PROGRAM GUIDE Down Syndrome Indiana is dedicated to enhancing the lives of individuals with Down syndrome. Our mission is to serve as a conduit of information, support and advocacy for individuals with Down syndrome and their families, which promotes growth and inclusion in the community.

DOWN SYNDROME INDIANA 2016

Table of Contents Adult Life ....................................................................................................................................................... 4 Adult Life Packets ...................................................................................................................................... 4 Calendar of Events .................................................................................................................................... 4 DSI Dancers ............................................................................................................................................... 4 Indiana Postsecondary Education Coalition ............................................................................................. 4 Live, Laugh, Dance .................................................................................................................................... 5 Indy ....................................................................................................................................................... 5 Terre Haute ........................................................................................................................................... 5 One-Stop-Shop: Adult Life Resources ....................................................................................................... 5 Prom .......................................................................................................................................................... 5 Self-Advocate Community Group ............................................................................................................. 5 Self Advocate Stakeholders Group ........................................................................................................... 6 Self Advocate VIP Tent @ Buddy Walk® ................................................................................................... 6 Tennis Lessons .......................................................................................................................................... 6 Volunteer/Intern Program ........................................................................................................................ 6 Annual Events ............................................................................................................................................... 7 Annual Conference ................................................................................................................................... 7 Buddy Walk® ............................................................................................................................................. 7 Buddy Walk® Indy ................................................................................................................................. 7 Buddy Walk® Lafayette ......................................................................................................................... 7 CFHR Day in May ....................................................................................................................................... 7 DSI D.A.D.S. Golf Outing ............................................................................................................................ 8 Fly-in.......................................................................................................................................................... 8 Prom .......................................................................................................................................................... 8 Holiday Party ............................................................................................................................................. 8 Summer Picnic........................................................................................................................................... 8

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World Down Syndrome Day...................................................................................................................... 8 Buddy Walk® ................................................................................................................................................. 9 Buddy Walk® Indy ..................................................................................................................................... 9 Buddy Walk® Lafayette ............................................................................................................................. 9 Community Groups ..................................................................................................................................... 10 Cass County (C.A.D.S.) ............................................................................................................................. 10 Cuenta Conmigo...................................................................................................................................... 10 D.A.D.S. (Dads Appreciating Down syndrome) ....................................................................................... 11 East Central Indiana (ECI) ........................................................................................................................ 11 Lafayette Area Down Syndrome Organization (LADSO) ......................................................................... 11 Madison Hancock .................................................................................................................................... 12 Minority Family Down syndrome Network (MFDSN) ............................................................................. 12 Mom’s Night Out (MNO)......................................................................................................................... 12 Mooresville ............................................................................................................................................. 13 Self Advocates ......................................................................................................................................... 13 Southside ................................................................................................................................................ 13 Wabash Valley Stars ................................................................................................................................ 14 Diversity ...................................................................................................................................................... 15 Cuenta Conmigo...................................................................................................................................... 15 Linguistic Competence Training .............................................................................................................. 15 Minority Family Down syndrome Network (MFDSN) ............................................................................. 16 New Parent Packets in Spanish ............................................................................................................... 16 Health and Fitness....................................................................................................................................... 17 Buddy Walk® ........................................................................................................................................... 17 Buddy Walk® Indy ............................................................................................................................... 17 Buddy Walk® Lafayette ....................................................................................................................... 17 D.A.D.S. Lifetime Fitness Days ................................................................................................................ 17 DSI Dancers ............................................................................................................................................. 18 Live, Laugh, Dance .................................................................................................................................. 18 Indy ..................................................................................................................................................... 18 Terre Haute ......................................................................................................................................... 18 Tennis Lessons ........................................................................................................................................ 18 Inclusive Education ..................................................................................................................................... 19

