FOR THE FRIENDS & FAMILIES OF DOERNBECHER CHILDREN’S HOSPITAL

SUMMER 2006

Doernbecher and Kaiser Mark 10-Year Collaboration It’s been 10 years now since Kaiser Permanente decided to join forces with Doernbecher when its pediatric patients needed to go to the hospital. Since 1996, all Kaiser Foundation Health Plan of the Northwest pediatric hospital services have been provided by Doernbecher. The idea was to ensure Kaiser Permanente patients had access to the full spectrum of inpatient and outpatient care at one central location. The partnership was established when Kaiser Permanente decided to consolidate its hospital-based pediatric services at Bess Kaiser Hospital and Kaiser Sunnyside Hospital into one, high-quality pediatric infrastructure. “Doernbecher was the best candidate for a community partner given its planned new

facility and wide array of services,” explained Dr. David Tilford, then assistant regional medical director for Kaiser Permanente. Plus, Doernbecher’s new building was about to open, so the arrangement helped increase pediatric referrals to Doernbecher and utilize the new facility. Today, most Kaiser Permanente hospitalbased pediatric specialty medical services are located at Doernbecher. And there’s another benefit to the collaboration. A Kaiser Permanente pediatrician is “in house” at Doernbecher 24 hours a day, working with pediatric residents in acute and emergency situations. As a result, Doernbecher physicians-intraining gain valuable experience working with community physicians.

“There is no greater tragedy than a child in pain,” said Kaiser Permanente President Cynthia Finer. “For a decade now, Kaiser Permanente has worked in collaboration with Doernbecher and OHSU to provide the best patient care to the smallest, most fragile of our members. We look forward to improving the lives of these patients and their parents for years to come.”

NEWS

Non-Profit Org. US Postage PAID Portland, OR Permit No. 3916 1121 SW Salmon, Suite 201 Portland, OR 97205-2021 503-294-7101 503-294-7058 fax www.doernbecherfoundation.org

DOERNBECHER’S NEW WESTSIDE PEDIATRIC BRANCH OHSU is an equal opportunity, affirmative action institution. 0606(50)

Dear Friends, As the state’s only academic pediatric medical center, Doernbecher Children’s Hospital is an integral part of the fabric of Oregon’s communities. Thousands of families from throughout the state and surrounding region turn to Doernbecher annually for the finest in pediatric care. Our physicians see thousands more at our statewide community clinics. And every year, corporations, civic groups and schools from Vancouver to Vale go above and beyond to raise money for our kids. That connection to community is what this issue of Hero News is all about. As you will read in our cover story, Doernbecher’s community-based approach to health care has made a big leap forward with the recent debut of the Doernbecher Pediatrics Westside Specialty and Primary Care Clinics in Washington County. We are delighted that Doernbecher will be right there on Bethany Road (near Highway 26 and Cornell Road) to serve the primary care needs of families living in this booming area, and to provide cardiology, urology, otolaryngology, cholesterol management and other specialist services for a regional clientele.

Doernbecher

Specialists

open Community

The new clinic is the latest evidence of how Doernbecher is serving communities. Another example in the making is our wonderful new Kenneth W. Ford Northwest Children’s Cancer Center. When completed next summer, the center’s expansion will further our ability to care for more than 80% of the region’s children with cancer. Our community partnership works both ways. Scores of people throughout the region work tirelessly to raise support for our hospitalized kids. Wonderful and indispensable grassroots fund-raising programs such as Kids Making Miracles, Nike’s Doernbecher Freestyle project, the Oregon Charitable Check-off program, our Kiwanis partnership, the Miracle Aisles program, and our annual radiothon and telethons all demonstrate the special place Doernbecher enjoys in the hearts of Oregonians. This issue has the full story about these community-based programs. We could not be more proud of the spirit that inspires this level of commitment to Doernbecher, nor could we be more grateful. We are honored to be such an important part of so many lives in so many communities. We hope you enjoy this issue of Hero News. With best wishes for a wonderful summer,

Susan Nicol

Executive Director Doernbecher Children’s Hospital Foundation

Clinic Everybody knows where to find the finest pediatric care in the Northwest – at Doernbecher Children’s Hospital. Now for the first time, families needing to see a Doernbecher specialist in cardiology, ear nose and throat, urology or issues relating to high cholesterol can find that physician in a neighborhood clinic. The Doernbecher Pediatrics Westside Specialty and Primary Care Clinics are now open in Northwest Portland.

Peter O. Kohler, M.D.

President Oregon Health & Science University

The clinics are located in a rapidly growing area – on NW Bethany Road, near Highway 26 and Cornell. They serve families from all over the region for specialty care, and from Portland, Beaverton, Banks,

Hillsboro, Vernonia and beyond on the primary care side. Pediatric urologist Dr. Guy Hudson’s patients come from as far away as Southern Oregon. “Parents tell me the clinic is easy to find, and they love the parking lot!” says Dr. Hudson. “They see the same faces when they walk in; the same nurses and the same care. It’s more like a small town practice – more homey.” “We made the decision to move specialty care into the community because we recognize that families want to see physicians who are close to home,” says Jan Freitas-Nichols, director of children’s services at Doernbecher. “By creating Cover photo by Michael Schmitt Photography

Top: Primary care physician Marlo McIlraith, M.D. Below: Chief of Pediatric Cardiology Mark Reller, M.D.

extra spacious and are designed to accommodate the needs of a variety of specialties. Specialty clinic patients are referred by their primary care physicians. Dr. Henry Milczuk, an ear nose and throat specialist, and his colleague, Dr. Carol McArthur still see patients up at Doernbecher, where they also perform surgery, but now offer clinics at Westside as a convenience for their patients. The same holds true for all the specialists at Westside.

community-based specialty practices, we’re better able to meet the needs of not only our referring physician colleagues, but our families as well.” Practice manager Debi Hungerford says it’s exciting to bring the expertise of Doernbecher Children’s Hospital out into the community. “What’s different out here is that we’re a community-based practice. Families love it, because we’re able to get them in for an appointment more quickly.” The specialty and primary care clinics share a brand new building with a bright blue Doernbecher sign outside, and each have separate entrances and waiting areas. Exam rooms are

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Cardiologists Dr. Mark Reller, Dr. Mary Minette and Dr. Robin Shaughnessy also split their time at the hospital and clinic, as well as regularly take their practice on the road to Salem, Corvallis, Albany, Eugene, Roseburg, Medford, Coos Bay, Klamath falls, Bend Pendleton and La Grande. In addition to the patients at Bethany, these physicians serve the entire state. “For 40 years we’ve been traveling off campus for cardiology clinics,” says Dr. Reller, “Now, we’re able to take our practice out into a community clinic, so we can provide follow-up care and facilitate good medicine without requiring the patient to come up to the hospital. We’re really excited about that.” Business is also booming in the primary care clinic next door.

