SNOMED-CT: Better Data, Better Outcomes for Child Health Date | Thursday 14 April 2016 Venue | Royal College of Paediatrics and Child Health, 5-11 Theobalds Road, London, WC1X 8SH CPD Credits | 5 09:30am

Registration

09:45am

Welcome from Chair and introduction - Dr Andy Spencer

09:55am

SNOMED-CT: The National Picture and Planned Implementation – Ian Arrowsmith

10:20am

The RCPCH and SNOMED-CT – Dr Carol Ewing and Dr Andy Spencer

10:30am

SNOMED-CT in practice at the Royal National Orthopaedic Hospital – Dr Andy Goldberg

10:55am

The RCP Headings Project and capturing certainty and severity – Dr John Williams

11:20am

Break

11:30am

The Gastroenterology Project at the RCP – Dr Jonathan Brown

11:55pm

Data Matters! Development of a Disabilities Terminology Set and Disabilities Complexity Scale – Dr Karen Horridge

12:20pm

Getting the detail right in rheumatology – Dr Ian Gaywood

12:45pm

Lunch

1:30pm

The SNOMED-CT Online Browser – Andrew Perry

1:55pm

The RCPCH process: A framework – Dr Andy Spencer

WORKSHOP A: GETTING STARTED WITH SPECIALTY GROUP LEADS

2:10pm

B: COMMONLY USED TERMS C: CHECKING, CORRECTING AND CREATING SNOMED CONTENT D: IMPLEMENTATION BY UK TERMINOLOGY CENTRE

3:45pm

Summary & Close – Dr Andy Spencer

4:00pm

Close

Overview An introduction to the development of paediatric subsets for SNOMED-CT, for informatics leads working within RCPCH paediatric specialty group. This is part of the wider agenda to digitalise the NHS, to improve data quality and subsequently improve child health outcomes. The day includes presentations of clinician’s experiences of developing and implementing paediatric subsets, insights from the Health and Social Care information centre as well as a workshop on how delegates can apply this to their respective specialisms. It is dynamic, interactive and engaging - with ample opportunity for delegate participation. Learning Aims • • • •

To provide delegates with a background of SNOMED-CT and how the system will be implemented throughout the UK. To understand the relevance to paediatrics and the significance to the RCPCH and child health. To provide practical experience in the use of SNOMED-CT. To inform delegates about SNOMED-CT implementation and equip them with the necessary tools to develop paediatric subsets on behalf of their paediatric specialties.

Learning Objectives: • • •

Be able to develop paediatric SNOMED-CT codes with their specialty using the RCPCH frameworks and resources outlined during the workshop. Understand the value of enhancing the quality of data in order to improve the health outcomes of children and young people. Develop a practical understanding of the development and implementation of paediatric subsets.

Speakers Dr Andy Spencer, Chair of the Informatics for Quality Committee, Royal College of

Paediatrics and Child Health

In 1985 Andy was appointed to the post of Consultant Paediatrician and Neonatologist at University Hospital North Staffordshire (UHNS). During his consultant career, Andy had a very active research portfolio in the fields of neonatal monitoring and breast feeding, leading to an appointment as Reader in Neonatal Medicine at Keele University. Andy has held senior research positions at the University, including Chair of the Research Committee for Postgraduate Medicine. Additionally, Andy has held senior management positions at UHNS including clinical director for Child Health and Head of Division for Women and Children’s services. Andy was instrumental in setting up Partners in Paediatrics and was clinical lead from its inception in 1998 until 2012. This is an organisation that has supported and promoted the development of clinical networks in the North of the West Midlands in order to improve quality and access of care for Children. In 2004, Andy became lead clinician for the Staffordshire, Shropshire and Black County Newborn Network until 2011 when he became the Chair for a further year. In this role, Andy was instrumental in developing strong collaborative working between the member units and achievements included unit designation, care pathways and common published clinical guidelines. In January 2008, Andy was appointed to be the National Clinical Lead for Hospital Specialties at the HSCIC, during which time he worked extensively with the Royal Colleges to improve the quality and value of Hospital Episode Statistics. In December 2011 Andy retired from clinical practice, and took up the post of Deputy Director of Admissions for Keele University Medical School. In October 2015 Andy was elected Chair of the Informatics for Quality Committee of the Royal College of Paediatrics and Child Health. Dr Carol Ewing, Vice President of Health Policy, Royal College of Paediatrics and Child