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Awareness Presentations........................................................................................................................ 19 Educator Toolkits .................................................................................................................................... 19 Indiana Postsecondary Education Coalition ........................................................................................... 19 R-Word Cards .......................................................................................................................................... 19 Information and Resources......................................................................................................................... 20 Ask the Expert ......................................................................................................................................... 20 Awareness Presentations........................................................................................................................ 20 Ds Quiz Show....................................................................................................................................... 20 e-news ..................................................................................................................................................... 20 Factsheets ............................................................................................................................................... 20 Medical Outreach Presentations and In-services ................................................................................... 21 New Parent Packets ................................................................................................................................ 21 One-Stop-Shops .......................................................................................................................................... 21 R-Word Cards .......................................................................................................................................... 21 Resource Referrals .................................................................................................................................. 21 Parent Support and Education .................................................................................................................... 22 Annual Conference ................................................................................................................................. 22 Birthday Club........................................................................................................................................... 22 Camp Emma Lou ..................................................................................................................................... 22 Camp Hi-Lite ............................................................................................................................................ 22 First Call................................................................................................................................................... 23 Helping Hands ......................................................................................................................................... 23 Medical Organizers ................................................................................................................................. 23 New Parent Packets ................................................................................................................................ 23 New Parent Breakfasts............................................................................................................................ 24 Parent Loop ............................................................................................................................................. 24 Outreach ..................................................................................................................................................... 25 Medical Outreach Presentations and In-services ................................................................................... 25 New Parent Packets ................................................................................................................................ 25 Volunteer Coordination ................................................................................. Error! Bookmark not defined. Volunteer Opportunities ......................................................................................................................... 26 Volunteer Appreciation........................................................................................................................... 26

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Adult Life Adult Life Adult Life Packets An adult life packet contains adult life resources for individuals with Down syndrome. You will find information on local Self Advocacy groups, information on aging and Down syndrome, financial tips, reading lists, area activities and more. Please contact [email protected] to order your copy today.

Calendar of Events Each month, DSI provides a Calendar of Events for adults with Down syndrome. The calendar highlights both DSI events and community events. There is lots going on, we’ll help you find it. Email [email protected] to begin receiving your copy.

DSI Dancers The DSI Dancers Program with the Indianapolis Colts Cheerleaders is an exciting opportunity for individuals with Down syndrome and their families. Dancers are paired with a cheerleader “buddy” that they work with throughout the season and for special events. In addition to the friendships that develop and last year round, it is inspirational to watch the growth in confidence and personality of the dancers from the start of the program. For more information, contact [email protected].

Indiana Postsecondary Education Coalition Down syndrome Indiana plays a leading role in the Indiana Postsecondary Education Coalition (IPSEC). IPSEC promotes postsecondary education options for students with developmental disabilities. Did you know, students with intellectual and other disabilities who attend college have a 48 percent employment rate? (Migliore, Butterworkth, and Hart 2009). For more information, visit: http://www.thinkcollegeindiana.org/.

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Live, Laugh, Dance Indy Live, Laugh, Dance is dance camp for individuals with Down syndrome ages 12-35. Held at IUPUI to achieve physical activity and learn new dances. Assessments take place before and after the dance camp and includes a variety of dances such as hip hop, contemporary and more! For more information contact Rachel Swinford at [email protected]. Terre Haute New in 2016! Live, Laugh, Dance is dance camp for individuals with Down syndrome ages 12-35. Held at Indiana State University to achieve physical activity and learn new dances. For more information, please contact: [email protected] to find out when classes begin.

One-Stop-Shop: Adult Life Resources Parents tell DSI that what they need most from the organization are opportunities to connect and information & resources. In response, DSI is piloting a series of One-Stop-Shops in 2016. On Saturday, April 30th, the topic will be adult life resources and will feature a panel of Self Advocates moderated by Cindy Cobb. One-Stop-Shops are held at the Sol Center, 708 E Michigan Street, Indy. For more information, contact [email protected].

Prom Mark your calendars for May 21, 2016 as Down syndrome Indiana joins forces with several other groups, including, Best Buddies, the Hollis Adams Foundation, Special Olympics, and White River Christian Church to put on an amazing evening of food, fun and dancing for adults with intellectual disabilities. For more information, please e-mail [email protected].

Self-Advocate Community Group The DSI Self Advocate Community Group meets on the fourth Thursday of every month, unless otherwise stated. The group enjoys fun activities such as horseback riding, English country dancing, and so much more! For more information on how to get involved with the Self Advocates or to receive the Self Advocate Newsletter, please contact Christena Hammes at [email protected] or 317-480-2001. Find us on Facebook! https://www.facebook.com/groups/48496245. Website: http://www.dsindiana.org/Self-Advocates.php.

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Self Advocate Stakeholders Group Down Syndrome Indiana along with the Hollis Adams Foundation founded the Self Advocate Stakeholders group. This group meets regularly throughout the year to discuss topics that are relevant to self advocacy. The goal to understand what programs exist, where there are gaps in services and where we can work together to fill those needs. For more information, please contact [email protected].

Self Advocate VIP Tent @ Buddy Walk® Calling all Self Advocates… Join us in the Self Advocate V.I.P. Tent at the Buddy Walk on the second Saturday in October. This is your chance to hang out with friends and enjoy age appropriate activities like karaoke, dancing and meeting and greeting friends.

