Family Resource Packet

THE  EAR  CENTER  OF  GREENSBORO,  P.A.   SU  W   OOI  TEOH,  M.D.,  P.A.     Family  Resource  Packet   Information  to  guide  you  and  your  chil...
Author: Shannon Bishop
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THE  EAR  CENTER  OF  GREENSBORO,  P.A.   SU  W   OOI  TEOH,  M.D.,  P.A.    

Family  Resource  Packet   Information  to  guide  you  and  your  child  through   their  hearing  journey    

 

1 1 2 6   N .   C H U R C H   S T R E E T ,   S U I T E   2 0 1   G R E E N S B O R O ,   N C   2 7 4 0 1  

  Table  of  Contents     Introduction .................................................................................................................................................3   Early  Intervention  for  Ages  0-­‐3....................................................................................................................4   Why  Early  Intervention  is  Important ........................................................................................................4   Intervention  Services  Available ................................................................................................................5   Explanation  of  Hearing  loss .........................................................................................................................7   Type  and  Severity .....................................................................................................................................7   Causes  of  Hearing  Loss .............................................................................................................................7   Effects  of  Hearing  Loss..............................................................................................................................8   Familiar  Sounds  Audiogram......................................................................................................................9   Hearing  Assistance  Options   ......................................................................................................................10   Hearing  Aids............................................................................................................................................10   Cochlear  Implants ...................................................................................................................................11   FM  Systems.............................................................................................................................................12   Assistive  Listening  Devices......................................................................................................................12          Funding  Available  for  Services  and  Assistance........................................................................................13   Other  Services  Available   ...........................................................................................................................14   Professional  Help/Healthcare  Team .......................................................................................................14   Local  Resources  for  Common  Referrals ..................................................................................................15   Family  Support  Groups ...........................................................................................................................15   Website  References................................................................................................................................15   Communication  Resources .....................................................................................................................16   State  Board  of  Education ........................................................................................................................16   Conclusion ..................................................................................................................................................18   Notes   .........................................................................................................................................................19   References  .................................................................................................................................................20  

   

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Introduction     Your  child  has  just  been  diagnosed  with  a  hearing  loss.    This  knowledge  can  be  overwhelming.    This   packet  contains  helpful  information  to  guide  you  in  future  decisions  that  will  assist  your  child  and  your   family  during  this  process.    Information  regarding  your  child’s  specific  type  of  hearing  loss,  the  effect  this   can  have  on  speech  development,  early  intervention,  services  available  and  references  for  you  to  utilize,   now  and  in  the  future,  are  all  contained  within  this  packet.    If  you  or  your  family  has  any  questions   regarding  the  information  presented  in  this  packet,  please  contact  your  audiologist  at  The  Ear  Center  of   Greensboro,  P.A.    Your  audiologist  has  knowledge  and  skills  in  pediatric  audiology  and  is  here  to  help   and  assist  you  in  this  journey.    Lastly,  please  note  on  page  19  which  is  a  place  for  you  to  take  notes   regarding  the  information  that  you’ll  read  and  additional  information  that  is  provided  by  your  child’s   healthcare  team.  

   

   

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Early  Identification  and  Intervention  for  Ages  0-­3  

 

EARLY  IDENTIFICATION:    Early identification of children is critical. As you will learn in this packet, hearing plays a critical role in the acquisition of speech and language development as well as in the achievement of other developmental milestones. Research has shown that the enactment of universal hearing screenings has helped to catch/identify more children that would otherwise have been missed. States have now enacted an Early Hearing Detection and Intervention (EHDI) program to assist in establishing early identification testing so that infants with hearing loss are identified. EARLY INTERVENTION: Early intervention allows children to receive follow up screenings and services as needed. The goal of early intervention is to assist in preventing long term problems and to ensure that the children identified are receiving follow up care and the assistance that they may need. Beginning habilitation as soon as a hearing loss is confirmed ensures that your child will have the opportunity to be exposed to more abundant language which will enable he/she to achieve maximal language skills. Studies have shown that the positive effects of early identification and early intervention are seen in those children who are identified early. Their expressive and receptive language scores are significantly better than those that are identified later in life. Helping your child function at, or close to that of his/her peers is crucial for both educational and personal development. Thanks to federal funding states across the US, including North Carolina, are able to participate in early intervention services for infants to ensure that they are identified with hearing loss early, receive amplification (hearing aid(s), ALD’s, FM’s, etc.) and are, therefore, able to achieve success in speech and language development.   When your child is identified with hearing loss at age 0-3, he/she will have what is called an Individualized Family Service Plan (IFSP). Traditionally, this begins after a child has failed their newborn hearing screening. The Greensboro division of EHDI will begin this for you. If your child is identified later in life, as soon as they are diagnosed with a hearing loss by a professional, they will direct you to human services to begin the IFSP. This is similar to an Individualized Education Plan (IEP) that your child may receive once they begin school. (Refer to pg. 15, regarding further information on educational assistance and the rules and laws governing those.) Your child’s IFSP is a legal binding document that will stipulate the goals and objectives for your child along with who will work on these goals and objectives in order to close the gap in learning. Not only will this document spell out who is assisting your child but it will advise on how often the professionals will assist him/her and what the expected success date to achieve the goals that have been established. Every year your child’s IFSP has to be re-evaluated to determine if your child will need to continue current services, if changes to services need to be made, or even if your child is ready to be exited from the program. Once your child is ready to begin school, they may either have an IEP or a 504 plan as needed.

