SPONSORSHIP OPPORTUNITIES PACKAGE

September 15-17, 2016 SPONSORSHIP OPPORTUNITIES PACKAGE January 27, 2016 Dear Friends and Supporters, The annual FARA Energy Ball is a leading contr...
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September 15-17, 2016 SPONSORSHIP OPPORTUNITIES PACKAGE

January 27, 2016 Dear Friends and Supporters, The annual FARA Energy Ball is a leading contributor to Friedreich’s ataxia (FA) research, moving us ever closer to treatments and a cure for FA. Since the Energy Ball started in 2009, that Tampa community has raised over $10million in support of the Friedreich’s Ataxia Research Alliance’s (FARA) and the USF Ataxia Research Center. Our patient families and researchers know that you continue to provide the resources for new scientific discoveries and the support to usher in exciting clinical trials, and for that, both they and we are grateful. In 2015, we hosted a sold out crowd that raised an unprecedented $2 Million in gross funds (including in kind gifts) in a unified front of energized spirit, camaraderie and action in the face of what can often times be a lonely, frustrating and life-altering disease. With your help, we continued to make significant strides in FA research this year. For the first time in FA research history, three clinical trials were launched at multiple US sites, including the University of South Florida, in less than a year. We are forever grateful for you, the Tampa Community, for your continued gifts of time, talent and treasure to our cause. Friedreich’s Ataxia (FA) is a debilitating multi-system disease and the most common cause of inherited ataxia; 1 in 100 people are carriers of the FA Gene. What begins as difficulty with balance and coordination, progresses over a short period of time to a life altering loss of mobility, energy, speech and hearing, robbing children and young adults of the ability to live active and independent lives. FA also presents serious risk of diabetes and life shortening cardiac disease. FARA funds research and builds partnerships needed to advance effective treatments for FA, and provides hope for families and individuals affected by this debilitating disease. The support of the Energy Ball has allowed FARA to nurture important partnerships and advance critical initiatives including: 

Funding over $4 Million in Drug Discovery, Development, and Clinical Research worldwide in 2015.



Drug discovery research that has led to 5 new lead candidates in our treatment pipeline in 2014-15 that are being tested in clinical trials in individuals with FA



Active research programs with more than a dozen large and small pharmaceutical partners such as Chondrial Therapeutics, Horizon Pharma, Pfizer, Reata Pharmaceuticals, and Retrotope



Initiation of a biomarker consortium of academic and pharmaceutical partners to find better ways to measure disease change and shorten clinical trial lengths, including a Gait and Balance Study at the University of South Florida



Evaluation of more than 800 individuals with FA at clinical research centers around the world

As a result, the Scientific Community believes:  

This disease has strong potential for effective, life changing treatments in the near future Insights into FA may provide important findings in several related common diseases

The FARA staff continues to be recognized as a “model organization” among its peers in the rare disease community as well as at the FDA, NIH, and NINDS. Additionally, FARA earned Charity Navigator’s highest rating of 4 stars for the 6th consecutive year. There is urgency in FARA’s efforts to advance the therapies in the treatment pipeline as quickly and as safely as possible. The team is highly driven to achieve success in their mission, and with your support, will make a profound difference in the lives of many. Your support and involvement is important, needed, and appreciated. The FARA Energy Ball Committee, led by our returning Event Coordinator Ava Forney, has an exciting, moving and memorable 2016 FARA Energy Ball Experience planned for you this September 15-17. Thursday, September 15th / USF Scientific Symposium An in-depth perspective of FARA’s research activities, complimented by presentations from several leading researchers and people living with FA Friday, September 16th / Patron Party A special Patron Party provided for specific levels of sponsorship Saturday, September 17th / FARA Energy Ball : The FARA Energy Ball gala and auction, 5:30 PM We hope you can join us this year and participate in the 2016 FARA Energy Ball. The accompanying sponsorship outline will provide you with various levels of involvement for your consideration. Thank you.