Tennis Lessons The Park Tudor Tennis Team volunteers to host a free spring and fall tennis clinic for people with Down syndrome of all ages including adults (and siblings or friends) on Sundays from 4pm to 5pm at the Park Tudor tennis courts. Park Tudor is located at: 7200 N College Ave, Indianapolis, IN 46240. The free clinics are held in the Spring and Fall. The students have worked very hard to create this website for additional information: http://anniemccarter97.wix.com/downsyndrometennis.

Volunteer/Intern Program Down Syndrome Indiana relies heavily on volunteers to help us accomplish our mission. Self Advocates are welcome to volunteer with DSI. A wide variety of volunteer opportunities are available on Mondays through Thursdays between the hours of 8:30AM and 2:30PM. Additional opportunities are available during DSI events. For more information on volunteering, please email: [email protected] or visit: http://www.dsindiana.org/Volunteer.php.

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Annual Events Annual Events Annual Conference The 2016 conference will be held May 13th and 14th 2016. Pat Winders, author of Gross Motor Skills for Children with Down syndrome will be this year’s speaker. Contact [email protected] for more information.

Buddy Walk® The Buddy Walk® was established in 1995 by the National Down Syndrome Society (NDSS) to celebrate Down Syndrome Awareness Month in October and to promote the value, acceptance and inclusion of people with Down syndrome. The National Buddy Walk® Program welcomes participants of all ages and abilities. In 2016, Down Syndrome Indiana will be hosting a walk in Indianapolis and in the greater Lafayette area. Buddy Walk® Indy The Indianapolis Buddy Walk® boasts 5,000 participants annually and is held on the 2nd Saturday of October. This walk is a 2.6 mile walk in which anyone can participate without special training. It is a wonderful, heartwarming event that celebrates the many abilities and accomplishments of people with Down syndrome. Whether you have Down syndrome, know someone who does, or just want to show your support, come and join the Buddy Walk® in your community! For more information, e-mail: [email protected].

Buddy Walk® Lafayette Down Syndrome Indiana is excited to introduce a second Buddy Walk® location in 2016 – Lafayette. For more information or if you are interested in participating in the Lafayette Buddy Walk® planning committee, walking or sponsoring this exciting event, please e-mail [email protected].

CFHR Day in May Down Syndrome Indiana partners with Carpenter Fisher Hartman Racing (CFHR) to give DSI families a day in their Suite to hang out with drivers and watch the cars run. To find out the date for 2016, please e-mail: [email protected].

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DSI D.A.D.S. Golf Outing Each spring, the DSI D.A.D.S. host an annual golf outing from which funds raised directly benefit the mission of DSI D.A.D.S. and help to help sponsor Riley Hospital for Children’s “Camp Hi-Lite”, a one-week, outdoor-living experience for school-aged and adolescent children who happen to have Down syndrome. The 2016 DSI D.A.D.S. Golf Outing will be held on June 10, 2016. For more information, visit: http://www.dsindiana.org/Golf.php. You may also e-mail: [email protected] for more information.

Fly-in Down Syndrome Indiana is excited to work with Montgomery Aviation to provide a fun-filled day for the entire community at the Annual Fly-In and Open House at the Indianapolis Executive Airport! Please check: http://www.dsindiana.org/NewsEventsPublications.php for the 2016 date.

Prom Mark your calendars for May 21, 2016 as Down syndrome Indiana joins forces with several other groups, including, Best Buddies, the Hollis Adams Foundation, Special Olympics, and White River Christian Church to put on an amazing evening of food, fun and dancing for adults with intellectual disabilities. For more information, please e-mail [email protected].

Holiday Party Annual event for DSI families. Festivities to include: STAR Award Presentations, Delicious Dinner Buffet, Music and Dancing, Pictures with Santa Claus, Holiday Arts and Crafts, and a Photo Booth!

Summer Picnic Annual Event for DSI Families. Summer Picnic. This event rotates sides of town. Great way to connect with other families.

World Down Syndrome Day A celebration of World Down Syndrome Day, March 21st. Please check http://www.dsindiana.org/NewsEventsPublications.php for a listing of this year’s events.

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Buddy Walk® Buddy Walk® The Buddy Walk® was established in 1995 by the National Down Syndrome Society (NDSS) to celebrate Down Syndrome Awareness Month in October and to promote the value, acceptance and inclusion of people with Down syndrome. The National Buddy Walk® Program welcomes participants of all ages and abilities. In 2016, Down Syndrome Indiana will be hosting a walk in Indianapolis and in the greater Lafayette area.

