30 TH ANNUAL NORTH AMERICAN

CYSTIC FIBROSIS CONFERENCE OCTOBER 27-29, 2016 ORANGE COUNTY CONVENTION CENTER • ORLANDO, FL

PROSPECTUS

TABLE OF CONTENTS

WHO WE ARE......................................................................................................................... 2 INTRODUCTION.................................................................................................................. 3 ABOUT THE CONFERENCE................................................................................. 4 Who Attends............................................................................................................................ 4 Learning Goal/Purpose............................................................................................... 4 Program Responsibility............................................................................................... 4 Benefits of Participation............................................................................................. 4 ATTENDEE DEMOGRAPHICS........................................................................... 5 2015 EXHIBITORS & SUPPORTERS........................................................... 6 IMPORTANT DATES & DEADLINES.......................................................... 7 GETTING STARTED....................................................................................................8-9 Booth Space Fees.............................................................................................................. 8 What’s Included With Your Booth.................................................................. 8 Booth Payment...................................................................................................................... 8 Booth Assignment............................................................................................................ 8 Exhibit Booths........................................................................................................................ 8 Cancellations & Downsizing.................................................................................. 8 Installation & Dismantle of Exhibits.............................................................. 9 Exhibit Hall Schedule of Events*...................................................................... 9

EXHIBITOR RULES & REGULATIONS.................................................................................................... 10-11 Guidelines for Display................................................................................................10 Booth Perimeter Restrictions............................................................................10 Canvassing/Distribution of Materials & Advertising.......................................................................................................................10 Compliance with Laws & Regulations.....................................................10 Floor Covering....................................................................................................................10 Food & Beverage............................................................................................................10 Force Majeure.....................................................................................................................10 Fundraising.............................................................................................................................10 Furnishings & Decorations...................................................................................10 Hanging Signs..................................................................................................................... 11 Lead Retrieval...................................................................................................................... 11 Liability & Indemnification.................................................................................... 11 Product Samples/Promotional Items....................................................... 11 Restriction of Exhibits................................................................................................ 11 Sales................................................................................................................................................ 11 Security....................................................................................................................................... 11 Smoking..................................................................................................................................... 11 Staffing......................................................................................................................................... 11 Subletting Space............................................................................................................. 11 Utility Services & AV Equipment................................................................... 11 SHOW YOUR SUPPORT......................................................................................... 12 Support Levels.................................................................................................................... 12 NACFC SUPPORT & MARKETING OPPORTUNITIES.....13-15 Regulatory Requirements & Professional Codes....................... 15 Sunshine Act (Open Payments)...................................................................... 15 EDUCATIONAL SESSION SUPPORT..................................................... 16 Session Support............................................................................................................... 16 Education Support Guidelines........................................................................ 16 Session Support Opportunities..................................................................... 16 FUNCTION SPACE & INDUSTRY SUPPORTED SEMINARS................................................................................................................................ 17 Function Space Requests...................................................................................... 17 Available Function Hours....................................................................................... 17 Industry Supported Seminars.......................................................................... 17 PROGRAM-AT-A-GLANCE.................................................................................. 18 EXHIBITOR APPLICATION & AGREEMENT...................... 19-20 SUPPORTER APPLICATION & AGREEMENT.................. 21-22 RIGHT OF FIRST REFUSAL FORM...........................................................23

1  |  2016 North American Cystic Fibrosis Conference

WHO WE ARE

OUR MISSION The mission of the Cystic Fibrosis Foundation is to cure cystic fibrosis and to provide all people with the disease the opportunity to lead full, productive lives by funding research and drug development, promoting individualized treatment, and ensuring access to high-quality, specialized care.

WE ARE ADDING TOMORROWS The Cystic Fibrosis Foundation is the world’s leader in the search for a cure for cystic fibrosis. We fund more CF research than any other organization, and nearly every CF drug available today was made possible because of Foundation support. We are a nonprofit donor-supported organization dedicated to attacking cystic fibrosis from every angle. Our focus is to support the development of new drugs to fight the disease, improve the quality of life for those with CF, and ultimately to find a cure. The Foundation’s drug development success has been recognized by Harvard Business School and by publications such as Forbes and The Wall Street Journal. The Foundation funds and accredits a national care center network that has been recognized by the National Institutes of Health as a model of care for a chronic disease. The Cystic Fibrosis Foundation is one of the most efficient organizations of its kind and is an accredited charity of the Better Business Bureau’s Wise Giving Alliance.

We are proud of our achievements. But, we still have much to do!

