Working to improve the quality of life for disabled children, young people and their families in Derby City and Southern Derbyshire

February 2018 Bulletin The Department of Education has issued a policy update on 23 January 2018 on ensuring families have access to information, advice and support about SEND services and provision. ·

“We expect existing Independent Supporter providers to continue supporting parents and young people until new arrangements are developed in each local area. We expect existing Independent Supporter sub-contracts to novate to the new contractor in the first instance, pending the development of new arrangements in each local area.”

Good News, we will be able to continue to support families through the Education, Health and Care process, including attending Annual reviews until March 2019. Our Independent Support Team can be accessed through our Single Point of Access on 01332 785658. The Family Support team would appreciate your ideas on speakers, activities, or information you might like to see at the support groups. We very much value and appreciate your input and support. We facilitate the groups on your behalf so please do get in touch with any suggestions on 01332 785658 or email them

Family Fun this February Half term We have two fabulous session for you this half term: Tuesday 20th from 10am-12noon, At Broadway Baptist Church 166 Broadway, Derby. We have Cookstars running a lovely cookery session where we will make some tasty sausage pie (vegetarian option available) and biscuit treats, before we share them at the end. Friday 23rd from 1pm-1:45pm & 2pm-2:45pm we have sensory swimming session at Victoria swimming pool, Manners Road, Ilkeston . Please specify the time you would like when booking. Session are £4.50 each per child/young person, Adults are free. Booking is essential call 01332 785658

What’s happening in Umbrella Childrens Services Happy New Year from all of the children at Umbrella! 2017 was a year of great trips and lots of fun with friends! The children have enjoyed some fun days out as well as some brilliant themed days at Umbrella House. We welcomed 2018 in with a New Year’s party and even had a special visit from Mrs Sparkle. Mrs Sparkle showed the children some amazing magic tricks, sang songs, danced, wiggled and even painted some of the children’s faces! The children had so much fun and there were smiles galore! All of the children, staff and volunteers are looking forward to some more exciting trips in 2018.

Meet the Children We would like you to meet the wonderful children that access Umbrella services. Over future months, we will feature some of our children or young people. This month, meet Voorhees… My name is: Voorhees I am: 9 years old My support worker is: Danielle My favourite colour is: Red My favourite food is: Chocolate If I had a superpower, it would be: “To be a big superhero!” When I am out with my support worker, I enjoy: Going to Umbrella House My favourite thing about Umbrella is: Going to Umbrella House with Danielle and doing jigsaw puzzles.

Check out our website www.umbrella.uk.net

What’s happening in Umbrella Young Adult Services INDE The young adults have had a wonderful Christmas here at Umbrella! The groups have enjoyed a variety of festive days out as well as some Christmassy activities at Umbrella House. The INDE group took part in a secret Christmas mission to make presents for their families. They made beautiful wreaths to hang up at home, miniature iced Christmas cakes and a Christmas plant pot with a cyclamen in. After all this hard work, the group enjoyed a festive buffet and even pulled a cracker or two before finishing off the day relaxing and watching ‘Elf’.

Come and have your say……. Umbrella are undertaking a research study to review our Young Adult Services. This is a wonderful opportunity to evaluate our current services and to take a look at future development of services to ensure we give young adults support they require. Even if you’re not currently accessing our services please do come along and let us know your aspirations for the future! If you are a parent or carer with a young person who is aged 16 years and over we would like to invite you along to one of our consultation events. We are holding consultation events on the following dates and times: ·

Saturday 10th February 2pm-3.30pm. 41 Brentford Drive, Mackworth. Wednesday 21st February 6.30pm-8pm. Umbrella House, Mackworth.

We will be providing light refreshments at both events. These events are for parents and carers only and must be booked in advance. If you would like to attend one of the above dates can you please contact Rhian Barlow on 01332 521225 or [email protected]. Alternatively if you are not able to attend the events please drop me a line to let me know if you would be happy to complete a short questionnaire.

Check out our website www.umbrella.uk.net

What’s happening in Play and Leisure Umbrella Family Christmas Party It was lovely seeing all the families enjoying the Umbrella Christmas Party. The Tombola's were a great success and raised over £300 towards the cost of the party. A Big Thank You to all that brought a ticket; Thank you to all the Staff and Management Committee who volunteered at the Party.