Health

Dr Carol Ewing has worked as a Consultant Paediatrician at the Royal Manchester Children’s Hospital (previously on the Booth Hall site) for 22 years and has a special interest in paediatric allergy and atopic eczema. Carol is the RCPCH Vice President for Health Policy and took up the post in 2014. From 2009 to 2013, Carol was the RCPCH Honorary Workforce Planning Officer for the College. She has also contributed to College policy, particularly on medical and surgical service standards, models of care including clinical network development, and on patient and family participation. From 2012 to date, Carol has been a member of the Children and Young People’s Health Outcomes Forum. Carol co – led the acutely ill work stream, and on strategic workforce planning, education and training. From 2013 - 2014, Carol was the clinical lead for children’s services for the Greater Manchester, Lancashire and South Cumbria Strategic Clinical Network (SCN) and Senate, NHS England, and she continues to work with the SCN as a clinical adviser. From 2004 – 2012, Carol led on strategic workforce development for Making it Better, a large scale reconfiguration of children’s and maternity services in Greater Manchester. She is a member of the SCN team providing clinical advice for 2 service transformation projects in the North West of England.

Until 2013, Carol was a member of the National Clinical Advisory Team which was a pool of clinical experts who supported, advised and guided the local NHS on local service reconfiguration proposals to ensure safe, effective and accessible services for patients. Ian Arrowsmith, Head of SNOMED CT Implementation, Health and Social Care Information

Centre

Ian has been involved in the use of clinical terminologies in electronic health records for over 15 years following his early career as a radiographer in the UK National Health Service. Ian was originally taken on as a terminologist in the project to create SNOMED Clinical Terms in 1999 and has worked in or around this field since that time. Since 2007, as Chief Clinical Terminologist within the NHS, Ian has managed a team of clinical terminologists in the maintenance and delivery of several terminologies including the Read codes, Diagnostic Imaging codes and the UK edition of SNOMED CT. Ian also played a part in the establishment and ongoing governance of the International Health Terminology Standards Development Organisation (IHTSDO) having been an active member of the Content Committee for 5 years, the Member Forum for 6 years and currently as a member of the Management Board. During recent years, Ian has delivered educational sessions and workshops to colleagues in many countries including Canada, USA, Australia, Malaysia, Netherlands, Denmark, Sweden, Ireland, Norway and Singapore.

Dr Andy Goldberg, Consultant Orthopaedic Surgeon, Royal National Orthopaedic Hospital

NHS Trust

OBE MD FRCS(Tr&Orth) Mr Goldberg is a Consultant Orthopaedic Surgeon at the Royal National Orthopaedic Hospital NHS Trust in Stanmore & Central London. He is also a Senior Clinical Lecturer for UCL where he runs a pioneering research program exploring regenerative medicine treatments, including cartilage transplantation; the effects of Stem Cell Therapy on Achilles Tendinopathy; and a NIHR HTA funded national clinical trial comparing ankle replacements against ankle fusion. He was also responsible for the creation of the National Joint Registry for Ankle Replacements. He sits on the Scientific Committee of the British Orthopaedic Foot and Ankle Society (BOFAS) and is driving several national patient reported outcome measures’ projects including being the musculoskeletal lead of the Farr Institute of Health Informatics and projects for the British Orthopaedic Foot and Ankle Society. He was awarded an OBE in the 2011 Queen’s New Year’s Honours List for services to medicine. He chairs the Medical Futures Innovation Awards, has authored several text books, and is editor for the Clinical Talk Series, distributed by World Scientific Publications.