Cystic Fibrosis Foundation 6931 Arlington Road Bethesda, Maryland 20814 (800) FIGHT CF

2  |  2016 North American Cystic Fibrosis Conference

INTRODUCTION

SUPPORT THE NORTH AMERICAN CYSTIC FIBROSIS CONFERENCE & SHOWCASE YOUR PRODUCTS TO THE LEADING DECISION MAKERS IN CF CARE & RESEARCH! The 30th Annual North American Cystic Fibrosis Conference will be held October 27-29, 2016 at the Orange County Convention Center. The 2016 NACFC is your best opportunity to showcase your company to a large multidisciplinary audience interested in up-to-date information on products and services to help win the battle against cystic fibrosis. Take advantage of this unique marketing opportunity by participating in the 2016 NACFC! Your support will ensure the ongoing development of high-quality education that is critical to our shared mission: improving the quality of life for more than 70,000 people worldwide living with CF, while striving toward the ultimate goal of finding a cure and control for the disease.

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ABOUT THE CONFERENCE

Who Attends

Benefits of Participation

The North American Cystic Fibrosis Conference serves as a collaborative forum to advance research for the treatment and cure of CF. The NACFC is an ideal opportunity to receive stateof-the-art continuing medical education and learn about the latest products and services in CF care. The educational elements of the meeting program are targeted to physicians, nurses, research scientists, research coordinators, geneticists, respiratory therapists, physical therapists, nutritionists, social workers, and pharmacists to share the latest research and advances in CF care. The meeting is held over three days with more than 60 concurrent sessions.

• Considerable visibility at the world’s largest CF-focused educational conference. • Exposure to more than 4,000 of the most highly regarded, active physicians, nurses, social workers, nutritionists, dietitians, respiratory and physical therapists, psychologists, psychiatrists, pharmacists, research coordinators, geneticists, and basic and clinical research scientists. • Opportunity to showcase your product(s) and/or services(s) to a broad and diverse audience of decision makers. • Listing on the NACFC official website, NACFC Final Program, Exhibitor Guide, and mobile app.

Learning Goal/Purpose The learning goal/purpose of this conference is to enable professional caregivers the opportunity to receive the most current and up-to-date information on the diagnosis and management of cystic fibrosis and to learn strategies for improving the lives of patients.

• Access to NACFC educational sessions (restrictions apply). • Access to pre and post conference registration mailing lists (applications required). • Support the CF Foundation, CF research, and CF care.

Program Responsibility The content and faculty of the scientific program of educational sessions and approval of arrangements for hosted functions are the sole responsibility of the CF Foundation, the NACFC Program Planning Committee, and the accredited provider.

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ATTENDEE DEMOGRAPHICS

Total NACFC Attendance Graph

4%

4%

3%

4%

Other

Research Coord Corporate MD, 2%

2012

3,653 3,830 3,557

1%

2%

1%

1% 1% 4%

2011

0%

2010

0% 7%

0%

2009

3,864

0% 0% 0% 0% 0%

2008 8%

3,800

4,000

4,200

23%

Netherlands France Other Countries* Germany Australia Italy Argentina Belgium Spain Ireland Brazil Mexico Norway Sweden

Country U.S. Canada United Kingdom Netherlands France Other Countries* Germany Australia Italy Argentina Belgium Spain Ireland Brazil Mexico Norway Sweden

# % 3,548 83.92 247 5.84 110 2.6 52 1.23 37 0.88 35 0.83 34 0.8 32 0.76 30 0.71 24 0.57 22 0.52 18 0.43 16 0.38 12 0.28 11 0.26 11 0.26 11 0.26

Corporate Nurs Research Assis

Corporate Phar

CF Advisory Boa

Center Secretar Psychologist Geneticist/Gen

MPH, MED, EdD Press

Discipline

United Kingdom

Academic Phar

Child Life Speci

Attendee Breakdown by Geographical Location

Canada

Academic Nurs

Physician Assis

Total Attendance

8%

U.S.

Physical Therap

Corporate Nurs

4,400

2015 Attendee by Geographic Location

Corporate PhD,

Non-Exhibiting 1%

6%

Sales/Marketin CFF Staff

2%

6%

2013

3,749

Social Worker 2%

2014

3,686

Year Year

Respiratory The 3%

2015

3,600

Academic PhD,

3%

5%

4,016

3,400

Manning Booth

2%

4,228

3,200

Academic Nurs

Nutritionist/Die

Attendees

3,000

Academic MD, M

ATTENDEE BREAKDOWN BY DISCIPLINE 2015 Attendee by Discipline

Academic MD, MD/PhD (Clinician) Academic Nurse Manning Booth Only Academic PhD, MD/PhD, MD (Basic Scientist) Nutritionist/Dietitian Respiratory Therapist Other Research Coordinator Corporate MD, MD/PhD (Clinician) Social Worker Sales/Marketing CFF Staff Corporate PhD, MD/PhD, MD (Basic Scientist) Physical Therapist Non-Exhibiting Company Representative Academic Nurse Practitioner Academic Pharmacist Corporate Nurse Research Assistant/Technician Corporate Pharmacist CF Advisory Board Center Secretary/Clinic Coordinator Psychologist Geneticist/Genetic Counselor Corporate Nurse Practitioner Physician Assistant Child Life Specialist MPH, MED, EdD Press Psychiatrist Center Director Emeritus (Retired)

