We make a living by what we get. We make a life by WHAT WE GIVE

2 0 1 3 A N N U A L R E P We make a living by what we get. We make a life by WHAT WE GIVE. – Winston Churchill – O R T We learn and grow to...
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2 0 1 3

A

N N U A

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We make a living by what we get. We make a life by

WHAT WE GIVE. – Winston Churchill –

O R

T

We learn and grow together each day as

we fight through our medial issues. Together, we can reach out to each other for comfort and answer each other’s questions.

dear friends: Mark Litzow & Ginger Holmes

The vision and mission of Gift of Life Transplant House is to provide Mayo Clinic transplant patients with high quality affordable accommodations in a supportive home-like environment. We have had a successful year in terms of providing a large number of patients and families with an affordable home away from home as they face the challenges of navigating through the transplant process. We are grateful to our donors and benefactors for their generous contributions to our efforts which help us to sustain the mission of the House and keep our daily fees low. The year 2014 marks the 30th anniversary of the Gift of Life Transplant House. The history of the House is nicely outlined by our founder, Ed Pompeian, in the 2013 Winter issue of the Gift of Life Transplant House newsletter, a copy of which can be found on our website at www.gift-of-life.org. We are planning a variety of events to celebrate this important milestone in the history of the house, a summary of which can also be found on our website.

We are pleased to provide you with this 2013 Annual Report of the activities of the Gift of Life Transplant House. In 2013, we completed several important projects and enhancements at Gift of Life Transplant House. In the fall, we finished the implementation of our energy audit and savings plan. We will start to realize the benefits in 2014. Also, we finished the construction and completion of our new Family Room at the 705 house. And most importantly, the Board of Directors appointed a new Executive Director, Ginger Holmes. Ginger has been a dedicated director and has done an excellent job managing our staff and guests and has provided new sources of contributions to our mission. Thank you again for your dedication and support of the Gift of Life Transplant House. We hope to see you during our anniversary year of 2014.

with sincere thanks, MARK LITZOW

President, Board of Directors, 2013

GINGER HOLMES Executive Director

Gift of Life Transplant House – ( 1 ) – A Home That Helps & Heals

a sister’s journey in loving memory of

GELENE ROHR BY CINDY PETERSEN

In 2009, my sister, Gelene Rohr was diagnosed with Non-Hodgkins Lymphoma. With a husband and 3 teenagers she decided to receive chemo treatments near her home in Long Prairie, MN. In December, her oncologist thought her PET Scan appeared to look abnormal and was referred to Mayo Clinic. At the end of December, we received our first “high” from Mayo Hematology when after looking at her Pet scan determined what appeared to be abnormal was actually, brown fatty tissue and she was free of cancer. She returned home to pick up her life again with the understanding that she would return for a follow up appointment in August. By that time, she knew the cancer had returned. After extensive testing, her doctors felt she would be a good candidate for an autologous stem cell transplant. We moved into the GOL House.

My husband Pat and I were the main caregivers as we had more flexibility in our schedules than others in our family. Pat took the first week taking Gelene to the multiple appointments that are needed prior to a transplant. After I returned from a work conference I took over the majority of the caregiving as I could do much of my work from the GOL House. Computer access in our room was one of the many benefits as well as having the computer room available when a larger screen and printing was needed. Turns out it’s also a great place to meet with other GOL residents.