Buddy Walk® Indy The Indianapolis Buddy Walk® boasts 5,000 participants annually and is held on the 2nd Saturday of October. This walk is a 2.6 mile walk in which anyone can participate without special training. It is a wonderful, heartwarming event that celebrates the many abilities and accomplishments of people with Down syndrome. Whether you have Down syndrome, know someone who does, or just want to show your support, come and join the Buddy Walk® in your community! For more information, e-mail: [email protected].

Buddy Walk® Lafayette Down Syndrome Indiana is excited to introduce a second Buddy Walk® location in 2016 – Lafayette. For more information or if you are interested in participating in the Lafayette Buddy Walk® planning committee, walking or sponsoring this exciting event, please e-mail [email protected].

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Community Groups Community Groups A Community Group is designed to create opportunities for families that have children with Down syndrome to network and share common interests, concerns, challenges, and information. They do this through community events, informational meetings, Facebook webpages, or playgroups. Community Groups are categorized based upon “Area Specific” (i.e. Southside, L.A.D.S.O.) or “Special Interest” (i.e. Minority Families or D.A.D.S.). Each Community Group is considered an extension of Down Syndrome Indiana. To find the group closest to you, visit: http://www.dsindiana.org/CommunityGroups.php.

Cass County (C.A.D.S.) This group was designed to bring families closer together as a community of parents that are raising children with Down syndrome in Cass County and surrounding areas. For more information, please contact Ashley Scott at (574) 721-4892 or via email at [email protected]! You can find us on Facebook as Cass Area Down Syndrome (C.A.D.S.) https://www.facebook.com/groups/699134580204422/. Website: http://www.dsindiana.org/CADS.php.

Cuenta Conmigo Cuenta Conmigo es un grupo de apoyo a padres de niños con síndrome de Down en Español. Los temas varían mes con mes. Las reuniones son el primer Miércoles de cada mes de 6 a 8 p.m. en 708 E. Michigan Street, Indianápolis IN 46202. Para mas información contacte [email protected] o a (317)925-7617 Cuenta Conmigo is a Spanish-speaking group for parents who have a child with Down syndrome. The meeting topics focus on a wide range of pertinent information. The meetings will be from 6pm - 8pm located at 708 E. Michigan Street, Indianapolis, IN 46202. Childcare and food are provided. For more information contact [email protected] or by phone at (317) 925-7617. Website: http://www.dsindiana.org/CuentaConmigo.php.

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D.A.D.S. (Dads Appreciating Down syndrome) DSI D.A.D.S. monthly meetings are held on the 2nd Tuesday of every month at 6:30 PM. We meet at G.T. South’s Rib House is located: 5711 East 71st Street Indianapolis, Indiana 46220. GT South’s is located more or less across Binford Boulevard from George’s. (Alcoholic drinks are available but you pay for those on your own.) Contact Mike Byron at [email protected] for more information. (Any dad – or grandfather, uncle, brother, teacher, physician – who cares for someone who has Down syndrome, is invited.) Website: http://www.dsindiana.org/DADS.php.

East Central Indiana (ECI) The East Central Indiana group serves families living in and around Muncie. We offer a place to provide resources and support to individuals with Down syndrome, their families and loved ones. Meetings are held on the fourth Wednesday of each month, unless otherwise stated. Please contact Jody and Jodi Kress for more information at [email protected]. Website: http://www.dsindiana.org/East-Central-Indiana.php.

Lafayette Area Down Syndrome Organization (LADSO) The Lafayette Area Down Syndrome Organization provides information and support for families touched by Down syndrome. Local outreach includes, but is not limited to, new parent packets, personal family contacts, and group meetings and events. L.A.D.S.O. meets the 2nd Thursday of each month unless otherwise noted. Meetings take place at Bethany Presbyterian Church, 3305 Longlois Dr., Lafayette, from 6:00p.m. until 8:00p.m. Child care is provided with R.S.V.P. to meetings. For more information, please contact Renee Petrie by e-mail at [email protected] or phone 765-412-7484 or 765-589-8860. Website: http://www.dsindiana.org/LADSO.php.

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Madison Hancock This is a playgroup aimed at getting children with Down syndrome and their families together with other families to play and grow together. We meet every 3rd Thursday of the month from 6:30pm-8pm. We meet Mt Comfort United Methodist Church 3179 N. 600 W. Greenfield, IN For more information please call our office at (317) 925-7617 or email [email protected]! Website: http://www.dsindiana.org/Madison-Hancock-PlayGroup.php.

