SAIL Datasets (at 22/2/12) Name
Description
Owner/ Provider
Geographical Coverage
Date period From
To
Potential for linkage
Access negotiated (Y/N)
(AWISS) All Wales Injury Surveillance System- Swansea component
Attendance and clinical information for Accident and Emergency attendances which are injury related. Circa 285,000 per annum.
ABMU Health Board
Swansea
01/11/1999
28/06/2007
Y
Y (in SAIL)
EDDS (Emergency Department Dataset)
Attendance and clinical information for all emergency department attendances. Circa 410,000 per annum.
NWIS
Wales
01/03/2009
-
Y
Y (in SAIL)
AWPS (All Wales Perinatal Survey)
Continuous surveillance of perinatal and infant mortality. Circa 250 per annum.
AWPS
Wales
02/01/1993
-
Y
Y (in SAIL)
CARIS (Congenital Anomaly Register and Information Service for Wales)
Information about any foetus or baby who has or is suspected of having a congenital anomaly and whose mother is normally resident in Wales at time of birth, a multi-sourced register. Circa 1,500 per annum.
Public Health Wales NHS
Wales
1998
-
Y
Y (in SAIL)
NCCHD – Child Health
Birth registration and monitoring of child health examinations and immunisations.
NWIS
Wales
28/12/1987
-
Y
Y (in SAIL)
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Name
Description
Owner/ Provider
Geographical Coverage
Date period From
To
Potential for linkage
Access negotiated (Y/N)
Circa 37,000 per annum. Pre16 Education Attainment
Educational attainment at key stages (pre 16 year olds). Circa 140,000 per annum.
Welsh Government, DCELLS
Wales
2003
-
Y
Y (in SAIL)
NHS Administrative Register/Welsh Demographic Service
Register of all individuals registered with a Welsh GP, includes individuals anonymised address and practice history. Information on circa 4.5M living and dead people.
NWIS
Wales
1960
-
Y
Y (in SAIL)
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Name
ONS – Deaths
Description
Owner/ Provider
Geographical Coverage
Date period From
To
Potential for linkage
Access negotiated (Y/N)
Register of all deaths relating to Welsh residents, including those that died out of Wales. Circa 30,000pa Register of all births in Wales. Circa 35,000pa Pathology Data for BloodScience and Microbiology department. ABMU Health Board covers a population of approx. 500,000.
ONS
Wales
2003
-
Y
Y (in SAIL)
ONS
Wales
2003
-
Y
Y (in SAIL)
ABMU Health Board
Bridgend
06/12/1994
15/07/2008
Pathology – ABM Trust
Pathology Data for following departments: HistoPathology,NonGynae Cytology,Chemical Pathology,Haematology,Virology,PM Histology,Bacteriology,Blood Transfusion,Gynae Cytology. ABMU Health Board covers a population of approx. 500,000.
ABMU Health Board
Swansea
01/03/1981
12/10/2009
Y
Y (in SAIL)
NHS Hospital Admissions (PEDW)
Attendance and clinical information for all hospital admissions: includes diagnoses and operations performed. Circa 477,000 per annum.
NWIS
Wales
01/04/1999
-
Y
Y (in SAIL)
NHS Hospital Outpatients
Attendance information for all hospital outpatient appointments.
NWIS and NHS IC
Wales
01/04/2004
-
Y
Y (in SAIL)
ONS – Births Pathology – Bro Morgannwg NHS Trust
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Y (in SAIL)
Name
Description
Owner/ Provider
Geographical Coverage
Date period From
To
Potential for linkage
Access negotiated (Y/N)
Circa 1 million per annum. Rheumatology register
Register of all rheumatology patients in Wales.
Wales
06/12/2007
-
Y
Y (in SAIL, WARN is led by Siebert)
Screening Services - Breast Screening Data. Circa 200,000 per annum.
Wales Arthritis Research Network (WARN) Public Health Wales NHS Trust
Screening Service – Breast
Wales
01/01/1900
-
Y
Y (in SAIL)
Screening Service – Cervical
Screening Services - Cervical Screening Data. Circa 290,000 per annum.
Public Health Wales NHS Trust
Wales
01/10/1987
-
Y (in SAIL)
Screening Service - Bowel
Screening Services – Bowel Screening Data Circa 200,000pa
Public Health Wales NHS Trust
Wales
01/04/2009
-
WCISU (Welsh Cancer Intelligence Surveillance Unit) GP Primary Care – Audit+
Cancer Registry Data. Circa 17,000 per annum.
Public Health Wales NHS Trust
Wales
01/01/1990
-
Y
Y (in process of being uploaded to SAIL) Y (in SAIL)
Attendance and clinical information for all general practice interactions: includes patients symptoms, investigations, diagnoses, prescribed medication and referrals to tertiary care
GP practices via Audit+
Wales (165 practices)
1993
14/01/2010
Y
Y (in SAIL)
Individual practice sign up / Audit+
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