28th Annual Brain Injury Conference

October 5, 2016 Dudley H. Davis Center University of Vermont 590 Main St Burlington, VT 05401

Surviving and Thriving! Keynote Presentation by Gold Sponsors  C HOICE S UPPORT S ERVICES  D EPT . OF D ISABILITIES , A GING AND I NDEPENDENT L IVING  D OWNS R ACHLIN M ARTIN PLLC  L ENNY B URKE F ARM I NC .  P RIDE S UPPORT S ERVICES , I NC .  R IVERVIEW L IFE S KILLS C ENTER , I NC  U NIVERSITY OF V ERMONT M EDICAL  VRS D ISABILITY M ANAGEMENT

Hannah Deene Wood Presenting Sponsor C OURTNEY & V ICTORIA B UFFUM F AMILY F OUNDATION

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7:30 - 8:30 8:30 - 9:30 9:30 - 10:00 10:00- 11:00 11:00 - 11:45 11:45- 12:45 12:45—1:00 1:00- 2:00 2:00 - 2:30

Registration & Breakfast - Please visit the exhibits & art show Session 1 Break - Please visit the exhibits & art show Keynote : “Surviving and Thriving!” Hannah Deene Wood Survivor Panel: Melissa Cronin & Bruce Fowler Lunch, Awards, and Networking Break - Please visit the exhibits & art show Session 2 Break - Please visit the exhibits & art show

Snow White and the Seven Dwarves of TBI– performance 2:30 - 4:00 4:00

Session 3 End of Day’s Program

This year we are working with the Unmasking Brain Injury project to showcase masks made by survivors. The goal of the Survivor Art Show is 

To PROMOTE awareness of the prevalence of brain injury • To GIVE survivors a voice and the means to educate others of what it’s like to live with a brain injury  To SHOW others that persons living with a disability due to their brain injury are like anyone else, deserving of dignity, respect, compassion and the opportunity to prove their value as citizens in their respective communities . If you would like to make a mask which will be displayed in public spaces around the state., please contact the BIAVT office or email [email protected] We have the blank masks and the instructions for you to contribute to the travelling exhibit.

Snow White and the Seven Dwarves of Brain Injury. A uniquely educational and entertaining view of what it feels like on the inside of a Traumatic Brain Injury. Join us for this short, insightful, and courageous performance and find out what happens when Dopey, Sleepy, Dizzy, Happy, Grumpy, Doc, and Bashful move in and won't leave Snow White alone! Nathalie Kelly, The TBI Coach, www.TheTBICoach.com

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7:30 Registration Opens Recommended audience: SF-Survivor and/or Family PRO—Professional 8:30—Session 1 begins All-Everyone Note: these are recommendations only – not requirements

SESSION 1

A

B

C

D

8:30

Emotional Regulation: the Research

Building a Real Life Budget

How I Got My Brain Back

Finding the Right Fit – the CETT Process

Nathalie Kelly

Amber Fulcher, Tracy Roux Benjamin Wimett

Maria Kajankova, PhD



9:30

Mount Sinai PRO

(for yourself, a loved one, or a client)

Gillian Franks CVOEO ALL

E LoveYour Brain Yoga

VT ATP ALL

PRO

SF

9:30—10:00 10:00—11:00

Break—check out the Survivor Art Show & Exhibitor Booths Keynote Speaker— Hannah Deene Wood

11:00—11:45 11:45—12:45

Survivor Panel : Melissa Cronin & Bruce Fowler Luncheon & Awards & Networking

Surviving and Thriving!

