References. Aguilar, N. (1997). Counseling the patient with chronic illness: Strategies for the health

Exploring the Lived Experiences 161 References Aguilar, N. (1997). Counseling the patient with chronic illness: Strategies for the health care provid...
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Exploring the Lived Experiences 161

References Aguilar, N. (1997). Counseling the patient with chronic illness: Strategies for the health care provider. Journal of the American Academy of Nurse Practitioners, 9, 171175. Archenholtz, B., Burckhardt, C. S., & Segesten, K. (1999). Quality of life with systemic lupus erythematosus or rheumatoid arthritis: Domains of importance and dissatisfaction, Quality of Life Research, 8, 411-416. Alexander, L. L., LaRosa, J. H., & Bader, H. (2001). New dimensions in women’s health (2nd ed.). Sudbury, MA: Jones & Bartlett Publishers. Babbie, E. (2001). The practice of social research (9th ed.). Belmont, CA: Wadsworth/Thomson Learning. Backett-Milburn, K., Parry, O., & Mauthner, N. (2000). I’ll worry about that when it comes along: Osteoporosis, a meaningful issue for women at mid-life? Health Education Research, 15, 153-162. Baker, J. A., & Wiginton, K. (1997). Perceptions and coping among women living with lupus. American Journal of Health Behavior, 21, 129-136. Beer, D. W. (1997). “There’s a certain slant of light”: The experience of discovery in qualitative interviewing. The Occupational Therapy Journal of Research, 17, 110129. Beitz, J. M. (1999). The lived experience of having an ileoanal reservoir: A phenomenologic study. Journal of Wound, Ostomy, and Continence Nursing, 26, 185-200. Bellis, J. M., & Grimley, D. M. (1999). Cognitive mapping capitalizing on listening. Health Education and Behavior, 26, 454-456.

Exploring the Lived Experiences 162

Bogdewic, S. P. (1999). Participant observation. In B. F. Crabtree & W. L. Miller (Eds.), Doing qualitative research (2nd ed.). (pp. 47-70). Thousand Oaks, CA: Sage Publications. Buchi, S., Villiger, P., Kauer, Y., Klaghofer, R., Sensky, T., & Stoll, T. (2000). PRISM (Pictorial representation of illness and self measure) – A novel visual method to assess the global burden of illness in patients with systemic lupus erythematosus. Lupus, 9, 368-373. Bushy, A. (1997). Case management: Considerations for coordinating quality services in rural communities. Journal of Nursing Care Quality, 12(1), 26-35. Bushy, A. (2000). Orientation to nursing in the rural community. Thousand Oaks, CA: Sage Publications, Incorporated. Bushy, A. (1993). Rural women: Lifestyle and health status. Nursing Clinics of North America, 28, 187-197. Bushy, A. (1994a). When your client lives in a rural area, Part I: Rural health care delivery issues. Issues in Mental Health Nursing, 15, 253-266. Bushy, A. (1994b). Women in rural environments: Considerations for holistic nurses. Holistic Nursing Practice, 8(4), 67-73. Centers for Disease Control and Prevention. (2000). Measuring healthy days: Population assessment of health-related quality of life. Atlanta, GA: Author. Clandin, D. J., & Connelly, F. M. (2000). Narrative inquiry: Experience and story in qualitative research. San Francisco: Jossey-Bass Publishers. Crabtree, B. F., & Miller, W. L. (1999). Doing qualitative research. (2nd ed.). Thousand Oaks, CA: Sage Publications. Creswell, J. W. (1998). Qualitative inquiry and research design: Choosing among five

