Welcome to the Congress

Welcome to the Congress VULNERABLE GROUPS IN SOCIETY: A NURSING ISSUE The Third European Nursing Congress Vulnerable Groups in Society: A Nursing Iss...
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Welcome to the Congress VULNERABLE GROUPS IN SOCIETY: A NURSING ISSUE The Third European Nursing Congress Vulnerable Groups in Society: A Nursing Issue addresses nurses from all sectors in health care, as far as they are involved in the care for vulnerable groups in society. These groups are a concern for nurses, or at least they should be. Because of their vulnerability, or as a result of it, they run a higher risk of developing health problems. Vulnerability can have many different causes, and in order to arrive at solutions, different problems obviously need to be approached by means of different strategies. The most important issue of this congress is how nurses should contribute to reducing the vulnerability and promoting the health and well being of vulnerable groups in society. In view of the fact that this issue has many different dimensions, a broad perspective is chosen for the congress. The presentations will cover a number of different levels, ranging from direct care to regional, national and international perspectives. There is a pre-conference sceduled on nursing ethics entitled Responsibility and vulnerability: a global perspective. During the congress there are more than 50 parallel-sessions, workshops and poster-presentations on mental health, chronically ill, elderly, palliative care and dementia care. But also drug-addicts and homeless, patients with cancer, woundcare and interventions on hard to reach groups will be a subject in the congress. Many workshops do offer the opportunity to meet colleagues form health care settings as mental health and home care. There is also a master-class on pain-management for children and two mini-symposia. One is directed to evidence-based care for vulnerable groups and the other on infectious diseases. The social programme offers a.o. an excursion to the National Museum of History of Nursing. This way, everybody’s interests will be served. The relevance for the nursing profession will be the focal point for all contributions to this congress. We do hope to welcome you and wish you an inspiring congress. In this final announcement you will find only the names of the presenting authors. In the abstract-book and the final programme also the names of the other authors will be published. A. van den Berg, president, Netherlands Council of Nurses and Carers H. Hillmann, president, Foundation European Nursing Congress 2

Welcome to Amsterdam Amsterdam is an international tourist attraction and its life style is widely emulated everywhere. The Dutch are multilingual and so, not surprisingly, visitors to Amsterdam feel very welcome and almost immediately at home. Amsterdam possesses the largest historical inner city in Europe. It is especially famous for the sparkling crescent of canals where wealthy merchants built elegant homes and sturdy warehouses during Holland's Golden Age, the 17th century, when Amsterdam was the richest city in the world. The best introduction to these wondrous waterways is via a canal cruise, on board of a comfortable glass topped boat. Among the favourite tourist attractions in Amsterdam are its 40 museums. At least three of them are world-renowned. • The Rijksmuseum, which welcomes one million visitors a year, boasts a celebrated collection of works by Dutch Masters such as Rembrandt's splendid Nachtwacht (Nightwatch). • Amsterdam's Stedelijk (Municipal) Museum has acquired international fame because of its trend setting permanent collection and temporary exhibitions of modern art. • In the Van Gogh museum one will find over 600 paintings and drawings of Vincent van Gogh, Gauguin, Bernard and Monticelli. Amsterdam also has a world reputation as a cultural centre for orchestral music, opera, classical and modern ballet and its nearly inexhaustible variety of entertainment. Visitors discover this when they hear and see the many street musicians, the brightly painted barrel organs and the centuries-old carillons high in their towers. Every day Amsterdam offers an average choice of forty performances in the about fifty theatres, concert halls and jazz clubs in the city. The celebrated Concertgebouw (Concert Building) is noted for its superb acoustics. The Dutch National Ballet which performs in Amsterdam's Muziektheater, is considered one of the best and most versatile companies in Western Europe. We are sure that you also, as a participant in the 3rd European Nursing Congress will enjoy the many attractions of Amsterdam.

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Organizers The Netherlands Council of Nurses and Carers in close co-operation with the Foundation European Nursing Congress FOUNDATION EUROPEAN NURSING CONGRESS

Committee of recommendation Prof. dr. Hans Adriaansens President, Council for Social Development, the Netherlands Christel Bienstein Executive Director, Institute for Nursing Science, University of Witten/Herdecke, Germany Ria von Bönninghausen President, Dutch National Nurses Organization Nu’91/ President, Standing Committee of Nurses of the EU Job Cohen LL.M Mayor of Amsterdam Ainna Fawcett-Henesy Regional Advisor, Health Systems Organization and Management World Health Organization Prof. dr. Herre Kingma Inspector General of Health Care in the Netherlands Connie Kruckow President, The Danish Nurses' Organization Katriina Laaksonen President, Finnish Nurses Association Joke Leenders Policy advisor, Institute for Mental Healthcare Den Bosch Dr. Beverly Malone General Secretary, Royal College of Nursing, United Kingdom Ásta Möller 2nd vicepresident of ICN/ Member of Parliament of Iceland Mgr. dr. Tiny Muskens Bisshop of Breda, the Netherlands Franz Wagner M.Sc Executive Director German Nurses Association DBfK Director of the WHO-Collaborating Centre for Nursing in Berlin Hans Wiegel President, National Committee of Health Insurers

Board Hanneke Hillmann President, Executive director, Netherlands Centre for Excellence in Nursing Ted Kraakman International Officer, Dutch National Nurses Organization Nu’91 Minke Nieuwboer Regional Coordinator, Netherlands Council of Nurses and Carers Albert Oving, treasurer Consultant, Twijnstra Gudde Management Consultants Bert Petersen Principal, Kreetz Management en Advies bv Paul Poortvliet Policy advisor, Netherlands Centre for Excellence in Nursing Dr. Marieke Schuurmans Researcher, University Medical Center Utrecht, Associate professor University of Professional Sciences Utrecht

