De Hogeweyk A dementia friendly neighbourhood or
Living life as usual for people living with an advanced dementia
National Conference on social service and health Aalborg 2015
May I introduce myself? Yvonne van Amerongen- Heijer occupational therapist, social worker and founder of De Hogeweyk 1992: Care manager- nursing home Hogewey 1993: Project leader innovational project „living as usual“ nursing home Hogewey
1994: Project manager- quality & innovation nursing home Hogewey 2014: Consultant for “Be” ( part of nursing home Hogewey)
National Conference on social service and health Aalborg 2015
May I introduce myself?
Yvonne National Conference on social service and health Aalborg 2015
National Conference on social service and health Aalborg 2015
National Conference on social service and health Aalborg 2015
National Conference on social service and health Aalborg 2015
National Conference on social service and health Aalborg 2015
National Conference on social service and health Aalborg 2015
Live your life “It is not about staying alive what ever it takes, but what your life is about. “
From the diary of Etty Hillesum- murdered in Auschwitz in 1943
National Conference on social service and health Aalborg 2015
Some figures (WHO, 2012)
People living with dementia : ( 40% late stage)
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2012: 35 million
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2030: 70 million
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2050: 115 million National Conference on social service and health Aalborg 2015
Why supported living elsewhere? • 85 % of the people with dementia can cope with dementia in their own home, with the support of day care, relatives and friends. • 15% of the people with dementia can not cope in their own home. They need professional support 24/7.
National Conference on social service and health Aalborg 2015
In De Hogeweyk live only people with a severe, advanced dementia.
National Conference on social service and health Aalborg 2015
What’s in a name? • Hogewey- an old Dutch name of a part of Weesp where the traditional nursing home was situated • Wijk- the Dutch word for neighbourhood, spelled in old Dutch: weyk
De Hogeweyk National Conference on social service and health Aalborg 2015
The principles of De Hogeweyk- care concept - Normal living - Living in a small group of people with the same lifestyle - Normal household - Your own individual life - Living a social life National Conference on social service and health Aalborg 2015
Favourable surrounding
Life’s pleasures
Employees & volunteers
Health
Organization
National Conference on social service and health Aalborg 2015
Lifestyle
6 pillars • • • • • •
The favorabel surrounding Pleasure in life and meaning in life Health Lifestyle Organisation Employees and volunteers
National Conference on social service and health Aalborg 2015
The favorabel surrounding Living life as usual ,in a normal house, with a normal household. - Where confusion is minimized - Where life has a normal human scale, living together in a small group with the same lifestyle - Where the resident is supported by professionals to cope in daily life as usual
National Conference on social service and health Aalborg 2015
The favorabel surrounding - A house with a front door, a living room and a kitchen. And a terrace or a garden to sit outside in the sun. - A house with your own bedroom - A house that is furnished in the style of your own home. - A house where the household is done according to your own ideas: cleaning the house, washing and ironing the clothes, preparing the meals. - A house with a daily routine according to your own ideas. - A small group : 6-7 in each house
National Conference on social service and health Aalborg 2015
National Conference on social service and health Aalborg 2015
National Conference on social service and health Aalborg 2015
National Conference on social service and health Aalborg 2015
Pleasure in life and meaningful life - A social life: meeting others in the pub or as a member of a club - Enjoying a walk in the fresh air
- Daily shopping in the supermarket - Concerts at the theater
- The freedom to wander around - The church and the rituals National Conference on social service and health Aalborg 2015
Your own individual life
A social life ……. Cultural events, just a stroll on your own, meeting others, following your own interest
National Conference on social service and health Aalborg 2015
National Conference on social service and health Aalborg 2015
National Conference on social service and health Aalborg 2015
Lifestyle for people living with dementia Yes: -
Surroundings, environment Interior design Social manners Day rhythm Preparation of the meals Norms and values Etc.
