Introduction to Comprehensive Cancer Control Coalition Building Strategies to Advance Your HPV Work
Aubrey Villalobos, MPH, MEd Director Comprehensive Cancer Control
Yamisha Rutherford, MPH Research Associate Comprehensive Cancer Control
Learning Objectives After viewing this webinar, participants will be able to: 1. Describe comprehensive cancer control 2. List two different strategies for getting involved with a local cancer control coalition 3. Explain how coalitions can be used for community-level change
What is Comprehensive Cancer Control? “Comprehensive cancer control (CCC) is an integrated and coordinated approach to reducing cancer incidence, morbidity, and mortality through prevention, early detection, treatment, rehabilitation, and palliation.” – Centers for Disease Control and Prevention
www.CCCNationalPartners.org
Current Focus Areas: 1. Increase human papillomavirus (HPV) vaccination uptake 2. Increase colorectal cancer screening to 80% by 2018 3. Increase availability of tobacco cessation services for cancer survivors
CDC’s National CCC Program South Puget Intertribal Planning Agency WA
Northwest Portland Area Indian Health Board
Fond Du Lac Reservation MT
ME
ND MN
OR OR
VT
Aberdeen Area Tribal Chairmen’s Health Board SD
ID WY
NY MI
CT
IA
PA
NE
NV
IL
UT
OH
IN
CO
AK
AZ Tohono Northwest Portland Area O’Odham Indian NationHealth Board
OK
NM
NC TN
AR
SC MS
TX Alaska Native Tribal Health Consortium
VA
KY
Cherokee Nation
AL
GA
LA
HI
FL AMERICAN SAMOA FEDERATED STATES OF MICRONESIA GUAM COMMONWEALTH OF THE NORTHERN MARIANA ISLANDS PUERTO RICO REPUBLIC OF THE MARSHALL ISLANDS REPUBLIC OF PALAU
www.cdc.gov/cancer/ncccp/
NJ
DC DE MD
WV MO
KS
CA
NH MA
WI
RI
Cancer Prevention and Control Program for State, Territorial and Tribal Organizations (DP12-1205) CDC Division of Cancer Prevention and Control in the National Center for Chronic Disease Prevention and Health Promotion
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The National Comprehensive Cancer Control Program
↓ State, territorial, and tribal health departments/organizations
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Local government or non-government organizations
Building Blocks of CCC Evaluate
Enhance Infrastructure
Assess and address cancer burden
Build Partnerships
Mobilize Support
Perform Research
CCC Priorities Emphasize Primary Prevention Support Early Detection and Treatment Address Public Health Needs of Cancer Survivors Implement Policy, Systems and Environmental Change to Guide Sustainable Cancer Control Promote Health Equity Demonstrate Outcomes through Evaluation
CCC Stakeholders “Combine, share and coordinate ALL cancer fighting resources”
• Government agencies • Non-profit organizations • Patient advocates • Public health officials • Hospital executives • Business Community • Civic and volunteer groups
• Health professionals • Researchers • Managed care representatives • Colleges & Universities • Cancer survivors • Religious and fraternal organizations
What is a Coalition? A broad alliance of people who represent sectors of the community working together for a shared mission.
Coalitions vs. Programs • CCC programs and coalitions work together • CDC funds go to the program housed at the state DOH • CCC programs may provide financial or staff support to coalitions • CCC program leadership is generally expected to coordinate with coalition leadership
Diverse Structures of CCC Coalitions • State Coalitions No direct contact with local communities Require support of local stakeholders to implement state CCC plans May support efforts to form local & regional coalitions
• Regional or Local Coalitions
Local Health Departments (leaders) Relationships with local stakeholders Implementers Community Level change
• Informal Support
Volunteers May or may not base local efforts on CCC plan or coalition priorities Implementers
Leadership Structure & Staffing • Leadership Structure Steering Committee, Executive Committee, Coordinating Council, Board of Directors or Core Committee
• Dedicated Staff Paid job responsibilities Assist with coordination, communication and progress monitoring
State Cancer Plans • Data Driven • Evidence-based
• Blueprints for action • Guides partnerships • 5 year time-frame
Benefit of CCC • Pooled Resources • Maximize impact of limited resources • Access to critical data, new ideas and examples of successful activities • Cost effective
Benefit of CCC • Eliminates duplicated efforts • Prevents missed opportunities for coordination • Help identify and address inefficient activities • Perfect for community change which is lasting long term change
Questions?
