Louise Edwards Advanced Specialist Speech & Language Therapist. Cambridge University Hospitals NHS Foundation Trust Addenbrooke s Hospital
Louise Edwards Advanced Specialist Speech & Language Therapist Cambridge University Hospitals NHS Foundation Trust Addenbrooke’s Add b k ’ Hospital H ...
Louise Edwards Advanced Specialist Speech & Language Therapist Cambridge University Hospitals NHS Foundation Trust Addenbrooke’s Add b k ’ Hospital H i l
‘Early y studies about the outcomes of children treated with long-term ventilation at home reported p around 80% survival and g good quality of life’ Com et al (2013) ( )
Referring to local services with limited or absent resources to deal with these children No MDT follow up care Outpatient p PICU clinic shaped p Ad hoc input to clinic
“Families need a seamless child and familycentred service…A service A diagnostic and assessment process carried out promptly and leading to an agreed multi –agency plan… plan ” NSF for Children in Hospital concerning Disabled Children and LongTerm conditions (2003b:27)
Environmental impact Developmental delay Social communication T b Tubes Speaking valves Augmentative & Alternative Communication (AAC) Respiratory based dysphagia Neurological based dysphagia Experiential based feeding difficulties N orall vs. orall vs. li Non limited it d orall Respectful of quality of life whilst optimising safety Supporting decision making
MDT LTV clinic li i provides id a unified ifi d approach h to t seamless and ongoing care The clinic brings an expertise in the implications of prolonged hospitalisation and community isolation Assess / reassess / review
Margolan H H, Fraser J & Lenton S (2004) ‘Parental Parental experience of services when their child requires long-term ventilation. Implications for commissioning and providing services’ in Child: p 30 ((3)) pp 257 – 264 Care,, Health & Development Mok Q (2012) ‘Tracheostomies in paediatric intensive care: g indications and changing g g expectations’ p in Archives off evolving Disease in Childhood 97 858 – 859 Ross Russell R & Yeaney considerations in y N ((2008)) ‘Special p infants and children’ in Mackenzie I (ed.) Core Topics in Mechanical Ventilation Cambridge University Press The National Service Framework for Children in Hospital Concerning Disabled Children and LongTerm Conditions UK (2003b)