Minority Family Down syndrome Network (MFDSN) Past MFDSN activities have been great resources for families and included a panel discussion with some of Indianapolis’ leading health care practitioners, backyard picnics, family-to-family support for challenges that arise during your loved ones life span (IEPs, medical appointments, stress, puberty, etc), and a holiday adopt-a -family party. For more information, please contact the Down Syndrome Indiana office at (317) 925-7617. We meet the 4th Sunday of every month at the DSI office ( 708 E. Michigan St. Indianapolis, IN 46202) For more information email: [email protected]. Website: http://www.dsindiana.org/MFDSN.php.

Mom’s Night Out (MNO) Mom's Night Out is a program designed especially for moms, grandmas, aunts and loved ones of individuals with Down syndrome. The program meets at alternating restaurants to allow participants respite time, face to face interaction, networking opportunities and an evening out that they may not otherwise be able to afford. RSVP online by signing into your DSI website account on www.dsindiana.org, email [email protected] or call the office at 317-925-7617. For more information contact Stephanie Glowner, Member Services Coordinator, [email protected] or by phone at 317-925-7617. Website: http://www.dsindiana.org/momsnightout.php.

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Mooresville If you're in Mooresville feel free to check out The Mooresville Parent Group meets every 3rd Thursday of the month at Poe’s Brothers Cafeteria, 1260 State Road 67 South, Mooresville, IN 46158 at 6:00pm. For more information and to RSVP for dinner, please contact, Kellie Fuller at [email protected] or 317-908-4084. Website: http://www.dsindiana.org/Mooresville.php.

Self-Advocates The DSI Self Advocate Community Group meets on the fourth Thursday of every month, unless otherwise stated. The group enjoys fun activities such as horseback riding, english country dancing, and so much more! For more information on how to get involved with the Self Advocates or to receive the Self Advocate Newsletter, please contact Christena Hammes at [email protected] or 317-480-2001. Find us on Facebook! https://www.facebook.com/groups/48496245 Website: http://www.dsindiana.org/Self-Advocates.php.

Southside The Southside parent group serves families on the Southside of Indianapolis and those that live in Johnson County and have a loved one with Down syndrome. The group is focused on family friendly activities where the whole gang is having fun and making memories! The meeting times and dates do vary, but dinner or refreshments are always provided. For more information about the group and upcoming events contact Karla Johnson at [email protected]. Website: http://www.dsindiana.org/Southside.php.

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Wabash Valley Stars S.T.A.R.S. = Striving Toward Acceptance, Respect, and Support Mission: We are a playgroup/support group for families with a child or family member with Down syndrome, located in Terre Haute, Indiana. We believe that, together, our children can form lasting friendships, and we as parents and grandparents can talk with others who truly understand how each other feels. We have many wonderful events planned, holiday parties, outdoor events, art projects, movie nights, and so much more!! We will meet the second Saturday of every month. Locations and times will be posted. Leadership: Kristin Dixon, (812) 870-6481. For more information feel free to email [email protected]. Website: http://www.dsindiana.org/WabashValleySTARS.php.

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Diversity Diversity Cuenta Conmigo Cuenta Conmigo es un grupo de apoyo a padres de niños con síndrome de Down en Español. Los temas varían mes con mes. Las reuniones son el primer Miércoles de cada mes de 6 a 8 p.m. en 708 E. Michigan Street, Indianápolis IN 46202. Para mas información contacte [email protected] o a (317)925-7617 Cuenta Conmigo is a Spanish-speaking group for parents who have a child with Down syndrome. The meeting topics focus on a wide range of pertinent information. The meetings will be from 6pm - 8pm located at 708 E. Michigan Street, Indianapolis, IN 46202.Childcare and food are provided. For more information contact [email protected] or by phone at (317) 9257617. Website: http://www.dsindiana.org/CuentaConmigo.php.

Linguistic Competence Training Down Syndrome Indiana will be hosting a free educational presentation, Linguistic Competence Training: Improving the Effectiveness to Communicate with Latino Communities. It provides a basic introduction to Spanish for social providers. This is a great presentation to become more culturally competent and to brush up on or learn beginner Spanish. Materials are provided free of charge. A huge thank you to the Latino Coalition Against Domestic and Sexual Violence for providing this training. For more information on the next available training, please e-mail: [email protected].

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Minority Family Down syndrome Network (MFDSN) Past MFDSN activities have been great resources for families and included a panel discussion with some of Indianapolis’ leading health care practitioners, backyard picnics, family-to-family support for challenges that arise during your loved ones life span (IEPs, medical appointments, stress, puberty, etc), and a holiday adopt-a -family party. For more information, please contact the Down Syndrome Indiana office at (317) 9257617. We meet the 4th Sunday of every month at the DSI office (708 E. Michigan St. Indianapolis, IN 46202) For more information email: [email protected]. Website: http://www.dsindiana.org/MFDSN.php.