   

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INTERVENTION SERVICES AVAILABLE IN NORTH CAROLINA In the state of North Carolina, there are several services available. Below is a listing of these services and contact information. North Carolina Early Hearing Detection and Intervention (EHDI) Program 919-707-5600 www.ncnewbornhearing.org  

This  organization  is  responsible  for  implementing  newborn  hearing  screenings,  ensuring  that  these   children  who  fail  these  screenings  receive  follow  up  services  and  are  provided  with  intervention  as   needed.   North Carolina Early Intervention Program for Children Who are Deaf or Hard of Hearing, Office of Education Services Eastern 252-237-2450; Central 336-824-3659; Western 828-432-5352 www.ncoes.net/preschools.shtml  

The  Early  Intervention  Program  for  Children  who  are  Deaf  or  Hard  of  Hearing  provides  services  to   children  who  are  deaf,  hard  of  hearing,  or  deaf/blind,  ages  birth  to  three,  and  their  families.   Concentrating  on  language  and  communication  skill  development,  itinerant  professionals  provide   family-­‐centered  intervention  in  home  and  daycare  settings.  At  age  three,  the  program  works  to  establish   a  smooth  transition  to  the  local  education  agency.   BEGINNINGS (NC Chapter) for Parents of Children Who are Deaf or Hard of Hearing 919-850-2746 www.ncbegin.org  

BEGINNINGS  of  North  Carolina  is  a  non-­‐profit  agency  providing  an  impartial  approach  to  meeting  the   diverse  needs  of  families  with  children  who  are  deaf  or  hard  of  hearing  and  the  professionals  who  serve   them.     North Carolina Early Intervention Services www.ncei.org/ei/itp.html  

The  Infant-­‐Toddler  Program  is  a  variety  of  agencies  working  together  to  provide  early  intervention   services  for  children  ages  birth  to  three  who  have  special  needs  and  their  families.  Early  intervention   services  help  young  children  grow  and  develop  and  support  their  families  in  caring  for  them.     Project Ear 252-744-6128 www.ecu.edu/cs-dhs/csd/projectear.cfm  

Project  E.A.R‘s  mission  is  to  enable  children  with  cochlear  implants  to  maximize  their  listening  skills  and   spoken  and  written  language  through  training  and  coordination  among  service  providers  in  each  child’s   community. Centers for Acquisition of Spoken language through Listening Enrichment (CASTLE)

   

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Durham 919-419-1428; Wilmington 910-686-4304 http://www.med.unc.edu/earandhearing/pedsprogs/castle

The  mission  of  the  Center  for  Acquisition  of  Spoken  language  Through  Listening  Enrichment  (CASTLE)  is   two-­‐fold.  CASTLE  is  dedicated  to  providing  quality  auditory-­‐oral  early  intervention  and  preschool   services  to  children  who  are  deaf  or  hard  of  hearing  and  their  families.  CASTLE  teaches,  encourages,   empowers,  and  supports  the  parents  as  the  primary  teachers  of  their  young  children,  in  order  to   promote  healthy  parent/caregiver  bonding  and  to  maximize  the  amount  of  time  a  child  spends  in  a   language-­‐rich  environment.   Let Them Hear Foundation Advocacy Program 877-432-7435 www.deafspecialeducation.com  

The  Let  Them  Hear  Foundation  Advocacy  Program  received  a  grant  to  create  an  internet-­‐based  resource   center  for  parents  and  professionals  working  with  children  with  disabilities  to  provide  a  fundamental   understanding  of  the  key  concepts  of  the  Individuals  with  Disabilities  Education  Act  2004  (IDEA  2004).       Oral Deaf Education Programs 877-672-5332 www.oraldeafed.org  

Oral  deaf  education  enables  children  who  are  deaf  and  hard-­‐of-­‐hearing  to  listen  and  talk.   Learning More about Communication Options www.raisingdeafkids.org

Here  you'll  find  lots  of  information  on  raising  a  deaf  or  hard-­‐of-­‐hearing  child.

