Greetings from SBS and Friends Manchester England to the Conference in Spello Italy
‘To Dare is to Hope’ It is almost 31 years since Mr Adrian Bianchi performed the first Bowel Lengthening surgery on Louise Winstanley at Pendlebury Hospital Salford, England.
Mr Adrian Bianchi
He was attempting to find a better way to deal with the problem of mal-absorption associated with Short Bowel Syndrome. Adrian often referred to Louise as his ‘Little Guinea-Pig’.
Mr Bianchi’s Guinea-Pig
Louise Winstanley
Louise with her husband David and her son Reece. Louise has been a source of inspiration for many of our SBS families.
The Original Band of Hope
Mr Bianchi
Mr Morabito Carole Jones their Medical Secretary
Antonino Morabito worked with Adrian Bianchi at Pendlebury Hospital Salford. Now he leads the team at Royal Manchester Children’s Hospital Paediatric Autologus Bowel Reconstruction Rehabilitation Unit(PABRRU)
The ‘A’ Team
ond m l A h Sara
Antonino Morabito
Basem Khalil
rt s e b o R e Jan
Jane Cl a
yton
The Unit at Royal Manchester Children’s Hospital has two Specialist Nurses... Affectionately known as ‘The Two Jane's. They work in the Unit and also go out to support families with Home PN, Medication and other medical issues.
A child receiving treatment on the Unit
In February 2008, my Granddaughter Dannielle was born with an atresia and only 10cm of short bowel. She had surgery to connect the short bowel to the large bowel and she survived! She then spent the next 12 months in hospital and eventually was allowed home on Parenteral Nutrition. Like most people we knew nothing about this condition. We struggled to find information and had no idea what the future would hold for Dannielle. Then one day we read an article in the news paper and everything changed!
Mr Morabito had lengthened Scott’s bowel and now he was independent of PN and eating normally.
In November 2010, Dannielle weighed just under 8kg. She now had 18cm of small bowel. She drank water but was not interested in eating at all. We consulted Mr Morabito and in January 2011 she had bowel lengthening surgery she now has 50cm small bowel. Following surgery Mr Morabito asked me if I would be willing to help him to organise the Short Bowel Charity. Naturally I agreed and so Short Bowel Survivor and Friends was started on 8th June 2011.
Dannielle is much healthier weighing14kg. She eats a wide variety of foods thanks to Mr Morabito and the multi-disciplinary (PABRRU) team at Royal Manchester Children’s Hospital. She attends school full-time and is making good progress.
Short Bowel Survivor & Friends
www.shortbowelsurvivor.co.uk
The Committee Joanna o n i n o t An
Mary Emily
Carole
Cather in
e
Basem
Tracy
Scott’s Story
Aaron's Story
Shaun’s Story
Charlie’s Story
Fund Raising Events 2011/12 School children in Irlam raised over £200 having fun!
A Charity Football Match at Irlam between Broadway F.C. and The Tiger Moths raised over £432
Halloween
Everybody had a super
spooky time at our
Happy Halloween Party held at The Queen Ann Pub in Unsworth, Bury. This event raised over £500
Teddy Bears Picnic
Here are just some of the ways people helped us!
Rebecca ran the Liverpool Half Marathon
Jennifer and Megan ran the Manchester Marathon
Jane Roberts one of our Specialist Nurses did 4 Sponsored bike rides to raise funds for us throughout this Summer and raised £360
Personal Challenges Raises Funds Emily Price and Joanna Amos Ran the Manchester 10K
Scott and Dannielle were so proud of their Mum’s Charlie’s daddy Tony Beech and friends ran the Cardiff Half Marathon.
Danny, Evies daddy did the Great North Run.
The future... Organise our annual Christmas Party Providing ‘Welcome Packs’ for the Unit Set up a drop in centre at Ronald McDonald House for SBS parents and children to meet. Continue to raise funds for research. Help to set up a Paediatric Surgical Intestinal Failure Fellowship for the Unit at the hospital.