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Programme committee Mariska de Bont Policy advisor, Dutch National Association of Districtnurses Dr. Ada Kerkstra Manager Research Department, NIVEL/ Netherlands Institute for Health Services Research Berno van Meijel Researcher, Medical Center at the University Utrecht Dr. Joke Mintjes Associate Professor, HAN University, QM member, Meander Medical Center Amersfoort Dr. Aart Pool Programme-coordinator Nursing and Care, NIZW / Netherlands Institute for Care and Welfare Ko Portengen Executive director, Nursing-home Zuid Oostzorg Drachten Cees de Ridder Former member, ICN board of Directors Dr. Marieke Schuurmans President, Researcher, University Medical Center Utrecht, Associate Professor University of Professional Sciences Utrecht Wubbien Wesselink Delegate, Federation of Nursing in Mental Health,

Scientific Advisory Board Prof. Dr. Tony Butterworth East Midlands NHS Workforce Confederation, Manchester, United Kingdom Prof. Dr. Mieke H.F. Grypdonck University of Gent, Belgium University of Utrecht, the Netherlands Prof. Dr. Huda Huyer-Abu Saad American University of Beirut, Lebanon University of Surrey, United Kingdom Prof. Dr. Margaret Lorenson University of Oslo, Norway Prof. Dr. Sabina De Geest University of Basel, Switzerland Prof. Dr. Wilfried Schnepp University of Witten/Herdecke, Germany Prof. Dr. Theo van Achterberg University of Nijmegen, the Netherlands Prof. Dr. Renzo Zanotti International Institute of Nursing Research Padova, Italy

Congress Secretariat

Eurocongres Conference Management, Amsterdam

Project Management

Bureau Lambregts, Roermond

Subsidizers and sponsors

Academic Hospital Groningen, Groningen Academic Medical Center, Amsterdam University Medical Center Nijmegen St Radboud

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6

11.30

11.00

Workshop 5 15-16

Parallel session 23-27 28-31

Plenary session 4

09.30

Tuesday 7 October

10.00

Monday 6 October

Wednesday 8 October

15.00

14.30

14.00

13.30

13.00

12.30

12.00 Workshop 6 17-18

Poster Session 3

Workshop 3 9-12

16.00

15.30

Workshop 3 13-14

Parallel session 16-19 20-22

Plenary session 3

Closing ceremony

Plenary session 5

Poster Session 2

Parallel session 11-15

Workshop 1 1-4

Poster Session 1

Parallel session 1-5

Preconference on Nursing Ethics

10.30

Plenary session 2

Sunday 5 October

Program overview 17.00

16.30 Workshop 2 5-8

Parallel session 6-10

18.00

17.30 Opening ceremony

Plenary session 1

18.30

Parallel sessions 6-10 • Dementia care • Homecare • Mental Health • Elderly • Palliative care

Parallel session 1-5 • Elderly • Mental health • Chronically ill • Selfmanagement • Palliative care

Parallel sessions 28-31 • Mental health • Parental issues • Vulnerable groups • Patients with cancer

Parallel sessions 23-27 • Infectious diseases • Drugs addicts/ homeless • Informal caregivers • Mentally disabled • Youngsters

Paralell sessions 20-22 • Mental health • World war two survivors • Nursing and politics

Parallel sessions 16-19 • Evidence-based guidelines • The effects of snoezelen • Dementia care • Chronically ill

Parallel sessions 11-15 • Elderly • Mental health • Care for ethnic minorities • Wound-care • Hard to reach groups

Welcome reception

19.00

Preconference on nursing ethics RESPONSIBILITY AND VULNERABILITY: A GLOBAL PERSPECTIVE Venue: Grand Hotel Krasnapolsky, Amsterdam, the Netherlands 5 October 2003 Organised by Nursing Ethics (an international journal for healthcare professionals) and ICNE (the International Centre for Nursing Ethics)

NURSING ETHICS

This is the fourth bi-annual conference organized by Nursing An International Journal for Ethics and ICNE. Like the last conference in Copenhagen in 2001, Health Care Professionals this will also be a workshop conference. Only one invited speaker, Professor Diane Hutton from San Diego, CA, will introduce the conference and the theme. After that there will be discussion forums in the morning and the afternoon, where delegates have a unique opportunity to discuss issues around the theme of responsibility and vulnerability in small groups of 8-10 people. This gives all delegates a voice and a much closer possibility to contribute to and learn from each other on these topics. Delegates will be given several possible choices of forums well ahead of the day. This format has been found to have a greater impact in the field of ethics, where interaction is the most effective way of learning. Experts and students mix and share, and international delegates benefit from more intimate discussions in smaller groups. During the conference there will be a short ceremony to give the Human Rights and Nursing Awards to two people who have been nominated for this honour. Professor Anne J. Davis, the international president of ICNE, will again be presenting the awards. The provisional programme is: 09.30 Registration 10.00 Introduction 10.15 Presentation ‘Responsibility and Vulnerability: a global perspective’ by Prof Diane Hutton 11.15 Discussion Forums 12.30 Plenary discussion

13.00 14.00 14.15 15.30 16.00

Lunch Award Ceremony Discussion Forums Plenary discussion and summing up Close

This is an official pre-conference to the Third European Nursing Congress. Please register by e-mail to [email protected] Registration GBP45 or EUR73 For more information and registration: Verena Tschudin, Nursing Ethics Editorial Office, 26 Cathcart Road, London SW10 9NN, UK Or e-mail to: [email protected] At the latest by 30 July 2003 See also our website: www.freedomtocare.org/iane.htm 7

Sunday 5 October 1645-1815 HRS.

PLENARY SESSION 1

Theatre Room

OPENING CEREMONY Moderator: Dr. J. Mintjes, Associate Professor, HAN University, QM member, Meander Medical Center Amersfoort Welcome H. Hillmann, president Foundation European Nursing Congress Care for vulnerable groups in Amsterdam H. Belliot, alderman for social and public health care Vulnerable groups in European perspective M.M.A. von Bönninghausen, president Standing Committee of Nurses of the EU The nursing profession and vulnerable groups A. van den Berg, president Netherlands Council of Nurses and Carers (AVVV) Vulnerabe groups in society: a nursing issue Dame prof. dr. J. Clark, University of Wales Swansea, United Kingdom

1815-1930 HRS.

WELCOME RECEPTION

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Winter garden of Krasnapolsky

Monday 6 October 0930-1100 HRS.