Several Doernbecher pediatricians staff the clinic full time, and the number of patients continues to grow. “I like being in the community where the patients live,” says Doernbecher pediatrician, Dr. Marlo McIlraith. “Expectant moms are in the waiting area. We have many young families and new babies. This area is really booming; there are three new elementary schools!” The area around the Bethany clinics is surrounded by new housing developments and the clinic serves many patient families from Washington County companies like Intel, Nike and Columbia Sportswear. Elaine Miguel and her husband recently moved here from California for their jobs at Nike. She brings her 9-month-old daughter to the clinic. Primary Care Physician and Lipids Specialist Jeff Miller, M.D.

Top portrait photo: Otolaryngologist Henry Milczuk, M.D.

“The Doernbecher clinic was recommended by my daycare,” says Elaine. “I can’t believe how nice everyone is here.”

Bottom: Pediatric Urologist Guy Hudson, M.D.

Angie Scott, mother of three, chose an insurance plan that included Doernbecher, partly because the clinic is convenient for her family. “I might not have chosen that insurance without the clinic,” explains Angie. “We’re new to the area, and with three kids, it’s pretty hard to get all the way up to the hospital for routine pediatrician visits. This really works great.” Primary care pediatrician, Dr. Jeff Miller, and cardiologist, Dr. Laurie Armsby also treat children with issues relating to high cholesterol. The Lipids clinic used to be held up at Doernbecher, but has now been moved to Westside. “We think Westside provides a specialty experience that creates

Doernbecher Pediatrics Westside Specialty & Primary Care Clinics easy and timely access for care,” adds Freitas-Nichols . “We hope to be able to expand services beyond the four specialties that are there in the next year. And as we slowly outgrow our space at Doernbecher, our goal is to move more services off the hill into the community where it better serves patients and their families.”

Cardiology Mary Minette, MD Mark Reller, MD Robin Shaughnessy, MD Urology Guy Hudson, MD Otolaryngology/Head & Neck Surgery (Ear, Nose and Throat) Henry Milczuk, MD Carol McArthur, MD Lipids Laurie Armsby, MD Jeff Miller, MD Primary Care Marlo McIlraith, MD Jeff Miller, MD Angeles Peña, MD

Support Staff Debi Hungerford, Practice Mgr. Kerry Jones, RN Laurie Scriven RN Celi Jimenez, Med. Asst. Mimi Cavanaugh Linda Stout Tina Williams Patty Leach

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Tackling Autism at OHSU Child Development and Rehabilitation Center (CDRC) what they perceive as a chaotic and threatening world. For these children, the sights, sounds, smells and textures of everyday life can be overwhelming. About one out of every 20 children in Oregon and Southwest Washington is born with a developmental condition that affects their capacity to learn, play and interact with the world around them. Among the most pervasive and perplexing is autism. A couple of years ago, CDRC experts launched a new family-centered clinical program for children and youth with autism which has evolved into a leading autism resource. The goal of the CDRC Autism Program is to provide competent multi-specialist assessment, diagnoses, recommendations and treatments in a supportive and caring environment, where parents are respected and viewed as their child’s best advocate. Led by Darryn Sikora, PhD., the program has a team consisting of clinical psychologists, developmental pediatricians, speech and language pathologists, occupational therapists, audiologists and social workers. To an outsider, a child with autism can seem detached and almost oblivious to others, finding refuge within their own internal reality. At times, they may use repetitive and severe behavior to deal with

In the past decade alone, the rate of autism among school-aged children in the U.S. has increased by an astonishing 10-17% each year. The causes of this dramatic increase are as mysterious as the disorder itself. To some degree, better and more accurate diagnoses of autism spectrum disorders are finally showing us a clearer and more comprehensive picture of prevalence. Still, the extent of the autism explosion suggests a number of undetermined environmental factors are probably to blame. In Oregon and Southwest Washington, where autism rates are among the highest in North America, at least one out of every 1,000 children has some form of this complex and little-understood disorder. For families, the emotional and financial stress can be devastating. The average annual cost per household to care for a child with autism is a staggering $30,000 to $65,000. In our region’s schools, the need for special education and other services for children with autism out paces available resources while solutions to the

problem are unclear. One way to tackle some of the problems related to autism is for families, schools and communities to learn more about it and then focus on earlier interventions. Beth Garnett, a parent from Seaside, Ore., appreciates the expertise of the CDRC autism team. “It’s very helpful to talk with all of the different experts. When I bring my son Max to the clinic, they have six to eight people on the team. It’s very extensive and well done. The information and write-ups are helpful tools. It empowers me to help my son and to educate his teachers, other parents and coaches. The information allows me to be a better advocate for him.” Beth’s son Max was diagnosed with autism by a team of specialists at CDRC when he was 3 years old. Over the years, evaluations at CDRC have guided Beth so she can help Max uncover his greatest strengths and reach his personal best. In fact, Max has already blossomed into a talented concert pianist, athlete and student. He takes classes at Clatsop Community College where the smaller class sizes allow him to do more advanced schoolwork. Max studies alongside the much older students and maintains a 4.0 G.P.A.

The CDRC autism program has been key to helping Beth understand Max better so she can help him pursue his dreamsespecially his love of music. With remarkable insight Max says, “Piano has saved my life. If it weren’t for me playing the piano, I’d be one of those kids everyone would tease and pick on. Instead, I can ‘wow’ those same kids.” Last August, Max performed a benefit concert raising awareness for autism. The concert raised several thousand dollars for autism research at CDRC, and in support of a number of other non-profit organizations. “Personally, for me trying to act just like one of the other kids at the middle school is hard,” says Max. “I try to act like them, but sometimes it’s really difficult. I have to be myself no matter what. When I play sports, I’m just one of the guys.” Early intervention is crucial and can mean saving thousands of dollars over a child’s lifetime. To support a brighter future for children and families affected by autism, please call 503-494-3686 and consider a gift today.

