CINAHL 2012-2014 EMNEORD: (PALLIATIVE CARE OR TERMINAL CARE OR HOSPICE CARE) AND DEMENTIA References De Witt Jansen, B., Weckmann, M., Nguyen, C., Parsons, C., & Hughes, C. (2013). A cross-national cross-sectional survey of the attitudes and perceived competence of final-year medicine, nursing and pharmacy students in relation to end-of-life care in dementia. Palliative Medicine, 27(9), 847-854. doi:10.1177/0269216313483661 Smith, L. W., Amella, E., Edlund, B., & Mueller, M. (2014). A Dimensional Analysis of the Concept of Suffering in People With Dementia at End of Life. Journal Of Hospice & Palliative Nursing, 16(5), 263-272. doi:10.1097/NJH.0000000000000075 Roberts, D., & Gaspard, G. (2013). A palliative approach to care of residents with dementia. Nursing Older People, 25(2), 32-36. Wills, G. (2014). A practice-based project to improve end of life care. Journal Of Dementia Care, 22(3), 28-30. Robinson, L., Dickinson, C., Bamford, C., Clark, A., Hughes, J., & Exley, C. (2013). A qualitative study: Professionals’ experiences of advance care planning in dementia and palliative care, ‘a good idea in theory but …’. Palliative Medicine, 27(5), 401-408. doi:10.1177/0269216312465651 Dempsey, D. (2013). Advance care planning for people with dementia: benefits and challenges. International Journal Of Palliative Nursing, 19(5), 227-234. Dempsey, D. (2014). Advance care planning: taking time now will save time later. Nursing & Residential Care, 16(5), 269-272. Bonner, G., Wang, E., Wilkie, D., Ferrans, C., Dancy, B., & Watkins, Y. (2014). Advance care treatment plan (ACT-Plan) for African American family caregivers: A pilot study. Dementia (14713012), 13(1), 79-95. doi:10.1177/1471301212449408 Nicholas, L. H., Bynum, J. W., Iwashyna, T. J., Weir, D. R., & Langa, K. M. (2014). Advance Directives And Nursing Home Stays Associated With Less Aggressive End-Of-Life Care For Patients With Severe Dementia. Health Affairs, 33(4), 667-674. doi:10.1377/hlthaff.2013.1258 Menzel, P. T., & Chandler-Cramer, M. (2014). Advance Directives, Dementia, and Withholding Food and Water by Mouth. Hastings Center Report, 44(3), 23-37. doi:10.1002/hast.313 Irwin, S. A., Mausbach, B. T., Koo, D., Fairman, N., Roepke-Buehler, S. K., Chattillion, E. A., & ... Grant, I. (2013). Association between Hospice Care and Psychological Outcomes in Alzheimer's Spousal Caregivers. Journal Of Palliative Medicine, 16(11), 1450-1454. doi:10.1089/jpm.2013.0130

Davies, N., Maio, L., Vedavanam, K., Manthorpe, J., Vernooij-Dassen, M., & Iliffe, S. (2014). Barriers to the provision of high-quality palliative care for people with dementia in England: a qualitative study of professionals' experiences. Health & Social Care In The Community, 22(4), 386-394. doi:10.1111/hsc.12094 Aaltonen, M., Raitanen, J., Forma, L., Pulkki, J., Rissanen, P., & Jylhä, M. (2014). Burdensome Transitions at the End of Life Among Long-Term Care Residents With Dementia. Journal Of The American Medical Directors Association, 15(9), 643-648. doi:10.1016/j.jamda.2014.04.018 Lewis, L. (2014). Caregivers’ Experiences Seeking Hospice Care for Loved Ones With Dementia. Qualitative Health Research, 24(9), 1221-1231. doi:10.1177/1049732314545888 Anquinet, L., Rietjens, J. C., Vandervoort, A., van der Steen, J. T., Vander Stichele, R., Deliens, L., & Van den Block, L. (2013). Continuous Deep Sedation Until Death in Nursing Home Residents with Dementia: A Case Series. Journal Of The American Geriatrics Society, 61(10), 1768-1776. doi:10.1111/jgs.12447 Jones, B. W. (2013). Critically Appraised Topic: The Effect of Hospice Care in Patients With Dementia. American Journal Of Hospice & Palliative Medicine, 30(6), 590-593. doi:10.1177/1049909112457705 Regan, A., Tapley, M., & Jolley, D. (2014). Dementia at the end of life: what can hospices do?. European Journal Of Palliative Care, 21(1), 6-10. Potter, J., Fernando, R., & Humpel, N. (2013). Development and evaluation of the REACH ( Recognise End of life And Care Holistically) out in Dementia toolkit. Australasian Journal On Ageing, 32(4), 241-246. doi:10.1111/ajag.12062 Badrakalimuthu, V., & Barclay, S. (2014). Do people with dementia die at their preferred location of death? A systematic literature review and narrative synthesis. Age & Ageing, 43(1), 13-19. Phillips, J. L., West, P. A., Davidson, P. M., & Agar, M. (2013). Does case conferencing for people with advanced dementia living in nursing homes improve care outcomes: Evidence from an integrative review?. International Journal Of Nursing Studies, 50(8), 1122-1135. doi:10.1016/j.ijnurstu.2012.11.001 Arcand, M., Brazil, K., Nakanishi, M., Nakashima, T., Alix, M., Desson, J., & ... van der Steen, J. T. (2013). Educating families about end-of-life care in advanced dementia: acceptability of a Canadian family booklet to nurses from Canada, France, and Japan. International Journal Of Palliative Nursing, 19(2), 67-74. Kumar, C., & Kuriakose, J. (2013). End-of-life care issues in advanced dementia. Mental Health In Family Medicine, 10(3), 129-132.