PLENARY SESSION 2

Theatre Room

Moderator: Prof. dr. T. Butterworth, United Kingdom Exclusion in health care: a sociological perspective

Prof. dr. P. Schnabel, director Social Cultural Planning Office of the Netherlands Psychiatric care in Eastern Europe

Prof. dr. N. Kornetov, President Siberian Organization of Psychiatrists, Russian federation

1130-1245 HRS.

PARALLEL SESSIONS

1130-1245 HRS.

PARALLEL SESSION 1

Theatre Room

ELDERLY Vulnerable by tradition: ethics data for advocacy interventions

A.J. Davis, Japan Self-care of elderly person in view of their vulnerability

K. Backman, Finland Older disabled people and carer views of specialist nurses

W. Tadd, United Kingdom 1130-1245 HRS.

PARALLEL SESSION 2

Foyer

MENTAL HEALTH Evaluation the effectiveness of a cognitive group to reduce levels of perceived stigma within people with severe and enduring mental health problems

D.L. Macinnes, United Kingdom Assessment of patient needs and care in psychiatric health care

M.G.C. de Leeuw, the Netherlands Care for people with severe and ongoing mental health problems

G.Schout, the Netherlands

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Monday 6 October 1130-1245 HRS.

PARALLEL SESSION 3

Volmer Room 1

CHRONICALLY ILL Care for patients with urinary incontinence by a nurse specialist

M.F.M.T. du Moulin, the Netherlands Neurodevelopmental treatment (NDT) in the early stage of stroke

T.B. Hafsteinsdóttir, the Netherlands It might happen or not: how people recently diagnosed with Multiple Sclerosis perceive the risk of needing a wheelchair in the future

H.R. Boeije, the Netherlands

1130-1245 HRS.

PARALLEL SESSION 4

Volmer Room 2

SELF MANAGEMENT Supporting those in need : a review of determinants of (in)-adequate self management behaviour in disadvantaged people with a chronic disease

J.J. van der Bijl, the Netherlands Promotion of adequate self management with regard to fluid intake restrictions. Development of a guideline for dialysis- patients

S.W.M. Weldam, the Netherlands Outcomes of a one year hospital initiated, multicomponent smoking cessation nursing intervention for lung patients

H.J. Jonsdóttir, Iceland

1130-1245 HRS.

PARALLEL SESSION 5

Volmer Room 3

PALLIATIVE CARE Palliative care in the hospital: are support teams necessary and sufficient

M.H.F. Grypdonck, Belgium Patient autonomy and palliative care

M. Engel, the Netherlands Terminal patients and relatives awareness of their situation; the consequences for receiving adequate care

A.L. Francke, the Netherlands

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Monday 6 October 0930-1700 HRS.

POSTER SESSION 1

St. John’s Rooms 1 and 2

POSTER PRESENTATIONS Having a sick baby in a foreign land experiences of mothers without the right of abode in Hong Kong

B.M.C. Yam, Hongkong Training for assistive personnel employed in the care of older people. Implications for care attendants and nurses in two long termcare settings in Southern Ireland

A. Coffey, Ireland Changing emergency department nurses attitude’s towards patients who present with self harm

T.V. McCann, Australia Look behind the picture

F.W.Nijenhuis, the Netherlands Person knowledge and person centred care in a community mental health team

C.L. Clarke, United Kingdom Outpatient crisis intervention and police assistance, a qualitative study

G.B. Hermann, the Netherlands A nurse as well as a coach G. de Haan, the Netherlands Educational challenges in care for people with severe and ongoing mental health problems

G. Schout, the Netherlands Elementary application of a scientific dialogue

E. Weerts, Germany PTSD depression and health status in Lebanese civillians exposed to a church explosion

L.F. Farhood, Lebanon

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Monday 6 October 1130-1245 HRS.

WORKSHOP SESSION 1 Workshop 1

Season Room 1

The problems and experiences of patients and families who undergo genetic testing

L. Dinc, Turkey Workshop 2

Season Room 2

Responsibilities of the nursing profession towards people caught up in conflict and war V.R. Tschudin, United Kingdom Torture and torture survivors; the aspects of nursing

V.M. ten Kate, the Netherlands Workshop 3

Warmoes Room

The use of photography in mental health care as a means to assist patients to express the way they handle illness and handicaps in their daily lifeworld

J.E. Sitvast, the Netherlands Workshop 4

Dam Room

Tools to point out minimal quality of care; for and by nurses and certified nursing assistants

G.B. van Leeuwen, the Netherlands Love and tendercare

T. Nijboer, the Netherlands 1400-1530 HRS.

PLENARY SESSION 3

Theatre Room

Moderator: Prof. dr. M. Lorensen, University of Oslo, Norway The be-alert attitude: the care for people with multiple chronic diseases

Dr. C. Smit, European Platform for Patientsorganizations Science and Industry (EPPOSI), the Netherlands Malnutrition in nursing homes

Dr. J. Kayser-Jones, University of San Francisco, United States of America 1600-1715 HRS.

PARALLEL SESSIONS 1600-1715 HRS.

PARALLEL SESSION 6 DEMENTIA-CARE

Theatre Room

Physical restraints in Dutch psychogeriatric nursing homes

A.R. Huizing, the Netherlands Psychotropic drugs related to family members perceptions of quality of care among elderly people living in nursing homes

B. Wilde Larsson, Sweden The lived experience of elderly persons with suspected or mild dementia 12

E. Steeman, Belgium

Monday 6 October 1600-1715 HRS.