Exploring the Lived Experiences 163

traditions. Thousand Oaks, CA: Sage Publications. Creswell, J. W., & Miller, D. L. (2000). Determining validity in qualitative inquiry. Theory into practice, 39, 124-130. Darner, G. F. (1991). Self-concept and psychosocial adjustment in women with systemic lupus erythematosus (Doctoral dissertation, Adelphi University, 1991). Dissertation Abstracts International. Dennis, J. M. (1998). Coping, psychosocial adjustment, and health status in women with systemic lupus erythematosus (Doctoral dissertation, University of Kansas, 1998). Dissertation Abstracts International. Denzin, N. K. (1989a). Interpretive biography. Thousand Oaks, CA: Sage Publications. Denzin, N. K. (1989b). Thick description. In N. K. Denzin (Ed.), Interpretive interactionism (pp. 83-103). Newbury Park, CA: Sage Publications. Denzin, N. K., & Lincoln, Y. S. (1998) Introduction: Entering the field of qualitative research. In N. K. Denzin & Y. S. Lincoln (Eds.), Strategies of qualitative inquiry (pp. 1-34). Thousand Oaks, CA: Sage Publications. Dilley, P. (2000). Conducting successful interviews: Tips for intrepid research. Theory into Practice, 39, 131-137. Druley, J. A. (1995). Couples coping with wives’ systemic lupus erythematosus (Doctoral Dissertation, Kent State University, 1995). Dissertation Abstracts International. Falvo, D. R. (1999). Medical and psychosocial aspects of chronic illness and disability. (2nd ed.). Gaithersburg, MD: Aspen Publishers.

Exploring the Lived Experiences 164

Folkman, S., & Greer, S. (2000). Promoting psychological well-being in the face of serious illness: When theory, research and practice inform each other. Psychoonocology, 9, 11-19. Fontana, A., & Frey, J. H. (2000). The interview: From structured questions to negotiated text. In N. K. Denzin & Y. S. Lincoln (Eds.), Handbook of qualitative research (2nd ed.). (pp. 645-672). Thousand Oaks, CA: Sage Publications. Frank, G. (1996) Life history. In D. Levinson & M. Ember (Eds.), Encyclopedia of cultural anthropology (pp.705-708). New York: Henry Holt and Company. Funk, S. G. & Tornquist, E. M. (2001). Chronic illness: Improving nursing practice through research. In S. G. Funk, E. M. Tornquist, J. Leeman, M. S. Miles, & J. S. Harrel (Eds.), Key aspects of preventing and managing chronic illness (pp. 3-11). New York: Springer Publishing. Gartner, A. (1985, Winter). A typology of women’s self-help groups. Social Policy, 2531. Gillibrand, W., & Flynn, M. (2001). Forced externalization of control in people with diabetes: A qualitative exploratory study. Journal of Advanced Nursing, 34, 501510. Greenstein, B. D. (2001). Lupus: Why women? Journal of Women’s Health and Genderbased Medicine, 10, 233-238. Goodenow, C., Reisine, S. T., & Grady, K. E. (1990). Quality of social support and associated social and psychological functioning in women with rheumatoid arthritis. Health Psychology, 9, 266-284. Guba, E. G., & Lincoln, Y. S. (1989). Fourth generation evaluation. Newbury Park, CA: Sage Publications.

Exploring the Lived Experiences 165

Horton, R., Peterson, M. G. E., Powell, S., Engelhard, E., & Paget, S. A. (1997). Users evaluate LupusLine, a telephone peer counseling service. Arthritis Care and Research, 10, 257-263. Huberman, A. M. & Miles, M. B. (1998). Data management and analysis methods. In N. K. Denzin & Y. S. Lincoln (Eds.), Collecting and interpreting qualitative materials (pp. 170-210). Thousand Oaks, CA: Sage Publications. Illinois Department of Public Health. (2000). Illinois Administrative Code Title 77; Public Health, Part 590 Family Practice Residency Code (590.20 subchapter g). Isaac, S., & Michael, W. B. (1997). Handbook in research and evaluation (3rd ed.). San Diego, CA: Educational and Industrial Testing Services. Janesick, V. J. (2000). The choreography of qualitative research design: Minutes, improvisations, and crystallization. In N. K. Denzin & Y. S. Lincoln (Eds.), Handbook of qualitative research (pp.379-400). Thousand Oaks, CA: Sage Publications. Janesick, V. J. (1998). The dance of qualitative research design: Metaphor, methodolatry, and meaning. In N. K. Denzin & Y. S. Lincoln (Eds.), Strategies of qualitative inquiry (pp. 35-55). Thousand Oaks, CA: Sage Publications. Karasz, A., & Ouellette, S. C. (1995). Role strain and psychological well-being in women with systemic lupus erythematosus. Women & Health, 23, 41-57. Keller, S. M. (1999). Social support and psychological distress in women with systemic lupus erythematosus. (Doctoral dissertation, Case Western University, 1999). Dissertation Abstracts International.