 

   

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  Explanation  of  Hearing  Loss   TYPES  OF  HEARING  LOSS   There  are  three  types  of  hearing  loss  that  your  child  may  have.    As  more  testing  and  information  are   obtained  from  your  child,  the  specific  type  of  hearing  loss  will  be  determined.    Please  reference  the   diagnosis  that  your  child  has  been  given  below.    Consult  your  audiologist  if  you  are  unsure  of  the  exact   diagnosis.   Conductive  Hearing  Loss:    This  type  of  hearing  loss  occurs  from  any  sort  of  interference  with  the   external  auditory  canal  as  well  as  any  malfunction  of  the  tympanic  membrane  (eardrum)  or  middle  ear   bones  or  within  the  middle  ear  space.    Ear  infections  are  also  a  common  cause  of  conductive  hearing   loss  and  therefore  are  the  most  common  type  of  hearing  loss  found  in  children.    This  can  also  occur  as  a   result  of  craniofacial  malformations.    Some  causes  of  conductive  hearing  loss  can  resolve  spontaneously   (i.e.  ear  infections)  but  some  will  require  medical  or  surgical  treatment.    The  sensory  and  nerve   functions  of  hearing  typically  function  within  normal  limits.    Otolaryngologists  (ENT  doctors)  will  assist  in   locating  the  cause  of  this  type  of  hearing  loss.   Sensorineural  Hearing  Loss:    This  type  of  hearing  loss  can  be  caused  by  damage  to  the  sensory  organ   (cochlea)  or  hair  cells  located  within  the  cochlea  or  the  dysfunction  of  the  auditory  nerve.    Testing  will   assist  the  audiologist  in  differentiating  clearly  between  sensory  or  neural  hearing  impairment.    This  type   of  hearing  loss  is  nearly  always  permanent  and  irreversible.    This  type  of  hearing  loss  may  be  due  to  a   wide  variety  of  causes  such  as  bacterial  and  viral  infections,  familial  inheritance,  diseases  that  can  affect   the  otic  capsule,  auditory  nerve  or  membranous  labyrinths  and  possibly  metabolic  disorders.       Mixed  Hearing  Loss:    This  type  of  hearing  loss  is  a  combination  of  both  conductive  and  sensorineural   hearing  loss.    This  type  of  hearing  loss  will  improve  only  as  much  as  the  conductive  component  is  able  to   be  resolved.       SEVERITY  OF  HEARING  LOSS   The  severity  of  a  hearing  loss  is  an  important  consideration.    You  will  hear  your  audiologist  or   otolaryngologist  (ENT)  refer  to  this  as  either  the  severity  or  degree  of  hearing  loss  present.    The  degree   of  hearing  loss  is  defined  as  mild  (15-­‐30  dBHL),  moderate  (31-­‐50  dBHL),  moderately-­‐severe  (50-­‐60   dBHL),  severe  (61-­‐90  dBHL),  or  profound  (greater  than  91  dBHL)  and  anacusis  (total  hearing  loss).      In   addition  to  the  severity  of  the  hearing  loss,  knowing  which  ear  is  affected  is  also  important.    Terms  such   as  unilateral  meaning  one  ear  or  bilateral  meaning  two  ears  will  be  used  to  identify  the  ear(s)  affected.     A  complete  description  of  your  child’s  hearing  loss  will  be  provided  to  you  by  his/her  audiologist.     CAUSES  OF  HEARING  LOSS   There  are  several  causes  of  hearing  loss  as  mentioned  above.    It  is  very  important  that  you  work  with   specialists  such  as  otolaryngologists,  pediatricians  and/or  geneticists  to  determine  the  cause  of  your  

   

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child’s  hearing  loss.    There  are  several  types  of  hearing  loss  that  can  be  progressive  so  this  knowledge   can  help  you  and  your  audiologist  plan  for  your  child’s  future.      

   