5  |  2016 North American Cystic Fibrosis Conference

# 956 345 339 298 238 234 225 177 165 164 147 116 112 92 91 90 71 71 63 54 36 30 28 21 20 13 9 9 6 6 5

% 22.61 8.16 8.02 7.05 5.63 5.53 5.32 4.19 3.9 3.89 3.48 2.74 2.65 2.17 2.15 2.13 1.68 1.68 1.5 1.28 0.85 0.71 0.66 0.5 0.47 0.31 0.21 0.21 0.14 0.14 0.12

Psychiatrist

Center Director

2015 EXHIBITORS & SUPPORTERS

OCTOBER 8 - 10, 2015 – PHOENIX, ARIZONA PLATINUM SUPPORTERS

CF Services, Inc., A Walgreens Alliance Pharmacy

Gilead Sciences, Inc.

Vertex Pharmaceuticals

EXHIBITORS & SUPPORTERS ABBVIE

MONAGHAN MEDICAL CORPORATION

ACTAVIS PHARMA

MVW NUTRITIONALS, INC.

ALCRESTA PHARMACEUTICALS, INC.

NATIONWIDE CHILDREN’S HOSPITAL

AMBRY GENETICS

NDD MEDICAL TECHNOLOGIES

ANTHERA PHARMACEUTICALS

NIVALIS THERAPEUTICS, INC

CALLION PHARMA

NOVARTIS PHARMACEUTICALS CORPORATION

CHIESI USA, INC.

PARI PHARMA & PARI RESPIRATORY EQUIPMENT

CVS HEALTH

PFIZER, INC

CYSTIC FIBROSIS & FREEDOM PHARMACIES

PHARMACEUTICAL SPECIALTIES, INC.

DIGNITY HEALTH

PHILIPS RESPIRONICS

DIPLOMAT PHARMACY, INC.

POLYCHROME MEDICAL

DKBMED

PTC THERAPEUTICS

ELECTROMED, INC.

PULMOTRACE, INC.

ELITECHGROUP, INC.

RAPTOR PHARMACEUTICALS

ELSEVIER, OFFICE OF CME

RARE PATIENT VOICE, LLC

FOUNDATION CARE PHARMACY

RESPINNOVATION

GENENTECH

RESPIRTECH

HAYEK MEDICAL DEVICES

RHO RESEARCH

HILL-ROM

TLCRX PHARMACY

ILLUMINA, INC.

VALLEY CHILDREN’S HEALTHCARE

INTERNATIONAL BIOPHYSICS CORPORATION

VITALOGRAPH, INC.

IV SOLUTIONS

WESTMED, INC.

MED SYSTEMS, INC.

WILEY PUBLISHING

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IMPORTANT DATES & DEADLINES

NOW – September 24th

Apply to Exhibit General Housing Opens

June 21st

DUE: Right of First Refusal Forms - included in Exhibitor Prospectus. General Registration Opens

July 19th

Booth Number Confirmations sent to exhibitors DEADLINE for Exhibitor Applications with 50% payment

July 29

DEADLINE for Supporter Applications with 50% payment

th

Exhibitor Service Manual available

July 30th – September 24th

All Exhibitor Applications require 100% payment upon submission All Supporter Applications require 100% payment upon submission Exhibit Booth fee increase DEADLINE to Cancel or Downsize Exhibit Space/Support

August 19th

DUE: Graphics and designs for Support items submitted for approval DUE: Company descriptions and logos DUE: Exhibitor & Corporate Request for Function Space Applications

September 1st

DUE: Industry Supported Seminar Applications DUE: Exhibit booth Food and Beverage requests for approval

September 19

th

DUE: Early Move-in Requests DUE: Island booth designs for approval

September 21st September 24th September 26th

Housing Cut-off Late Registration Begins DUE: Final Payments for Exhibit Booths and Support Opportunities DUE: Showcase Theater Forms DUE: Mailing List Applications with payment

October 1st

DEADLINE for complimentary and discount ‘General Registrations’ and complimentary ‘Exhibit Booth Only’ Registrations (no exceptions - regardless of Support Level)