Look for the Bright Miracle Aisles Shelf Tags! From September 1 through October 15 look for the orange and blue Miracle Aisles shelf tags in your local grocery store. By purchasing products marked with these tags, you support companies that generously contribute to Doernbecher Children’s Hospital.

Thanks for Checking-off Doernbecher! Thank you to all Oregon taxpayers who checked off Doernbecher and donated a portion of your tax refund this year! So far we have received $8,757 from 636 donors. Your gifts will help purchase an automated medication dispenser for the expanded Kenneth W. Ford Northwest Children’s Cancer Center. The dispensing system is the safest way to ensure the delivery of the correct medications to the children, which is especially important when dispensing chemotherapy to medically-fragile youngsters. At Doernbecher we also have two nurses verify the accuracy of each prescription. Construction of the Center’s outpatient clinic and infusion center began in April and should be finished by the end of the year. The new 21-bed inpatient unit and the four new pediatric intensive care rooms should be ready for occupancy in July 2007.

Max is a talented musician, skillfully playing both classical and modern piano.

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Help Kiwanis Members Help Doernbecher Kids! 2006 Holiday Ornament Win a Mustang You could win this 40th Anniversary 2005 Mustang and help kids with cancer at Doernbecher. The Mustang will be given away by the Kiwanis Doernbecher Children’s Cancer Program (KDCCP) on Monday, September 4 at 6:45 p.m. at the Oregon State Fair. Tickets are $2 each or 10 for $20. Look for the Kiwanis booth at these community events or contact Lyn Trainer at the Doernbecher Foundation, 503-220-8342 or [email protected]. August 11-12 Tualatin Crawfish Festival August 15-20 Clackamas County Fair August 25September 4

Oregon State Fair

Kiwanians are also raising funds for the Doernbecher Children’s Cancer Program with beautiful hand-blown Ornaments of Hope crafted by lampworker/glass blower Tony Hernandez of Salem. Tony has been a glass artist since 1995. Each ornament is hand crafted and, therefore, each is unique. The 2006 Limited Edition Ornament of Hope sells for $15 each; a variety of other shapes and styles are $12 each. Ornaments can be purchased at the KDCCP booths at: November 3-4

New Hope Community Church Holiday Bazaar, Clackamas November 24-26 America’s Largest Christmas Bazaar, Portland Expo Center December 1-3 America’s Largest Christmas Bazaar, Portland Expo Center December 9-10 Clackamas Town Center December 16-17 Clackamas Town Center

Kiwanians Raise $175,000 More than 80 Kiwanis and Kiwanis Family Clubs contributed time, energy and money to the Kiwanis Doernbecher Children’s Cancer Program over the past year. Collectively these clubs and volunteers raised $175,000, which was presented on the Doernbecher Telethon on June 4 by KDCCP Board members David Edwards and Jim McElhinny. Included in the total was a $10,000 grant from the Kiwanis International Foundation to support the first tests of new anticancer medications in children. This is the second year that Kiwanis has

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supported this vital clinical research program. In Clark County, Washington, Gary Mael and Rod Fredricksen chaired a golf tournament held at Camas Meadows Golf Club on May 20, which raised $15,000. The next day seven clubs on the Southern Oregon coast produced their 10th Annual Recreational Bike Tour, a 50-kilometer ride from Coquille to Bandon and back. With the leadership of Marcia Priest and Karen Craig and the inspiration of Phillip Tofflemire of North Bend, the Bike Tour had its best year ever with donations in excess of $34,000.

Leukemia Patient Inspires Car Enthusiast to Help Doernbecher Margie Swanson of Salem has always loved speed and car racing, and used to watch the sport on television. For the last 23 years she has spent more than 20 weekends a year at the track as a volunteer. Her specialty is “gridding,” which involves lining up racecars before they go onto the track and checking that safety equipment required for both drivers and the vehicle is operational. It was through her involvement with the racing community and Cascade Sports Car Club that she met Danny Frasier, a leukemia patient who inspired Margie’s other passion: helping the kids at Doernbecher. Since 1984 the Cascade Sports Car Club has organized an annual two-day fundraiser called the Doernbecher Dash, which has raised more than $175,000 for the hospital. Funds are generated by giving the public rides in racecars during the lunch break. And on Sunday, Doernbecher patients and their siblings get a ride. Danny Frasier and his family were Doernbecher Dash volunteers.

We would also like to thank the Key Club at Hudson’s Bay High School and the Portland Golf Tournament Committee, Bob and Shirley Clemens and the Mustang Raffle Committee, Roald Berg and the Ornaments of Hope Committee, the KDCCP Board and all of the volunteers and sponsors for their significant contributions.

“Danny loved the track,” Margie recalls. “He was just a wonderful, wonderful kid. Danny really touched me.He was such a fighter. Kids have more fight

than I’ve seen in adults.” When Danny died at age 16 in 1997, Margie decided to do more. The next year she created the Danny Frasier Silent Auction, which has become the Doernbecher Dash’s largest fundraiser. Other innovations include a dunk tank where kids can dunk drivers, and a Pinewood Derby. This year will include the Silly Dog Contest, featuring the canine members of the Cascade Sports Car Club. Awards will be given to contestants with the longest and shortest tails, the longest and shortest ears and other silly attributes. Danny’s sister is still a regular at the Dash and her 3-yearold daughter will soon be old enough to help. In 1999 Margie became the chairperson of the Dash, a position she has held ever since. “Margie eats, breathes and sleeps Doernbecher,” says Michelle Swanson, president of Cascade Sports Car Club, who is no relation. “I’ve never seen somebody so passionate about a cause. She is constantly thinking how to improve the event, raise more money and make the kids happy.” No race weekend goes by without the fundraiser being mentioned. Margie estimates she spent about 1,000 hours working on the Doernbecher Dash last year, with

the bulk of the work in the last three months before the September event. Eight other Cascade volunteers make up her committee recruiting sponsors, organizing publicity and coordinating specific activities and volunteers. Margie has a twopage list of drivers who have already signed up to give rides during this year’s event on September 23 and 24 at Portland International Raceway. The Doernbecher Dash requires as many as 200 volunteers. About half come from the race community to handle the technical aspects of car racing. Fifty to 100 people are needed to help with the auction, rides and activities for Doernbecher patients and their families. Anyone interested in helping out can contact Margie at [email protected]. For Margie it’s all about the kids. “When you see kids coming out of racecars with a big grin, you know your club is doing something special.”