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EFFECTS  OF  HEARING  LOSS:    Hearing  loss  affects  30-­‐50  infants  out  of  every  1000  births  in  the  United   States.    The  number  one  effect  that  hearing  loss  has  on  children  is  that  it  can  cause  delays  in  speech  and   language  development.    When  a  child  is  born,  the  human  auditory  system  is  in  place  but  not  fully   developed.    The  auditory  system  needs  input  and  experience  with  sound  to  fully  grow  and  develop  its   ability  to  listen  to  and  understand  sounds  and  speech.  The  critical  language  learning  time  is  from  birth  to   age  2  and  if  a  child  with  hearing  loss  isn’t  identified  until  later  in  life,  their  speech  and  language   development  has  already  fallen  behind.    The  English  language  consists  of  vowels  and  consonants  and  the   nature  of  speech  sounds  lies  in  the  energy  residing  in  voiced  vowels  and  consonants.    As  infants,   toddlers  and  young  children  are  learning  to  produce  speech,  they  need  to  hear  all  the  sounds  clearly  in   order  to  verbally  produce  them.    Simply  stated,  the  effect  of  hearing  impairment  is  that  there  is  a  loss  of   audibility  for  some  or  all  of  the  important  acoustic  cues.    You  may  notice  this  with  an  older  family   member  who  has  hearing  loss  and  complains  that  they  are  unable  to  understand  speech  and  will   continuously  say  “what”  or  “huh”.    Speaking  louder  makes  the  conversations  audible  but  it  does  not   necessarily  provide  clarity  because  the  hearing  loss  is  distorting  the  acoustic  signal  and  interferes  with   the  brain’s  ability  to  process  what  is  heard.    Page  9  of  this  packet  will  assist  you  in  understanding  the   sounds  that  your  child  may  be  missing.    This  is  a  “Familiar  Sounds  Audiogram”.    Ask  your  audiologist  to   plot  out  your  child’s  hearing  evaluation  results  and  review  this  together.    The  better  understanding  you   have  of  your  child’s  hearing  status,  the  better  able  you  will  be  to  assist  him/her  in  determining  the   appropriate  forms  of  amplification  (if  applicable)  or  other  resources  in  order  to  enhance  their  speech   development.   The  effects  upon  speech  will  depend  on  the  severity,  configuration,  duration  and  stability  along  with  the   age  of  the  child  upon  onset.    A  child  who  acquires  a  hearing  loss  after  acquiring  language  will  have  less   severe  linguistic  deficits  than  a  child  whose  hearing  loss  was  present  at  birth.    Be  advised  that  pediatric   hearing  examinations  are  an  ongoing  process.    As  your  child  grows  older,  more  accurate  hearing  results   can  be  obtained  and  their  hearing  will  need  to  be  monitored  to  account  for  stability  of  hearing  and  to   look  for  any  changes  in  hearing.  

   

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  Hearing  Assistance  Options     HEARING  AIDS:    For  the  estimated  28  million  children  and  adults  in  the  United  States  who  have  a  hearing   loss,  selecting  the  most  suitable  hearing  aid(s)  can  be  the  critical  factor  to  enjoying  life  to  its  fullest.  

  Hearing  aids  differ  in  design,  size,  range  of  amplification,  ease  of  handling,  volume  control,  and   availability  of  special  features.    They  do  have  similar  components  that  include:   • a  microphone  to  pick  up  sound;     • amplifier  circuitry  to  make  the  sound  louder;     • a  receiver  (miniature  loudspeaker)  to  deliver  the  amplified  sound  into  the  ear;     • batteries  to  power  the  electronic  parts.     Styles  of  Hearing  Aids   Custom  Hearing  Aids   (Typically  more  appropriate  for  teens  and  adults.)  

ITE  (In-­‐the-­‐Ear)  

ITC  (In-­‐the-­‐Canal)  

CIC  (Completely-­‐in-­‐the-­‐canal)  

Behind-­‐the-­‐Ear  

(Most  appropriate  for  children)  

Advantages  for  fitting  BTE  hearing  aids  on  children:   • Easy  for  parents  and  teachers  to  handle.   • Earmold(s)  can  be  removed  for  cleaning.   • Earmold(s)  can  be  replaced  as  child  grows  (and  ear  grows!)       • Less  expensive  to  replace.   • More  sturdy.   • Made  with  telecoil  (for  use  with  sound  field  systems  and  FM  systems).   • Made  with  Direct  Audio  Input,  to  link  to  other  assistive  listening  devices.   • Can  be  fit  to  a  wide  variety  of  hearing  losses.  

   

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Less  feedback  in  severe  loss  fits.    

Most  hearing  aid  circuitry  dispensed  today  is  digital  technology  which  will  allow  for  more  flexibility  in   programming  your  child’s  hearing  aid.    Your  audiologist  will  work  with  you  and  your  child  to  determine   which  style,  computer  circuit  and  manufacturer  is  most  appropriate  for  your  child  and  his/her  hearing   needs.   COCHLEAR  IMPLANTS:    A  cochlear  implant  is  another  form  of  hearing  assistance  that  is  designed  for   children  who  have  a  severe  to  profound  sensorineural  hearing  loss.    A  cochlear  implant  bypasses  the   damaged  or  missing  sensory  structures  of  the  inner  ear  to  stimulate  the  auditory  nerve  directly  with  an   electrical  equivalent  of  the  sound  signal  

(4)   Hearing  with  a  Cochlear  Implant   •

Does  not  replicate  ‘normal’  acoustic  hearing  



Provides  detection  but  does  not  guarantee    comprehension  



Sounds  high  in  pitch  compared  to  what  a  recipient  ‘remembers’  (progressive  loss)  