October 5th

GES Discount Deadline

October 26th

Exhibit Hall Set-up

October 27th – 29th

Exhibit Hall Open

CONTACT FOR INFORMATION

Questions regarding company participation at the 30th Annual North American Cystic Fibrosis Conference should be directed to:

Kristin Piasecki, Manager, Medical Meeting Logistics [email protected] 301-907-2695 Rebekah Kim, Senior Coordinator, Medical Meetings [email protected] 240-200-3763 www.nacfconference.org  [email protected] 7  |  2016 North American Cystic Fibrosis Conference

GETTING STARTED

Booth Space Fees

Exhibit Booths

Early Bird Rate

After August 19th

(per 10’ x10’)

(per 10’ x 10’)

In-line

$5,200

$5,500

Corner

$5,800

$6,100

Island

$6,600

$6,900

Booth Type

What’s Included With Your Booth • 3’ high black sidewall draping and 8’ high black backwall draping, where applicable. • 24-hour Exhibit Hall security.

Standard In-line and Corner Booths • Includes a booth identification sign with company name, approximately 7” high x 44” long, located at the top of the backwall drape. • Standard booths are 10’ wide x 10’ deep, with black 8’ high draped back wall and black 3’ high side rails (corner booths do not have side rails). • Maximum height of in-line and corner exhibits is 8’ tall, and may extend 5’ from the back wall. • Pop-up or other modular booths used by exhibiting companies in standard in-line and corner booths cannot exceed the back wall and side wall dimensions.

Island Booths

• Two ‘Exhibit Booth Only’ badges for every 10’ x 10’ booth space purchased. • Two ‘Guest Only’ badges. (Access during open exhibit hall hours only)

Booth Payment • 50% deposit of total booth fee is DUE if Exhibit Application is received on or before July 29th. • 100% of total booth fee is DUE if Exhibit Application is received on or after July 30th. • Final Booth payments are DUE September 24 . th

• If an application is not accepted, submitter will be notified and payment will be returned within 14 days of such notification. • All exhibiting costs are the responsibility of the participating company.

Booth Assignment Booth assignments will be made in the order applications are received and by previous years’ support level. Booth assignments will be made in descending order of the choices indicated on the application. If preferred booth space is not available, space will be assigned as appropriate. Exhibitors will receive e-mail confirmation of booth assignment by July 19th if full payment and completed application have been received prior to this date and have been accepted by NACFC Show Management. If deposits or full payments and completed applications are not received by July 19th, booth selection may be reassigned or denied without notification by NACFC Show Management.

• Must have access from all four sides and provide for reasonable see-through. Booths cannot be larger than 40’ x 30’ without prior approval from NACFC Show Management. • Booth height will not exceed 24’ from the floor to its highest point. Plans for all Island Booths must be submitted to NACFC Show Management for approval by September 19th.

Tabletop Exhibits • Tabletop exhibits are available for non-profit companies only. For tabletop exhibit information and pricing, please contact NACFC Show Management.

Cancellations & Downsizing Exhibiting companies wishing to cancel or reduce the size of their exhibit space are required to submit a written request. Official cancellation date will be in effect on the date written notification is received. All cancellations or requests for a reduction in exhibit space must be made in writing to the NACFC Show Management by August 19th.

Cancellation • Deposits and fifty percent (50%) of the total exhibit fee will be retained for cancellations received on or before August 19th. • One hundred percent (100%) of the total exhibit fee will be retained for cancellations received on or after August 20th.

Downsizing • Once an application is received, until August 19th, booth downsizing will be charged fifty percent (50%) of total booth fee, per 10 square feet reduced. • One hundred percent (100%) of the total exhibit fee, per 10 square feet reduced, will be retained for downsizing requests received on or after August 20th.

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GETTING STARTED

Installation & Dismantle of Exhibits

Exhibit Hall Schedule of Events*

Any exhibit not dismantled by 12:00 p.m. on Sunday, October 30th by the responsible company will be removed by GES. In such cases, full labor and storage charges (if applicable) will be assessed and billed to the exhibiting company. The CF Foundation, GES, nor the Orange County Convention Center will be responsible, and accept no liability for loss, damage, or deterioration to any and all property belonging to the exhibiting company. Installation and dismantling times are subject to change.

*Subject to Change

Installation Wednesday, October 26th................................. 8:00 a.m. – 5:00 p.m. • All empty crates must be labeled by 5:00 p.m. on Wednesday, October 26th in order for GES to clear them to lay the aisle carpet. Thursday, October 27th......................................8:00 a.m. – 11:00 a.m. • On Thursday, October 27th, exhibitors may continue setting up only within the confines of their booth space(s). • Any booth not set up by 11:00 a.m. on Thursday, October 27th will be removed from the floor, including materials and equipment belonging to the exhibiting company. Exhibitors not set up or installed on time may be required to forfeit their space and fees paid and/or jeopardize future booth space opportunities. • Exhibitors with more than 300 square feet of booth space that require early move-in Tuesday, October 25th must submit a written request to NACFC Show Management by September 19th.