Gift of Life Transplant House – ( 2 ) – A Home That Helps & Heals

Gelene received her first successful transplant on December 8 and after a few complications and a 10 day stay in the hospital we were able to return home in early January 2011. She was on the way to recovery and back to her active life. At her one year anniversary of her transplant we once again learned her cancer had returned. This brought several more rounds of chemotherapy. Later her doctors decided a second transplant was possible, but this time it would be allogeneic with the hope of having a sibling as a match. My brother, Duane from Nome, Alaska was the match so plans were made to begin the transplant process once again. In June 2013, Gelene and I moved back to the GOL House. It felt like home. We had familiar surroundings, most of the same staff and even a couple still in the House from when we were there in 2011. It was reassuring to have that familiarity. We eased into the routine smoothly. Patients tend to get to know one another as they mingle in the dining room and the caregivers that prepare the meals tend to get to know one another as they spend time in the kitchen. The eating areas are very much the heart of the GOL House. It worked out well that my brother, Duane was able to stay with us at the GOL House for about a week while he went to his pre-donation appointments and ultimately donated his stem cells. It was a wonderful opportunity for Gelene and Duane to spend time together when she was feeling good and I was working. They shared many hours in one or more of the family rooms watching Twins games. Gelene spent many days in the hospital. She was treated for shingles, She endured two different rounds of chemo with the hope of reducing her cancer so she would be able to have the transplant. Through it all she was positive and hopeful even with all of the setbacks. As a caregiver, it was hard for me to see my little sister going through all of the pain.

It was always nice for me to come back to the GOL house and be able to share my thoughts and feelings with people that would understand. The support you give and receive is truly one of the many benefits of GOL House. August 5th 2013, we learned Gelene’s cancer was terminal and there were no further options. She was placed in hospice until she could return home to Long Prairie. I returned to the GOL House and shared the sad news with the staff and friends we had met. Each of these individuals shared in the disappointment and sadness our family was feeling. It was a true blessing when two patients came to the hospital the following day to pray for and with my sister. She went home later that week and passed away on the 18th. Even at her funeral visitation we had friends we met at GOL House attend, understanding all we had been through and giving us much needed support.

The Gift of Life House is a place I will always hold dear to my heart. Our family experienced joy and sadness during our journey, but the people we met and a strong faith have helped us move forward.

Gelene Rohr (center), pictured with her sister Cindy Peterson and brother-in-law, Pat.

2013 Annual Report – ( 3 ) – www.gift- of-life.org

When I walk into the house, it immediately

feels warm and comfortable. If I am down in spirit, the staff and other guests will be there for me and lift me back up.

Gift of Life Transplant House – ( 4 ) – A Home That Helps & Heals

2013 BENEFACTORS TO GIFT OF LIFE TRANSPLANT HOUSE

Gift of Life Transplant House is grateful to all of the benefactors that share our mission. Due to space limitations, the list below includes benefactors who have given $250 or more during 2013. If there is an omission or mistake, please contact Ginger Holmes, Executive Director. Thank you. AMBASSADORS: $20,000 + • Hanan

Albahar • Mayo Foundation for Medical Education & Research • Mardigian Foundation • Charles & Michelle Mullens • Schwab Fund for Charitable Giving • The Gillette Family Foundation • Trails 4 Transplants

Stewards: $5,000 - $19,999 • Rochester

Area Foundation Family Foundation • James & Joy Hickman • Alyce Morgan • Steve Bunten • Mr. & Mrs. Andreas Constantinou • David Thompson • George M. Eisenberg Foundation for Charities • Richard J. Fasenmyer Foundation • Edward & Jayne Pompeian • Harper

Colleagues: $2,500 - $4,999 • Adirondack

Bank • Ginger & David Holmes • Roger Shively Fund of The Greater Cincinnati • J. William & Helen Uhrig • Steve Williams • ZZ Wu • Roger Erickson • Mr. & Mrs. Harry Fruehauf

Friends: $1,000 - $2,499 • Dennis

Dreyer • Hatem Amer • Aileen Anderson • Jerry & Sandra Asmussen • The Barbara Silver Levin Foundation, Inc. • Black Hills Volkssport • Barbara Brecht • Carmen Breitkopf • Melvin Callies • Richard Forehand • Steven Fulton • Dr. Morie & Marcia Gertz • Susan Gillette • James & Susan Gundlach • Benjamin & Suzanne Harris • Gretchen Haukos • Ken Hoffert • Frank Jacobs • Joyce L. Veneziale Trust Estate • Judy & Jim Sloan Foundation • Richard & Jan Kvam • William & Marilyn Larson • Dr. Mark & Kris Litzow • Robert & Mary Martinovich • Heather McQueen • Oronoco Fire Fighters Relief Association • Renaissance Charitable Foundation Inc. • Lynda Ross • Robert Sattler • Robert & Sandra Sexton • David O. & Sara A. Thronsedt • Arne Totdahl