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Dr. Dana Braner, center, seated, with Dr. Stacy Nicholson, Dr. Joe Robertson, OHSU President Dr. Peter Kohler and Alice and Fred Fax’s family members.

Family Estate Helps Oregon’s Future Children Children were always drawn to Alice Fax of The Dalles. Her husband, Fred, recalls a time when children she didn’t even know flung themselves into her arms. And Alice returned the favor with a welcoming and loving attitude, easy laughter and a great love for children, especially those in need. Alice understood what it was like to struggle. She worked hard all of her life. As a young mother raising two sons, she toiled in the family’s small cherry orchard and eventually worked as the hostess at a local restaurant. It was while she was hostessing in 1968 that Alice met Fred Fax, a local wheat rancher, who regularly ate at the restaurant’s lunch counter. Two years later they were married. During their 33 years together, Alice gave tirelessly to the community. She provided child care for the youngsters of migrant workers, looked after her first two grandchildren while their mother worked, made thousands of sandwiches to feed the hungry, and volunteered at nursing homes, brushing hair and manicuring and polishing fingernails of elderly residents.

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Alice and Fred made their first gift to Doernbecher Children’s Hospital in 1991. The more they learned about Doernbecher, the more Alice wanted to make a difference. She met with her attorney and included a legacy to Doernbecher in her estate plans. “She was a lovely, caring person,” says her son, Ed Anghilante, “She always gave so much of herself and now has been able to give money to help needy children.”

and provide crucial and stable funding for key clinicianresearchers to develop their programs.

Fred agrees. “Alice would do anything to help children.”

“Meeting Fred Fax was one of the high points of my year,” said Dr. Braner. “Aside from the family’s obvious generosity with the endowment, Fred has a generosity of spirit that is truly inspiring. His life has proven once again that nice guys do not finish last; they finish first. In addition Fred improved my knowledge of wheat farming about 600 percent.”

On April 19, 2006 Alice’s family, Fred, Ed, Ed’s wife Mary and three of Alice’s four grandchildren traveled to Doernbecher to celebrate with Doernbecher and OHSU staff and volunteers the appointment of Dana Braner, M.D., division head of critical care, as the first Alice Fax Professor in Pediatric Intensive Care. The professorship was made possible by Alice’s estate gift. Endowed professorships are important because they help Doernbecher recruit and keep world-class children’s specialists like Dr. Braner to care for our children

Dr. Braner views his appointment to the Alice Fax Professorship as an honor for the entire staff of the Doernbecher Pediatric Intensive Care Unit who work tirelessly to care for the sickest and most vulnerable children every minute of every day of every year.

Home Builders “Rock the House” for Doernbecher The Home Builders Association of Metropolitan Portland has auctioned off a beautiful new house for Doernbecher. The first “Rock the House” event was held at The Neighborhood – formerly known as the Street of New Beginnings – on June 19. The party included food and music, of course, but at its heart was an auction to raise funds for Doernbecher. The “House of Hope,” donated by Sequoia Custom Homes, was the centerpiece of the auction. Oregon developer Brent Keys offered the highest bid for the home: $610,000. There was also a silent auction, which included furniture, appliances, artwork and music memorabilia. When proceeds from the oral and silent auctions are tallied, Sequoia Custom Homes and owners Brian and Darcy Snodgrass expect a donation to Doernbecher of more than $190,000! “Over the past seven years, the Home Builders Association of Metropolitan Portland has honored the children at Doernbecher with generous support,” said Sue Nicol, executive director of the Doernbecher Foundation. “Brian and Darcy Snodgrass of Sequoia Custom Homes went above and beyond in their dedication to the kids.” Brent Keys said he bid on the house because he was inspired by a poem read by 11-year-old Katie Knutson, a Doernbecher patient being treated by the leukemia pill developed at OHSU. We’d like to thank everyone who took part in the event, and major sponsors D’Ambrosio & Associates Realtors and KINKfm.

Fab ien

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Above: Darcy and Brian Snodgrass celebrate with Brent and Erin Keys, the winning bidders on the 2006 “House of Hope” charity house for Doernbecher.

Each year, bequests provide thousands of dollars in support of Doernbecher. If you are interested in learning how you can include Doernbecher in your estate planning, please contact the Office of Planned Giving at 503-294-7101.

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Kids Making Miracles Local Students Continue to Make Miracles for Doernbecher

As the 2005-2006 school year wraps up we conclude another fantastic year of Kids Making Miracles fundraising. The program, now in its 14th year, involves K-12 students from area schools who organize a host of creative fundraising activities in their communities. This year’s proceeds – which will exceed $400,000 – will benefit hospital priorities such as advanced research, care for underinsured patients and

recruitment of top pediatric specialists. The program gives students a sense of purpose and empowers them to make a meaningful contribution to their community by helping other children, while developing lifelong skills in leadership and community service. Here are just a few examples of the incredible things students are accomplishing through the Kids Making Miracles program: •Hudson’s Bay High School in Vancouver raised $91,730 through the Mr. Hudson’s Bay Pageant. The winner of this

year’s Mr. Hudson’s Bay, Ken Horenstein, raised more than $18,163! •St. Mary’s Academy in downtown Portland raised more than $22,000 for Kids Making Miracles. Students raised money through various fundraisers at their school and in the Portland community. •West Orient Middle School in Gresham raised $1,827 through their annual school-wide Reada-Thon.