New Parent Packets in Spanish Down Syndrome Indiana provides comprehensive parent packets that contain a wealth of information to parents that have a newborn with Down syndrome or have just learned of the diagnosis before their child is born. These packets are distributed to the families or upon request or through local hospitals. A Spanish version of the New Parent Packet is also available! Order your complimentary packet today at: http://www.dsindiana.org/RequestAParentPacket.php.

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Health and Fitness Health and Fitness Buddy Walk® The Buddy Walk® was established in 1995 by the National Down Syndrome Society (NDSS) to celebrate Down Syndrome Awareness Month in October and to promote the value, acceptance and inclusion of people with Down syndrome. The National Buddy Walk® Program welcomes participants of all ages and abilities. In 2016, Down Syndrome Indiana will be hosting a walk in Indianapolis and in the greater Lafayette area.

Buddy Walk® Indy The Indianapolis Buddy Walk® boasts 5,000 participants annually and is held on the 2nd Saturday of October. This walk is a 2.6 mile walk in which anyone can participate without special training. It is a wonderful, heartwarming event that celebrates the many abilities and accomplishments of people with Down syndrome. Whether you have Down syndrome, know someone who does, or just want to show your support, come and join the Buddy Walk® in your community! For more information, e-mail: [email protected].

Buddy Walk® Lafayette Down Syndrome Indiana is excited to introduce a second Buddy Walk® location in 2016 – Lafayette. For more information or if you are interested in participating in the Lafayette Buddy Walk® planning committee, walking or sponsoring this exciting event, please e-mail [email protected].

D.A.D.S. Lifetime Fitness Days Dads, moms, and families join the DSI D.A.D.S. for a family afternoon of fun including pizza, swimming, rock climbing, gym games, and other activities. There is no charge for this event, DSI D.A.D.S. will be picking up the tab. Join us on selected Saturdays anytime between 12pm – 3pm! Location: Lifetime Fitness 8705 Castle Creek Parkway Indianapolis, IN 46250. For more information and 2016 dates, please e-mail [email protected] or call (317) 925-7617.

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DSI Dancers The DSI Dancers Program with the Indianapolis Colts Cheerleaders is an exciting opportunity for individuals with Down syndrome and their families. Dancers are paired with a cheerleader “buddy” that they work with throughout the season and for special events. In addition to the friendships that develop and last year round, it is inspirational to watch the growth in confidence and personality of the dancers from the start of the program. For more information, contact [email protected].

Live, Laugh, Dance Indy Live, Laugh, Dance is dance camp for individuals with Down syndrome ages 12-35. Held at IUPUI to achieve physical activity and learn new dances. Assessments take place before and after the dance camp and includes a variety of dances such as hip hop, contemporary and more! For more information contact Rachel Swinford at [email protected]. Terre Haute New in 2016! Live, Laugh, Dance is dance camp for individuals with Down syndrome ages 12-35. Held at Indiana State University to achieve physical activity and learn new dances. Assessments take place before and after the dance camp and includes a variety of dances such as hip hop, contemporary and more! For more information, please contact: [email protected] to find out when classes begin.

Tennis Lessons The Park Tudor Tennis Team volunteers to host a free spring and fall tennis clinic for people with Down syndrome of all ages (and siblings or friends) on Sundays from 4pm to 5pm at the Park Tudor tennis courts. Park Tudor is located at: 7200 N College Ave, Indianapolis, IN 46240. The free clinics are held in the Spring and Fall. The students have worked very hard to create this website for additional information: http://anniemccarter97.wix.com/downsyndrometennis.

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Inclusive Education Inclusive Education Awareness Presentations Let DSI staff and Self Advocates visit your school and present a message of inclusion and acceptance. This fun filled interactive presentation is great for groups of 10 to 300. Presentations are especially great for Disability Awareness Month in March, World Down syndrome Day on March 21st or Down Syndrome Awareness Month in October. Don’t worry, you don’t have to choose a specific month, DSI will present any time of year! Contact DSI at [email protected] to schedule your presentation today.

Educator Toolkits Down Syndrome Indiana supports educators that have a student with Down syndrome in their classroom by providing educators with a free mini resource library upon request. This rich resource is full of books that encourage classroom inclusion and high expectations. For more information, please e-mail: [email protected].