PARALLEL SESSION 7

Foyer

HOMECARE The impact of home parenteral nutrition on daily life

A. Persoon, the Netherlands Quality criteria for health care provision for patients in a minimally conscious state

A. Horn, Germany At home I feel independent: Home care nursing of people with severe functional limitations

K. Bjornsdóttir, Iceland 1600-1715 HRS.

PARALLEL SESSION 8

Volmer Room 1

MENTAL HEALTH Mutuality as background music in women´s lived experience of mental health and depression

H.B. Hedelin, Sweden Women’s conceptions of coping with major depression in daily life, with the help of professional and lay support a qualitative salugonetic approach

I. Skarsater, Sweden How men with depression cope with daily life through professionaland lay support

I. Skarsater, Sweden 1600-1715 HRS.

PARALLEL SESSION 9

Volmer Room 2

ELDERLY Becoming a non driver in old-age

M. Linhart, United States of America Perspectives on dignity in the lives of older Europeans

W. Tadd, United Kingdom Supporting vulnerable people’s health: the social support research program

E. Makwarimba, Canada 1600-1715 HRS.

PARALLEL SESSION 10

Volmer Room 3

PALLIATIVE CARE The role of nurses in palliative terminal care and end of life decisions

A.J.E. de Veer, the Netherlands Danish and Norwegian hospice nurses ethical reflections in prognosis disclosure

M. Lorensen, Norway 13

Monday 6 October 1600-1715 HRS.

WORKSHOP SESSION 2

Workshop 5

Season Room 1

ZONMW MASTERCLASS: MEET THE EXPERT! Pain in young children. From pain-measurement to the implementarion of a systematic pain policy. P. van Deventer and J. Latour, the Netherlands Moderator: S. Driessen, the Netherlands In the Netherlands 4500 childeren are hospitalized every year for pediatric intensive care. Ninety percent of them are younger than three years. When these children experience pain they are not able to express it. In their experience, pain, fear and uncertainty about what is happening are confused. Fact is, the pain can be relieved with the right medication. But then one needs to have insight into the nature of the pain. The ErasmusMC-Sophia Pediatric Hospital has found a solution to this problem. The Sophia has developed a very succesful instrument for measuring pain in young children – the socalled Comfort scale. This instrument was not only developed, but also carefully introduced in the hospital. The project links pain-measurement to a systematic pain policy. This means the medication is adapted for higher pain scores. Nursing staff are very impressed by this new approach. The combination of a thorough research, training on-the-job by an experienced nurse, improvement of the quality of care and easy access to the project co-ordinator for questions and problems ensured a succesful implementation in the Sophia. This experience and expertise are now used for introduction in other (academic) hospitals. ZonMw supports the introduction nation-wide. In these interactive workshop you will learn the following: - How do I use the Comfort-scale? - Do we have a good pain policy in my department? - How did implementation go in the Erasmus MC? - What are the experiences in other hospitals? - Lessons for implementation in my own hospital.

Workshop 6

Season room 2

The use of photography in mental health care as a means to assist patients to express the way they handle illness and handicaps in their daily lifeworld

J.E. Sitvast, the Netherlands Workshop 7

Warmoes Room

Meet your colleagues: nurses in mental health Special interest group

Dutch Federation of Mental Health nursing Workshop 8 Meet the expert Nursing research and chronicaly ill M.H.F. Grypdonck, the Netherlands 14

Dam Room

Tuesday 7 October 0930-1100 HRS.

PLENARY SESSION 4

Theatre Room

Moderator: Prof. dr. R. Zanotti, International Institute of Nursing Research Padova, Italy The ICN and vulnerable groups

C. Hancock, President of the International Council of Nurses (ICN) Care for homeless drugaddicts

Dr. H. Visser, Vicar, Church of St Paul/ Foundation for Ecclesiastical and Social work, the Netherlands Discussion 1130-1245 HRS.

PARALLEL SESSIONS 1130-1245 HRS.

PARALLEL SESSION 11

Theatre Room

ELDERLY Goal attainment care for geriatric patients improves quality of care and reduces lenght of stay

R.E. Pel, the Netherlands Decision-making for use of services for the elderly in the long term care insurance in Japan

K.A. Asahara, Japan Discharge management for frail geriatric patients: effects of an implementation project

E. Steeman, Belgium 1130-1245 HRS.

PARALLEL SESSION 12

Foyer

MENTAL HEALTH Prevention of relapse in patients with schizophrenia,

B.K.G. van Meijel, the Netherlands Psychotropic medication taking in people with schizophrenia

T.V. Mc Cann, Australia Seclusion the inside story

T. Hoekstra, the Netherlands

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Tuesday 7 October 1130-1245 HRS.

PARALLEL SESSION 13

Volmer Room 1

CARE for ETHNIC MINORITIES The effects of the salsa-training on the quality of care of professional carers to immigrant clients in the Netherlands

F.M. de Graaff, the Netherlands Diabetic attitudes among Hispanics: a vulnerable population at risk

W.R. Whetstone, United States of America Effectiveness of diabetes peer education for migrant type 2 diabetes patients : a experiment in general practice

A.J.J. Voorham, the Netherlands 1130-1245 HRS.

PARALLEL SESSION 14

Volmer Room 2

WOUNDCARE Non blanchable erythema: an alternative approach to identify patients vulnerable to developing pressure ulcers

K. Vanderwee, Belgium Patients suffering from leg ulcers: patient characteristics patient problems and current outpatientcare

M.M. Heinen, the Netherlands From project to a national expertisecentre

F.M.J. Hartog, the Netherlands 1130-1245 HRS.

PARALELL SESSION 15 HARD TO REACH GROUPS Crossing borders enabling members of the gypsy and traveller community to access appropriate and effective mental health services

J.M. Repper, United Kingdom Selfmanagement and poverty an exploratory investigation into adherence and self management in poor chronically ill

V. Duprez, Belgium Interstate truck drivers: a vulnerable population,

S. Barlow, United States of America Directly observed treatment for vulnerable groups in Tuberculosis control

B. Vegter, the Netherlands

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Volmer 3

Tuesday 7 October 0930-1700 HRS.