Paul & Suzanne Avery

FARA Energy Ball 2016 Honorary Chair Council Suzanne and Paul Avery Ron Bartek, President, FARA Judy Genshaft, PhD, President, USF Tara and Tod Leiweke, COO, National Football League Charles Lockwood, MD, MHCM, Senior Vice President USF Health Sandi and Chris Sullivan Honorary Chairs Janell and Steve Griggs, CEO, Tampa Bay Lightning Honorary Committee Members Anna Alfano Seth Appelbaum Michael Barbaro Lori and Anthony Barkett Debbie and Bob Basham Joanna Bernaldo Steve Blair Cindy Boss Denise and Tom Bradley Beth Brown Sandy Callaghan Laurie and Bruce Champion Maureen Chase Lauren Cooper Trudy and John Cooper Lynn Cristina Laurie Cruley Janey DePew Anthony Everett Tanya and Herman Fernandez Sarah and Jason Foglia Suzanne and Paul Gabos Gloria Giunta Terry Haley Charlotte and Bill Horne Amy and Kurt Hull Mary and Paul Jacobs Deborah Karam Pamela and Chris Kelsch Lisa and Vic Lafita Dawn and Kevin Lambert

Amy and Tom Leobold Susan McLaughlin Pastor Jane McDonough Lucille O’Neal Beth Piekarczyk Kaye and Jim Pollard Susie and Mitchell Rice Mary Ridgeway Julie Robertson Kathy and Doug Rothschild Wendy Ryan Liz Smith and Chip Newton Shereé and Jeff Smith Susie Snowdon Marie Stone Ashley Sullivan Sandi & Chris Sullivan Adam Sutton Georgette and Chris Tsavoussis Kelly and Lou Varsames Richard Verrecchia Jennifer Vickery Gail Wilson Heidi and Bill Wright Avery Lowry Zaritsky Theresa Zesiewicz, MD FAAN Martha Korman Zumwalt Carin Zwiebel

FARA STAFF Jennifer Farmer Erin Goerss

Felicia DeRosa Ann Musheno

Kyle Bryant Jamie Young

THE FARA ENERGY EXPERIENCE Sponsorship Opportunities: $50,000

Presenting Sponsor



Priority seating for twenty guests (two reserved tables) at The Energy Ball



Eight guest invitations to the Patron Party



Verbal acknowledgment as a Presenting Sponsor during the Energy Ball



Logo recognition on the main screen during the Energy Ball



Logo displayed on ~500 mobile bidding screens during the Energy Ball



Logo and link on event website, www.curefa.org/energyball



Prominent name recognition and logo in program booklet and on all event signage



Prominent name recognition in print advertising (includes name recognition in post event Thank You ad in Tampa Bay Times), press releases and FARA Newsletter-The Advocate



Unlimited invitations to the “Understanding Energy For a Cure” Scientific Symposium

$25,000

Platinum Sponsor



Priority seating for ten guests (one reserved table) at The Energy Ball



Six guest invitations to the Patron Party



Verbal acknowledgement as a Platinum Sponsor during the Energy Ball



Logo recognition on the main screen during the Energy Ball



Logo and link on event website, www.curefa.org/energyball



Name recognition in program booklet and on all event signage



Name recognition in print advertising (includes post event Thank You ad in Tampa Bay Times) and FARA Newsletter-The Advocate



Unlimited invitations to the “Understanding Energy For a Cure” Scientific Symposium

THE FARA ENERGY EXPERIENCE $15,000

Diamond Sponsor



Priority seating for ten guests (one reserved table) at The Energy Ball



Four guest invitations to the Patron Party



Logo recognition on the main screen during the Energy Ball



Logo and link on event website, www.curefa.org/energyball



Logo recognition in program booklet and on all event signage



Name recognition in print advertising (includes post event Thank You ad in Tampa Bay Times) and FARA Newsletter-The Advocate



Unlimited invitations to the “Understanding Energy For a Cure” Scientific Symposium

$10,000

Gold Sponsor



Table of ten guests, at a reserved table, at The Energy Ball



Two guest invitations to the Patron Party



Logo recognition on the main screen during the Energy Ball



Logo recognition on event website, www.curefa.org/energyball



Logo recognition in program booklet



Name recognition in post event Thank You ad in Tampa Bay Times and FARA Newsletter-The Advocate



Unlimited invitations to the “Understanding Energy For a Cure” Scientific Symposium

$5,000

Silver Sponsor



Table of ten guests, at a reserved table, at The Energy Ball



Name recognition on event website, www.curefa.org/energyball



Name recognition in program booklet



Name recognition in post event Thank You ad in Tampa Bay Times and FARA Newsletter-The Advocate



Unlimited invitations to the “Understanding Energy For a Cure” Scientific Symposium

$3,500

Energy Ball Table Sponsor



Table of ten guests, at a reserved table, at The Energy Ball



Unlimited invitations to the “Understanding Energy For a Cure” Scientific Symposium

