ISONG 24th Annual Conference Hilton Montréal Bonaventure Montréal, Québec Canada

Genomic Health Worldwide: Nurses Leading the Way

Pre-Conference: October 8, 2011

Conference October 9 -11, 2011

Invitation

Conference Co-Chairs: Marlena Kern Carmen Paniagua Conference Committee Sheila Alexander Theresa Beery Phadra Browning Dennis Cheek Sarah Cook Marilyn Crane Janice Dorman Martha Driesneck Carolyn Driscoll Quanetta Edwards Julie Eggert Eleanor Fennell Sandy Founds Ellen Giarelli Mary Quinn Griffin Marlena Kern Kathleen Hickey Julia Houfek Ann Maradiegue Katy Meilleur Rose Nealis Carmen Paniagua Chris Patch Milena Floria-Santos Debra Schutte Diane Seibert Heather Skirton Joanna Spahis Kathleen Sparbel Ida Spruill Kimberly Subasic Debby Tamura Judith Uhler Linda Ward M. Linda Workman Ken Wysocki Yolanda Powell – Young

On behalf of the International Society of Nurses in Genetics (ISONG) Program Committee and the Board of Directors, it gives us great pleasure to invite nurses in genetics and geneticists worldwide to the Society’s 24th Annual Conference in Montréal, Canada. The conference provides a forum for nurses, genetic counselors, and other healthcare professionals dedicated to all aspects of human genetics including basic science research, clinical research, clinical practice and professional and lay education. It encompasses four days of pre-conference workshops, scientific presentations, and professional interactions with continuing education credits. Overall Conference Objective • Bring researchers, clinicians, and professionals involved with the care of persons with genetic problems together to exchange information, ideas, and scientific data. Educational Objectives Attendees will be able to; 1. Outline the recent genetic scientific advances worldwide. 2. Compare the experience of worldwide healthcare professionals involved in genetics. 3. Provide a forum for nurses and healthcare providers from all countries to interact, share experiences, and discuss effective treatment modalities among themselves. 4. Identify how nurses from different countries are leading the way for genomic healthcare. This year, the conference precedes the International Congress of Human Genetics (ICHG)/American Society of Human Genetics (ASHG) 2011 Meeting. We hope you will be able to participate in the Conference and look forward to welcoming you to Montréal.





Marlena Kern Marlena Kern DNP, RN Conference Co-Chair

Carmen T. Paniagua Carmen T. Paniagua ACNP-BC, APNG, FAANP Conference Co-Chair

REGISTRATION

Register early! It helps us plan better and keeps your costs down. Take advantage of the early registration discount by registering by September 1, 2011. The discounted rates are made available in order to facilitate administrative planning which is required prior to the Conference. Early registration deadline: September 1, 2011 Complete the registration form located in this brochure or found on the web at www.ISONG.org and fax your form to +1 412-344-0599 or mail it to: ISONG 461 Cochran Road, Box 246, Pittsburgh, Pennsylvania USA 15228

Once you register, you will receive a confirmation letter from ISONG. If you do not receive a letter confirming receipt of your registration, please call us at +1 412-344-1414 to check your registration status, or contact us via email at: [email protected].

HOTEL RESERVATIONS

Hilton Montréal Bonaventure 900 De La Gauchetiere Street West, Montréal, Quebec Canada H5A 1E4 +1 514-878-2332 (main) +1 800-267-2575 (reservations) FAX +1 514-878-3881 Direct Link for ISONG Conference Hotel Reservations:

http://www.hilton.com/en/hi/groups/personalized/Y/YULBHHF-ISO-20111006/index.jhtml

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Genomic Health Worldwide:

Nurses Leading the Way Host Hotel Hilton Montréal Bonaventure 900 De La Gauchetiere Street West Montréal, Quebec Canada H5A 1E4 +1 514-878-2332 (main) +1 800-267-2575 (reservations) FAX +1 514-878-3881

Direct Link for ISONG Conference Hotel Reservations:

http://www.hilton.com/en/hi/groups/personalized/Y/YULBHHF-ISO-20111006/index.jhtml

Cut-off date for ISONG Conference rate: September 13, 2011

Reserve your room early! Special rate and room availability cannot be guaranteed after the cut-off date.