Raymond, M., Warner, A., Davies, N., Baishnab, E., Manthorpe, J., & Iliffe, S. (2014). Evaluating educational initiatives to improve palliative care for people with dementia: A narrative review. Dementia (14713012), 13(3), 366-381. doi:10.1177/1471301212474140 Krumm, N., Larkin, P., Connolly, M., Rode, P., & Elsner, F. (2014). Improving dementia care in nursing homes: experiences with a palliative care symptom-assessment tool (MIDOS). International Journal Of Palliative Nursing, 20(4), 187-192. Regan, A., Tapley, M., & Jolley, D. (2014). Improving end of life care for people with dementia. Nursing Standard, 28(48), 37-43. Livingston, G., Lewis-Holmes, E., Pitfield, C., Manela, M., Chan, D., Constant, E., & ... Morris, J. (2013). Improving the end-of-life for people with dementia living in a care home: an intervention study. International Psychogeriatrics, 25(11), 1849-1858. doi:10.1017/S1041610213001221 Ouchi, K., Wu, M., Medairos, R., Grudzen, C. R., Balsells, H., Marcus, D., & ... Liberman, T. (2014). Initiating Palliative Care Consults for Advanced Dementia Patients in the Emergency Department. Journal Of Palliative Medicine, 17(3), 346-350. doi:10.1089/jpm.2013.0285 Vandervoort, A., Van den Block, L., van der Steen, J. T., Volicer, L., Stichele, R., Houttekier, D., & Deliens, L. (2013). Nursing Home Residents Dying With Dementia in Flanders, Belgium: A Nationwide Postmortem Study on Clinical Characteristics and Quality of Dying. Journal Of The American Medical Directors Association, 14(7), 485-492. doi:10.1016/j.jamda.2013.01.016 Monroe, T., Carter, M., Feldt, K., Dietrich, M., & Cowan, R. (2013). Pain and hospice care in nursing home residents with dementia and terminal cancer. Geriatrics & Gerontology International, 13(4), 1018-1025. doi:10.1111/ggi.12049 Brorson, H., Plymoth, H., Ãrmon, K., & Bolmsjö, I. (2014). Pain Relief at the End of Life: Nurses’ Experiences Regarding End-of-Life Pain Relief in Patients with Dementia. Pain Management Nursing, 15(1), 315-323. doi:10.1016/j.pmn.2012.10.005 Scott, C. (2014). Palliative Care and Dementia. Home Healthcare Nurse, 32(8), 466-469. doi:10.1097/NHH.0000000000000123 Volicer, L. (2013). Palliative care in dementia. Progress In Palliative Care, 21(3), 146-150. doi:10.1179/1743291X12Y.0000000036 Raymond, M., Warner, A., Davies, N., Iliffe, S., Manthorpe, J., & Ahmedzhai, S. (2014). Palliative care services for people with dementia: A synthesis of the literature reporting the views and experiences of professionals and family carers. Dementia (14713012), 13(1), 96-110. doi:10.1177/1471301212450538 Perrels, A., Fleming, J., Zhao, J., Barclay, S., Farquhar, M., Buiting, H., &

Brayne, C. (2014). Place of death and end-of-life transitions experienced by very old people with differing cognitive status: Retrospective analysis of a prospective population-based cohort aged 85 and over. Palliative Medicine, 28(3), 220-233. doi:10.1177/0269216313510341 Goodman, C., Amador, S., Elmore, N., Machen, I., & Mathie, E. (2013). Preferences and priorities for ongoing and end-of-life care: A qualitative study of older people with dementia resident in care homes. International Journal Of Nursing Studies, 50(12), 1639-1647. doi:10.1016/j.ijnurstu.2013.06.008 Dening, K., Jones, L., & Sampson, E. (2013). Preferences for end-of-life care: A nominal group study of people with dementia and their family carers. Palliative Medicine, 27(5), 409-417. doi:10.1177/0269216312464094 Brown, M., Sampson, E., Jones, L., & Barron, A. (2013). Prognostic indicators of 6-month mortality in elderly people with advanced dementia: A systematic review. Palliative Medicine, 27(5), 389-400. doi:10.1177/0269216312465649 Yeaman, P. A., Ford, J. L., & Kim, K. Y. (2013). Providing Quality Palliative Care in