Exploring the Lived Experiences 166

Kuper, B. C., & Failla, S. (2000). Systemic lupus erythematosus: A multisystem autoimmune disorder. Nursing Clinics of North America, 35, 253-265. Kuzel, A. J. (1999). Sampling in qualitative inquiry. In B. F. Crabtree & W. L. Miller (Eds.), Doing qualitative research (2nd ed.). (pp. 33-46). Thousand Oaks, CA: Sage Publications. Kvale, S. (1996). InterViews: An introduction to qualitative research interviewing. Thousand Oaks, CA: Sage Publications. LeCompte, M. D. (1993). A framework for hearing silence: What does telling stories Tierney (Eds.), Naming silenced lives (pp. 9-27). New York: Routledge. Long, K. A., & Weinert, C. (1992). Descriptions and perceptions of health among rural and urban adults with multiple sclerosis. Research in Nursing & Health, 15, 335 -342. Lorig, K. (2001). In S. G. Funk, E. M. Tornquist, J. Leeman, M. S. Miles, & J. S. Harrel (Eds.), Key aspects of preventing and managing chronic illness (pp. 35-41). New York: Springer Publishing. Lupus Foundation of America. (2000). Lupus News Survey. Lyons, R. F. Duck, S., Langille, L. & Sullivan, M. J. L. (2000). Mobilizing support in chronic illness: A relationship perspective. In M. J. Stewart (Ed.), Chronic conditions and caregiving in Canada. Toronto: University of Toronto Press. Mallison, R. K. (1999). The lived experience of AIDS-related multiple losses by HIVnegative gay men. Journal of the Association of Nurses in AIDS Care, 10(5), 2231. Marx, J. (1985, April). The need for lupus support groups. Health Values: Achieving High Level Wellness, 35-36.

Exploring the Lived Experiences 167

Merriam, S. B. (1998). Qualitative research and case study applications in education. San Francisco: Jossey-Bass. Miller, C. M. (1997). The lived experience of relapsing multiple sclerosis: A phenomenological study. Journal of Neuroscience Nursing, 29, 294-304. Morse, J. M. (1998). Designing funded qualitative research. In N. K. Denzin & Y. S. Lincoln (Eds.), Strategies of qualitative inquiry (pp. 56-85) Thousand Oaks, CA: Sage Publications. Muller, J. H. (1999). Narrative approaches to qualitative research in primary care. In B. F. Crabtree & W. L. Miller (Eds.), Doing qualitative research (2nd ed.). (pp. 221238). Thousand Oaks, CA: Sage Publications. National Institute of Allergy and Infectious Diseases. (2000). Women’s health in the U.S.: Research on health issues affecting women (NIH Publication No. 00-4697). Bethesda, MD: U.S. Department of Health and Human Services. Novak, D. (1997). Systemic lupus erythematosus: Handbook on health (NIH Publication No. 97-4178). Bethesda, MD: U.S. Department of Health and Human Services. O’Mahony, M. (2001). Women’s lived experience of breast biopsy: A phenomenological study. Journal of Clinical Nursing, 10, 512-520. Petri, M. (1995). Gender-based differences in autoimmunity and autoimmune disease. Journal of Women’s Health, 4, 433-436. Phillips, R. H. (2001). Coping with lupus: A practical guide to alleviating the challenges of systemic lupus erythematosus (3rd ed.). New York: Penguin Putnam. Porter, D. F. (2000). The effects of active systemic lupus erythematosus on the daily life experience of women diagnosed with the disease. Unpublished doctoral dissertation, Southern Illinois University, Carbondale.