• Gloria

Wiebusch Wittman • Terry & Nina Wobken • North Tama FCCLA • Ione Barron • Dr. Mikel Prieto • Patrick & Susan Christenson • Brentwood Inn & Suites • Mr. & Mrs. George Wilson, III • Paul Henke • Mayo Clinic Nephrology & Hypertension • Kenneth & Pam Smith • Dr. K. S. & B. Sachdeva Charitable Foundation • Rochester Morning Pride Lions • Paula Westhusing • Dr. Sheila Jowsey • Cris Fischer • Harman Eye Center • Ronald Refior • Dr. Thomas & Diane Witzig • John W. & Sharon G. Fenlon • Yi-Fa & Margaret Chang • Justin & Jan Lewis • Emeline

supporting gifts: $250 - $999 • Renae

Layton Boccafola • Border States Electric • Allan Boyken • John T. & Patricia Browne • Gerald & Jo Dee Christenson • Elaine Cofell • Anthony DeLuca • James A. & Karen R. Ellis • April

2013 Annual Report – ( 5 ) – www.gift- of-life.org

2013 BENEFACTORS (continued) supporting gifts (continued) • Jerome

& Joann Engelbert • Kathy Gangl • Dr. Dennis & Ann Gastineau • Leon & Linda Gregg • James & Connie Hennip • John Johnson • Andrew Kent • Thomas M. McFarland • Messiah Lutheran Church • William Earl Morren • Jennifer Olson • Tonja Orr • SE MN Chapter Oncology Nursing Society • J. Sheldon & Lydia Shelton • Lorie & Jim Steffan • Dr. Mark & Denise Stegall • Cindy & Tim Tennessen • Karleen Vandyke • Bill Wharton • Terri Wigant • Sandra R. Schwantz • Gary Lueders • Jo Cross & Susan Fosland • Barbara J. Schroeder • Jacob Leduc • Charlene Dietz • John Ferber • Robert & June Gansen • Jim Gels • Dianne & Roger Gorsha • Wayne & Maureen Hanson • Jeff & Dawn R. Herron • Immanuel Lutheran Church • Kristin Anne P. Johnson • Mary D. Johnson • Jacqueline A. Michehl • John & Marcia Moline • Denis & Pat Montplaisir • Julie & Stephen Mullen • Orthopedic Coffee Fund • Kika Dudiak & Henry Pitot • Judy Reese

• Richard

Rossi Jo’s Wayside Bar & Grill • Sherry & Alan Steigrod • Mark Stohbusch • William D. Zalabak, JR • Jun Ying Zhang & Qi Fang • Haiyan Zhang • Yimin Zhu & Jin Mu • Charles & Jeanne Crampton • Georgia M. Schellhaass • Steven E. & Eleanor M. Pearson • Theodore Mueller • CRNA Social Fund • Larry & Claudia Loll • Joseph & Tina Martini • Mayo Employee Federal Credit Union • Janell A. Nelson • Byron & Dorene Pearson • James Boccafola • Chatfield Community • James Early • Presbyterian Women First Presbyterian Church • Deborah Haqq • Judith & Richard Koperski • Jim & Karen Lingafelter • Tebbs S. Moore • Joanne M. & Milo E. Tritz • Joseph & Suzanne Weisenburger • Amber Brown • Christine Hughes • Jan Karels • George & Frela Beck • Bell Mortgage • Willard Berns • John & Jan Bieringer • Carl & Verna Schmidt Foundation • Heidi Connolly • Fernando & Mary Jo Cosio • Vicki Dellwo • Kay Dunker • Barbara Elness • Sherri