-

SESSION 2 1:00  2:00

Getting Where You Need To Go: Transportation in VT Ross McDonald Deb Sachs ALL

2:00-2:15 2:15-2:30 SESSION 3 2:30  4:00

Identity loss and accepting the ‘new normal’

Emotional Regulation: Strategies

Art Therapy Carolyn Crotty

Maria Laura Basili, PhD Kajankova, PhD Middlebury College Mount Sinai ALL

PRO

Parents perspective on helping a young adult Kate Ross & Larry Becker

SF

SF

Snow White and the Seven Dwarves of Brain Injury Break Brain Injury and the Opioid Addiction Epidemic

It's my Brain Injury: how to assist your care team in providing you quality care

Chris Carter, PsyD Ashley Couture, SLP and Spaulding Rehab Cheryl VanEpps, Survivor PRO

ALL

Neuropsych Evaluations: Who, How, What? Jonathan Lichtenstein, MBA, PsyD DHMC PRO

Fueling your Therapeutic Brain for Health and Longevity- Drumming A Holistic Steve Ferraris Approach UVM Music Dept Marie Frohlich

ALL

SF

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Session 1 8:30—9:30 A Emotional Regulation: What the Research tells us Maria Kajankova, PhD What is emotional regulation and how is it impacted following TBI? Dr. Kajankova will define emotional regulation and how it relates to executive dysfunction. She will review the literature regarding emotional regulation and how emotional dysregulation post-TBI impacts community integration and daily functioning. B Building a Real Life Budget (for yourself, a loved one, or a client) Gillian Franks, CVOEO Drawing on years of experience the CVOEO Financial Futures team has created an Excel spreadsheet that allows individuals to work with coaches to develop a budget that address the obvious and less obvious spending. You’ll get an introduction to the process of coming to a mutual understanding of the need for a budget, the obstacles to success, and , best of all: a tool that works. Gillian Franks is an engaging presenter, with lots of real life experience in this, not least of which is her own budget! C How I Got My Brain Back Nathalie Kelly, CHt, is star of "The TBI Coach" YouTube channel Complementary Healthcare professional, Nathalie Kelly will reveal her Top 5 Little-Known Therapies that helped her regain much of her brain function after TBI. Many of these are in the fields of complementary medicine that your doctor may not know about. After using countless modalities, Nathalie will discuss the ones that worked best for her. D Finding the Right Fit—the CETT Process Amber Fulcher, Benjamin Wimett, Tracy Roux -VT ATP Staff from the Vermont Assistive Technology Program will lead participants through an interactive and engaging exploration of “technology for access” and teach the group how to support individuals in finding the tools that will actually work for their unique needs. This session will include instruction in a concrete method for considering tools, interaction with technology, guided case studies, and discussion. E LoveYourBrain Gentle Yoga and Meditation This workshop will give participants hands-on experience practicing gentle yoga and meditation adapted for the traumatic brain injury community. You will learn about the LoveYourBrain Foundation and our national Yoga Program for TBI survivors and caregivers. Our goal is to provide all TBI survivors with an opportunity to improve and restore their physical and emotional wellbeing through yoga and meditation.

10:00—11:00

Keynote Presentation

Hannah Deene Wood

Surviving and Thriving!

Brain injuries can leave you with issues that can’t be seen and society doesn’t always understand. An “invisible brain injury” doesn’t need to be “hidden”. Hannah will share the story of her brain injury, her understanding of how it is part of her identity and how that helps her to “shine brighter” “Identifying your strengths, what makes you move, and how to fill yourself up with goodness is how we not only survive but thrive on our new path!” Hannah is an entrepreneur, a mother and wife, a Zumba instructor and so much more. She encourages all “to keep on our healing path with confidence: loving and supporting ourselves and each other as we persevere.”

Survivor Panel - 11:00—11:45

Facilitator: Lakshmi Joshi Boyle, MS, CCC-SLP, CDC and Audiology Supervisor, University of Vermont Medical Center Survivors and/or caregivers will share their inspiring stories of their struggles and accomplishments after brain injury. Panel Members: Melissa Cronin and Bruce Fowler