POSTER SESSION 2

St John’s 1 and 2

POSTER PRESENTATIONS Guidelines self-management of patients with COPD in general practice

M.P. te Lintel Hekkert, the Netherlands Evaluation of the counselling skills of nurses in group based self-management programmes

G.M. Sol-de Rijk, the Netherlands Loss of energy among individuals with multiple sclerosis

A. Lerdal, Norway Interventions for the disease management heart failure patients

T. Jaarsma, the Netherlands Coordinating study evaluating outcomes of advising and counseling in heart failure (coach): methodology and design

T. Jaarsma, the Netherlands An innovative project: the development of a national supported education program “prevention and treatment of pressure ulcers

C.M. Bronner, the Netherlands A comparison of nursing interventions with terminal cancer patients in a hospice unit and general units

S.S. Han, South Korea Nursing care and total laryngoectomy: the dressing as an autonomous and resolving technology

F. Romijn Tocantins, Brazil The implementation of the comfort score: a validated pain instrument for the 0 to 3 year old

P.L. van Deventer-Brunner, the Netherlands Risk of injury or death due to epilepsy in people with a mental handicap

H.A.C. Vallenga, the Netherlands

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Tuesday 7 October 1130-1245 HRS.

WORKSHOP SESSION 3 Workshop 9

Season Room 1

Responsibilities of the nursing profession in conflict and war

V. Tschudin, United Kingdom Torture and torture survivors: the aspects of nursing

V.M. ten Kate, the Netherlands Workshop 10

Season Room 2

Care for shattered persons: a study on care provided by home care organisations to patients with mental problems living independently

H.S.M. Kort, the Netherlands Workshop 11

Warmoes Room

The use of photography in mental health care as a means to assist patients to express the way they handle illness and handicaps in their daily lifeworld

J.E. Sitvast, the Netherlands Workshop 12

Dam Room

Meet your colleagues: community-nurses and district-nurses Special interest group

Dutch National Organization for community-nurses 1400-1630 HRS.

PARALLEL SESSIONS

1400-1530 HRS.

PARALLEL SESSION 16

Foyer

The effects of snoezelen in dementia care

J. Peter, the Netherlands 1400-1530 HRS.

PARALLEL SESSION 17

Volmer Room 1

DEMENTIA-CARE The effects of psychosocial treatments on aggressive depressed and apathetic behaviors of people with dementia

R. Verkaik, the Netherlands Individuals ability to use reminiscence and life review in case of dementia C. Sallstrom, Sweden Does dementia care mapping work as a tool for assessment and development of the quality of dementia care? Results of a pilot study in Finland

S. Sormunen, Finland The effects of snoezelen in dementia care

J.C.M. van Weert, the Netherlands 18

1400-1630 HRS.

PARALLEL SESSION 18

Theatre Room

ZONMW MINISYMPOSIUM Evidence-based guidelines for nursing vulnerable people Moderators: prof. dr. F. van Wijmen and A. Eliens This ZonMw workshop is dedicated to the need for research on and the implementation of evidence-based guidelines for nurses. As will be shown by the examples provided in the workshop, vulnerable people (addicted people, mentally retarded people, children and the elderly) in particular may benefit from these guidelines. The workshop will offer practical recommendations for making and implementing guidelines for nurses. The speakers will answer the following questions: - what kind of evidence has been used? - how has this evidence been 'registered'? - how was the cooperation with other organisations? - what kind of efforts were made to implement the guidelines? - what were the obstacles? - which type of support was provided? Special attention will be given to the way (multi-disciplined) commitees and organisations facilitate this proces of development and implementation. The Dutch situation will be placed in an international context. Introduction: Guidelines and evidence-based nursing: let’s do it!

C. van Heugten and C. Wagner, the Netherlands Development of guidelines for nurses in addiction care

R. Rutten, the Netherlands Nursing guidelines regarding the use of restraint in the care for people with learning disabilities

B. Lendemeijer, the Netherlands The appropriate use of nebulisers in home settings in the Netherlands

A.B.W.M. Quak, the Netherlands Continuous improvement of pressure ulcer care using guideline and clinical indicators

R. van Zelm, the Netherlands

1400-1530 HRS.

PARALLEL SESSION 19

Volmer Room 2

CHRONICALLY ILL Chronic illness, clinical management and client confidence

P.A. Rapley, Australia Presence a central phenomenon of good nursing care for vulnerable chronically ill in nursing homes

J.S. Jukema, the Netherlands Quality of interactions between nurses and patients in complex continuing care

V. Boscart, Canada 19

Tuesday 7 October 1400-1530 HRS.

WORKSHOP SESSION 4

Workhop 13 Meet the president of the ICN

Volmer Room 3

Special interest group with mrs. C.Hancock president of the International Council of Nurses

Workshop 14

Warmoes Room

The use of photography in mental health care as a means to assist patients to express the way they handle illness and handicaps in their daily lifeworld

J.E. Sitvast, the Netherlands 1600-1715 HRS.

PARALLEL SESSIONS 1600-1715 HRS.

PARALLEL SESSION 20

Foyer

MENTAL HEALTH “Then I just showed her my arms..” bodily sensations in moments of alienation related to self injurious behaviour

S.S. Schoppmann, Germany Mentally ill patients with severe violent behaviour a nursing concern in forensic care

F.A.J. Fluttert, the Netherlands Using a day structure as a nursing intervention in inpatient depressed elderly struggles in patient care

F.G.H.M. Clignet, the Netherlands 1600-1715 HRS.

PARALLEL SESSION 21

Volmer Room 1

WORLD WAR TWO SUVIVORS Care of elderly Jewish people in Germany

C. Kronsteiner, Germany Needs of nursing care of Jewish elderly in Germany

C. Haufe, Germany Researching the care needs of NS survivors in Germany: coming to terms

W. Schnepp, Germany 1600-1700 HRS.

PARALLELSESSION 22

Volmer Room 2

NURSING AND POLITICS Special interest group for nurses who are interested in politics

A. Timmer, member of the Dutch Parliament 20

Wednesday 8 October 0930-1245 HRS.

PARALLEL SESSIONS 0930-1245 HRS.