Professor John Williams, Director of the Health Informatics Unit at the Royal College of

Physicians

John Williams is Director of the Health Informatics Unit at the Royal College of Physicians where he has led initiatives to develop national standards for the structure and content of patient records, and promote safer use of medical devices and apps. The aim has been to improve the safe use of data, information and technology, enable integration of patient records across different care domains, and improve the quality and utility of data derived from the record. He holds a chair in Health Services Research in the Medical School at Swansea University where he has led clinical trials in gastroenterology and undertaken studies using linked routinely collected data. From 2002-7 he was Director of Research and Development in Health and Social Care at the Welsh Government. Dr Karen Horridge, Consultant Paediatrician (Disability) Sunderland, north east England.

Chair, British Academy of Childhood Disability. Clinical Coordinator, National Confidential Enquiry into Patient Outcomes and Deaths (NCEPOD) - chronic disability workstream of Child Health Outcome Review programme MB ChB (Honours), MSc, MRCP, FRCPCH

Karen is a Paediatrician in Sunderland working predominantly with disabled children and young people, but also participating in the general paediatrics on call rota. She qualified from Manchester in 1984, has been a consultant since 1994 and in Sunderland since 2001. Karen trained in general and community paediatrics, including paediatric neurology, palliative care and general practice. Her masters’ thesis examined medical advice for education from paediatricians. Karen led on development of paediatric neurodisability as a subspecialty of paediatrics, chaired the neuro-disability CSAC of RCPCH and now chairs the British Academy of Childhood Disability. Recently Karen was a clinical lead for Disability Matters, a suite of free online resources coproduced with disabled children, young people, parent carers and other experts that challenge attitudes towards disabled people, encourage reflection and give lots of tips on how best to include and empower disabled people. Karen is currently Clinical Coordinator for the chronic neuro-disability work stream of the Child Health Clinical Outcome Review Programme with NCEPOD. Dr Ian Gaywood, Consultant Paediatrician, Nottingham City Hospital Dr Gaywood is an adult rheumatologist with a research interest in health informatics and information modelling. He has experience of content improvement in SNOMED CT. He is a member of an international working group on improving the representation of function and ability in SNOMED. He is also the musculoskeletal clinical reviewer for the alignment of ICD-11 and SNOMED CT. Most recently, in collaboration with Dr Ira Pande, he has produced a standard term set for adult rheumatology on behalf of the British Society for Rheumatology which is currently in a pilot phase at several centres.

Professor Jonathan Brown, Gloucestershire Hospitals NHS Trust MA MSc MD FRCP DTMH Jonathan Brown studied medicine at Magdalene College, Cambridge and Westminster Medical School, London. He has specialist accreditation in Gastroenterology, Infectious Diseases & Tropical Medicine and General (Internal) Medicine. He has previously been a lecturer in Infectious Diseases at The Royal London Hospital and Infectious diseases & Hepatology at St Mary's Hospital. Subsequently he trained as an endoscopist/gastroenterologist and has been a consultant in Gloucestershire for 20 years where he undertakes bowel cancer screening colonoscopy and biliary endoscopy. He has a lifelong interest in computing and represents the British Society of Gastroenterology within the Royal College of Physicians Health Informatics Unit and as chair of the Gastroenterology and Hepatology Expert Working Group. He has an interest in clinical coding and has developed SNOMED CT subspecialty datasets for endoscopy, inflammatory bowel disease and outpatient diagnoses. Andrew Perry, Senior Terminology Specialist, Health and Social Care Information Centre MBBCh Andrew had a short clinical career in emergency medicine before moving to full-time medical informatics. He has over twenty years’ experience in medical computing working in system development, communication standards and terminology. He has worked extensively with the Read codes, ICD10, OPCS and SNOMED CT. Andrew works in the UK Terminology Centre within the HSCIC, to provide implementation support for SNOMED CT to software system suppliers and NHS organisations.