It’s Time to Celebrate! On Friday, May 12, more than 500 school-aged kids from Oregon and Southwest Washington celebrated a successful year of fundraising activities for Doernbecher Children’s Hospital by participating in the annual Candlelight Procession. The annual grand finale of Doernbecher’s Kids Making Miracles program, this moving event symbolizes the spirit of compassion shown by these young people in their yearlong fundraising efforts. Following the Procession, Kids Making Miracles participants partied into the wee hours at the annual Pajama Jam, a late-night celebration at ClubSport thrown in honor of their hard work. We would like to extend thanks to our generous Kids Making Miracles sponsors; Wells Fargo Bank and Northwest Ford Stores. We would also like to thank the following local companies for generous in-kind donations: Beaverton Sub Station, Beaverton Toyota, Big 5 Sporting Goods, ClubSport Oregon, Columbia Distributing, Costco, CROSSMARK, Game Crazy, Charles Dillard, Hollywood Video, Krispy Crème Donuts, Papa John’s Pizza, Brett Patterson Photography, Portland Trail Blazers, Precision Body & Paint, Inc., Safeway, Subway, Target and Tully’s Coffee.

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•Columbia River High School in Vancouver raised more than $33,000 for Doernbecher through the Mr. Columbia River Pageant. •Clatskanie Middle/High School raised $2,045 for Doernbecher through a variety of fundraisers including a coin drive, benefit concert and root beer float sales. These are just a few examples of the creativity and dedication of our young people. Congratulations and thank you to all of the schools that participated in this year’s program.

Help The Resort at Seaside Raise Money for Doernbecher As a Doernbecher supporter, you are invited to preview the Resort and hear about membership. In exchange for your time you will receive the following: 1. One night at the Holiday Inn Express in Seaside. If the Holiday Inn is unavailable, then a one-night stay at either the Comfort Inn or Microtel Suites. 2. $25 breakfast at a local restaurant. 3. $50 donated to Doernbecher in your name. You can visit the Resort either the day you arrive or after your stay in Seaside. To make a reservation, please call Scott Norby at 503-440-2401 or e-mail [email protected]

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Doernbecher Radiothon Breaks Half-Million Dollar Mark Doernbecher Telethon Raises Funds and Awareness This year’s Doernbecher Children’s Miracle Network Telethon was another great success. During the June 4 telethon, which aired on KATU Channel 2, callers pledged tens of thousands of dollars, and Doernbecher acknowledged more than $5.7 million in gifts from local businesses and organizations. We’d like to thank all the Doernbecher patients and families who shared their inspiring stories with us. Thank you to the local businesses who make the event possible: Applebee’s, Costco, Papa John’s Pizza and Trashco, thank you so much. Also, our appreciation goes to all the staff of KATU, including the wonderful Gus McCaslin, Veronica Green, and talented and generous anchors. Most of all though, thank you to all of our loyal contributors who presented checks totaling more than $5.7 million. Doernbecher truly couldn’t provide the best medical care possible without you. For Telethon information, contact Sadie Romano at 503-220-8343 or [email protected].

Listeners of 99.5 The Wolf called in to pledge a record breaking $595,000 during the 6th annual Hunt for a Cure Radiothon. Held in March, the two-day radiothon was broadcast from the lobby of Doernbecher Children’s Hospital. Patients, family members and staff were interviewed, and a large group of volunteers helped take pledges from listeners. A special thank you to our presenting sponsor, Foresters. Thanks also goes to: John L. Scott Real Estate, Applebee’s, Furniture Outlet, Les Schwab and Premier Ford. We’d also like to express our appreciation to everyone at 99.5 The Wolf, volunteers from Foresters and John L. Scott, as well as all the listeners who make the radiothon such a success! If you would like information about how to get involved next year, please contact Ashley Keels at 503-412-6351 or [email protected].

Walk in the Shoes of a Doernbecher Patient To help a kid, walk in their shoes. Once again, Doernbecher is teaming up with Nike to design five new one-of-a-kind pairs of shoes to benefit the hospital. In its third year, this program has already raised more than $250,000 for the hospital. This year we have patients with cystic fibrosis, cancer, neurosurgery and organ transplantation participating. The five shoes will be unveiled at a special event to be held Saturday, September 30th at Wieden + Kennedy, with public sales beginning in November.

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Among Friends 2006-2007 Friends of Doernbecher Friends of Doernbecher is a grassroots, community outreach organization of more than 250 caring volunteers, former patients, patient families and their friends, dedicated to the ongoing support of Doernbecher. Currently, Friends has 11 active chapters and two associate chapters in Oregon and Southwest Washington. At its heart are members who work in their own neighborhoods and communities to raise both friends and funds for the hospital. Through projects such as golf tournaments, handcrafted products, auctions, garage sales, dances, t-shirt sales, cookbooks and bunko nights, Friends volunteers have raised more than $5 million to directly benefit the children treated at Doernbecher. If you would like to learn more about Friends of Doernbecher, are interested in joining a chapter, or even starting your own chapter, please contact Iris Smith at 503-220-8341 or [email protected].

Holiday Cards for Kids The Holiday Cards for Kids program is working hard preparing for the 2006 holiday season. Card designs for 2006 have already been selected from artwork submitted by Doernbecher patients, patient siblings and professional artists. The brochure will be out in August, and cards will be available for purchase by the end of October. For more than a decade, the Holiday Cards for Kids program has been successful at raising funds to benefit the children at Doernbecher. Thank you to the generous support of our sponsors, which allows 100% of the proceeds to go to the hospital. And thanks to our incredible volunteer committee and to all of you who purchase cards, making this program so successful!

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Portland area retailers include: Annie’s Hallmark Chocolates by Bernard Callebaut Coco & Toulouse Go Shopping Dragonfly Greetings and Gifts Heart of the Mountain Made in Oregon Nanny B’s New Seasons Markets Nordstrom Oregon Hot Springs & Spa Our Children’s Store Powell’s City of Books Segals for Children Shafer Vineyard Cellars Sleighbells Christmas Shop and Tree Farm Zupan’s To view artwork, make an order or for more information, please visit our website at www.doernbecherfoundation.org. If you would like to be added to our brochure mailing list, would like to volunteer on the Holiday Card committee or help sponsor the program, please call Iris Smith at 503-220-8341.