Attendees of the ISONG Conference will be pleased with the superior accommodations in the Hilton Montréal Bonaventure. This unique hotel stands in the heart of downtown and features a combination of beautifully appointed guest rooms, suites and Executive Club rooms on the Executive club level and a private lounge. The Hilton Montréal Bonaventure hotel boasts a beautiful 2.5 acre rooftop garden with and a spectacular rooftop pool which is heated year round. The hotel also offers a business center with complimentary printing services and foreign exchange service and a fitness center. Check- in time is 3:00PM Check- out time is 12 Noon

Hotel Parking

Parking available as follows: Self-Park $19.25 CAD (no in and out privileges) Valet $28 CAD per 24 hours (with in and out privileges) Rates are subject to change

Conference Venue

Discover the ´joie de vivre´ that makes Montréal the delightful city guests love to visit. Recently named Canada’s culture capital, Montréal carries a perfect mix of a metropolitan area with centuries of old charm and a distinct character. Montréal is a mosaic of culture and traditions with over 80 ethnic communities and it enjoys an outstanding reputation worldwide for gourmet dining. This compact island city is great for walking and can easily be explored. Public transportation is not only affordable; it’s also a great way to get around the city. The metro connects downtown to major tourist attractions such as Lachine, Canal, Old Montréal, Historical Museums, Montréal Museum of Fine Arts, McCord Museum of Canadian History and the spectacular St. Joseph Oratory and the Notre Dame Cathedral. Montréal‘s downtown core has over 3,000 shops and services. Also, there is Montréal’s underground city which is gaining a reputation as one of the best places in the world to shop.

Travel Details

Distance from the Dorval International Airport to the hotel is approximately 12km and takes about 20 minutes. The following airport transportation options are available near the baggage claim area: Bus service from the airport is $13.00 CAD Limousine Service is $65.00 CAD Taxi Service is $35.00 CAD Prices subject to change

AIRLINE RESERVATION ASSISTANCE

Sue Ryan at Travel By Design can assist interested parties in making their air transportation arrangements. Sue can be reached at:+1 847-395-2772 or e-mail: [email protected]. Note that a standard travel agency fee applies when using this service to book your flight. 3

CONTINUING EDUCATION CREDITS

DONATE A RAFFLE ITEM

This provider-directed activity has been submitted to the Louisiana State Nurses Association for approval to award contact hours. The Louisiana State Nurses Association is accredited as an approver of continuing nursing education by the American Nurses Credentialing Center’s Commission on Accreditation.

Please consider making a donation to the ISONG Raffle. Our members hail from all over the world and we usually have an array of unique items. Bring something from your hometown, country or specific hospital or academic institution. Make sure that your item will travel well – meaning it is compact, lightweight, and can be easily transported in a suitcase. Pictures, books, jewelry, music CDs, t-shirts, sweaters, chocolates, gift certificates, handmade items, autographed items and cultural items are just a few popular suggestions.

PRE-CONFERENCE WORKSHOPS

The format includes two exciting pre-conference workshops on The Application of Genetics and Genomics into Nursing Curriculum and Embracing Translational Research: From Resource to Bench to Clinical Care for Improved Outcomes. Attendees can choose one workshop or attend both.

Contact us at [email protected] with any questions regarding the raffle. We prefer that you carry the item with you to the Conference, but we will need a description of the item and its value, in advance, via email to Linda Ward at [email protected]. All funds raised by the ISONG raffle will directly benefit our organization.

EXHIBITS

There will be an exhibit hall at the ISONG conference. Each participating company will have a table top display area and be able to interact personally with our attendees.

ISONG RESEARCH AWARDS

The purpose of the annual ISONG Nursing Research Grant award is to support research related to genetic nursing practice or that which contributes to the development of genetic nursing science. The Research Grant applications are available to ISONG members via the ISONG webpage and listserv approximately 2-3 months prior to the grant deadline. All grant submissions undergo rigorous peer review by a committee of Research Committee Members and the annual award (maximum of $1,500) is traditionally given to the principal investigator at the annual ISONG convention. Grant information and an application form can be found at www.ISONG.org.

ISONG “Montréal Raffle”

Registrants will be afforded a new opportunity to participate in an exciting raffle. All proceeds from the raffle will directly benefit the on-going goals and objectives of ISONG. Items will range in value and payment can be accepted as follows: cash (USD or Canadian only), checks drawn on US Bank or credit card payment (USD only) using Visa or Mastercard.

SCIENTIFIC POSTERS

All posters will be available for review on October 9-11, 2011. Posters must be removed during the morning break on Monday, October 10, 2011. Authors will be available for small group discussions about their posters during the poster reception on Monday evening.