Improves  with  consistent  device  use  



Often  requires  aural  rehabilitation  to  enhance  success  of  the  device  

       

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  FM  SYSTEMS:    Sometimes  hearing  aids  and  cochlear  implants  are  not  enough  to  assist  children  in   understanding  speech,  especially  in  a  more  challenging  environment  such  as  a  noisy  classroom.    An  FM   system  is  a  device  that  can  couple  to  the  hearing  aid,  cochlear  implant  or  can  be  used  without  (for  those   with  normal  to  near  normal  hearing)  to  assist  children  in  these  challenging  environments.    FM   technology  refers  to  a  type  of  wireless  system  that  helps  people  better  understand  speech  in  noisy   situations  as  well  as  overcoming  distance.    FM  systems  commonly  work  together  with  a  user’s  hearing   aids,  although  systems  are  also  available  for  those  with  otherwise  normal  hearing  (such  as  people  who   suffer  from  APD,  ADHD  etc.).  (2)    The  FM  systems  can  transmit  through  objects  and  can  operate  as   effectively  in  sunlight  as  they  do  indoors  unlike  infrared  systems.    FM  systems  do  not  require  any   installation.    Visit  www.phonak.com  and  watch  the  video  on  FM  technology.    Also  visit   www.eSchoolDesk.com  which  is  an  FM  support  tool  aimed  at  teachers  and  hearing  professionals.   eSchoolDesk  includes  a  clear  cut  explanation  of  FM  technology  and  its  benefits,  along  with  how-­‐to   movie  clips,  a  product  configuration  and  further  reading  links.  

   

               

                         

                         

 

  ASSISTIVE  LISTENING  DEVICES:    Hearing  assistive  devices  (also  known  as  assistive  listening  devices  or   ALD’s)  are  available  for  use  alone  or  in  combination  with  many  hearing  aids.  These  devices  provide  extra   help  in  specific  listening  situations,  such  as  the  telephone,  noisy  backgrounds,  or  small  or  large  group   listening  settings  (e.g.,  restaurants,  concert  halls,  movie  theaters).    Some  examples  of  ALD’s    include:   amplified  telephones,  bed  shakers,  amplified  alarm  clocks,  door  bell  alerting  systems,  strobe  light  smoke   detectors,  Bluetooth  devices,  TV  Ears,  etc.    For  children  with  normal  to  near  normal  hearing,  the  use  of   an  ALD  is  sometimes  all  they  need  to  assist  them  in  specific  situations.    For  those  with  mild  to  profound   hearing  losses,  ALD’s  can  work  in  conjunction  with  hearing  aids  and  cochlear  implants.    Your  audiologist   can  provide  you  with  additional  information  on  which  assistive  listening  device(s)  might  help  with  your   child’s  particular  listening  needs.      

   

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FUNDING  FOR  SERVICES                     Who  can  help  to  pay  for  services?    Hearing  aids  vary  in  price  according  to  selected  style,  electronic   features,  and  related  needs  for  professional  consultation  and  rehabilitation  services.  Hearing  aid  costs   increase  with  more  complex  and  sophisticated  circuitry  and  smaller  size.    Purchase  price,  an  important   factor,  should  be  only  one  consideration  in  buying  hearing  aids.  Product  reliability  can  save  repair  costs   as  well  as  the  frustration  of  a  malfunctioning  hearing  aid.    Cost  of  a  particular  type  of  battery  used  by   the  hearing  aid  and  the  rate  at  which  the  battery  needs  to  be  replaced  can  also  influence  the  overall  cost   of  owning  and  maintaining  a  hearing  aid.  Batteries  may  last  from  several  days  to  several  weeks   depending  on  the  power  requirements  of  the  aid,  the  type  of  battery,  and  whether  the  aid  is  used   routinely  with  assistive  listening  devices.    Each  person's  hearing  loss  presents  unique  characteristics.  The   expertise  of  your  audiologist  about  product  quality  and  the  monitoring  and  follow-­‐up  services  your  child   may  need  are  important  considerations  in  your  purchase  decision.   Cochlear  implants  are  typically  something  that  most  insurance  companies  will  pay  for  and  you  should   review  your  insurance  policy  if  this  is  a  device  you  are  considering  for  your  child  to  ensure  that  it  will  be   a  covered  procedure.    If  you  have  questions  about  this,  our  surgery  scheduling  coordinator  can  assist   you  in  determining  insurance  coverage.   Most  FM  devices  and  assistive  listening  devices  are  not  generally  covered  by  insurance.    Below  are   listings  of  providers  that  can  assist  in  the  purchase  of  these  as  well  as  hearing  aids  if  financial  assistance   is  needed.   North  Carolina  Assistive  Technology  Program   www.ncei.org/ei/itp.html   NC  Health  Choice   www.nchealthystart.org/public/childhealth   North  Carolina  Medicaid   www.ncdhhs.gov/dma/home.htm   North  Carolina  Division  of  Services  for  the  Deaf  and  Hard  of  Hearing   http://dsdhh.dhhs.state.nc.us  