National Conference on social service and health Aalborg 2015
How did we do it? 1993: experimental ward: study on lifestyles 1994: interviews with family of 169 residents 2002: Motivaction- validation of the lifestyles - questionnaire for analysis lifestyle residents 2015: update of the lifestyles Dutch lifestyles! National Conference on social service and health Aalborg 2015
new
Motivaction’s approach: beyond sociodemographics
National Conference on social service and health Aalborg 2015
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De Hogeweyk: Dutch Culture 7 Lifestyles -
Homely Urban Upper class Cultural Indonesian (Colonial) Handicrafts men Religious National Conference on social service and health Aalborg 2015
National Conference on social service and health Aalborg 2015
National Conference on social service and health Aalborg 2015
National Conference on social service and health Aalborg 2015
National Conference on social service and health Aalborg 2015
National Conference on social service and health Aalborg 2015
National Conference on social service and health Aalborg 2015
National Conference on social service and health Aalborg 2015
National Conference on social service and health Aalborg 2015
National Conference on social service and health Aalborg 2015
National Conference on social service and health Aalborg 2015
De Hogeweyk- concept It is not only about the bricks! An integral concept in which all aspects add up to a quality of life for people living with a severe demenia.
National Conference on social service and health Aalborg 2015
De Hogeweyk Architecture
Social life
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23 houses, 17 designs
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Total of 15.310 m²,
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50 % of the property is outdoors, 50 % is built environment
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Supermarket, restaurant, café, hairdresser, a theater and clubrooms parks, gardens, squares, alleys, streets and lanes, a fountain, a pond, art-exhibitions Christmas fairs concerts
National Conference on social service and health Aalborg 2015
Support and safety -
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All employees and all volunteers know how to support a person with dementia in experiencing daily life.
• De Hogeweyk is accessible for everybody, the façades are the safe guard to the “unsafe” world outside.
The exterior and the interior design support the person to understand where he is and what is expected of him.
National Conference on social service and health Aalborg 2015
From nursing home Hogewey to De Hogeweyk 1992: the idea 1993: experimental ward 1994: from traditional nursing home to Hogewey concept 2002: lifestyle analyses based on research 2008: move from old building to new 2010: official opening De Hogeweyk National Conference on social service and health Aalborg 2015
National Conference on social service and health Aalborg 2015
National Conference on social service and health Aalborg 2015
National Conference on social service and health Aalborg 2015
National Conference on social service and health Aalborg 2015
National Conference on social service and health Aalborg 2015
National Conference on social service and health Aalborg 2015
National Conference on social service and health Aalborg 2015
National Conference on social service and health Aalborg 2015
Scientific research? • Positive effects of small scale living on dementia* • Better cognitive and functional capacity • Reduced agressive behavior
• Improved social involvement • Improved work environment for caregivers: • More autonomy • Less stress • Reduced physical strain * Verbeek, 2010; De Rooij et al, 2012.
National Conference on social service and health Aalborg 2015
Scientific research? Positive effects care for people with dementia in small groups - On the brain / agitation -
Exercise Fresh air and day light (van Hoof et al., 2009) Social contacts (Lawton, 1997) Pleasant physical surroundings (Zeisel, 1999)
- On the appetite - A pleasant atmosphere - A set table
- On employee satisfaction (Verbeek et al, 2010)
National Conference on social service and health Aalborg 2015
Results in De Hogeweyk High satisfaction score among residents and family (8.9 on a scale of 10) High satisfaction among personal (7.6) High satisfaction among volunteers (7.6)
National Conference on social service and health Aalborg 2015
Results in De Hogeweyk - No nursing home stigma, but a sense of normal life. - Less anti-psychotics : 1993: 50%, 2013: 16% - No bedridden residents since 1993 - Decrease in aggression by an increase in: - Space to walk around - Fresh air - Exercise - Day light - Freedom National Conference on social service and health Aalborg 2015
Thank you! De Hogeweyk Living life as usual for people living with an advanced dementia
Yvonne van Amerongen E-Mail:
[email protected] [email protected] National Conference on social service and health Aalborg 2015
National Conference on social service and health Aalborg 2015