Dismantle

Thursday, October 27th

11:15 a.m. – 4:15 p.m.

Exhibit Hall Open



11:15 a.m. – 1:45 p.m.

Cash Lunch/Visit Exhibits/ Poster Viewing



11:30 a.m. – 1:20 p.m.

Showcase Theater Presentations

Friday, October 28th

7:30 a.m. – 4:45 p.m.

Exhibit Hall Open



7:30 a.m. – 8:45 a.m.

Continental Breakfast/Visit Exhibits/Poster Viewing



12:15 p.m. – 1:35 p.m.

Cash Lunch/Visit Exhibits/ Poster Viewing



12:30 p.m. – 1:20 p.m.

Showcase Theater Presentations

Saturday, October 29th

7:30 a.m. – 2:20 p.m.

Exhibit Hall Open



7:30 a.m. – 8:45 a.m.

Continental Breakfast/Visit Exhibits/Poster Viewing



12:15 p.m. – 2:20 p.m.

Cash Lunch/Visit Exhibits/ Poster Viewing



12:30 p.m. – 2:20 p.m.

Showcase Theater Presentations

Service Contractor: Global Experience Specialists (GES)

Saturday, October 29th ...................................... 2:21 p.m. – 8:00 p.m. • Equipment/literature packing and/or dismantling of exhibits is not permitted until 2:21 p.m. on Saturday, October 29th. Exhibitors that begin dismantling early will jeopardize future booth space opportunities. • Empty packaging/crate return will commence Saturday afternoon after the Hall closes. Sunday, October 30th.......................................... 8:00 a.m. – 12:00 p.m. • All exhibit material must be packed and ready for removal from the Exhibit Hall by 12:00 p.m. on Sunday, October 30th.

• GES service details, pricing and order forms are in the Exhibitor Services Manual (available Summer 2016) or at GES Online at https://ordering.ges.com. • Information may also be obtained by contacting GES National Service Center by phone, 800-475-2098 (US), or 702-515-5970, (international); or via online chat, www.ges.com/chat. Service Center hours of operation are 6:00 a.m. – 5:00 p.m. PST.

What Will GES Do For You? • GES will furnish exhibitors with suitable booth space. All rental furnishings, sign and banner orders, exhibit services, booth cleaning, material handling, and labor will be contracted through GES. • GES will send an email notification when GES online and the Exhibitor Services Manual are available.

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EXHIBITOR RULES & REGULATIONS

Guidelines for Display The CF Foundation refers to the IAEE Guidelines for Display Rules and Regulations. Additional booth specification details will be included in the Exhibitor Service Manual.

Booth Perimeter Restrictions

Floor Covering

Exhibitors are prohibited from placing any structures or materials beyond the perimeters of their assigned booth space. NACFC Show Management reserves the right to make modifications to perimeter restrictions at any time and at their sole discretion.

Floor covering is mandatory for all exhibit booths and must cover the entire net square footage of contracted exhibit space. Exhibitors may use their own floor covering (non-residue carpet or hardwood) or order it from GES. Order forms will be included in the Exhibitor Services Manual. If floor covering is not installed by 4:00 p.m. on Wednesday, October 26th, GES will install carpet at the exhibitor’s expense.

Canvassing/Distribution of Materials & Advertising Interviews, demonstrations, event or function advertisements, and distribution of literature or give-away items must be done within the confines of the booth area assigned to exhibitor. Canvassing or distributing advertising materials outside exhibitor’s own booth is not permitted. Use of the CF Foundation name, logo, and/or conference name is not permitted without the written consent of the Foundation. Including, but not limited to, “North American Cystic Fibrosis Conference, NACFC, CFF, Cystic Fibrosis Foundation, CF Foundation, and 30th Annual NACF Conference.”

Food & Beverage

Compliance with Laws & Regulations

Force Majeure

Exhibitors must comply with all laws, by-laws, regulations, policies, ordinances, resolutions, and agreements of or with the Orange County Convention Center (OCCC), the city of Orlando, the state of Florida, and federal regulations. In addition, exhibitors will comply with the regulations of the local unions having jurisdiction at the OCCC. Materials used in all parts of exhibit construction, together with all curtains, draperies, and other decorative material, must be flameproof as prescribed by the fire ordinances currently in effect in Florida. All national and local fire laws and ordinances with respect to materials, electrical wiring, and other substances must be strictly observed. Exhibits are subject to inspection by appropriate officials before opening and at any time during the event to ensure compliance. Combustible material such as crepe paper, tissue paper, pine boughs, or leafy adornments will not be allowed at any time. All packaging containers, excelsior, and wrapping paper must be removed from the floor and may not be stored under tables or behind displays. Open flames, gasoline, kerosene, and other flammable or explosive substances are not permitted in the exhibit area. Popcorn, glitter, and helium balloons are not permitted in the Exhibit Hall. Individuals under the age of 16 years old are not permitted in the Exhibit Hall during installation and dismantling hours.

