice Approach to Dementia”

Roscoe, L.A., McCall, M., Haley, W.E.,  &RUVHQWLQR( 6DQFKH]5DPRV- “Caregivers of Persons with Late-Stage Huntington’s Disease: Preliminary Observations”

Alzheimer International Meeting, Istanbul, Turkey

Boston Alzheimer’s Symposium, Boston, Massachusetts

Volicer, L. “Strategies for Management of Challenging Behaviors”

Volicer, L. “Enhancing Quality of Life in All Stages of Dementia”

International Psychogeriatric Association Meeting, Stockholm, Sweden

Florida Osteopathic Medical Association, Tampa, FL Pollett, A. “End of Life Decisions and the Hospice Choice”

National Hospice and Palliative Care Organization: Inpatient Institute, Hollywood, Florida Tonzi, A. “TideWell Hospice and Palliative Care Model for Inpatient Care”

OCTOBER Green Ribbon Health Humana/Pfizer Health Foundation, Tampa, Florida Egan, K. “End of Life Care”

International Society for Geriatric Oncology, Geneva, Switzerland Robb, C., Jan, Y., Molinari, V., Overcash, J., Haley, W.E., Extermann, M. “Impact of Mastery on Older Breast Cancer Survivors”

NOVEMBER 58th Annual Scientific Meeting of the Gerontological Society of America, Orlando, Florida Bergman, E.J., Small, B.J., Haley, W.E. “Depression, Social Support, and Utilization of Formal Bereavement Services” Black, K. “Health Care Professionals’ Death Attitudes, Experiences, and Advance Directive Communication Behavior” Burton, A.M., Haley, W.E., Small, B.J. “Bereavement after Caregiving or Unexpected Death: Effects on Elderly Spouses” Burton, A.M., Kwak, J., Haley, W.E. “Assessing Bereaved Former Hospice Caregivers” Haley, W.E., McMillan, S.C., Small, B.J., Weitzner, M., Schonwetter, R.,7LWWOH0  Moody, L. “Effectiveness of a Coping Skills Intervention for Hospice Family Caregivers: A Randomized Trial”

Roscoe, L.A., Hyer, K., (QJK% “Quality-of-life at the End-of-life for Nursing Home Residents: Perceptions of Hospice and Nursing Home Staff Members” th

7 Annual Josefina Magno Conference Series, Fairfax, Virginia

DECEMBER Florida Hospices and Palliative Care, Inc., 21st Annual Symposium, Orlando, Florida Egan, K. “Connecting to Family Caregivers Upstream – Dispelling Hospice Myths and Increasing Access”

Egan, K. “Improving Palliative Care through Education & Research”

Conference on Legal, Medical & Ethical Issues Concerning End of Life Decision Making, Suffolk University, Boston, Massachusetts Volicer, L. “Medical Perspectives on End-of-life Dementia”

Budget TKH&HQWHUKDVEHHQIXQGHGWRGDWHE\JHQHURXVFRQWULEXWLRQVIURPWKH8QLYHUVLW\RI6RXWK)ORULGD +HDOWK6FLHQFHV&HQWHUDQGRXU&RPPXQLW\3DUWQHUV'XULQJWKHÀVFDO\HDURXUWRWDOEXGJHW ZDVRIZKLFKZDVVSHQWRQVDODULHVIRU&HQWHUVWDII7KH&HQWHUSUHVHQWO\KDVDUHVHUYHRI 

2005 Publications by Center Members CHQWHUPHPEHUVFRQWLQXHGWRPDNHVLJQLIFDQWFRQWULEXWLRQVWRWKHJURZLQJOLWHUDWXUHRQHQGRIOLIH and palliative care in 2005, both in collaboration with other Center members, as well as with research HUVIURPRWKHUXQLYHUVLWLHVDQGSURYLGHUDJHQFLHV&HQWHUPHPEHUVDUHLQGLFDWHGLQEROGW\SH 

Black, K. (2005). Social workers’ personal death attitudes, experiences, and advance directive communication behavior. Journal of Social Work in Palliative and End-of-Life Care,1 Black, K. (2005). Advance directive communica WLRQSUDFWLFHV6RFLDOZRUNHUV·FRQWULEXWLRQVWRWKH interdisciplinary health care team. Social Work in Health Care, 40,  Black, K. /LIHDQGGHDWKLQWKH,&8The New Social Worker, 12, Black, K., Osman, H. (2005). Concerned about FOLHQWGHFLVLRQPDNLQJFDSDFLW\&RQVLGHUDWLRQVIRU practice. Journal of Case Management, 6, Donovan, K.A., Small, B.J., Andrykowski, M.A., 6FKPLWW)$0XQVWHU3 -DFREVHQ3%  &RJQLWLYHIXQFWLRQLQJIROORZLQJDGMXYDQWFKHPR WKHUDS\DQGRUUDGLRWKHUDS\IRUHDUO\VWDJHEUHDVW cancer. Cancer,  Egan, K., Haley, W.E. 7KH&HQWHUIRU +RVSLFH3DOOLDWLYH&DUH$QG(QGRI/LIH6WXGLHVDW 86)Tampa Bay M.D. News, Sunshine Media. Egan, K., Labyak, M. +RVSLFH&DUH$ 0RGHOIRU4XDOLW\(QGRI/LIH&DUHTextbook of Palliative Nursing,2[IRUG8QLYHUVLW\3UHVVnd Edition. Ganzini, L., Volicer, L., Nelson, W. A., Fox, E. and 'HUVH$5 7HQP\WKVDERXWGHFLVLRQPDN ing capacity. Journal of the American Medical Directors Association, 6,6 Haley, W.E. (2005). Clinical geropsychology in SULPDU\FDUH3URJUHVVDQGSURVSHFWVClinical Psychology: Science and Practice, 12,

Harper, D.G. Volicer, L.,6WRSD(*0F.HH$& 1LWWD06DWOLQ$ 'LVWXUEDQFHRIHQGRJ enous circadian rhythm in aging and Alzheimer disease. American Journal of Geriatric Psychiatry, 13,  +DUYH\50+RUYDWK.-/HYLQH6$Volicer, L.  0RGHOVRISK\VLFLDQHGXFDWLRQIRU$O]KHLP HU·VGLVHDVHDQGGHPHQWLD3UDFWLFDODSSOLFDWLRQLQ an integrated network. Clinical Gerontologist, 29,  Holley, S.P, McMillan, S.C., Hagan, S., et al. (2005). 3DLQUHVRXUFHQXUVHV%HOLHYLQJWKH3DWLHQWV² Believing in themselves. Oncology Nursing Forum, 32,  Hughes, J.C., Robinson, L. and Volicer, L. (2005). Specialist palliative care in dementia. British Medical Journal, 330, Jacobsen, P.B., Donovan, K.A.,6ZDLQH=1  :DWVRQ,6 0DQDJHPHQWRIDQ[LHW\DQG GHSUHVVLRQLQDGXOWFDQFHUSDWLHQWV$QHYLGHQFH based approach. In Chang, A.E. et al (Eds.), Oncology: An evidence-based approach. New York, 1,QYLWHG(GLWRULDO@Journal of Pediatric Psychology.