PARALLEL SESSION 23

Theatre Room

MINI SYMPOSIUM INFECTIOUS DISEASES AND SEXUAL TRANSMITTED DISEASES Czech models of nursing and community social work in Namibia and in the Republic of South Africa

A. Mojzisova, Czech Republic Results of an enhanced -outreach programme of hepatitis B vaccination among men who have sex with men, hard drug users, sex workers and heterosexual persons with multiple partners

J. Heijnen, the Netherlands Way of living sexual behaviour and sexual genital infections in a young population: a pilot study

A-L. Berglund, Sweden Tuberculosis control on the right track; TB contacttracing among train passengers

A. Tjaden, the Netherlands Coffeebreak 1100-1130 HRS Evaluation of the national meningoccocal vaccination campaign, subjects satisfaction and logistics

J. Doosje, the Netherlands Outbreaks of gastro enteritis in institutions

C.M. de Jager, the Netherlands Healthcare workers hand decontamination practices compliance with recommended guidelines

S.A. Creedon, Ireland 0930-1100 HRS.

PARALLEL SESSION 24

Foyer

DRUG ADDICTS/HOMELESS Nursing care for heroin addicts: an action research for the enlargement of the autonomy of the nursing team and the development of special care programmes in outpatient methadon maintenance clinics

C.A. Loth, the Netherlands Practicing on the edge: doing what it takes to get street involved injection drug users to accept medical treatment

D. Siegl, Canada Evaluation of outreach projects aimed at vulnerable people

M. Planije, the Netherlands Testing a social support intervention with vulnerable women

D. Hatton, United States of America

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Wednesday 8 October 0930-1100 HRS.

PARALLEL SESSION 25

Volmer Room 1

INFORMAL CAREGIVERS Valuable but vulnerable spousal and filial informal caregivers as facilitators of health maintenance for their vulnerable dependent elderly care recipients residing in the community

C.H. Greenberger, Israel Children who care: hidden sorrow

M. te Lintel Hekkert, the Netherlands How much help should families of people with severe functional limitations receive?

K. Bjonsdóttir, Iceland School age caregivers: perceptions of school nurses working in central England

L.A. McClure, United Kingdom 0930-1100 HRS.

PARALLEL SESSION 26

Volmer Room 2

MENTALLY DISABLED Danger! physical restrain by the Swedish belt can lead to dead and injuries

M.E.W. Melchior, the Netherlands Tools to point out minimal quality of care: for and by nurses and certified nursing assistants

G.B. van Leeuwen, the Netherlands The role of the nurse in preventing the abuse of people with learning disabilities

R.S. Davies, United Kingdom Social coherence advancing a model of inclusion in learning disability

C.L. Clarke, United Kingdom 0930-1100 HRS.

PARALLEL SESSION 27 YOUNGSTERS Young and homeless in East London: examining the needs of young people in Stratford Foyer

P.A. Smith, United Kingdom Health and suffering within schools from the young person’s perspective

C.S. Warna, Finland Insight in ones own situation as a means to coping

I.L.W. Wang, Norway Family dynamics and risk factors in the problematic family as base for maltreatment and child abuse

J. Sansoni, Italy

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Volmer Room 3

Wednesday 8 October 0930-1100 HRS.

WORKSHOP SESSION 5

Workshop 15 Dam Room The way to excellence M. van Vliet, Rho Chi Chapter of Sigma Theta Tau International Workshop 16

Warmoes Room

Responsibilities of the nursing profession in conflict and war

V. Tschudin, United Kingdom Unavoidable empathy approach towards most innocent vulnerable groups war refugees

N.K. Kuzmanovic, Macedonia 0930-1530 HRS.

POSTER SESSION 3

St John’s Rooms 1 and 2

POSTER PRESENTATIONS Pain and distress in elderly patients with hip fracture

M.L. Hall-Lord, Sweden Pain assessment in cognitive impaired elderly with dementia

S.MG. Zwakhalen, the Netherlands Social relationship as preventive attitude in the context of HIV-AIDS: a perspective for health assistance

F. Romijn Tocantins, Brazil Empowerment of nurses to provide an advanced HIV-Nursing practice

D. Nicca, Switzerland Forced incarcaration of pregnant women for substance abuse: ethical and legal considerations

J. Tillett, United States of America Evaluation and developing professional skills in health care personnel

A.L. Lepisto, Finland Support of employees after traumatic experiences in the workplace

A.G.M. Neuman-van Eijk, the Netherlands Fatique in the general population

A. Lerdal, Norway Effects of home visits by home nurses to elderly people with health problems

A.I.E. Nicolaides-Bouman, the Netherlands

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Wednesday 8 October 1130-1245 HRS.

PARALLEL SESSIONS 1130-1245 HRS.

PARALLEL SESSION 28

Foyer

MENTAL HEALTH Dutch nurse-run boarding-houses or psychiatric patients and homeless during the 20th century

G.J.C. aan de Stegge, the Netherlands Responsability for care “we don’t exclude”

M. Thijssen, the Netherlands 1130-1245 HRS.

PARALLEL SESSION 29

Volmer Room 1

PARENTAL ISSUES Articulating maternal caregivers concerns, knowledge, and needs an interpretive phenomenological study

H.M. Prakke, Germany Lesbian mothers in the USA: perceived stigma and disclosure issues

M.A. van Dam, United States of America Parent participation during a high risk procedure in a paediatric Intensive Care Unit

W.B.H. Bohmer, the Netherlands 1130-1245 HRS.

PARALLEL SESSION 30

Volmer Room 2

NURSING AND VULNERABLE GROUPS Dual Vulnerability nurses and vulnerable groups

J.L. Storch, Canada Promoting the participation of vulnerable groups in nursing research

R.S. Davies, United Kingdom 1130-1245 HRS.

PARALELL SESSION 31

Volmer Room 3

PATIENTS WITH CANCER Prevalence and course of fatique in patients with breast cancer receiving adjuvant chemotherapy,

N. de Jong, the Netherlands The lived experience of persons’receiving palliative chemotherapy

S. Rensen, Belgium Man lives by hope: as long as there is the medication, there is hope: A qualitative study to describe the role of hope in cancer patients participating in phase 1 trials

C. Nierop van Baalen, the Netherlands 24

Wednesday 8 October 1130-1245 HRS.