$375

Individual guest at The Energy Ball

THE FARA ENERGY EXPERIENCE

Underwriting Sponsorship Opportunities: $20,000    

Priority seating for ten guests (one reserved table) at The Energy Ball Four guest invitations to the Patron Party Logo and link on event website, www.curefa.org/energyball Logo recognition in program booklet

$15,000     

Diamond Media Sponsor

Priority seating for ten guests (one reserved table) at The Energy Ball Two guest invitations to the Patron Party Logo and link on event website, www.curefa.org/energyball Logo recognition in program booklet

$10,000    

Patron Party Sponsor

Priority seating for ten guests (one reserved table) at The Energy Ball Two guest invitations to the Patron Party Patron Party Sponsor Recognition Signage Logo and link on event website, www.curefa.org/energyball Logo recognition in program booklet

$15,000    

Mobile Bidding Sponsor (Handheld Electronic Device for Silent Auction Bidding)

Priority seating for ten guests (one reserved table) at The Energy Ball Two guest invitations to the Patron Party Logo displayed on ~500 mobile bidding screens during The Energy Ball Logo and link on event website, www.curefa.org/energyball Logo recognition in program booklet

$15,000     

Premier Media Sponsor

Gold Media Sponsor

Priority seating for ten guests (one reserved table) at The Energy Ball Two guest invitations to the Patron Party Logo and link on event website, www.curefa.org/energyball Logo recognition in program booklet

“Understanding Energy for a Cure”, USF Scientific Symposium All sponsors and guests are invited to attend this informative evening event providing research updates and further understanding of the impact of your support of Friedreich’s Ataxia research at the USF Sam & Marcia Gibbons Alumni Center 4202 E. Fowler Ave., ALC100 | Tampa, FL 33620 on September 15, 2016.

The FARA Energy Experience To Benefit the Friedreich’s Ataxia Research Alliance and USF Ataxia Research Center  YES! I want to be a Sponsor! SPONSOR INFORMATION: Please print name exactly as you would like it to appear in print:

____________________________________________________________________________ E Mail: ______________________________________________________________________ Phone: ___________________________ Cell: _____________________________________ Company: ___________________________________________________________________ Address: ____________________________________________________________________ City: _____________________________ State: _________ Zip: _____________________ SPONSORSHIP OPPORTUNITY LEVELS  $50,000 - Presenting Sponsor  $25,000 - Platinum Sponsor  $15,000 - Diamond Sponsor  $10,000 - Gold Sponsor  $5,000 - Silver Sponsor  $3,500 - Table Sponsor

FARA ENERGY BALL $375 PER PERSON

UNDERWRITING SPONSORSHIP OPPORTUNITIES  $25,000 - Premier Media Sponsor  $15,000 - Mobile Bidding Sponsor  $15,000 - Patron Party Sponsor  $15,000 – Diamond Media Sponsor  $10,000 - Gold Media Sponsor

Print Deadline: AUGUST 19, 2016

PAYMENT INFORMATION  Please Charge $ __________________ To My Credit Card (Check One)  American Express  MasterCard  VISA I would like to contribute the credit card processing fee (2.6%) Yes No (Circle One) Name As It Appears On Card: _______________________________________________________ Card Number: _____________________________ Expiration: ___________CV2 Number:______ _______________________________________________________________________________ Billing Address

________________________________________________________________________________ Donor Signature

 Enclosed Is My Check For: $ ________________ Made Payable To: The FARA ENERGY BALL I am unable to attend, but would like to support FARA’s efforts to end Friedreich’s Ataxia disease. Please accept my donation of $______________________ FOR INFORMATION PLEASE CONTACT: Ava Forney [email protected] or (813) 600-8179 PLEASE COMPLETE AND E-MAIL [email protected] OR FAX TO: (813) 321-7783 BY AUGUST 19, 2016 (May 20th for Gold Sponsors and above to make invitation print deadline) Or MAIL TO: The FARA ENERGY BALL, P.O. Box 26454, Tampa, FL 33623 The Friedreich’s Ataxia Research Alliance (FARA) is a 501 (c) 3 non-profit organization. FARA’s tax ID number is 52-2122720. A COPY OF THE OFFICIAL REGISTRATION AND FINANCIAL INFORMATION MAY BE OBTAINED FROM THE DIVISION OF CONSUMER SERVICES BY CALLING TOLL-FREE WITHIN FLORIDA 1-800-435-7352. REGISTRATION DOES NOT IMPLY ENDORSEMENT OF RECOMMENDATION BY THE STATE. OUR STATE OF FLORIDA REGISTRATION NUMBER IS CH25873.