Grant Recipients Epigenetic Influences on the Development of Childhood Obesity Daniel Marks, M.D., Ph.D., $23,000 (plus indirects) Studies in primates have shown that infants can have severe fatty liver disease entirely due to the mother being on a high-fat “western” diet. This study will explore the early changes in liver and placental function brought about by the mother’s high-fat diet.

sNRF, A Newly Discovered Protein Worsens Childhood Heart Failure Michael Silberbach, M.D., $23,000 (plus indirects) Dr. Silberbach’s laboratory has discovered a new gene that encodes a protein named sNRF, which appears to cause resistance to a hormone called ANP, in advanced heart disease. ANP resistance contributes to the thickening, scarring and stiffening of the heart wall that is the final, common pathway in all forms of childhood heart disease. This

study will screen up to 10,000 compounds, provided by the NIH, as potential regulators for sNRF. An antisNRF therapy would be the first new medical treatment for childhood heart failure in more than 20 years. A Multi-Disciplinary Approach to Pediatric Asthma Carrie Phillipi, M.D., Ph.D., and Jennifer Hughes, R.N., B.S.N., $3,000 This grant will ensure funds to translate educational materials for families into three languages and provide materials and medicationdelivery devices as part of a new drive to diagnose, document and provide more comprehensive education for patients with asthma at Doernbecher. Children’s Healing Art Project Frank Etxaniz, $1,000 This grant will allow Child Life to provide materials for the Children’s Healing Art Project.

Heart of Doernbecher Auction Next October 21, you’ll be swept away with thoughts of Paris when you attend the Ninth Annual Heart of Doernbecher Auction, themed “Le Rêve....Dream Through the Eyes of a Child.” Presented by Yoshida’s Fine Art Gallery, this stylish and sophisticated affair will be one to remember. If you’d like to be part of this exciting event with a ticket or table, be a sponsor, or would like to donate an auction item, please call Sadie Romano at 503-220-8343 or Ashley Keels at 503-412-6351. Sponsors include Unified Western Grocers, Zimmer Gunsul Frasca Partnership, West Coast Bank, Food 4 Less, Gerding/Edlen Development, Hoffman Construction Company and Reser’s Fine Foods.

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Extra Mile Award Winners – 2006

Austin’s Chapter Myrna Brown Myrna (Mert) Brown is our cheerful, thoughtful member who is constantly watching out for the welfare of Austin’s Chapter. She goes the extra mile by organizing members and volunteers, which is four days, so it is no small task. It takes a special person to be on top of that. She is constantly looking for specials and good deals for equipment needed each year, to save money, space and time. She is a good, willing worker. She is faithful and loves the cause of Friends of Doernbecher’s Austin’s Chapter. She is Austin’s Aunt Myrna – a special person.

Felicity Tea

Claudia Swanson Julie Moe This year Julie served as co-president of the chapter as well as helping on the silent auction committee. She helped us with our sponsors this year and also was able to procure transportation for moving all the

silent auction items and many Easter baskets to the hotel. This was an invaluable service to our chapter as there were hundreds of items to transport! Julie is a “can-do” woman with a positive, optimistic attitude and a great problem solver when we need her. We thank her for coming through this year for our event in so many extra ways. Felicity Jerrie Johnson Jerrie Johnson has been a vital member of our chapter for 10 years and is always available to lend a helping hand wherever necessary, including serving as president and numerous fundraising chairs. Her organizational skills and attention to detail have contributed to the success of our chapter. In addition to her active involvement in Felicity she has served on the Holiday Cards Committee for the past eight years. Her husband Jack is an added bonus and is always a whistle away when we need him.

Felicity Chapter held a very successful tea, fashion show and auction on Saturday, April 29 for 133 attendees at the Tualatin Country Club. The theme for the event was “Tea Thyme and Lavender.” Felicity members modeled fashions from The Silk Horse, which donated 10% of the

day’s sales. The silent auction generated competitive bidding and the table centerpieces, provided by chapter members, were raffled off to many delighted winners. The guest speaker was Sandra Westfall from Doernbecher Children’s Hospital Child Life Department.

Far right: Linda Leake, Sharon Graalum, Kelly Maginnis and Kristine Jurgenson modeling clothing from The Silk Horse.

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Kate McCoy, Friends of Doernbecher president and Lyn Trainer of the Doernbecher Children’s Hospital Foundation.

Heart of Doernbecher Auction Deanna Shake We would like to recognize the hard work and follow-through of Deanna Shake. She served as the co-chair of the procurement committee for the 2005 Heart of Doernbecher Auction and was a driving force in our recordsetting year for auction items. Deanna was always the first to volunteer to make follow-up calls and go pickup items that couldn’t be delivered – especially the wine donations! Her willingness to step in and take on responsibility illustrated her commitment to our efforts and earned her the Extra Mile Award. We are thrilled to have her serving this role again and look forward to another great year of auction procurement. Holiday Cards for Kids Kathy Gantz Kathy Gantz joined the Holiday Cards Committee last fall

and took on the job of sponsorship chair. Kathy enthusiastically took to her job and was instrumental in getting brochures in Starbucks outlets in the Vancouver area. She has continued with her enthusiasm and persistence in finding sponsorship funding for Holiday Cards. Thank you Kathy for going the extra mile, it’s much appreciated. Oswego Friends of Doernbecher Elana Cohn-Rozansky & Stephanie Fifer We have chosen two members for this award not because together they make up a mile but with their synergism they quadruple that mile. Elana CohnRozansky and Stephanie Fifer took our annual Movie Night to a new level this year. They make a great team and the results showed it. Elana with her humor, dedication, organization and energy is a great asset to our group. In addition, Elana is our chapter secretary with a creative way of writing meeting minutes. She continues with her tireless ability to

motivate both our group and members of the community to raise funds for the children at Doernbecher. Stephanie is the silent type whose creativity, organization and dedication skills do not go unnoticed. In addition, she is on the Friends of Doernbecher Board and the Holiday Cards Committee. Taylor’s Chapter Patricia Revell Patricia Revell has been an active member of Taylor’s Chapter since it started. She has made every monthly meeting, every fundraising planning meeting and has even secured a meeting site for several meetings. She has contributed to, participated in and supported every fundraising event of our chapter. Pat has also contributed to and participated in fundraising events for the Claudia Swanson Chapter. Pat put in three times as many hours as the other members of Taylor’s Chapter to make our fundraising activities a success. Her hard work and energy are for the comfort and

care of the children, not for her own accolades. She prefers to work behind the scenes and works tirelessly. For this reason, I nominate Patricia Revell as Taylor’s Chapter Volunteer of the Year and also for the Extra Mile Award. Women for Children Ryanne El Azma Sometimes new members hang back until they’re asked to do something. Others jump in with both feet. Women for Children is lucky that Ryanne El Azma jumped in as vice president, signed on to help with various committees and has turned out to be an integral part of our group. She has helped immensely with the Wine Raffle, procuring much of the wine, helping to sort over 450 bottles of wine and doing whatever was asked of her during the process. She’s willing and able to help and that makes her a shining star for Women for Children. Ryanne, thank you for all you’ve done for the chapter this past year!