Lunch, Awards and Networking 11:45—12:45

Session 2—1:00—2:00

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A Getting Where You Need to Go At Go! Vermont Ross McDonald and Deb Sachs Go! Vermont’s network of partners empowers communities and service providers to meet the challenges of access, affordability and convenience. Learn how our ride-matching software, guaranteed ride home and access to all modes is one click away for people challenged by brain injuries--we are here to help you get to where you need to go. B Identity loss and accepting the ’new normal’ Laura Basili, PhD Middlebury College For individuals living with TBI and their care providers, grieving the losses associated with the injury is a crucial aspect of surviving and coping. This session will examine how the grief process over the loss of your identity is essential to making a new, realistic outlook for the life long journey of living with TBI. C Emotional Regulation: Strategies Maria Kajankova, PhD Dr. Kajankova will review treatment interventions and strategies that address emotional dysregulation postTBI. The session will also include an introduction to an evidence-based emotional regulation intervention developed at Mount Sinai to address emotional dysregulation post-TBI. D Art Therapy - Carolyn Crotty Art means many different things to people. Sometimes it is a process that produces something to hang on your wall but it also can be just exploring and having fun with the process. In this session, art materials will be used to explore the theme of transformation, growth and resilience as it relates to overcoming challenges. This session's goal is to help participants explore their creative side to express their inner strength. No experience necessary. E Parents Perspective on Helping A Young Adult Kate Ross, Sasha and Larry Becker Brain injury changes our lives drastically. Young adults experiencing brain injury want to leave childhood and parents behind to seek independence, yet find themselves thrown back to dependence on the parents they were so ready to leave. Working through all the systems to restore and/or maintain their own physical and mental health, is a huge struggle, especially when comprehension and attention may be severely compromised. Being set free from the confines of a hospital, back to home or a rehabilitation facility, can be isolating and frightening at a point in life when you should be set free to build your independence. How do families cope with these sudden changes in a youth who was so ready to be ‘set free’? Session 3 - 2:30—4:00 A Brain Injury and the Opioid Addiction Epidemic Chris Carter, Psy.D, Spaulding Rehab Opiate abuse, addiction and overdose have been rising across the country as have the number of brain injuries resulting from chronic opiate use, overdose and accidents while driving under the influence, etc. Dr. Carter will provide background on the opiate crisis, its impact on brain injury and the challenges involved in providing effective treatment for both opiate addiction and brain injury. B It's my Brain Injury: How to assist your care team in providing you quality care. Ashley Couture, SLP and Cheryl VanEpps, Survivor Ashley will present on thinking and communication changes following brain injury (BI). with a focus on strategies to improve one’s ability to understand, respond and recall that can impact one’s quality of health care interactions. Cheryl will present lessons learned from her struggles as an outpatient with a complex head injury (with moderate TBI) and through her work as a volunteer Patient Advisor at UVM Medical Center. They hope to: pass on crucial insider knowledge of your care process, increase awareness of com municative issues patients with BI face, recommend use of BI-informed accommodations during care, and provide a self-help patient tool. C Neuropsych Evaluations : Who, How & What Jonathan Lichtenstein, MBA, Psy.D, DHMC Who does neuropsych evals? How does it work? What can they tell us? Dr. Lichtenstein will discuss the role of the neuropsychologist, the key components of an assessment and the neuropsychological challenges typically seen in brain injury. D Fueling your Brain for Health and longevity-A Holistic Approach Marie Frohlich, Certified Health Coach This fun and interactive session will include a demo and offer information on food and herbs that help fuel the brain . You will leave the session with an idea of how you will incorporate these foods and herbs into your life. E Therapeutic Drumming .– Steve Ferrais, UVM Music Faculty and Root Drumming Systems Drum therapy is an ancient approach that uses rhythm to promote healing and self-expression. From the shamans of Mongolia to the Minianka healers of West Africa, therapeutic rhythm techniques have been used for thousands of years to create and maintain physical, mental, and spiritual health. Join Steve Ferrais and feel the benefits of drumming for yourself!

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If you would like to nominate someone to receive an award, please fill out the information and send to: BIAVT, POB 482, Waterbury, VT 05676, by Friday, September 23rd

Please write up the reasons you feel he/she should receive and award on separate page. *** Please give as much information and detail as possible ***

Individual with a TBI: An individual who has assisted other brain injury survivors, has worked at promoting community awareness or support for TBI survivors, and has acted as a mentor for others. Name: _____________________________________________

Caregiver: An individual who has made positive contributions in the community by assisting individuals with a brain injury.