WORKSHOP SESSION 6

Workshop 17

Dam Room

Tools to point out minimal quality of care assistants for and by nurses and certified nursing assistants

G.B. van Leeuwen, the Netherlands Love and tendercare

T. Nijboer, the Netherlands Workshop 18 Meet your colleagues.

Warmoes Room

Special interest group on the role of nursing associations

B. Vogel and T. Kraakman Netherlands Council of Nurses and Carers 1400-1530 HRS.

PLENARY SESSION 5

Theatre Room

CLOSING CEREMONY Moderator: Prof. dr. M.H.F. Grypdonck, Belgium What nurses should do for vulnerable groups Prof. dr. J. Faugier, Director of the National Health System National Nursing Leadership programme United Kingdom Closing Remarks H. Hillmann, President, Foundation European Nursing Congress M.J. Willemse, executive director of the Netherlands Council of Nurses and Carers

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SOCIAL PROGRAM Opening reception Date Venue Time Price

: Sunday, 5 October 2003 : Winter Garden Grand Hotel Krasnapolsky : 1730 to 1900 HRS. : Included in registration fee

Congress dinner Date Venue Time Price

: Tuesday 7 October 2003 : Restaurant “Haesje Claes” : 1930 to 2230 HRS. : € 35

We kindly invite all participants to the congress dinner on Tuesday 7 October 2003 in the most typical Dutch restaurant “Haesje Claes”. Please note that there is a limited number of seats available, therefore registrations will be handled on a first come, first served basis. Early bookings are advised.

Excursion Program A special excursion program has been arranged for the duration of the congress. All tour are offered on Sunday 5 October between 13.00 and 17.00 hours and on Tuesday 7 October between 15.30 and 17.30 hours. The visit to the national museum for nursing and care is only available on Monday 6 October.

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Please note: • Tours depart from and return to the NH Grand Hotel Krasnapolsky unless otherwise stated. • Tours should be booked in advance when registering for the meeting (see registration form). • A limited number of tickets for each tour may be available at the registration desk during the meeting. • Tickets are not reimbursable should a registrant not be able to take part. • Lunch is not included. • Some tours can only accommodate a limited number of participants, and registration for excursions will proceed on a first-come-first-serve basis. • If your choice of excursion is full, you will be notified and given the option to register for an alternative choice. • Tours are subject to cancellation due to insufficient interest or unforeseen circumstances.

Excursion 1 Homes of Holland Duration : 1 hour Price : € 15 This walking tour shows you the city 'behind the scene'. During the tour you stop along the way to meet the citizens of Amsterdam. This is your chance to have a look inside Nico's 17th century monument. Nico will give you a musical interlude on his harpsichord.

Carolien lives on a canalboat. It is very small but the view is marvellous. The last house we visit is Swannet's. Hopefully, she already woke up, after all she's a student

Excursion 2 Theo’s Tuliptour Duration : 1 hour Price : € 15 For 10 years now Theo is homeless. His livingroom is 2 square kilometer big in the old centre of Amsterdam. Sometimes he sleeps at the Salvation Army, more often he sleeps on a boat. During this tour Theo shows you not only one of the oldest parts of Amsterdam, he also tells you how he got into problems. He was only 17 when he left Enschede and moved to the capital. Does he have friends here? A dentist? Dreams? The tour ends in a flowershop where you can eat some tulips, violets and other nice flowers.

Excursion 3 Reading and visit Prostitution Information Center Duration : 1 hour Price : € 15 This reading is about the activities of the intermediary project for prostitutes at the Municipal Health Service in Amsterdam. Through fieldwork the team approached the prostitutes in their workplaces in the brothels. Prostitution Information Center. Unique in the world. Here you are welcomed by ex-prostitute Jaqueline. She will answer all your questions. There also is an exhibition of the history of prostitution in Amsterdam and you can visit a windowbrothel.

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Excursion 4 National Museum for the History of Nursing. Visit and guided tour with Special Museum buffet Duration 6 hours Departuse Krasnapolsky 1530 HRS. Return 2130 HRS. Price : € 42,50 (including, bustrip, entrance museum, guided tour, Special Museum buffet This tour is only available on Monday 6 October) Programme 1530-1700 HRS.

Coach trip from Amsterdam to Zetten 1700-1715 HRS.

Welcome and refreshments 1715-1730 HRS.

“The uses of a museum for nurses”, by Nannie Wiegman, director and nurse historian 1730-1750 HRS.

'A Century of Dutch Nursing' (movie, English spoken) 1750-1900 HRS.

Visit of the museum 1900-2000 HRS.

Special Museum Buffet in the museum café 2000-2130 HRS.

Return trip to Amsterdam Since 1999 Dutch nurses have their own historical centre: the National Museum for the History of Nursing and Care. The museum focuses on the history of the nursing and caring professions in the last 150 years. At the museum we are convinced that historical knowledge is central to a process of permanent professionalization process. Therefore the museum not only devotes itself to the past. It also cares about the present position of nursing and caring and about its future. It does so by means of expositions, movies, a variety of educational programs and a documentation center. As the history 28

of nursing is truly international and has interesting national varieties a visit to the museum might also interest foreign visitors. In October 2003 the Museum features two expositions: • “Sisters in impeccable white dress”. An image of 150 years of nursing. Sounds, images and an extensive documentation of nursing education, working conditions and professional organizations will show you how it felt to be a nurse in the 18802000 period. • “A century of maternity care” (1900-2000). This exposition documents the typical Dutch phenomenon of childbirth in the home and the nursing and caring practices that surround it.

The museum has found accommodation in a monumental boarding-school dating back to 1909 in Zetten, a village 1,5 hour drive from Amsterdam. For a pre-view: www.nmvv.nl

General Information Venue The 3rd European Nursing Congress is to be held in the NH Grand Hotel Krasnapolsky Hotel in the city centre of Amsterdam. NH Grand Hotel Krasnapolsky, Dam 9, 1012 JS, Amsterdam Telephone: +31 (0) 20 - 554 9111 Telefax: +31 (0) 20 - 664 1116

Dates 5 - 8 October 2003.

Working language • English, with simultaneous translation in Dutch for plenary sessions. • German translation will be available if there are at least 75 German speaking participants for plenary sessions. • Spanish translation will be available if there are 75 Spanish speaking participants for plenary sessions.