Exploring the Lived Experiences 168

Richards, T. J., & Richards, L. (1998). Using computers in qualitative research. In N. K. Denzin & Y. S. Lincoln (Eds.), Collecting and interpreting qualitative materials (pp. 211-245). Thousand Oaks, CA: Sage Publications. Rodriguez-Trias, H. (1992). Women’s health, women’s lives, women’s rights. American Journal of Public Health, 82, 663-664. Rogers, M. P. (1985). Psychologic problems associated with lupus. Health Values: Achieving High Level Wellness, 9, 22-26. Rossman, G. B., & Rallis, S. F. (1998). Learning in the field. Thousand Oaks, CA: Sage Publications. Rubin, H. J., & Rubin, I. S. (1995). Qualitative interviewing: The art of hearing data. Thousand Oaks, CA: Sage Publications. Schaefer, K. M. (1995). Women living in paradox: :Loss and discovery in chronic illness. Holistic Nursing Practioner, 9(3), 63-74 Schoofs, N. (2001). Seeing the glass half full: Living with Sjogren’s Syndrome. Journal of Professional Nursing, 17, 194-202. Stewart, M. J., & Langille, L. (2000). A framework for social support assessment and intervention in the context of chronic conditions and caregiving. In M. J. Stewart (Ed.), Chronic conditions and caregiving in Canada. Toronto: University of Toronto Press. Stuifbergen, A. K. (1999). Barriers and health behaviors of rural and urban persons with MS. American Journal of Health Behavior, 23, 415-425. Sutcliffe, N., Clarke, A. E., Levinton, C., Frost, C., Gordon, C., & Isenberg, D. A. (1999). Associates with health status in people with systemic lupus erythematosus. The Journal of Rheumatology, 26, 2352-2356.

Exploring the Lived Experiences 169

Thumboo, J., Fong, K. Y., Chan, S. P., Leong, K. H., Feng, P. H., Thio, S. T., et al. (2000). A prospective study of factors affecting quality of life in systemic lupus erythematosus. The Journal of Rheumatology, 27, 1414-1420. Tierney, W. G. (1999). Guest editor’s introduction: Writing life’s history. Qualitative inquiry, 5, 307-312. U.S. Department of Health and Human Services. (2001). Health, United States, 2001 with urban and rural health chartbook (DHHS-PHS Publication No. 01-1232). Washington, DC: U.S. Government Printing Office. U.S. Department of Health and Human Services. (1998). Lupus: A patient care guide for nurses and other health professionals (NIH Publication No. 98-4262). Bethesda, MD: Author. Walker, J., Holloway. I., & Sofaer, B. (1999). In the system: The lived experience of chronic back pain from the perspectives of those seeking help from pain clinics. Pain, 80, 621-628. Wallace, D. J. (2000). The lupus book: A guide for patients and their families (Rev. ed.). New York: Oxford University Press. Watson, A. C. (1996). Finding psychosocial support for rural women with cancer. Innovations in Breast Cancer, 1(3), 61-62, 65-66. Weinert, C. (2000). Social support in cyberspace for women with chronic illness. Rehabilitation Nursing, 25, 129-135. Weinert, C. & Burman, M. E. (1994). Rural health and health-seeking behaviors. Annual Review of Nursing Research, 12, 65-92. Weitzman, E. A. (2000). Software and qualitative research. In N. K. Denzin &

Exploring the Lived Experiences 170

Y. S. Lincoln (Eds.), Handbook of qualitative research (pp.379-400). Thousand Oaks, CA: Sage Publications. Wiginton, K. L. (1999). Illness representations: Mapping the experience of lupus. Health Education & Behavior, 26, 443-453. Wiginton, K. L. (1995, Fall). Taming the wolf: The health educator’s role in helping those living with lupus. The Health Educator, 11-14. Wolcott, H. F. (1990). On seeking – and rejecting – validity in qualitative research. In E. W. Eisner & A. Peshkin (Eds.), Qualitative inquiry in education: The continuing debate (pp. 121-152). New York: Teachers College Press. Wolcott, H. F. (1995). The art of fieldwork. Walnut Creek, CA: AltaMira Press. Wright, K. B. (1999). Computer-mediated support groups: An examination of relationships among social support, perceived stress, and coping strategies. Communication Quarterly, 47, 402-414.

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