   

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Carolina  Children’s  Communicative  Disorders  Program   www.med.unc.edu/earandhearing/pedsprogs/cccdpgrant   Funding  Assistance  for  Audiology  Services   www.asha.org/familyfunding   Hearing  Aid  Loaner  Programs   www.infanthearing.org/HA-­‐loaner  

Other  Services  Available   PROFESSIONAL  HELP/HEALTHCARE  TEAM:    From  the  moment  your  child  is  diagnosed  with  a  hearing  loss,   your  family  will  enter  a  new  world  of  information  and  terminology.    Having  a  good  support  team  is  very   important  to  help  provide  you  with  the  basis  for  understanding  this  new  information  and  ensuring  that   your  child  is  being  cared  for  by  professionals  you  feel  comfortable  with.    As  a  parent,  you  will  be  the   head  of  your  child’s  support  team  to  help  him/her  get  the  best  possible  start  in  life.    Securing  the  best   care  possible  will  require  dedication,  energy  and  determination.    A  broad  support  team  is  a  great  base   for  your  child’s  future.    This  team  will  consist  usually  of  an  audiologist,  speech  language  pathologist,   teachers  (sometimes  teachers  for  the  deaf  and  hard  of  hearing  are  required),  otolaryngologists,   pediatricians,  geneticists,  and  possibly  psychologists  to  help  you,  your  child  and  your  family  cope  with   this  information  and  support  you  along  your  child’s  journey.       What’s  an  Audiologist?    An  audiologist  is  someone  who  has  been  trained  either  at  the  masters  or   doctorate  level  on  the  hearing  and  vestibular  system.    The  audiologist  will  provide  your  child  with   frequent  hearing  assessments  and  necessary  adjustments  to  their  hearing  aids,  cochlear  implants,  FM   devices  or  ALD.    Your  audiologist  will  also  train  you  and  your  child  (if  applicable)  on  how  to  operate  your   hearing  assistance  device  and  provide  necessary  information  pertaining  to  the  management  of  your   child’s  hearing  loss.   What’s  an  Otolaryngologist?    An  otolaryngologist  is  more  commonly  referred  to  as  an  ENT  (Ear,  Nose  &   Throat  doctor)  and  is  a  medical  doctor  who  will  likely  conduct  medical  clearance  before  a  hearing  aid  or   cochlear  implant  is  pursued.    They  are  also  whom  you  will  see  for  otitis  media  (ear  infections)  and  assist   you  and  your  child  with  any  complications  associated  with  their  hearing.    Your  child  will  likely  follow  up   with  their  ENT  annually,  or  as  warranted,  to  continue  to  monitor  their  ears  and  hearing  status.   What’s  a  Speech  Language  Pathologist?    A  speech  language  pathologist  (SLP)  is  trained  in  assisting  with   speech  and  language  development.    A  SLP  can  offer  various  techniques  and  tools  to  assist  your  child  in   developing  good  speech  and  language  skills.    SLP’s  are  available  in  schools,  hospitals  and  private   practices.    A  SLP  will  instruct  you  on  the  appropriate  communication  practices  for  your  child’s  home  and   school  environments.   Other  specialists  you  are  likely  more  familiar  with  are  pediatricians,  psychologists,  and  teachers.   Pediatricians  will  not  only  assist  and  medically  manage  the  majority  of  your  child’s  overall  development  

   

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but  will  also  assist  the  ENT  and  audiologist  in  regularly  monitoring  the  ears.    Psychologists  will  help  you   and  your  child  cope  with  this  news  and  process  as  well  as  help  implement  assistance  for  your  child   either  with  an  IFSP  or  IEP.    Teachers  will  need  to  understand  the  importance  of  your  child’s  listening   environment  and  you  will  need  to  be  your  child’s  advocate  to  communicate  this  to  their  teachers  as  they   begin  school;  especially  if  they  do  not  have  either  an  IEP  or  504  plan.    Sometimes  more  specialized   teachers  such  as  teachers  of  the  hearing  impaired  may  be  required.    These  teachers  are  specialized  to   meet  your  child’s  individual  needs  and  will  be  able  to  assist  you  also  in  ensuring  their  scholastic  success.   LOCAL  RESOURCES  FOR  COMMON  REFERRALS:    The  North  Carolina  Early  Hearing  Detection  and   Intervention  Program  (EHDI)  is  a  great  place  to  start  to  find  out  about  local  referrals.    Their  primary  goal   is  to  ensure  that  your  child  is  being  evaluated  and  receiving  the  services  they  need  to  be  successful  in   life.    They  have  a  list  of  those  professionals  who  specialize  in  the  pediatric  population  and  can  direct  you   to  an  audiologist,  otolaryngologist,  SLP,  psychologist,  etc.  in  your  area  that  can  assist  your  child  with   their  hearing  care  needs.    (919)  707-­‐5632,  Email:  [email protected]  ,     Web:  www.ncnewbornhearing.org     Also  visit  our  website  at  www.earcentergreensboro.com  for  a  list  of  speech  language  pathologists  who   have  training  and  experience  with  the  pediatric  population.   FAMILY SUPPORT GROUPS: Finding other families like yours is another important part of assisting you in your and your child’s success. Below is a listing of support groups that are available in this area. Triad Hitch-Up……………………………….….336-638-6111………………or……............ info.triadhitchup.com The North Carolina AG Bell Association………….…………………………………………….………www.ncagbell.org Camps for Deaf or Hard-of-Hearing Children…919-876-4327…or…www.taalliance.org/ptidirectory