Oswego Friends Movie Night Oswego Friends 8th annual MOVIE NIGHT, on March 2, brought together 250 hospital supporters for a memorable evening of fun, food and films. Each year, loyal attendees and curious newcomers meet at the Lake Twin Cinema in Lake Oswego for what has become a much-anticipated Doernbecher tradition. This year the event expanded into the gorgeous and spacious Blinn’s Restaurant next door. With tables overflowing with Blinn’s delicious cuisine and wine tasting provided by Covey Run and Willamette Valley Vineyards, the evening was off to a great start. Bidding was spirited for the great silent auction

offerings while tickets sold quickly for the special drawings. Popcorn and soda flowed freely, as did the guests’ generosity with this year’s event, setting a fundraising record for presenting chapter, Oswego Friends! Community support for MOVIE NIGHT grows each year with every dollar raised at the 2006 event going directly to Doernbecher. The Lake Twin Cinema, Blinn’s Restaurant, Moonstruck Chocolate Cafe and Dr. Jon Robinson of Lake Oswego Dentistry provided top level “Movie Star” sponsorship. New Seasons Market, Realty Trust Group,

Inc. and US Bank worked “behind the scenes” to guarantee funding for invitations, promotional materials and an outdoor tent. “Supporting Cast” sponsors Covey Run Winery, Willamette Valley Vineyards, Kumon Math and Reading Center of Lake Grove and Cinematouch Systems added to the list of businesses committed to Doernbecher. MOVIE NIGHT would not be possible without the many guests, donors and volunteers who join together to make a difference in the lives of Doernbecher children and their families.

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Success Stories Steve Berg was a veteran firefighter and an avid golfer who loved his family, friends and life. He passed away at the age of 45 on January 18, 1998, leaving a legacy of service and commitment to his community. In his honor, his life and memory are celebrated with the Steve Berg Memorial Golf Classic at the Broadmoor Golf Course in Northeast Portland. Over the course of eight annual tournaments, the Bergie Memorial has raised more than $60,000 for Doernbecher. Dave Wallner, who manages the tournament each year, said, “The tournament was started to honor

and remember Steve and we had no intention of raising money, but after the first year we had some money left over and after discussing it with Steve’s widow, we decided to turn the tournament into a fundraiser. Doernbecher was a natural choice. Steve was a very giving guy and he did a lot of things to help a lot of people and that was a good fit with the mission of Doernbecher. Steve had a special bond with children.” The tournament is scheduled for Friday, July 28, 2006. For information call Dave Wallner at 503-617-9598 or visit www.bergiegolf.org.

This past February, students from the Oregon State University College of Pharmacy generously hosted the Apothecary Ball for Doernbecher. The event was held at the historic McMenamins Crystal Ballroom in Portland. The evening included dinner, dancing and a silent auction. Students raised $1,000 for Doernbecher and are looking forward to organizing the event again next year.

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More than 175 people turned out last February to dance the night away at the 3rd annual Dancing for Doernbecher. Thanks to Arthur Murray Studios and event sponsors Tenth Tree Limited, Town Center Bank and US Trust, more than $12,000 was raised for the kids at Doernbecher. We’d also like to thank our in-kind donors Columbia Distributing, The Governor Hotel, Michelle’s Chocolates and A Floral Affair.

Thank you to Haggen Food & Pharmacy employees for enthusiastically selling Doernbecher “Dolly” cut-outs at all Oregon Haggen store locations during the first two weeks of May. In just two short weeks they were able to raise $11,126! The Tannasbourne Haggen was the top selling store raising a total of $3,869 for Doernbecher! In addition to selling cut-outs, stores also organized barbeques, ice cream sales and dress down days, all to help the kids at Doernbecher.

Orville Roth of Salem (third from left) welcomes Doernbecher physicians and DCHF Board members to his annual Oregon Is Home event at the Oregon Garden on May 11. The expansion of the Kenneth W. Ford Northwest Children’s Cancer Center at Doernbecher is one of the beneficiaries Oregon Is Home through the Roth’s Benefit-Education Foundation. L to R: DCHF Board member Ron Brake, Dr. Bruce Boston, Orville Roth, Dr. Colin Roberts, Dr. Dana Braner and DCHF Board member Dirk Davis.

The Portland Police Special Contributions fund has once again generously supported Doernbecher Children’s Hospital. The fund was created as a resource for emergency financial needs of Bureau members and their immediate families as well as a way to support specific needs within the community. Contributing members of the Portland Police Bureau each vote for his/her top choices and then future funds are apportioned on a percentage basis. In the past ten years, over $325,000 has been distributed

L to R: Sargent Bryan Parman, Sadie Romano, Captain Derrick Foxworth

in this way. Doernbecher is thrilled to have been continually selected as a recipient – thank you for this outpouring of support!

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mark your calendar Doernbecher Children’s Hospital Foundation Board of Directors (as of June 30, 2006) August 10, 2006 Dairy Queen Miracle Treat Day Enjoy a Blizzard and the proceeds will go to Doernbecher, your local Children’s Miracle Network Hospital Location: At participating Dairy Queen locations Information: Ashley Keels at 503-412-6351 or [email protected] August 18-19, 2006 Douglas County 10th Annual Gourmet Dinner & Auction and Golf Classic, featuring a “bad pants contest”! Location: Seven Feathers Hotel and Casino Time: 6:00 p.m. Cost: $40.00 per person Information: Paula Harryman or Selina Madson at 541-673-5506 August 19, 2006 Golf Classic Location: Myrtle Creek Golf Course Time: 7:30 a.m. or 1:30 p.m. Cost: $500 per team Information: Gregg Hervey at 541-672-9405 or [email protected] September 11, 2006 Business Union and Legislative Leaders (B.U.L.L.) Dinner & Auction Location: Portland Ballroom, Oregon Convention Center Cost: Individual tickets $100, Table of 10 $1,000 Information: Ed Ellis at 503-644-7670 or [email protected] September 12, 2006 Business Union and Legislative Leaders (B.U.L.L.) Session Charity Golf Tournament Location: Pumpkin Ridge, North Plains Cost: Individuals $350, Foursome $1,400 Information: Ed Ellis at 503-644-7670 or [email protected]