Indiana Postsecondary Education Coalition Down Syndrome Indiana plays a leading role in the Indiana Postsecondary Education Coalition (IPSEC). IPSEC promotes postsecondary education options for students with developmental disabilities. Did you know, students with intellectual and other disabilities who attend college have a 48 percent employment rate? (Migliore, Butterworkth, and Hart 2009). For more information, visit: http://www.thinkcollegeindiana.org/.

R-Word Cards Order a stock of business card sized cards that remind individuals that words can hurt. These easy to hand out cards encourage individuals to choose their words carefully and to use respect. Order cards for your friends, classroom or entire school. Free of charge. Please contact [email protected] to order.

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Information and Resources Information and Resources Ask the Expert Down Syndrome Indiana has collaborated with several local healthcare providers to get answers to your important health concerns for individuals with Down syndrome. Examples include: reoccurance of Down syndrome, sleep apnea, vaccines and more. To see a listing of topics, please visit: http://www.dsindiana.org/AskTheExpert.php.

Awareness Presentations Let DSI staff and Self Advocates visit your school and present a message of inclusion and acceptance. This fun filled interactive presentation is great for groups of 10 to 300. Presentations are especially great for Disability Awareness Month in March, World Down syndrome Day on March 21st or Down Syndrome Awareness Month in October. Contact DSI at [email protected] to schedule your presentation today. Ds Quiz Show Request a “Jeopardy” style quiz show presentation for your classroom. It is a fun way to learn about Down syndrome and intellectual disabilities. Students leave the presentation with a greater awareness and appreciation for individuals with Down syndrome. This presentation is great for grades 5 thru 12, and for adults.

e-news Want to stay updated on the latest Down syndrome news, community resources and DSI happenings? DSI offers a weekly e-newsletter delivered electronically via your e-mail. Sign up at: http://www.dsindiana.org/index.php and click on, "Sign up for e-news".

Factsheets Down Syndrome Indiana compiles the most frequently asked questions and creates factsheets based on that information. This way families can have quick access to valuable information http://www.dsindiana.org/AdditionalResources.php.

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Medical Outreach Presentations and In-services The goal is to build relationships of trust and respect between medical providers and the Down syndrome community. In-services given by DSI staff and medical outreach volunteers provide accurate and up-to-date information about Down syndrome and support resources to medical providers. Contact [email protected] to schedule a presentation for your medical office.

New Parent Packets Down Syndrome Indiana provides comprehensive parent packets that contain a wealth of information to parents that have a newborn with Down syndrome or have just learned of the diagnosis before their child is born. These packets are distributed to the families or upon request or through local hospitals. A Spanish version of the New Parent Packet is also available! Order your complimentary packet today at: http://www.dsindiana.org/RequestAParentPacket.php.

One-Stop-Shops Parents tell DSI that what they need most from the organization are opportunities to connect and information & resources. In response, DSI is piloting a series of One-Stop-Shops in 2016. Each event will be a day long one-stop-shop on a featured topic. Between the hours of 9:00AM and 3:00PM on chosen dates, you can stop in and browse information tables and listen to a variety of speakers. The event is free and no RSVP is needed. One-Stop-Shops will be held at the Sol Center, 708 E Michigan Street, Indy. For more information, contact [email protected]. January 23rd

Financial Wellness

April 30th

Adult Life

November 12th

IEP’s and Back to School Resources

R-Word Cards Order a stock of business card sized cards that remind individuals that words can hurt. These easy to hand out cards encourage individuals to choose their words carefully and to use respect. Order cards for your friends, classroom or entire school. Free of charge. Please contact [email protected] to order.

Resource Referrals Send your questions to: [email protected] or call (317) 925-7617. A DSI representative will answer inquiries and provide useful referrals. pg. 21

Parent Support and Education Parent Support and Education Annual Conference The 2016 conference will be held May 13th and 14th 2016. Pat Winders, author of Gross Motor Skills for Children with Down syndrome will be this year’s speaker. Contact [email protected] for more information.

Birthday Club Sign your child up for the DSI Birthday Club and you will receive a personalized birthday card in the month of your child’s birthday, a shout out on social media during the week of your child’s birthday and occasional age appropriate information that is important to know. To sign up for the Birthday Club, please e-mail DSI Member Services Coordinator, Stephanie Glowner at: [email protected] and include your child’s name, birth date and mailing address.