Food and beverages to be served, distributed, or consumed on the premises of the OCCC must be contracted through Centerplate, the exclusive catering company at the OCCC. Exhibitors must contact Lindsey Plunkett, exhibit catering sales manager at [email protected] for information. Exhibitors wishing to distribute food or beverages of any kind must submit a written request to NACFC Show Management by September 19th.

The CF Foundation will not be responsible in any event for any loss, damage, delay, or limitation related to acts of God, transportation stoppages, labor disputes, government restrictions, civil unrest, warfare, pandemic disease, acts of terrorism, unavoidable casualty, or any other similar or dissimilar causes beyond the control of NACFC Show Management. Exhibitor hereby releases and discharges NACFC Show Management and its officers, directors, employees, and agents from liability for any such loss, damage, delay, or limitation. Should any contingency prevent the holding of the exhibition, NACFC Show Management may retain such part of the fee specified in the exhibitor application.

Fundraising Collecting donations for the CF Foundation or any other fundraising activities are restricted. Please contact NACFC Show Management for information and approval of fundraising activities.

Furnishings & Decorations Exhibitors may rent furnishings and decorations from GES or provide their own. Material handling rates will apply if exhibitors bring their own furnishings or use an outside vendor.

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EXHIBITOR RULES & REGULATIONS

Hanging Signs Hanging signs are permitted for Island Booths only and must comply with the 24’ maximum Island Booth height allowance. The distance is measured from the floor to the top of the sign. Signs must be hung directly over contracted space.

Lead Retrieval Lead retrieval units can be ordered through the Exhibitor Services Manual on GES online.

Liability & Indemnification Exhibitor assumes entire responsibility and hereby agrees to protect, indemnify, defend, and hold harmless the CF Foundation, the Orange County Convention Center, GES, and their directors, officers, employees, agents, parents, and subsidiaries against all actions, claims, losses, and damages to persons or property. In addition, the Foundation, its directors, officers, agents, and employees, separately or collectively, GES or the OCCC, its directors, officers, agents, and employees separately or collectively, will not accept responsibility for any damage to, or the loss or destruction of, an exhibit or the property of an exhibitor, its agents or employees, or the death or injury of any person employed by exhibitor or for whom exhibitor is responsible or over whom exhibitor has control from fire, theft, accidents or other causes of any kind. All claims for any such loss, damage, destruction, death, or injury are expressly waived by exhibitor.

Product Samples/Promotional Items Distribution of samples is not specifically prohibited, but may not be appropriate. Promotional items that will be distributed within exhibit booths must be pre-approved. Exhibitors wishing to distribute items other than product samples or educational materials must submit a written request, including a product description, to NACFC Show Management by September 19th. Companies that do not submit for approval by the deadline are not guaranteed approval.

Restriction of Exhibits NACFC Show Management reserves the right to: (a) reject for any reason, without explanation, any exhibit application, company, product or service(s) for the NACFC; (b) reject, prohibit, restrict, or otherwise require modification of any exhibit for any reason including literature, displays, advertising, promotional items, conduct of persons, etc.; and (c) evict or bar any exhibitor whose exhibit, materials, or conduct is objectionable to NACFC Show Management for any reason. The volume of conversation, audio or audiovisual equipment, or any other activity shall be kept

at levels that do not disturb or intrude upon nearby exhibitors or other conference activities. Violation of any regulations on the part of exhibitor, its employees or agents shall void the right to occupy space, and such exhibitor will forfeit to the CF Foundation all monies that may have been paid. Exhibitor shall pay all expenses and damages that NACFC Show Management may incur for purposes of eviction.

Sales The direct sale of merchandise, including food and beverages, for cash or credit in the Exhibit Hall is prohibited; however, orders may be taken.

Security The CF Foundation will provide 24-hour security services during the entire exhibit period, including installation and dismantle periods. The Foundation will not be responsible for the loss of any material for any cause and urges exhibitors to exercise normal precautions to discourage loss due to theft or any other cause. Neither the Foundation nor the OCCC is liable for exhibitor property.

Smoking The NACFC has a no smoking policy for all NACFC meetings. Smoking is not permitted in the Convention Center.