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September 13, 2006 Pampered Chef Party hosted by Friends of Doernbecher, Dru’s Chapter Location: Western Family Foods 6700 SW Sandburg St., Tigard Time: 6:30 p.m. Information: Ellen Mitchell at 503-603-4340 September 16, 2006 Women for Children’s “Hope on the Horizon” Auction and Dinner Location: Jax rooftop patio in downtown Portland Time: 5:00 - 8:00 p.m. Beverages are hosted and an extravagant buffet dinner is served Information: Beth Palmer Wirtz at 503-635-9780 September 14-17, 2006 Oktoberfest Oktoberfest food, dancing and beer garden hosted by Friends of Doernbecher, Austin’s Chapter Location: Mt. Angel Oktoberfest Information: www.oktoberfest.org September 17, 2006 Good-bye to Summer Cruise-in Come and enjoy food, music and prizes as old cars, classics, rods, sports cars and streetcars are displayed Location: Les Schwab Tire Center, 17171 Boones Ferry Rd, Lake Oswego, OR Time: 10:00 a.m. - 2:30 p.m. Information: for car registration call Roy at 503-880-9993 September 30, 2006 Doernbecher Freestyle III Cocktails and Auction The unveiling of five new Nike shoes designed by Doernbecher patients Time: 6:00 - 9:00 p.m. Location: Wieden + Kennedy Tickets: $100 Information: Tamara Thompson at 503-220-8345 or [email protected]

October 21, 2006 Ninth Annual Heart of Doernbecher Auction “Le Rêve…Dream Through the Eyes of a Child” Location: Portland Ballroom, Oregon Convention Center, Portland Time: 5:00 p.m. Silent Auction & Reception 7:00 p.m. Dinner & Live Auction Information: Sadie Romano at 503-220-8343 or [email protected], or Ashley Keels at 503-412-6351 or [email protected]

Board Officers

Board Members

M. Wakefield Mack President

Christina H. Blackwell Ronald G. Brake Dirk T. Davis Michael F. Doherty Allyn C. Ford Paul R. Fry Terry J. Grover Edward J. Hepp, Jr. Larry A. Hoff Judi C. Inglis Cheryl C. Joshi Sean Keys Peter O. Kohler, M.D. Kate McCoy Linda B. Maletis H. Stacy Nicholson, M.D. Sue H. Nicol Arthur K. Olmsted David A. Olmsted Richard W. Olmsted, M.D. Steve Sanders Bryan L. Timm Craig J. Wessel Junki C. Yoshida Candace D. Young, Ph.D.

K. Risa Olsen Immediate Past President Xandra T. McKeown Executive Vice President Kelly J. Johnson Vice President of Finance Carol K. Ehlen Secretary

Emeritus November 1, 2006 Our Children’s Store A party hosted by Friends of Doernbecher, Felicity chapter Information: Kristine Jurgenson at 503-577-0015

November 4, 2006 Shopping Extravaganza at Woodburn Company Stores Time: 10:00 a.m. - 4:00 p.m. Tickets: $20.00 and include food, fashion shows and more Information: Kathi Kopet at 503-939-8558

Mary V. Bishop William K. Blount Alyce R. Cheatham Serge D’Rovencourt Joseph J. Hanna, Jr. Alan C. Jones John L. Trachtenberg Norman A. Workman

Honorary Board Members Myron G. Child Mary E. Huebner Senator Elizabeth K. Johnson James H. Newell (Newman’s Own Representative) Shirley N. Papé, R.D.

2006 Doernbecher Staff Sue Nicol Executive Director Deniz Conger Director of Major Gifts Ashley Keels Special Programs Manager

Iris Smith Special Programs Manager Tamara Thompson Director of Programs & Community Events

Tessa Lewis Special Programs Manager

Lyn Trainer Stewardship Manager

Sadie Romano Special Programs Manager

Kathy Wells Executive Assistant

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FOR THE FRIENDS & FAMILIES OF DOERNBECHER CHILDREN’S HOSPITAL

SUMMER 2006

Doernbecher and Kaiser Mark 10-Year Collaboration It’s been 10 years now since Kaiser Permanente decided to join forces with Doernbecher when its pediatric patients needed to go to the hospital. Since 1996, all Kaiser Foundation Health Plan of the Northwest pediatric hospital services have been provided by Doernbecher. The idea was to ensure Kaiser Permanente patients had access to the full spectrum of inpatient and outpatient care at one central location. The partnership was established when Kaiser Permanente decided to consolidate its hospital-based pediatric services at Bess Kaiser Hospital and Kaiser Sunnyside Hospital into one, high-quality pediatric infrastructure. “Doernbecher was the best candidate for a community partner given its planned new

facility and wide array of services,” explained Dr. David Tilford, then assistant regional medical director for Kaiser Permanente. Plus, Doernbecher’s new building was about to open, so the arrangement helped increase pediatric referrals to Doernbecher and utilize the new facility. Today, most Kaiser Permanente hospitalbased pediatric specialty medical services are located at Doernbecher. And there’s another benefit to the collaboration. A Kaiser Permanente pediatrician is “in house” at Doernbecher 24 hours a day, working with pediatric residents in acute and emergency situations. As a result, Doernbecher physicians-intraining gain valuable experience working with community physicians.

“There is no greater tragedy than a child in pain,” said Kaiser Permanente President Cynthia Finer. “For a decade now, Kaiser Permanente has worked in collaboration with Doernbecher and OHSU to provide the best patient care to the smallest, most fragile of our members. We look forward to improving the lives of these patients and their parents for years to come.”

NEWS

Non-Profit Org. US Postage PAID Portland, OR Permit No. 3916 1121 SW Salmon, Suite 201 Portland, OR 97205-2021 503-294-7101 503-294-7058 fax www.doernbecherfoundation.org

DOERNBECHER’S NEW WESTSIDE PEDIATRIC BRANCH OHSU is an equal opportunity, affirmative action institution. 0606(50)