Camp Emma Lou Camp Emma Lou provides a recreational retreat for children and their families. Each year four deserving Down Syndrome Indiana families are invited to experience this retreat weekend and all of its many benefits. Operated by the Enis Furley Foundation and located on Lake Monroe near Bloomington, IN. Camp Hi-Lite Down Syndrome Indiana through its DSI D.A.D.S. Community group and DSI D.A.D.S. Golf Outing provides $10,000 in funding to the Riley Children’s Foundation to be used toward Camp Hi-Lite. Camp Hi-Lite is a week long summer program held at Bradford Woods. The money that is donated by Down Syndrome Indiana helps to offset the costs to all campers who attend.

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First Call DSI’s First Call program connects new parents to a parent that has already walked in their shoes and is trained in empathetic listening, as well as, the resources DSI has to offer. Here are a few examples of what First Call can offer: Meet a new parent that has a prenatal diagnosis? We have a match for you. Speak Spanish? We have a match. Live in Fishers? We have match. Southside? We have match. Want to cry and just have someone listen without judgment? We have a match. Want a parent to meet you at your first DSI event so you are not alone? We have a match. Want to have dinner with a family and a casual conversation? We have got you covered.

Helping Hands This program provides care packages, hospital visits and/or one-time financial assistance to families that have a loved one with Down syndrome. Contact [email protected] for more information.

Medical Organizers Do you ever feel that you could use a little help organizing your child’s medical files? If you answered yes than we have a great resource for you! Down Syndrome Indiana and Coming Home are working together to provide families with a home medical organizer free of charge. It is a binder, cd rom and forms to help you keep your child’s most important medical information right at your fingertips! If you would like to request an organizer, please e-mail [email protected] today! New Parent Packets Down Syndrome Indiana provides comprehensive parent packets that contain a wealth of information to parents that have a newborn with Down syndrome or have just learned of the diagnosis before their child is born. These packets are distributed to the families upon request or through local hospitals. A Spanish version of the New Parent Packet is also available! Order your complimentary packet today at: http://www.dsindiana.org/RequestAParentPacket.php.

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New Parent Breakfasts Down Syndrome Indiana is dedicated to supporting the needs of families and children who have Down syndrome. This can be an overwhelming time, so Down Syndrome Indiana will be offering quarterly New Parent Breakfasts. There will be two Friday breakfast dates and two Saturday breakfast dates. Parents and grandparents of newborns ages 0 to 36 months are invited to attend. New Parent Breakfasts will be held on the following 2016 dates: Friday, January 29th Saturday, April 16th Saturday, July 9th Friday, October 14th

Parent Loop Parents! Join the Down Syndrome Indiana e-mail Parent Loop to connect with other Indiana parents of children and adults with Down syndrome. Share questions, concerns, and joys; learn of events coming up; gain and give support – all from your computer! To join: • Go to http://health.groups.yahoo.com/group/downsyndromeindianaparents/ • Click the button “Join This Group!” • Follow the instructions and wait for email approval; • Be sure to check your Junk/Spam Inbox if you do not see an email for approval within a week.

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Outreach Outreach Medical Outreach Presentations and In-services The goal is to build relationships of trust and respect between medical providers and the Down syndrome community. In-services given by DSI staff and medical outreach volunteers provide accurate and up-to-date information about Down syndrome and support resources to medical providers. Contact [email protected] to schedule a presentation for your medical office.

New Parent Packets Down Syndrome Indiana provides comprehensive parent packets that contain a wealth of information to parents that have a newborn with Down syndrome or have just learned of the diagnosis before their child is born. These packets are distributed to the families or upon request or through local hospitals. A Spanish version of the New Parent Packet is also available! Order your complimentary packet today at: http://www.dsindiana.org/RequestAParentPacket.php.

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Volunteer Volunteer and Change your Life! Volunteer Expo: Fall in Love with DSI Anyone interested in volunteering for Down Syndrome Indiana is invited to join us on Thursday, February 18th from 5:30PM to 8:30PM at our Volunteer Expo. Come out and learn about the many opportunities that DSI offers. Examples include: Internships, Buddy Walk® Committee membership, Helping Hands Committee, event planning opportunities, office and administrative help, childcare, development and more! We feel confident that when you see all DSI has to offer, you will fall in love with the organization! This event will be held at the Sol Center, 708 E Michigan Street, Indy. Parking is free.

Volunteer Opportunities Volunteer and Change Your Life! Down Syndrome Indiana wouldn’t be who we are today if it were not for our dedicated volunteers. We rely heavily on our volunteers and always have many volunteer opportunities available. All abilities are welcome. http://www.dsindiana.org/Give.php.

Volunteer Appreciation Annual volunteer appreciation event. All volunteers who gave of time or talent during the calendar year are eligible to attend.

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