De Hogeweyk. A dementia friendly neighbourhood or Living life as usual for people living with an advanced dementia

De Hogeweyk A dementia friendly neighbourhood or Living life as usual for people living with an advanced dementia Danish Dementia Days 2015 May I ...
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De Hogeweyk A dementia friendly neighbourhood

or Living life as usual for people living with an advanced dementia

Danish Dementia Days 2015

May I introduce myself? Yvonne van Amerongen- Heijer occupational therapist, social worker and founder of De Hogeweyk 1992: Care manager- nursing home Hogewey

1993: Project leader innovational project „living as usual“ nursing home Hogewey 1994: Project manager- quality & innovation nursing home Hogewey

2014: Consultant for “Be” ( part of nursing home Hogewey)

Danish Dementia Days 2015

May I introduce myself?

Yvonne Danish Dementia Days 2015

Danish Dementia Days 2015

Danish Dementia Days 2015

Danish Dementia Days 2015

Danish Dementia Days 2015

Danish Dementia Days 2015

Live your life “It is not about staying alive what ever it takes, but what your life is about. “

From the diary of Etty Hillesum- murdered in Auschwitz in 1943

Danish Dementia Days 2015

Some figures (WHO, 2012)

People living with dementia : ( 40% late stage)

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2012: 35 million

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2030: 70 million

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2050: 115 million Danish Dementia Days 2015

Why supported living elsewhere? • 85 % of the people with dementia can cope with dementia in their own home, with the support of day care, relatives and friends. • 15% of the people with dementia can not cope in their own home. They need professional support 24/7. Danish Dementia Days 2015

In De Hogeweyk live only people with a severe, advanced dementia.

Danish Dementia Days 2015

What’s in a name? • Hogewey- an old Dutch name of a part of Weesp where the traditional nursing home was situated

• Wijk- the Dutch word for neighbourhood, spelled in old Dutch: weyk

De Hogeweyk Danish Dementia Days 2015

The principles of De Hogeweyk- care concept - Normal living - Living in a small group of people with the same lifestyle - Normal household - Your own individual life - Living a social life Danish Dementia Days 2015

Favourable surrounding

Life’s pleasures

Employees & volunteers

Health

Organization

Lifestyle

6 pillars • • • • • •

The favorabel surrounding Pleasure in life and meaning in life Health Lifestyle Organisation Employees and volunteers

The favorabel surrounding Living life as usual ,in a normal house, with a normal household. - Where confusion is minimized - Where life has a normal human scale, living together in a small group with the same lifestyle - Where the resident is supported by professionals to cope in daily life as usual

The favorabel surrounding - A house with a front door, a living room and a kitchen. And a terrace or a garden to sit outside in the sun. - A house with your own bedroom - A house that is furnished in the style of your own home. - A house where the household is done according to your own ideas: cleaning the house, washing and ironing the clothes, preparing the meals. - A house with a daily routine according to your own ideas. - A small group : 6-7 in each house

Pleasure in life and meaningful life - A social life: meeting others in the pub or as a member of a club - Enjoying a walk in the fresh air - Daily shopping in the supermarket - Concerts at the theater

- The freedom to wander around - The church and the rituals

Your own individual life

A social life ……. Cultural events, just a stroll on your own, meeting others, following your own interest

Lifestyle for people living with dementia Yes: -

Surroundings, environment Interior design Social manners Day rhythm Preparation of the meals Norms and values Etc.

Danish Dementia Days 2015

Motivaction’s approach: beyond sociodemographics

Danish Dementia Days 2015

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De Hogeweyk: Dutch Culture 7 Lifestyles -

Homely Urban Upper class Cultural Indonesian (Colonial) Handicrafts men Religious Danish Dementia Days 2015

Danish Dementia Days 2015

Danish Dementia Days 2015

Danish Dementia Days 2015

Danish Dementia Days 2015

Danish Dementia Days 2015

Danish Dementia Days 2015

Danish Dementia Days 2015

Danish Dementia Days 2015

Danish Dementia Days 2015

Danish Dementia Days 2015

De Hogeweyk Architecture

Social life

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23 houses, 17 designs

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Total of 15.310 m²,

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50 % of the property is outdoors, 50 % is built environment

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Supermarket, restaurant, café, hairdresser, a theater and clubrooms parks, gardens, squares, alleys, streets and lanes, a fountain, a pond, art-exhibitions Christmas fairs concerts

Danish Dementia Days 2015

Support and safety -

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All employees and all volunteers know how to support a person with dementia in experiencing daily life.

• De Hogeweyk is accessible for everybody, the façades are the safe guard to the “unsafe” world outside.

The exterior and the interior design support the person to understand where he is and what is expected of him.

Danish Dementia Days 2015

Danish Dementia Days 2015

Danish Dementia Days 2015

Danish Dementia Days 2015

Danish Dementia Days 2015

Danish Dementia Days 2015

Danish Dementia Days 2015

Danish Dementia Days 2015

Danish Dementia Days 2015

Scientific research? • Positive effects of small scale living on dementia* • Better cognitive and functional capacity • Reduced agressive behavior • Improved social involvement • Improved work environment for caregivers: • More autonomy • Less stress

• Reduced physical strain * Verbeek, 2010; De Rooij et al, 2012.

Danish Dementia Days 2015

Scientific research? Positive effects care for people with dementia in small groups - On the brain / agitation -

Exercise Fresh air and day light (van Hoof et al., 2009) Social contacts (Lawton, 1997) Pleasant physical surroundings (Zeisel, 1999)

- On the appetite - A pleasant atmosphere - A set table

- On employee satisfaction (Verbeek et al, 2010) Danish Dementia Days 2015

Results in De Hogeweyk High satisfaction score among residents and family (8.9 on a scale of 10) High satisfaction among personal (7.6) High satisfaction among volunteers (7.6)

Danish Dementia Days 2015

Results in De Hogeweyk - No nursing home stigma, but a sense of normal life. - Less anti-psychotics : 1993: 50%, 2013: 16% - No bedridden residents since 1993 - Decrease in aggression by an increase in: - Space to walk around - Fresh air - Exercise - Day light - Freedom Danish Dementia Days 2015

Thank you! De Hogeweyk Living life as usual for people living with an advanced dementia

Yvonne van Amerongen E-Mail: [email protected] [email protected] Danish Dementia Days 2015

Danish Dementia Days 2015

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