Banking Currency can be changed at the Hotel. Several banks are located close to the hotel. Banking hours are: Monday to Friday 09.00 - 17.00 HRS.

Registration Application to participate in the 3rd European Nursing Congress should be made on the registration form enclosed. The form should be completed and returned as soon as possible to the Congress Secretariat. if received before July 1, 2003, € 415 if received after July 1, 2003, € 465 The registration desk is located in the hotel. The congress staff will be pleased

to help you with all queries regarding registration, social arrangements and excursions. Please do not hesitate to contact them, if there is any way in which they can make your stay more enjoyable.

The congress fee includes • admittance to all sesions • welcome reception • coffee and tea during breaks • lunches • abstract book

Payment a. Bank transfer: Bank: Fortis Bank (Nederland NV), Amsterdam, The Netherlands. Bank account number: 25.67.62.023, ref. Nursing 2003 c/o Eurocongres. SWIFTcode: FTSBNL2R Participants are requested to transfer 29

the amount in Euro to account number mentioned above. Please mention your name clearly on the bank transfer. b. Certified/guaranteed payment Bank Cheque: The Bank Cheque, which should clearly state the participant name(s), should be attached to a copy of the registration form and made payable to Nursing 2003, c/o Eurocongres Conference Management, Jan van Goyenkade 11, 1075 HP Amsterdam, The Netherlands. Please note that Eurocheques and Personal Cheques will NOT be accepted. c. Creditcard Creditcards of American express, Visa and Mastercard/Eurocard are accepted.

Confirmation of registration When your completed registration form plus payment, or proof of payment, are received by the Congress Secretariat, you will receive written confirmation of your registration by mail. Registrations received by the Congress Secretariat after 19 September 2003 will not be confirmed in writing. This does not mean that you are not registered. Consequently, please bring the copy of the registration form, that you keep for your own files, as well as the proof of payment of your registration fee with you when you travel to Amsterdam

Cancellations The Conference Secretariat must be notified in writing of cancellations of registrations. If cancellation is received before 1 September 2003 fees paid will be refunded less a cancellation charge of € 100. We regret that no refunds will be made after that date. For administrative reasons refunds will be dealt with after the congress.

Dietary requirements Arrangements can be made for delega30

tes with special dietary requirements. Please complete this on the registration form.

Hotel Accommodation Through the intermediary of the RAI Hotel Service, hotel accommodation can be reserved at reduced rates in the hotel mentioned on the enclosed hotel booking form. Rates quoted are per room, per night, and are including services, taxes and private facilities unless otherwise stated. If hotel reservations are required, you are kindly requested to return the enclosed hotel booking form. In order to avoid disappointment, early booking is advised. RAI Hotel Service reserves the right to book you into a similar hotel, in case the requested hotel is already fully booked. All requests for extra booking forms and additional information can be directed to: RAI Hotel Service P.O. Box 77777, 1070 MS Amsterdam, The Netherlands Telephone:+31 (0)20 549 1927 Telefax:+31 (0)20 646 1925

Transport in Amsterdam NH Grand Hotel Krasnapolsky is situated in the very heart of Amsterdam and near to the Central Station. Most hotels in the centre of the city are within walking distance of the congress hotel. Amsterdam has an extensive public transport system. Participants who are not staying in the centre of the city can take a taxi or a bus (stop Dam Square)

Transportation from Schiphol Airport By train: A regular service operates between the airport and Amsterdam Central Station (NH Grand Hotel Krasnapolsky is

within walking distance from the station). Trains leave every 15 minutes. By taxi: The journey to Amsterdam takes about 20 minutes and costs around € 45,-. Shuttle service: This operates from Schiphol Airport to NH Grand Hotel Krasnapolsky (KLM bus) every half hour and costs around € 10,-.

Travel and visa Entry to the country is granted to all foreigners taking part in congresses organized in the Netherlands, regardless of their nationality. Delegates must, of course, meet the normal requirements, i.e. they must possess valid travel documents and sufficient means of support. Delegates requiring a visa for entry to the Netherlands are strongly advised to make their application in their home countries at least three months before the intended date of travel. Visa application procedures are easier when the acknowledgement of registration is included.

should be understood that this letter is only to help delegates to raise travel funds or to obtain a visa and is not a commitment on the part of the organizers to provide any financial support. Applications for a letter of invitation should be received by the Congress Secretariat (Eurocongres Conference Management) before 1 September 2003. As the Dutch embassies in foreign countries only accept original letters, the Congress Secretariat will NOT be able to send you a letter of invitation by fax or e-mail. Please take this into consideration. Applications received after September 1, 2003 will not be dealt with. Refunds cannot be made when visa applications are not granted. Please note that only registered participants who paid their Congress fee may apply for a letter of invitation.

Liability and Insurance In registering for the 3rd European Nursing Congress, participants agree that neither the Organizing Committee nor the Congress Secretariat assumes any liability whatsoever. Participants are requested to make their own arrangements in respect of health and travel insurance.

Program changes The organisers cannot assume liability for any changes in the programme due to external or unforeseen circumstances.

Weather The weather in the Netherlands in October is usually mild. The average temperature is around 15°C. A raincoat is advisable.

Letter of invitation

Important data

The Congress Secretariat will send you a letter of invitation upon request. It

Early registration fee before 1 July 2003 Late registration fee after 1 July 2003

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FOUNDATION EUROPEAN NURSING CONGRESS

Organizers The Netherlands Council of Nurses and Carers in close co-operation with the Foundation European Nursing Congress Congress secretariat Eurocongres Conference Management P.O. Box 74713 1070 BS Amsterdam, The Netherlands Telephone: +31 (0)20 679 3411 Telefax: +31 (0)20 673 7306 Email: [email protected] www.eurocongres.com/nurse Information on hotel arrangements: RAI Hotel Service Telephone: +31 (0)20 549 1927 Telefax: +31 (0)20 646 1947 Email: [email protected] Touristical Information Amsterdam Tourist Board Statonsplein 10 1012 AB Amsterdam, The Netherlands Telephone +31 (0)20 6266444