Staffing Exhibits must be staffed and operational at all times during show hours. Exhibitors vacating their booth before the closing of each day or prior to the final close of the show may be denied exhibit space at future conferences and events.

Subletting Space No exhibitor shall assign, sublet, or apportion the whole or any part of their contracted space, or have any representatives, equipment or materials from any company other than their own in the booth without written approval from NACFC Show Management. Failure to inform NACFC Show Management may result in immediate eviction at exhibitor’s expense.

Utility Services & AV Equipment All electrical, plumbing, telephone services, internet services, telecommunications, and audio visual equipment needs must be requested through the specified contractor identified in the Exhibitor Services Manual. Order forms for these services are included in the Exhibitor Services Manual.

11  |  2016 North American Cystic Fibrosis Conference

SHOW YOUR SUPPORT

Maximize Your Company’s Visibility at the 2016 NACFC with Support and Marketing Opportunities! The CF Foundation appreciates the significant role and contributions of its corporate supporters and exhibiting companies toward the success of the NACFC. The Foundation is committed to assisting corporate supporters and exhibiting companies with meeting their business goals at the NACFC by offering a wide variety of exciting support opportunities. This brochure lists these opportunities, which are designed to meet the diverging needs

of conference supporters and exhibiting companies, based on their individual policies and objectives. The CF Foundation is also willing to consider new ideas or suggestions that will aid your company in maximizing visualization to NACFC attendees. To discuss new or existing NACFC support opportunities, please contact [email protected].

Support Levels

Support levels are determined by total contributions, including Exhibit Booth fees, but excluding Meeting Space fees.

All Support Levels include the following: • Recognition in the NACFC Official Preliminary Program*, Final Program, and Exhibitor’s Guide • Recognition on the NACFC website • Recognition on entrance unit to Exhibit Hall • Recognition in NACFC mobile app with customizable company page

Platinum

Gold

• Minimum of $150,000.00 support is required to qualify

• Minimum of $75,000.00 support is required to qualify

• Platinum lapel pins with 2016 NACFC logo

• Gold lapel pins with 2016 NACFC logo

• Six complimentary general conference registrations**

• Four complimentary general conference registrations**

• Five general conference registrations at discounted rate**

• Three general conference registrations at discounted rate**

• Special acknowledgement/company logo in Preliminary* & Final Programs

• Advance booth selection in 2017

• Option for housing in the Headquarter Hotel if support is confirmed by June 29 , 2016

Silver

• Advance booth selection in 2017

• Minimum of $25,000.00 support is required to qualify • Silver lapel pins with 2016 NACFC logo

Diamond

• Three complimentary general conference registrations**

• Minimum of $100,000.00 support is required to qualify • Diamond lapel pins with 2016 NACFC logo

• Two general conference registrations at discounted rate**

Corporate

• Five complimentary general conference registrations** • Four general conference registrations at discounted rate**

• Minimum of $10,000.00 support is required to qualify

• Special acknowledgement/company logo in Preliminary* & Final Programs

• Two complimentary general conference registration** • One general conference registration at discounted rate**

• Advance booth selection in 2017

Nonprofit/Jr. Contributor • Minimum of $5,000.00 support is required to qualify

*If support is secured on, or before, July 29th st

**If registration is secured on, or before, October 1 (no exceptions - regardless of Support Level)

• One complimentary general conference registration** • One general conference registration at discounted rate**

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NACFC SUPPORT & MARKETING OPPORTUNITIES

Closing Event...................................................................................................$300,000

WiFi Lounge in the Exhibit Hall.................................................. $80,000

Culminating conference week, this modern dinner and dancing event routinely draws nearly 1,200 participants. By supporting this event your company will have lasting exposure. Recognition: Prominent signage and banner at event and on food and beverage stations. Napkins and beverage cups with company or product logo may be provided for beverage stations by company.

Attendees will enjoy a comfortable and convenient setting to wirelessly connect to their laptop or wireless devices. Located in the Exhibit Hall, the lounge-style setting is an extremely popular gathering and networking spot for attendees. Recognition: Banner and signage in the lounge area with company or product logo and link to company website. You can broaden recognition by providing refreshments in the lounge. Contact NACFC Show Management for other WiFi support opportunities.

Welcome Reception................................................................................$200,000 This popular networking event is a great way to set the pace for company exposure at the NACFC. Food, beverage, and entertainment make this a must for more than 3,000 attendees. Recognition: Prominent signage and banner displayed during the event and on food and beverage stations. Napkins and beverage cups with company or product logo may be provided by company.

Roundtable Session.................................................................................... $65,000 This very popular roundtable discussion session routinely attract up to 1,000 attendees. Your company will be recognized through prominent signage displays. Feel free to provide napkins and cups at the buffet luncheon with your company logo for more visibility.