Introducing the

The Umbrella Raindrops is Umbrella's New Choir which is open to Disabled Children & Adults up to the age of 30 years. Parent-Carers and Siblings are also welcome to join the choir. We do have places available and booking is required. The Choir is held at Mackworth Community Centre on Saturday Mornings From 11am - 12pm and costs £5.00 per person We do ask that parent / carers stay with children under the age of 10 years If you would like to book a place or would like more information please contact Nicola Green - 01332 521229 or [email protected]

Fantastic News! Here are the Dates For the 2018 Staunton Harold Sailability Sessions Important Changes: Booking and Payment is now online at the Staunton Harold Sailbility Trust website www.shst.org.uk Sessions are a minimum of £5.00 per person. Sessions must be booked and paid in advance at SHST mydonate please contact [email protected] if you have any questions Session Dates st

Sunday 1 April 9am till 12:30 Easter Egg Hunt / Sunday 22nd April 9am till 12:30/ Friday 25th May 6pm till dusk followed by a barbecue / Sunday 3rd June 9am till 12:30 / Friday 8th June 6pm till dusk plus social / Saturday 14th July 9am till 12:30 / Sunday 5th August 9am till 12:30 / Saturday 1st September 9am till 12:30 / Friday 28th September 6pm till dusk plus social/ Saturday 13th October 9am till 12:30

Play & Leisure Service have places available at the following Clubs,

Tuesday, Thursday, Friday Club and The Siblings Group! For more information on any of these clubs please contact Nicola Green

What's happening in Information, Advice and Family Support Workshops for parents and carers We have three workshops for parents and carers coming up. These are free for Umbrella members to attend, but are limited so you must book your place; you need to be an Umbrella Member, but if you aren’t, you can join for FREE by calling 01332 785658 ■

27th February 10am- 12:30pm - Managing Behaviours that Challenge with Tracey Green. Working for over twenty years within the Health and Social Care Sector, Tracey Green has gained valuable experience of working with individuals of all ages that present with various diagnoses and the addition of complex needs.

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22nd March 10am to 12 noon - Puberty and relationships with Tracey Green

12th April 10am - 12noon - Autism in Girls Come along and get information, meet the family support team and have a chat with other parents, please book quickly as our first behaviours that challenge workshop booked up in just two hours. ■

UMBRELLA PARENT/CARERS SUPPORT GROUPS ** NEW VENUE** DERBY CITY Broadway Baptist Church, 166 Broadway , Derby DE21 1BP Time: 10am to 12 noon. 7th February Wills & Trusts. Future dates: 7th March, Health Action Training. DERBYCITY 2 at "Haven House Carer’s Retreat", 31 Charnwood Street, Derby DE1 2GU. Time 1pm to 3pm. 7th February Money sorted, D2N2 project. Future dates: 7th March Health Action Training. EREWASH GROUP The Adult Education Centre, 173 Derby Road, Long Eaton NG10 4LL 28th February Wills and Trusts. Future dates: 21st March Health Action Training & DCC Monitoring. SOUTH DERBYSHIRE GROUP Hilton Village Hall, Peacroft Lane, Hilton DE65 5GH Time 11 am to 1pm. 14th February Money Sorted D2N2 project. Future dates: 14th March. Wills & Trusts & DCC Monitoring. AMBER VALLEY GROUP Strutts Building, Derby Road, Belper DE56 1UU. Time 10am to 12 noon. 8th February CAMHS family therapy, G Robinson. Future dates: 8th March Wills and Trusts. MALE CARERS GROUP The Farm House Pub, Mackworth, 6pm to 7:30pm 5th February Wills and Trusts. Future dates: 5th March Open meeting. 28th March Family Fun at Mount Cook Mount Cook Adventure centre, Near the National Stone Centre, Porter Lane, Middleton-byWirksworth, Matlock, Derbyshire, DE4 4LS 10am -1pm . Join us for Bush craft and Archery sessions at Mount Cook this Easter holiday. After you have finished enjoy a hot lunch with us before heading home. £10.00 per person including lunch taking part in activities. This event is being subsidised by Umbrella Fundraising Places must be booked by February 28th

What's happening in Fundraising & Volunteering Fundraising We have once again had some wonderful support from the community and though we wish we could share them all, we only have room for a few. Thank you to everyone who supports Umbrella.

Volunteer of the year award 2017 Umbrella is very lucky to be supported by so many wonderful and committed volunteers. Each year we like to recognise the achievements of all our fantastic volunteers. During 2017 we have had some invaluable support with the children and young adults teams, administration support and many fantastic companies fundraising for us.

TESCOs Bags of Help Scheme We have been successfully nominated for the TESCOs bags of Help scheme, but we need your help.

In order to receive the money requested for the revamp of our Sensory Room at Umbrella House we need you to Vote for us by 28th This year's nominees included; February in your local TESCO Nigel " He offers invaluable support to staff store, including Allestree, and will always give his time to those who Chaddesden, Hilton Stenson Road, need it" Chellaston and Alvaston Express stores, Zac, "The front and back gardens both look Mickleover, lovely, clean and tidy" Katie "Katie has a lovely calm attitude which is Heanor and Derby City Centre loved by the Inde group" Metro stores, so pop along and Laura. "She interacts well with the children vote Umbrella to and is very patient" help us revamp It is always a very difficult decision to make as the sensory room. all Umbrella’s volunteers are fantastic, 80’s Family Quiz therefore an independent judge choose the On Saturday 10th February 2017 6:30pm – 8:30pm. Coop winner.....Katie! Bowls Club, Littleover, Derby £5.00 per ticket, no more than 5 Congratulations to people per team. all our nominees Bottle of champagne for winning team and our winner! plus many other prizes to be won on the night. Huge thank you to Gemma Dawber and all at David Lloyd Derby for their kind donation of selection boxes at Christmas.

