Making Otley a Dementia Friendly Town Dr Wendy Burn Consultant Old Age Psychiatrist, Leeds and York Partnership NHS Foundation Trust Dean, Royal College of Psychiatrists

Contents • • • •

Why dementia is a Public Health Priority The Prime Ministers' challenge on dementia What is a dementia friendly town What are we doing to make Otley dementia friendly

Dementia: a public health priority- WHO and Alzheimer's Disease International 2012

Dementia: a public health priority • The world’s population is ageing. Improvements in health care mean people live longer and healthier lives. This has resulted in an increase in the number of people with dementia. • Current estimates indicate 35.6 million people worldwide are living with dementia. • This number will double by 2030 and more than triple by 2050.

Cost of dementia • The need for long-term care for people with dementia strains health and social systems, and budgets. • The overwhelming number of people whose lives are altered by dementia, combined with the staggering economic burden on families and nations, makes dementia a public health priority. • The cost of caring for people with dementia is likely to rise even faster than its prevalence, so it is important that societies are prepared to address the social and economic burden caused by dementia.

Cost of dementia • The total estimated worldwide costs of dementia were US$ 604 billion in 2010. In high-income countries, informal care (45%) and formal social care (40%) account for the majority of costs, while the proportionate contribution of direct medical costs (15%) is much lower. • In low-income and lower-middle-income countries direct social care costs are small, and informal care costs (i.e. unpaid care provided by the family) predominate. Changing population demographics in many LMIC may lead to a decline in the ready availability of extended family members in the coming decades.

Living with dementia • People live for many years after the onset of symptoms of dementia. With appropriate support, many can and should be enabled to continue to engage and contribute within society and have a good quality of life. • Dementia is overwhelming for the caregivers and adequate support is required for them from the health, social, financial and legal systems.

What must be done • Countries must include dementia on their public health agendas. Sustained action and coordination is required across multiple levels and with all stakeholders - at international, national, regional and local levels. • People with dementia and their caregivers often have unique insights to their condition and life. They should be involved in formulating the policies, plans, laws and services that relate to them.

Prevention of Dementia • Research identifying modifiable risk factors of dementia is in its infancy. • Primary prevention should focus on targets suggested by current evidence. These include countering risk factors for vascular disease, including diabetes, midlife hypertension, midlife obesity, smoking, and physical inactivity

Key message • The time to act is now by: - promoting a dementia-friendly society globally; - making dementia a national public health and social care priority worldwide; - improving public and professional attitudes to, and understanding of, dementia; - investing in health and social systems to improve care and services for people with dementia and their caregivers; - increasing the priority given to dementia in the public health research agenda.

Prime Minister’s challenge on dementia 2012

Prime Minster’s challenge on dementia • Build on progress made through national dementia strategy • Drive improvement through health and care • Improve dementia research • Create dementia friendly communities

A dementia friendly community • a place in which it is possible for the greatest number of people with dementia to live a good life • where people with dementia are enabled to live as independently as possible and to continue to be part of their community • where they are met with understanding and given support where necessary.

Creating dementia friendly communities – four key parts 1. Getting evidence from people with dementia and carers about what would make it possible for them to enjoy a better quality of life in their community. The evidence will then be used to develop information and tools for organisations to help them meet the needs and aspirations of people with dementia 2. Creating a system of recognition so that places and organisations wanting to become dementia friendly can use a symbol to show they are working to become dementia friendly

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Creating dementia friendly communities – four key parts 3. Creating local Dementia Action Alliances to bring together people and organisations who can change things for the better 4. Educating the public so that more people understand dementia and start to think about how they can make things better. The Dementia Friends Programme is a central part of this.

Otley • • • • • • •

Market town in West Yorkshire 10 miles north west of Leeds Population 14,000 Settled since the Bronze age Thomas Chippendale was born here Lost the railway 1965 Close knit community, many families have lived there for generations • Highly tolerant of mental illness • I am the Consultant Psychiatrist for anyone in Otley with dementia

Otley, River Wharfe

Otley town centre

Brass Band at Otley Agricultural Show

Making Otley dementia friendlyConsultation • A consultation was held with people with dementia • A lack of confidence is a major barrier for people with dementia. • More specifically, people in Otley with dementia often worry that the wider community does not understand dementia and the difficulties that it can pose.

Making Otley dementia friendly- Aims and Objectives from town council • Otley aims to become ‘dementia friendly’. • The opening of a ‘dementia friendly’ community resource centre. • Dementia Awareness week – involving local businesses, the wider community, older residents and people with dementia. • The creation of a ‘Dementia Friendly Otley’ network.

Community resource centre • April 2013 council opened new resource centre in the Orchard Gate shopping centre. Known as “The Otley CORE” • Council headquarters • Range of community services are accessible on a regular basis. Includes police advice, Jobcentre, voluntary services

Otley Core Centre

Dementia friendly building • Different areas inside the open plan building are painted in contrasting colours. Plain carpets. • Signage in the building is clear and well-lit and includes prominent visual images to further convey the purpose of the sign • All fittings eg door handles in blue • Staff trained to recognise people with dementia and to support them

Information point

Viewing area

Display area with accessible lift

Meeting room showing toilet door

Dementia awareness week 29.4.13 – 5.5.13 • Otley Action for Older People ran a stand in the resource centre • Launch of Dementia Friends’ initiative. Names collected for a training session run by the Alzheimer’s Society. • Daily sessions for people with dementia in the resource centre

Launch event • • • • • • • • • • • • • • • • •

Dementia Friendly Otley Launch Event May 1st, 2‐4pm Otley Core Resource Centre, 11 Orchard Gate, Otley, LS21 3NX This event will officially mark the launch of the ‘Dementia Friendly Otley’ initiative and will celebrate the opening of the new dementia friendly Otley CORE Resource Centre. The speakers will varyingly discuss the challenges that we face in relation to dementia and how we can – and sometimes are – adapting as a society to face these challenges. The event will also cover practical measures that staff and local businesses can take away with them to begin the process of ensuring their organisation becomes dementia friendly. Event Programme 14:00‐14:30 Tea/Coffee reception 14:30‐14:35 Welcome by Mayor Mary Vickers and Council Leader John Eveleigh 14:35‐14:55 Cllr Lucinda Yeadon (Exec Member of Adult Social Care, Leeds City Council) 14:55‐15:15 Dr Wendy Burn (Dean, Royal College of Psychiatrists) 15:15‐15:35 Peter Ruickbie (Leeds Alzheimer's Society) 15:35‐15:55 Simon Wallace (Dementia Action Alliance) 15:55‐16:00 Closing remarks by Council Leader John Eveleigh

Dementia awareness event

Dementia talk

Continuing work • • • •

Training for dementia friends Training for representatives from businesses Dementia Friendly Otley kite mark sticker. Development of ‘Dementia Friendly Otley’ Network, businesses, health, social services and the voluntary sector

• It is the aim of the network to ensure that supporting people with dementia is a long-term process of engagement and cultural change, not just a short-lived campaign.

Thanks to Otley town council and in particular Councillor Carl Morris.

• Any questions? • [email protected]

• @wendyburn J