Southend Hospital. Memory Services

Southend Hospital Memory Services Dr. Ioannis Liakas MSc, FRCP Consultant Physician and Geriatrician Clinical Lead th 6 National Memory Servicers Foru...
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Southend Hospital Memory Services Dr. Ioannis Liakas MSc, FRCP Consultant Physician and Geriatrician Clinical Lead th 6 National Memory Servicers Forum September 2015

Southend Hospital  Established

in 1932  Has Foundation Trust status  Serves a population of 350,000  On of the very few acute Trusts nationwide to provide “Memory Services”

Memory Services Southend Hospital  

 





Memory Clinics Staff Education on Dementia (provided by a specialist nurse) CQUIN for Dementia (staff appointed exclusively) Ward Dementia champions DIST (Dementia Intensive Support Team), 6 staff, supporting acutely admitted patients with known dementia Befriender Service (volunteers)

Memory Clinics Southend Hospital  Currently

984 patients attending  3 consultant led clinics/ week  Location: Day Hospital setting  Staff: 3 consultants, physio/ OT, nurse, admin, psychology liaison (currently fortnightly, but will soon become weekly), two memory nurse specialists  Dementia Support Worker

Memory Clinics Southend Hospital  Advantages

of memory services at an acute setting:  Imaging, blood tests, ECGs, OT/ Physio/ Rehab assessment  Recently participation in research trials  Trust recently acquired PET scan, very helpful imaging technique in order to establish Alzheimer’s Dementia

Post-diagnostic support in dementia: The role of the Dementia Support Worker Alison Ingleby Dementia Support Worker

Who funds us • • • • • •

Funded since 2012 by Southend Borough Council Increased support workers to 3 to cover 12 clinics per month Aug 2012 – Jan 2015 seen 2000 patients and carers Population of Southend 173,658 (2011 Census) Over 20,000 people diagnosed in Essex * 2000 diagnosed in Southend *

*2013 figures Alzheimer’s Society

Our services • Provide non-clinical information, support and advice. • Help people to access the range of support available to patients and carers within the Society and other external health and support organisations. • Support the patient at any stage to enable them to make informed choices about their care. • Provide family members with a forum where they can discuss their concerns in confidence. • Signpost and support to access other services – social services, dementia support community nurses and crisis teams.

Support offered • At the time of diagnosis an offer to meet a support worker in clinic • At any future appointment the patient is also offered support • Home visit offered at a time convenient to the patient and family invited • Support for 6 weeks including follow-up telephone calls or a home visit • Support from community dementia support worker.

Why is support needed at diagnosis? • Receiving a diagnosis can be devastating • Help to plan for the future – prepare legal documents & apply for benefits • Help to talk to family • Opportunity to plan for future care needs • Avoidance of crisis and emergency admissions.

Why is support needed at diagnosis? Comments from a carer: I am surviving on practically no sleep, my husband is wandering around all night switching lights on and off, putting different clothing on and off and doing all sorts of peculiar things. I feel as if I am completely on my own. I find it very difficult to ask for help.

Support in the future – for patient and carer • Support as the condition progresses • How to deal with changing physical health, behaviour, cognitive function • Help for the family to adapt and understand changes • Introduce discussion about respite • Care & financial assessments, respite and long term care options • Avoidance of crisis and emergency admissions, recognising a potential 999 situation.

Support for the carer • When it is time to make decisions • Building confidence to make decisions, empower them to make decisions • Introducing respite and signposting to relevant agencies for an appropriate package • Care – arranging support and challenging services when it doesn’t work for the client • Being there to support to the end and continued support for the carer.

Local Services for people living with dementia and their carers • Dedicated Support Workers - provide details of all services and support available. • Advocates - provide advice and information about rights, organise care plans, deal with direct payments, administration support, support with completion of forms such as the Blue Badge and attendance allowance.

• Carers Information Programme - (CrISP) five two and a half hour sessions covering dementia, support and care, support services available and planning for the future. • Peer Support - An opportunity to talk in a confidential and safe environment. • Activity groups.

What the patients and carers say •

After my husband’s diagnosis I was a bit taken aback with the fact he had Alzheimer’s although I had been aware for sometime there was something going on with him. I was extremely happy for the support given immediately after….it helped me feel calmer about it all.



We found the support service excellent, helpful and understanding



Meeting other carers, knowing someone is there if needed, it helped a great deal & I feel I have a lot of support. I don’t know what I would have done without this service



Knowing someone is at the end of the phone



I feel a lot happier knowing there will always be someone there I can talk to if I need to.

Our Services in Southend • • • • • • •

Dementia Support Advocacy Singing for the Brain® Dementia Cafés Peer Support Groups Activity Groups Memory Service