Family  Support  Network……………………………800-­‐852-­‐0042……………………………or……………….www.fsnnc.org   Hands  &  Voices…………………………………866-­‐422-­‐0422……………………..or………………www.handsandvoices.org   WEBSITE  REFERENCES:    To  find  out  more  go  to:  www.communicatewithyourchild.org  to  get  further   answers  about  your  child’s  hearing  loss.    The  website  contains  all  the  websites  already  mentioned  in  this   packet  to  ensure  that  you  know  who  can  help  you  and  your  child  during  this  process,  where  services  are   offered,  and  available  books  you  can  read  to  assist  you  in  further  helping  your  child.       Don’t  forget  to  visit  our  website  also  at  www.earcentergreensboro.com  in  order  to  learn  about  the   hearing  aids  we  offer  as  well  as  information  about  cochlear  implants.    This  website  will  provide  you  with   additional  answers  to  your  questions  regarding  receiving  hearing  assistance  options,  testing  conducted   at  our  office,  FM  devices  and  information  about  speech  language  pathologists  that  our  office  works  with   that  can  assist  your  child  with  their  communication  needs.       Other  websites  for  learning  about  hearing  loss  include:   www.babyhearing.org      

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www.cdc.gov/ncbddd/ehdi/CDROM   www.ncbegin.org   www.raisingdeafkids.org   http://clerccenter.gallaudet.edu/infotogo   www.nidcd.nih.gob/health/hearing     COMMUNICATION  RESCOURCES:    There  are  different  modes  of  communication  and  exactly  what  and   how  your  child  hears  will  be  dependent  upon  their  type  of  hearing  loss.    Your  hearing  health  care   professional  can  assist  you  in  describing  your  child’s  hearing  loss  and  how  you  can  help  your  child  to   communicate  as  effectively  as  possible.    Speech  language  pathologists  can  offer  training  sessions  and   therapy  to  further  enhance  the  development  of  both  receptive  and  expressive  forms  of  speech.    The  SLP   will  design  a  learning  environment  where  your  child  can  easily  recognize  and  produce  certain  sounds,   words  and  sentences.    Supplementing  training  with  alternative  teaching  methods  such  as  the  use  of  lip-­‐ reading,  gestures  and  expressions,  signs  or  finger  spelling  may  be  needed.    Finding  an  SLP  is  the  best   way  to  begin  enhancing  your  child’s  speech  and  language  skills.    Please  visit  our  website  at   www.earcentergreensboro.com  for  a  list  of  qualified  pediatric  SLP’s  in  the  Greensboro  area.     STATE  BOARD  OF  EDUCATION:    Once your child is ready to begin school, they may transition from an IFSP to a 504 or IEP if an academic need exists. These documents are legally binding and spell out the accommodations that are needed in the academic arena. A comprehensive evaluation process may include some or all of the following evaluations: communication, psychological, educational, and a social/developmental evaluation. A  number  of  federal  laws  