End-Stage Alzheimer Disease. American Journal Of Hospice & Palliative Medicine, 30(5), 499-502. doi:10.1177/1049909112453644 van Uden, N., Van den Block, L., van der Steen, J., Onwuteaka-Philipsen, B., Vandervoort, A., Vander Stichele, R., & Deliens, L. (2013). Quality of dying of nursing home residents with dementia as judged by relatives. International Psychogeriatrics, 25(10), 1697-1707. doi:10.1017/S1041610213000756 Li, Q., Zheng, N., & Temkin-Greener, H. (2013). Quality of End-of-Life Care of Long-Term Nursing Home Residents with and without Dementia. Journal Of The American Geriatrics Society, 61(7), 1066-1073. doi:10.1111/jgs.12330 Albrecht, J. S., Gruber-Baldini, A. L., Fromme, E. K., McGregor, J. C., Lee, D. H., & Furuno, J. P. (2013). Quality of Hospice Care for Individuals with Dementia. Journal Of The American Geriatrics Society, 61(7), 1060-1065. doi:10.1111/jgs.12316 Davies, N., Maio, L., Paap, J., Mariani, E., Jaspers, B., Sommerbakk, R., & ... Iliffe, S. (2014). Quality palliative care for cancer and dementia in five European countries: some common challenges. Aging & Mental Health, 18(4), 400-410. doi:10.1080/13607863.2013.843157 Kuhn, D. (2013). Seeking a Better Way to Die with and from Dementia. Generations, 37(3), 70-73. Watts, T. E., & Davies, R. (2014). Tensions and ambiguities: A qualitative study of final year adult field nursing students' experiences of caring for people affected by advanced dementia in Wales, UK. Nurse Education Today, 34(8), 1149-1154. doi:10.1016/j.nedt.2014.04.012 Peacock, S. (2013). The experience of providing end-of-life care to a relative

with advanced dementia: an integrative literature review. Palliative & Supportive Care, 11(2), 155-168. doi:10.1017/S1478951512000831 Nicholls, D., Chang, E., Johnson, A., & Edenborough, M. (2013). Touch, the essence of caring for people with end-stage dementia: A mental health perspective in Namaste Care. Aging & Mental Health, 17(5), 571-578. doi:10.1080/13607863.2012.751581 Dresser, R. (2014). Toward a Humane Death with Dementia. Hastings Center Report, 44(3), 38-40. doi:10.1002/hast.315 Reinhardt, J. P., Chichin, E., Posner, L., & Kassabian, S. (2014). Vital Conversations with Family in the Nursing Home: Preparation for End-Stage Dementia Care. Journal Of Social Work In End-Of-Life & Palliative Care, 10(2), 112-126. doi:10.1080/15524256.2014.906371 De Roo, M., van der Steen, J., Galindo Garre, F., Van Den Noortgate, N., Onwuteaka-Philipsen, B., Deliens, L., & Francke, A. (2014). When do people with dementia die peacefully? An analysis of data collected prospectively in long-term care settings. Palliative Medicine, 28(3), 210-219. doi:10.1177/0269216313509128 van der Steen, J., Radbruch, L., Hertogh, C., de Boer, M., Hughes, J., Larkin, P., & ... Volicer, L. (2014). White paper defining optimal palliative care in older people with dementia: A Delphi study and recommendations from the European Association for Palliative Care. Palliative Medicine, 28(3), 197-209. doi:10.1177/0269216313493685 van der Steen, J. T., Arcand, M., Toscani, F., de Graas, T., Finetti, S., Beaulieu, M., & ... Hertogh, C. M. (2012). A Family Booklet About Comfort Care in Advanced Dementia: Three-Country Evaluation. Journal Of The American Medical Directors Association, 13(4), 368-375. doi:10.1016/j.jamda.2011.02.005 Bracegirdle, L. (2012). A tormented death: end-of-life care for people with dementia. British Journal Of Nursing, 21(12), 723-727. Monroe, T., Carter, M., Feldt, K., Tolley, B., & Cowan, R. L. (2012). Assessing advanced cancer pain in older adults with dementia at the end-of-life. Journal Of Advanced Nursing, 68(9), 2070-2078. doi:10.1111/j.1365-2648.2011.05929.x Australians with dementia need better end of life care. (2014). Australian Nursing & Midwifery Journal, 32(8), 13. Ryan, T., Gardiner, C., Bellamy, G., Gott, M., & Ingleton, C. (2012). Barriers and facilitators to the receipt of palliative care for people with dementia: The views of medical and nursing staff. Palliative Medicine, 26(7), 879-886. doi:10.1177/0269216311423443 Torke, A. (2014). Building the evidence base for palliative care and dementia. Palliative Medicine, 28(3), 195-196. doi:10.1177/0269216314521354