Name: ____________________________________________

Employer: An employer who has hired an individual (or individuals) with a brain injury and has been very supportive by making accommodations and by advocating in the community and to other employers. Name: _____________________________________________ :

Professional: An individual who has been innovative in the treatment of individuals with a brain injury and has advocated changes in the system to improve the quality of treatment. Name: _____________________________________________ Nominator’s Name

Nominator’s Contact information

____________________________________ Address:_________________________________________ Phone / Email: _________________________________________________________________________

This conference is designed to provide education and support to individuals with brain injury, families and professionals. Applications are in process with the Board of Psychological Examiners, Board of Mental Health Workers, NASW, VAPTA and CRCC for 5.25 Continuing Education Credits. Those wishing CEUs certificates need to designate it on their registration and pay a $15.00 CEU fee. Note: Nurses, OTs and SLPs can receive general contact hour certificates. For more information about CEUs, please call or email Barbara Winters 802-244-6850 email: [email protected] Conference Planning Committee: THANKS! Kevin Burke, MA, Lenny Burke’s Farm; Brenda Buswell, Rutland Regional Medical Center; Michael G Denmeade BS, CTRS, CBIS, Director Therapeutic Recreation Department, Mt. Ascutney Hospital and Health Center; Laura Flashman, PhD, Associate Professor of Psychiatry and Director of the Neuropsychology Program at Dartmouth Medical School; Jane Hulstrunk, Herbalist and Brain Injury Survivor; Carole McCay, MSN, RN, CNS, Adjunct faculty UVM; Andre Courcelle ,TBI Grant Manager; Trevor Squirrell, MS, Executive Director BIAVT; Barb Winters, CBIST, BA, OTA/L, Outreach & Education Coordinator, BIAVT; Sue Zamecnik, MA, CBIST, VR Counselor, VocRehab VT-

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Name: _________________________________________________________________________ Organization ___________________________________________________________________ Position____________________________________________ E-mail: ____________________________________ Address: ___________________________________________ City: _____________________________________ State: ________ Zip: _______________ Phone: _______________

Attention: If you are interested in having an exhibit at the conference or in being a sponsor of the Conference, call (802) 244-6850

Special Needs/Accommodations: _____________________________________________________

(notification of accommodations must be received in writing by Sept. 4, 2015 Do you need CEUs? If yes, what type? NASW

PSYCH

Mental Health

PT

CRCC Note: RNs, OTs & SLPs will receive attendance certificate for contact hours To register online go to: www.biavt.org and click on conference online registration

WORKSHOP PREFERENCE st

nd

(Please select 1 and 2 choice for each session)

Session I:

8:30 – 9:30

Session II:

1:00— 2:00

Session III:

2:30 – 4:00

 A  B C D  E  A  B C D  E  A  B C D  E

Please attend fragrance free for an inclusive environment

Registration Costs: General Admission $150 (If received by Sept 9)

$175 (If received after Sept 9)

$15 CEU processing fee for CEU certificates Individuals with Brain Injury - $70 ( only send $35 if requesting $35survivor scholarship) Check if you are requesting a $35 Survivor scholarship.– Survivors only on a first come / first serve basis limited to individuals with brain injury. Family of Individuals with Brain Injury - $90 per individual **A limited number of rooms are available at the conference rate of $159.00. (plus 10% taxes and $1 fee) You must reserve by Sept. 4th to guarantee the rate. * For reservations contact the Double Tree by Hilton Burlington 802-658—0250 Please note that we do not send out confirmations. If you cannot attend and someone is

Please send your registration with check payable to: Brain Injury Association of VT to: Brain Injury Association of VT POB 482 Waterbury, Vermont 05676 Phone: 802-244-6850

coming in your place we need to be notified of the substitution no less than 48 hours prior to

Cancellation Policy

conference

Cancellations received in writing by 5pm on Sept 29th, 2016 will be refunded, less a $5 administration fee. After that time, no refunds will be issued .

PO Box 482 Waterbury VT 05676

The mission BIAVT is to create a better future for Vermonters through brain injury prevention, research, education, advocacy and support.

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