Money raised will go to provide an exciting summer day out for the children who access Umbrella. There is a bar serving drinks on the night and there will be a raffle too. Fancy dress is welcome Contact Danielle for tickets [email protected]

Upcoming events, in and around Derbyshire Please contact organisations directly for more information. 5th February, Learning Disability Basketball. Every Monday evening from 6pm-7pm at West Park School, Spondon. £2.00 per session (first session free). Contact Jacob Meaton on 07786144414 or email [email protected] for more details 11th February, City of Derby Swimming Club and Swim England Para-Swimming ‘Taster’ Session for Disabled Swimmers, Queen street leisure centre, Derby. 9am11am (registration 8:40am) To register or enquire about criteria email: [email protected] 14th February, 1.30pm—3.30pm Free Constipation Awareness workshops for carers paid or unpaid caring for someone with learning disability. Room 7, The Centre for Research & Development, Ashbourne Centre, Kingsway Hospital, Derby, DE22 3LZ call 01332 268455 or email [email protected] 20th & 22nd February Various times Sensory Play sessions with Children's Choice Therapy Service. Cost £10 per hour session. For more information or to book email; [email protected] 20th February Umbrella Family Fun Cook stars Session 10am - 12noon, See page 1 for details 21st February Living with a Long Term Health Condition free 6 week workshops, 1.30pm - 4.00pm at CAB Office Church Gresley Swadlincote. Delivered one day a week for 2.5 hours. Aims to support people with a long- term health or medical condition deal with pain, fatigue, stress and depression, meet with others and share experiences. Topics covered include healthy eating, relaxation, pacing yourself, and communicating with friends, family and health professionals. The course is also available and has proved to be beneficial for carers of someone with a long term condition. For further information contact Karen on 01283 210107 or email [email protected] 23rd February Umbrella Sensory Swim 1pm - 3pm see page 1 for details 27th February Lee Green dedicated SEN soft play session for children. A fun and inclusive activity involving a ball pool, wavy slides and sensory area. Session will run from 10am to 12pm 27th February Lee Green dedicated SEN soft play session for Adults. A fun and inclusive activity involving a ball pool, wavy slides and sensory area. Session will run from 1pm to 3pm 13th March Living with a Long Term Health Condition 6 week workshops, 1.30pm 4.00pm at Ilkeston Fire Station Derby Road Ilkeston. See 21st February for details . 15th March KidztoAdults Middle show, 09:30am - 4:30pm Ericsson Exhibition Hall Ricoh Arena, Coventry, CV6 6AQ. FREE exhibitions dedicated to children and young adults up to 25 years with disabilities and additional needs, their families, carers and the professionals who support them. Free workshops, Children welcome see website for more details http://www.kidzexhibitions.co.uk/kidz-middle/ 24th March Casson and Friends: Night at the Theatre, relaxed performance at 11am, DEDA. Enter the playful world of Casson & Friends and discover the magic of theatre. Combining a mixture of dance theatre, audio-description and imaginative storytelling, an accessible performance for everyone. 29th March Umbrella Mount Cook activity Session see page 5 for details

Other information Access cards The Access Card is a card like no other. They translate your disability / impairment into symbols which highlight the barriers you face and the reasonable adjustments you might need. This then informs providers quickly and discreetly about the support you need and may gain you access to things like concessionary ticket prices and complex reasonable adjustments without having to go into loads of personal detail. Its all based on your rights under the Equality Act and providers responsibilities. All for just £15 for 3 years! Apply online at http://www.accesscard.org.uk/

Carers and Council Tax— check your eligibility Some carers are ‘disregarded’ when calculating council tax and therefore don't have to pay council tax because they are caring for someone. This is different to claiming council or housing benefits. Being ’disregarded’ applies if: ■ Your provide at least 35 hours of care per week ■ You live in the same property as the person you care for ■ You are not the spouse, partner, or for parents have a child under 18 as the person you carer for ■ The person you care for receives the daily living section of Personal Independent Payments or Attendance Allowance You don't have to claim Carers Allowance to be eligible, nor are savings or wages taken into account To apply call 01332 642428 or call Carers UK for more information on 0808 808 7777 Umbrella Information Office The Ronnie MacKeith Child Development Centre Royal Derby Hospital Uttoxeter Road Derby DE22 3NE

Umbrella Umbrella House 64 Birdcage Walk Mackworth Derby DE22 4LD

Website: www.umbrella.uk.net Email: [email protected] Telephone: 01332 785658

Please note that all the views expressed in the Umbrella Bulletin are not necessarily Umbrella’s views