Livingston, G., Pitfield, C., Morris, J., Manela, M., Lewis-Holmes, E., & Jacobs, H. (2012). Care at the end of life for people with dementia living in a care home: a qualitative study of staff experience and attitudes. International Journal Of Geriatric Psychiatry, 27(6), 643-650. doi:10.1002/gps.2772 Care failing for dying dementia inpatients. (2012). Nursing Times, 108(18-19), 4. Bloomer, M., & Digby, R. (2012). Caring for Patients Dying with Dementia: Challenges in subacute care in Australia. Journal Of Palliative Care, 28(3), 164-168. Rowlands, C., & Rowlands, J. (2012). Challenges in delivering effective palliative care to people with dementia. Mental Health Practice, 16(4), 33-36. Swetz, K., Carey, E., & Bundrick, J. (2012). Clinical pearls in palliative medicine 2012. Mayo Clinic Proceedings, 87(11), 1118-1123. doi:10.1016/j.mayocp.2012.07.017 Dementia Does Not Greatly Influence the Quality of Hospice Care. (2014). MEDSURG Nursing, 23(3), 200. Long, C. O., Sowell, E. J., Hess, R. K., & Alonzo, T. R. (2012). Development of the Questionnaire on Palliative Care for Advanced Dementia (qPAD). American Journal Of Alzheimer's Disease & Other Dementias, 27(7), 537-543. doi:10.1177/1533317512459793 Singer, K., & Clary, P. (2012). Doing the Right Thing. Annals Of Long Term Care, 20(6), 40-42. Richardson, E. (2013). End of life: dying with dignity. Nursing & Residential Care, 15(1), 5. Endsley, E., Ward-Smith, P., & Putnam, J. (2012). End-of-life associated distress among spouses of veterans with dementia residing in an extended care facility. Missouri Nurse, 15-17. Connolly, A., Sampson, E. L., & Purandare, N. (2012). End-of-Life Care for People with Dementia from Ethnic Minority Groups: A Systematic Review. Journal Of The American Geriatrics Society, 60(2), 351-360. doi:10.1111/j.1532-5415.2011.03754.x van der Steen, J. (2012). Ensuring continuous high-quality care for people with impaired cognition including dementia at the end of life. Palliative Medicine, 26(7), 871-872. doi:10.1177/0269216312459305 Kostrzewa, A. S. (2013). Facing Dementia: Integrating Palliation Into All Aspects of Care. Creative Nursing, 19(1), 12-15. doi:10.1891/1078-4535.19.1.12

Joshi, R. (2013). Family meetings: An essential component of comprehensive palliative care. Canadian Family Physician, 59(6), 637-639. Liu, L. M., Guarino, A. J., & Lopez, R. (2012). Family Satisfaction With Care Provided by Nurse Practitioners to Nursing Home Residents With Dementia at the End of Life. Clinical Nursing Research, 21(3), 350-367. doi:10.1177/1054773811431883 Izzard, L., & Aitken, E. (2012). Hip fractures, dementia and palliative care. GM: Midlife & Beyond, 42(2), 13. Upchurch, L., & Thornton, K. (2012). Hospice referrals of patients with Alzheimer disease in Southeastern Georgia: implications for hospice referral education. Journal Of Hospice & Palliative Nursing, 14(3), 199-209. doi:10.1097/NJH.0b013e3182423692 Miller, S. C., Lima, J. C., & Mitchell, S. L. (2012). Influence of Hospice on Nursing Home Residents with Advanced Dementia Who Received Medicare-Skilled Nursing Facility Care Near the End of Life. Journal Of The American Geriatrics Society, 60(11), 2035-2041. doi:10.1111/j.1532-5415.2012.04204.x Caplan, A. (2012). Little hope for medical futility. Mayo Clinic Proceedings, 87(11), 