COALITIONS AND COMMUNITY LEVEL CHANGE
Effective Strategies in Community Organization 1. Organization for locality development 2. Social planning of policy change 3. Organizing for social action, or systems advocacy 4. Coalitions
Organize for Community Change • Gaining an understanding of the community • Involving other people • Planning purposeful action
• Generating and using power Political and legislature power Disruptive power Consumer Power
• Generating and using other resources
7 Coalition Strategies to Effect Community Change 1. Providing Information 2. Enhancing Skills 3. Providing Support
Individual Change Strategies 1-3
4. Enhancing Access/ Reducing Barriers 5. Changing Consequences 6. Physical Design 7. Modifying/ Changing Policies
Environmental Change Strategies 4-7
COALITION BUILDING STRATEGIES
Where You Fit In? • Health professions workforce addressing community health needs • Ability to reach local communities • Existing relationship with key stakeholders • Adapt national initiatives to help address local and regional healthcare issues
Identifying Collaborative Opportunities 1. Contact your state Cancer Control Program or Coalition 2. Review State Cancer Plan
3. Participate in Cancer Meetings 4. Identify LHD Grantees for HPV initiatives 5. Identify most recent CDC or AHEC success stories related to HPV
Reaching Out Talking Points • Introduction • The strategy / initiative you’d like to take part in • Your proposed contribution • Previous and related work • Why this is a great fit • Benefits • Meeting invitation
Inviting In Talking Points • Introduction
• Share a clear description of goals • State why their participation is important
• Describe in more detail how they can be involved • Ask what they can offer/ how they’d like to engage
• Describe next steps • Thank you
Coalition Building Trainings & Resources • Coalitions Work coalitionswork.com/resources
• National Coalition Academy – Some free online training www.cadca.org/nca
• Michigan Public Health Training Center miphtcdev.web.itd.umich.edu/trainings
CASE STUDIES
CCC Programs with HPV Vaccine-related Project Period Objectives (priority focus), n=21 • • • • • • • • • • • •
Alabama Arizona American Samoa Colorado Fond du Lac Reservation Georgia Indiana Kansas Kentucky Massachusetts Minnesota Nevada
• • • • • • • • •
New Hampshire New Jersey New York North Dakota Ohio Puerto Rico South Dakota West Virginia Wisconsin
Alabama • Addressing parents and providers through “Third Time’s a Charm” campaign Promote VFC program Mail birthday cards to parents of 11 year olds Educate providers through media and conferences
• Educating college students to increase their vaccination rates
Minnesota • Developing quality measures • Provider assessment and feedback • Pilot reminder/recall project • Provider education (communication videos) • Partnership with Immunization program
Fond du Lac Reservation • • • • •
Providing women with HPV vaccine education Modifying EHR to report clinic’s vaccination rate Planning in-service for health care providers Planning digital stories project Education through community events and Circle of Life
New Hampshire • Dartmouth CO-OP Primary Care Research Network, Cancer Center, Dartmouth Geisel School of Medicine • Assessed HPV vaccination barriers in healthcare settings Environmental scan Interviews with 6 practices that have implemented office systems – determine HPV vaccination process
• Example objective: Three broad areas for opportunities to intervene, office procedures, parent and patient information and community engagement. E.g. Recruiting more practices to participate in the National Immunization Project. Developing clear office procedures for the three hot series. Using CDC messaging, identifying missed opportunities and using social media and text reminders.
Pennsylvania • Partnered with PA DOH to cosponsor and promote webinar for clinicians
Other Examples? Let’s hear from the audience. See what your AHEC colleagues are up to! Success stories posted here: www.nationalahec.org/hpv/index.html
Questions? Comments? Aubrey Villalobos Director, Comprehensive Cancer Control
[email protected] 202-994-2680 Website: www.CancerControlTAP.org Twitter: @GWCancerInst Email:
[email protected]
© 2015 The George Washington University (GW) Cancer Institute
Thank you!