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Sunday, October 9th 7:00AM-8:00AM Registration, Continental Breakfast, Visit Exhibits

8:15AM-9:30AM Opening Keynote: International Perceptions of the Family History Across Common Diseases Jon Emery M.B.B.Ch., D. Phil., M.A., FRACGP Winthrop Professor of General Practice Head of School of Primary, Aboriginal and Rural Health Care Chair of Cancer Australia Primary Care Collaborative Cancer Clinical Trials Group University of Western Australia Crawley, WA Australia

8:00AM-8:15AM Welcome – Conference Chairs Marlena Kern DNP, RN Administrative Director Robert S. Boas Center for Genomics and Human Genetics The Feinstein Institute for Medical Research Manhasset, New York USA Dr. Carmen T. Paniagua EdD, RN, MSN, CPC, APN, ACNP-BC, APNG, FAANP Fellow of the American Academy of Nurse Practitioners Clinical Associate Professor College of Nursing & College of Medicine Acute Care Nurse Practitioner Specialty Coordinator Advanced Practice Nurse in Genetics University of Arkansas for Medical Sciences Little Rock, Arkansas USA

9:30AM-10:30AM Young Women’s (18-39 y/o) Screening and Surgical Choices After Testing Positive for a BRCA Mutation Rebekah Hamilton PhD, RN University of Illinois at Chicago College of Nursing Chicago, Illinois USA 10:30AM-11:00AM Refreshment Break, Visit Exhibits 11:00AM-12:30PM Oral Abstracts Session 12:30PM-2:00PM Business Lunch & Awards 2:00PM-3:30PM Oral Abstracts Breakout Sessions

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Monday, October 10th 7:30AM-8:00AM Registration, Continental Breakfast, Visit Exhibits 8:00AM-9:00AM RIG Meetings 9:00AM-10:00AM Development of a Genomic Health Literacy Scale Lynn Rew EdD, MSN, BSN, FAAN Professor University of Texas, Austin Austin, Texas USA 10:00AM-10:30AM Refreshment Break, Visit Exhibits 10:30AM-12:00PM Oral Abstract Breakout Session

1:30PM-2:30PM Do People Distinguish Between Diseases When Offered Genetic Testing For Multiple Common Health Conditions: an Ancillary Study of the Multiplex Initiative Christopher H. Wade PhD, MPH Assistant Professor University of Washington Bothell Nursing and Health Studies Bothell, Washington USA 2:30PM-3:00PM Refreshment Break, Visit Exhibits 3:00PM-4:30PM Oral Abstract Breakout Sessions 4:45PM-6:30PM Poster Session/ Reception

12:00PM-1:30PM Lunch (on your own)

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Tuesday, October 11th 7:30AM-8:00AM Registration, Continental Breakfast, Visit Exhibits 8:00AM-9:00AM SIG Committee Meetings 9:00AM-9:30AM Incoming President Keynote Ellen Giarelli EdD, RN, CRNP Research Associate Professor University of Pennsylvania, School of Nursing Biobehavioral Research Center Philadelphia, Pennsylvania USA

10:30AM-11:00AM Refreshment Break, Visit Exhibits 11:00AM-12:00PM Closing Keynote – Family History as an International Tool to Promote a Healthy Lifestyle Nadeem Qureshi M.B.B.S., D.M., M.Sc. Associate Professor Faculty of Medicine & Health Sciences The University of Nottingham Nottingham, United Kingdom 12:00PM Wrap Up and Collect Evaluations

9:30AM-10:30AM Research and Public Reflections on Reporting Incidental Findings to Participants in Genomic Research Janet Williams PhD, RN, FAAN Kelting Professor of Nursing The University of Iowa Iowa City, Iowa USA

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24th Annual ISONG Conference October 8-11, 2011 The Hilton Montréal Bonaventure Hotel, Montréal, Quèbec Canada Genomic Health Worldwide: Nurses Leading the Way

Conference Hotel Reservations: +1 514-878-2332 or use the direct hotel reservation link on the ISONG website at www.ISONG.org

Building Genetic Competency in Clinical Applications and Translational Research

NAME BADGE INFORMATION: First name:_____________________________________

PRE-CONFERENCE WORKSHOPS:

Last name:_____________________________________

Additional charge for each workshop:

$90.00 each pre-conference • $45.00 Full-time students $180.00 both pre-conferences • $90.00 Full-time students Saturday, October 8, 8:00 AM-12:00 PM:

Degrees/credentials:______________________________ Position/Role:___________________________________ Employer:______________________________________

The Application of Genetics and Genomics into Nursing Curriculum

______________________________________________

q Yes q No

Saturday, October 8, 1:15 PM-5:00 PM:

Employer City/State/Province:______________________

Embracing Translational Research: From Resource to Bench to Clinical Care for Improved Outcomes

______________________________________________ CORRESPONDENCE ADDRESS: q Home q Work



q Yes q No RECEIVED

Conference: Before Sept 1 After Sept 1 ISONG active dues member......... $425.00 $475.00 Podium or Poster Presenter.......... $425.00 $475.00 Non-member (joining now) ........... $550.00 $600.00

Mailing address:_________________________________ ______________________________________________ City:___________________________________________

(Includes membership fee)

State/Province:___________________________________

Non-member ................................ $550.00 $600.00 Full-time students.......................... $150.00 $175.00

Postal code:__________Country:____________________

(With copy of University/Program ID card)

Email:_________________________________________

MEAL PREFERENCE: I need a vegetarian meal qYes q No

PAYMENT: Pre-Conference Workshop Fee(s)................$__________ Full Conference Registration Fee................$__________ q ISONG Member q Non-Member q Full-Time Student q Non-Member, but joining now

Is this your first ISONG Conference? q Yes q No

Total Fee (all funds charged/payable in U.S. Dollars) $__________

Phone number:__________________________________ Fax number: ____________________________________

(Also enclose your Membership Application)

I will attend the Poster Awards Reception (No additional fee) Monday, October 10 q Yes q No

q Personal check q Company/hospital check q MasterCard q VISA q PayPal (on ISONG website) Card #:________________________________________ Please add CVV or CID number __ __ __

Please enter 3-digit number from the back of your card immediately following the account number. This is required to process a card which is not physically present at ISONG headquarters.

International Society of Nurses in Genetics

Expiry date:___________________________ (month/year) Signature:___________________________________ If the credit card is not the registrant’s card, such as a hospital corporate card, please provide the following: Cardholder Name:_________________________________________ Billing Address:___________________________________________ ____________________________________________________ City:_________________________________________________ State/Country:_________________________________________ Postal Code:______________________________________________ Email:_______________________________________________

461 Cochran Road, Box 246 Pittsburgh, PA 15228 USA Email: [email protected] www.ISONG.org Phone:+1(412)344-1414 Fax:+1(412)344-0599

All cancellations must be received in writing. A $30.00 USD administrative fee will be deducted from cancellations received up to 7 days in advance. After that time, no refunds can be made.

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ISONG MEMBERSHIP APPLICATION MISSION STATEMENT: To foster the scientific, professional, and personal development of members in the management of genomic information.

VISION STATEMENT: ISONG, The International Society of Nurses in Genetics, is a global nursing specialty organization dedicated to fostering the scientific and professional growth of nurses in human genetics and genomics worldwide.

RECRUITED BY: _____________________________

MEMBERSHIP CATEGORY:

YOUR INFORMATION:

q Full Member...............................................$125yr/$300 3yrs q Retired Member.............................................$75yr/$200 3yrs q Affiliate Member............................................$75yr/$200 3yrs q Student (Student members must include proof

First name:____________________ Middle Initial:_______ Last name:________________________________________ Credentials Used:___________________________________

of full time status, i.e. letter from faculty advisor or copy of current registration).................................................$75.00

Title: ____________________________________________

Renewal Month will be the month you join, annually.

BUSINESS ADDRESS:

METHOD OF PAYMENT:

Institution:________________________________________

q Check

q Paypal (online at www.ISONG.org)

Address:_________________________________________

Credit Card:

q MasterCard

q Visa

________________________________________________ City:____________________________________________

Card #:_____________________________________________

State/Province: ___________ Postal Code:_____________

Expiration Date______________________________________ Please enter the 3-digit # from the back of your card,

Country:_________________________________________ Telephone:

______________________________________

HOME ADDRESS:

Cardholder Signature:_________________________________

Address:_________________________________________ _______________________________________________ City:____________________________________________ State/Province: ___________ Postal Code:_____________ Country:_________________________________________ Telephone:

______________________________________

*Please check your preferred mailing address:

If the credit card is not the registrant’s card, such as a hospital corporate card, please provide the following: Cardholder Name:__________________________________________ Billing Address:___________________________________________ ____________________________________________________ City:_________________________________________________ State/Country:_________________________________________ Postal Code:______________________________________________ Email:_______________________________________________