1040-1041. doi:10.1016/j.mayocp.2012.09.003 Sokol, E. W. (2013). National Plan to Address Alzheimer's Disease Offers Hope for New Home Care and Hospice Provisions. Caring, 32(1), 24-27. Gnaedinger, N., Robinson, J., McIvor, S., & Koebel, T. (2012). Observatins and experiences of family members during end-of-life dementia care. Canadian Nursing Home, 23(4), 7-12. Meeussen, K., Van den Block, L., Echteld, M., Boffin, N., Bilsen, J., Van Casteren, V., & Deliens, L. (2012). Older people dying with dementia: a nationwide study. International Psychogeriatrics, 24(10), 1581-1591. doi:10.1017/S1041610212000865 Rosenberg, S. (2014). On Hospice. Journal Of Palliative Medicine, 17(5), 615-616. doi:10.1089/jpm.2013.0432 Palliative care in dementia -- a family carerLTGT's view. (2012). European Journal of Palliative Care, 19(6), 279-281. Hockley, J., & Stacpoole, M. (2012). Palliative care in dementia -- two nurses' views. European Journal Of Palliative Care, 19(6), 282-284. Chung, A. (2012). Percutaneous Gastrostomy Feeding Tubes in End Stage Dementia: Don't "Just Do It". Canadian Association Of Radiologists Journal, S5-6. doi:10.1016/j.carj.2012.05.004 Sampson, E., & Burns, A. (2013). Planning a personalised future with dementia:

‘the misleading simplicity of advance directives’. Palliative Medicine, 27(5), 387-388. doi:10.1177/0269216313484426 Schofield, B. (2013). Practice question: End of life. Nursing Older People, 25(9), 16. doi:10.7748/nop2013.11.25.9.16.s19 Bush, M. (2014). Practice Tips for Nurses and Advanced Practice Nurses Related to the Care of Patients with Dementia. Arizona Nurse, 67(3), 6. Ayalon, L., Bachner, Y., Dwolatzky, T., & Heinik, J. (2012). Preferences for end-of-life treatment: concordance between older adults with dementia or mild cognitive impairment and their spouses. International Psychogeriatrics, 24(11), 1798-1804. Unroe, K. T., & Meier, D. E. (2013). Quality of Hospice Care for Individuals with Dementia. Journal Of The American Geriatrics Society, 61(7), 1212-1214. doi:10.1111/jgs.12318 Watkins, Y., Wilkie, D., Dancy, B., Bonner, G., Ferrans, C., & Wang, E. (2012). Relationship among trust in physicians, demographics, and end-of-life treatment decisions made by African American dementia caregivers. Journal Of Hospice & Palliative Nursing, 14(3), 238-243. doi:10.1097/NJH.0b013e318243920c Fuller, A. (2012). Rising to the dementia challenge. British Journal Of Neuroscience Nursing, 8(3), 155. Jox, R., Denke, E., Hamann, J., Mendel, R., Förstl, H., & Borasio, G. (2012). Surrogate decision making for patients with end-stage dementia. International Journal Of Geriatric Psychiatry, 27(10), 1045-1052. doi:10.1002/gps.2820 May, W. F. (2012). Testing the Medical Covenant: Caring for Patients with Advanced Dementia. Journal Of Law, Medicine & Ethics, 40(1), 45-50. doi:10.1111/j.1748-720X.2012.00644.x Scott, S., Sampson, E. L., & Jones, L. (2012). The Compassion programme: looking at improving end-of-life care for people with advanced dementia. International Journal Of Palliative Nursing, 18(5), 212-217. Cadigan, R., Grabowski, D., Givens, J., & Mitchell, S. (2012). The quality of advanced dementia care in the nursing home: the role of special care units. Medical Care, 50(10), 856-862. doi:10.1097/MLR.0b013e31825dd713 Rose, K. M., & Palan Lopez, R. (2012). Transitions in Dementia Care: Theoretical Support for Nursing Roles. Online Journal Of Issues In Nursing, 17(2), 1. doi:10.3912/OJIN.Vol17No02Man04 van der Steen, J., Hertogh, C., de Graas, T., Nakanishi, M., Toscani, F., & Arcand, M. (2013). Translation and cross-cultural adaptation of a family booklet on comfort care in dementia: sensitive topics revised before implementation. Journal Of Medical Ethics, 39(2), 104-109. doi:10.1136/medethics-2012-100903

gusnmanu