mandate  the  provision  of  assistive  technology  devices  and  services  in  the  United  States.      The  major  one   that  will  assist  you  and  your  child  is  IDEA-­‐  Individuals  with  Disabilities  Education  Act   http://www.ed.gov/offices/OSERS/IDEA/overview.html  .    IDEA  evolved  out  of  a  number  of  laws  that   were  aimed  at  maximizing  the  educational  potential  for  all  children  with  disabilities.  This  law  mandates   the  provision  of  hearing  assistive  technology  for  hard-­‐of-­‐hearing  and  deaf  students  in  both  academic   and  extracurricular  activities.    There  are  really  no  hard  fast  rules  when  it  comes  to  receiving  services   from  the  State  Board  of  Education.    Each  child  is  served  according  to  the  individual  needs  determined  by   assessments.    By  law  the  state  is  required  to  assist  your  child  if  he/she  has  an  academic  need.     Assistance  can  include  hearing  aids,  assistive  listening  devices,  FM’s,  classroom  modifications  such  as   note  takers,  extended  test  taking  time,  interpreter,  closed  captioning,  modified  assignments,  real  time   captioning  (CART)  with  a  court  stenographer,  etc.    Whatever  services  or  assistance  that  is  “appropriate”   for  your  child  to  enhance  learning  should  be  provided.    This  will  be  provided  in  your  child’s   communication  mode  (for  example,  sign  language,  spoken  English,  Spanish,  etc.)  and  at  their  learning   level.    Most  of  the  services  that  are  offered  are  for  in  school  use,  however  if  the  child  is  going  to  be   participating  in  after  school  activities  that  would  require  them  to  utilize  the  devices  offered  (i.e.  field   trip,  homework  assignment,  school  sponsored  programs,  etc.),  they  are  permitted  to  use  these  off   school  grounds  as  long  as  it  is  reasonable  to  assume  that  they  will  be  utilized  for  educational  purposes.      

   

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The  next  two  sections  include  information  regarding  the  specific  sections  of  IDEA  that  explains  what   assistive  technology  devices  are  and  the  services  they  can  provide  to  your  child.             Sec.  300.5  Assistive  technology  device.      Assistive  technology  device  means  any  item,  piece  of  equipment,  or  product  system,  whether  acquired   commercially  off  the  shelf,  modified,  or  customized,  that  is  used  to  increase,  maintain,  or  improve  the   functional  capabilities  of  a  child  with  a  disability.  The  term  does  not  include  a  medical  device  that  is   surgically  implanted  (such  as  a  cochlear  implant),  or  the  replacement  of  such  device.     Sec.  300.6  Assistive  technology  service.   Assistive  technology  service  means  any  service  that  directly  assists  a  child  with  a  disability  in  the   selection,  acquisition,  or  use  of  an  assistive  technology  device.  The  term  includes-­‐-­‐     (a)  The  evaluation  of  the  needs  of  a  child  with  a  disability,  including  a  functional  evaluation  of  the  child   in  the  child's  customary  environment;     (b)  Purchasing,  leasing,  or  otherwise  providing  for  the  acquisition  of  assistive  technology  devices  by   children  with  disabilities;     (c)  Selecting,  designing,  fitting,  customizing,  adapting,  applying,  maintaining,  repairing,  or  replacing   assistive  technology  devices;     (d)  Coordinating  and  using  other  therapies,  interventions,  or  services  with  assistive  technology  devices,   such  as  those  associated  with  existing  education  and  rehabilitation  plans  and  programs;     (e)  Training  or  technical  assistance  for  a  child  with  a  disability  or,  if  appropriate,  that  child's  family;  and     (f)  Training  or  technical  assistance  for  professionals  (including  individuals  providing  education  or   rehabilitation  services),  employers,  or  other  individuals  who  provide  services  to,  employ,  or  are   otherwise  substantially  involved  in  the  major  life  functions  of  that  child.  

   

   

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            Conclusion     The  intension  of  this  information  was  to  help  make  this  journey  as  knowledgeable  and  comfortable  as   possible  for  you  and  your  child.    If  after  reading  this  packet  you  have  additional  questions,  please  do  not   hesitate  to  call  The  Ear  Center  of  Greensboro,  P.A.  at  336-­‐273-­‐9932  or  feel  free  to  contact  one  of  the   other  resources  that  were  mentioned  in  this  packet.      We  are  all  here  to  help  your  family  make  this   transition  a  natural  part  of  the  everyday  life  for  you  and  your  child.          

 

   

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Notes:  

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

   

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References     1. 2. 3. 4. 5. 6. 7. 8. 9. 10. 11. 12. 13.  

The  North  Carolina  Early  Hearing  Detection  and  Intervention  Program  (EHDI),  www.ncbegin.org   Phonak:  www.phonak.com   BEGINNINGS,  For  Parents  of  Children  Who  are  Deaf  or  Hard  of  Hearing,  Inc.,  www.ncbegin.org   Cochlear  Americas   http://halhen.com/cgi-­‐bin/products.cgi   Widex:  www.widex.com,  “Your  Child’s  Hearing  a  Comprehensive  Guide  for  Parents  on  Hearing   and  Hearing  Loss”.       Patricia  P.  Warf,  AuD,  Educational  Audiologist   www.babyhearing.org    www.cdc.gov/ncbddd/ehdi/CDROM   www.raisingdeafkids.org    http://clerccenter.gallaudet.edu/infotogo    www.nidcd.nih.gob/health/hearing   Northern,  Jerry  L.,  Downs,  Marion  P.,  Hearing  in  Children  Fifth  Edition.      

   

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