MEMBER INFORMATION:

q Home q Business

q I do not want my contact information released to any

immediately following your account number. This is required to process a card which is not physically present at ISONG headquarters.

third party organization.

q New

q Renewal

There are three ways to join ISONG: fax this application to +1 412-344-0599, pay online on the ISONG website and send your application or mail to:

FAX AND EMAIL ADDRESS: Fax:________________________________________________ Email:_____________________________________________ til:_______________________________________________

q Yes, subscribe me to ISONG listserv. The listserv is the main means of communication between ISONG headquarters and its members. Updates, voting, and conference information is disseminated through the ISONG listserv.

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ISONG 461 Cochran Road, Box 248 Pittsburgh, PA 15228 USA Phone: +1 412-344-1414

ISONG collects personal and professional demographic information to better serve its members. Personal demographic information including gender, salary and ethnicity is collected to define and evaluate the diversity of ISONG Membership. Personal demographics are not distributed.

ISONG GOALS:

ISONG BUDDY: What is an ISONG buddy? A buddy is a colleague with similar professionals interests who is able to offer and receive support through links with one or two other ISONG members, one of whom may be working outside the USA. You can either serve as a buddy or request to be assigned a buddy.

• Provide a forum for education and support for nurses providing genetic healthcare. • Promote the integration of the nursing process into the delivery of genetic healthcare services. • Encourage the incorporation of the principles of human genetics into all levels of nursing education. • Promote the development of standards of practice for nurses in human genetics. • Advance nursing research in human genetics. • Provide a forum for dialogue with others.

q Yes, assign me a buddy. q Yes, I will serve as a buddy. q No, I am not interested at this time.

EDUCATION INFORMATION: Highest Degree in Nursing: q BS q MS q PhD Nursing Student:

JOIN ISONG COMMITTEES:

q Associate q DNP q DNSc

q Awards Committee

Solicits and reviews nominations from the membership for the Founder Awards.

q Yes q No q Full-time q Part-time

Degree in Other Disciplines:

q Yes

q BA/BS q MA/MS q PhD

q Other ____________

q Bylaws

Considers and recommends any changes or amendments in either the Articles of Incorporation or the Bylaws.

q No

q Education

Promotes the education goals of the Society, and assembles and maintains education resources.

PROFESSIONAL INFORMATION:

q Ethical Issues and Public Policy Committee

License (Check all that apply): q RN q APRN q Genetic Counselor q CNM q CNS q CDE q Other__________

Evaluates scientific and political changes that require a response by the Society.

q Global/Membership

Addresses issues related to increasing membership.

Interested in Special Interest Groups: q Pediatric q Metabolic q Oncology q Education q Other__________________________________________

q Communication

Disseminate information to the membership on all aspects of the organization via the newsletter and the website.

q Nomination

Encourages ISONG members to become interested in running for ISONG Leadership positions.

q Professional Practice

Addresses issues related to clinical genetics/genomics nursing practice.

q ISONG Annual Conference

Responsible for planning the scientific content of the annual ISONG Conference.

q Research

Fosters research activities in nursing, genetics, and related areas.

International Society of Nurses in Genetics 461 Cochran Road, Box 246 Pittsburgh, Pennsylvania 15228 USA +1 412-344-1414 +1 412-344-0599 Email: [email protected] Web: www.isong.org

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President Kathleen Sparbel, PhD, APRN, BC, FNP Davenport, Iowa USA President-Elect Ellen Giarelli, EdD, RN, CRNP Philadelphia, Pennsylvania USA Past President Karen E. Greco, PhD, RN, ANP-BC West Linn, Oregon USA Treasurer Marie Twal, RN, CPNP Indiana, Pennsylvania USA Secretary Rebekah Hamilton, PhD, RN Chicago, Illinois USA Board Members at Large Sheila Alexander, RN, PhD Pittsburgh, Pennsylvania USA Mary Quinn Griffin, PhD, RN Case Western Reserve University Cleveland, Ohio USA 24th Annual ISONG Conference Committee Co-Chairs Marlena Kern, DNP, RN Manhasset, New York USA Carmen T. Paniagua, EdD, RN, MSN, CPC, APN, ACNP-BC, APNG, FAANP Little Rock, Arkansas USA Executive Director Beth A. Kassalen, MBA ISONG Administration Pamela Vogel Debbie Zaparoni Linda R. Mason