• Janet

Elsasser Enterprises • Beverly Evans • Fricks Company, Inc. • Curt & Julie Friesen • Thomas & Lynne Gaffey • Clifford & Patricia Gastineau • General Warehouse, LLC • Barbara & Jerome Goldman • Rick Harder • Danial Hashmi • Gary Hoech • Hosmer Law Office PC • Kathy Johnson • John Mandell • Terri Mestrich • Morris & Tonya Metzger • Mayo School of Health Sciences Alumni Association • Peter Million • National Christian Foundation • Lawrence O’Neill • Jane Page • Marilyn Palkowski • Peter & Barbara Perkovich • Rick & Keri Riedel • Rochester Jaycees • Ruth Rydstedt • Craig Smoldt • G. Daniel Steinker • Jere & Linda Timmer • Robert Van Marren • Jane Weiland • Doris Wenger M.D. • Sarah Edgerton • Dedee Gulley • U.S. Bancorp Foundation • Joy Higgins • Rachael Cederstrom • Tim Reed • Superior Mechanical • Debbie & Tom Brock • Maverick Capital Foundation • Sarah Rabb • H&W

As always, thank you for your support! Gift of Life Transplant House – ( 6 ) – A Home That Helps & Heals

GIFT OF LIFE TRANSPLANT HOUSE

2013 BY THE NUMBERS 4,300

250 volunteers

Guests & caregivers served at the Gift of Life Transplant House campus.

8,500

Volunteer hours given graciously at the Gift of Life Transplant House campus.

7

11

29

PANCREAS

LUNG

HEART

working directly at the Gift of Life Transplant House campus.

500 volunteers

assist in making and serving dinners for guests and caregivers.

endless

number AND an of community members who donate baked goods, Thanksgiving and Christmas dinners, and a variety of holiday treats.

106 168 498 LIVER

KIDNEY

transplants performed by Mayo Clinic Rochester in 2013. 2013 Annual Report – ( 7 ) – www.gift- of-life.org

BONE MARROW/ STEM CELL

YEAR ENDED DECEMBER 31, 2013

FINANCIAL OVERVIEW assets

Current Assets Property, Equipment, Other Total Assets

liabilities

Current Liabilities Mortgages, Notes Payable, Other Total Liabilities

9%

916,026 9,374,046 10,290,072

91% 191,509 3,625,224 3,816,733

2013 assets Current Assets Property, Equipment, Other

net assets

Unrestricted Property & Equipment Temporarily Restricted Permanently Restricted Total Net Assets Total Liabilities & Net Assets

The financial overview is an unaudited statement of financial position for 2013.

6,264,344 110,010 66,384 32,151 6,473,339 10,290,072

2%

35% 63%

2013 liabilities & net assets Current Liabilities Mortgages, Notes Payable, Other Total Net Assets

Gift of Life Transplant House – ( 8 ) – A Home That Helps & Heals

2013 Board of Directors & Staff Executive Committee:

gift of life house staff

Mark Litzow, M.D., President Nick Pompeian, Vice President Cheryl Lavin-Meyer, Past President Sarah Edgerton, Secretary Charles Pagenhart, Treasurer Edward Pompeian, Founder

board members Bob Groettum Roger Erickson, RN, CNP William French Kathy Jensen Ronald Kreinbring Thomas Schwab, M.D. George Smith

George Wilson, III Bruce Ryan Joe Forrer Sheila Nelson Jesse Buhl Gary Lueders

Ginger Holmes Rita Hawkins Ladd Baldus Steve Tarara Tanya Jordan Mark Stadtherr Debra Raduenz Ruth Johnson Laura Forsch Mike Stirts Cory Cody Bob Himmer, Brandy Conway Missy Johnson Sister Colleen Byron (Retired)

honorary lifetime board members Mary Davie Sylvester Sterioff, M.D.

2013 Annual Report – ( 9 ) – www.gift- of-life.org

Gift of Life, Inc. 705 Second Street SW Rochester, Minnesota 55902

NONPROFIT ORG. U.S. POSTAGE PAID ROCHESTER, MN PERMIT # 4

ph: 507.288.7470 email: [email protected] web: www.gift-of-life.org