*Session Recordings Website.....................................................$125,000

Baggage Check/Luggage Tags.................................................... $60,000

The website provides access to the NACFC scientific presentations with audio synchronized to the speaker slides. Fully registered attendees receive complimentary access. Company logo will be displayed on the website containing the session recordings. Gain abundant exposure through this must-have educational resource for NACFC attendees.

Provide complimentary baggage and coat check to all conference attendees. For long lasting visibility add luggage tags at the check in counter. Company opting for baggage check will have right of first refusal for luggage tags.

e-Connect..............................................................................................................$110,000 Display your company logo on e-Connect terminals in high traffic areas. e-Connect is a central hub for NACFC activity. Attendees access their conference itineraries, view and print NACFC materials and print airline boarding passes. Your company will be recognized through prominent signage around the e-Connect area. Your company may provide mouse pads for additional exposure.

Conference Bags.........................................................................................$100,000 Conference bags are distributed to every fully registered participant. These bags will contain the Final Program, various sponsored items, and other materials vital to the conference. Participants use the bags on-site to carry essentials like water bottles, notepads, pens, business cards, laptops, and other accessories. NACFC bags are a favorite “take home” item among participants. Place your company logo on the bag for recognition.

Registration Electronic Check-in............................................$100,000 Again this year, attendees can check in electronically. Companies can be recognized at check-in terminals via screen savers and background logos. Your company may provide mouse pads.

*Pediatric Pulmonology Flash Drive Supplement..... $60,000 The flash drive contains the 2016 NACFC accepted abstracts and symposium presentation summaries in a searchable format. Attendees use the flash drive before, during, and after the conference. Recognition: logo on the top banner (and a link to your website, if desired) and a section within the flash drive with links to company videos. Company logo can also be placed on the outside of the flash drive and on its packaging.

Mobile App............................................................................................................ $50,000 Bring your company to the attendees through the NACFC mobile app. Available to all attendees with an iPhone, iPad, Blackberry, and Android to download. Recognition: splash page and banner on the app. Make you banner interactive! One click can send attendees directly to your website. Attendees will use the app before, during, and after the conference. A webinar will be available approximately one month before the conference begins, allowing for even more exposure.

*Attendee Resource Center (ARC)........................................ $50,000 This is a one-stop-shop for continuing education credits, conference and session surveys, handouts, abstracts, accepted case submissions, and session recordings. Attendees will access the ARC before the conference (as applicable), onsite, and after the conference. Recognition: Splash page with company name/logo at each computer, signage onsite and recognition in Final Program.

*Exclusive Opportunity 13  |  2016 North American Cystic Fibrosis Conference

NACFC SUPPORT & MARKETING OPPORTUNITIES

*Badge Lanyard............................................................................................... $45,000

*Poster Sessions............................................................................................. $70,000

Participants are required to wear a badge at all times during the NACFC. Gain high visibility for your company by supporting the badge lanyards worn by attendees. Recognition: company name/ logo on 4, 000+ lanyards made available to all conference attendees.

One of the most anticipated sessions during the NACFC can be yours to support. Be recognized through signage at the daily poster sessions. Poster sessions attract thousands of attendees and will provide high traffic for your company’s logo. Includes e-Posters: Take poster sessions virtual and provide attendees with a one-stop shop to view posters electronically. e-Posters are accessible during all open Exhibit Hall hours. Thursday, October 27th 11:15 a.m. – 1:45 p.m......... Poster Session I

Hospitality Breaks........................................................... $50,000 (per break) $80,000 (for two or more) Morning and afternoon coffee breaks are provided to NACFC attendees between sessions. Your company logo will be displayed on signage on and around the food and beverage stations. You can also add napkins and beverage cups with your company logo for increased recognition. Thursday, October 27th 9:15 a.m. – 9:45 a.m., & 3:25 p.m. – 4:20 p.m. Friday, October 28th 10:00 a.m. – 10:20 a.m., & 3:20 p.m. – 3:50 p.m. Saturday, October 29th 10:00 a.m. – 10:20 a.m.

Friday, October 28th 7:30 a.m. – 8:45 a.m............. Poster Viewing 12:15 p.m. – 1:35 p.m......... Poster Viewing 4:00 p.m. - 6:00 p.m............. Special Basic Science Poster Session Saturday, October 29th 7:30 a.m. – 8:45 a.m............. Poster Viewing 12:15 p.m. – 2:20 p.m......... Poster Viewing

Hydration Station.............................................................$6,000 (one station)

*Reusable Water Bottle....................................................................... $45,000 Show your company’s commitment to “going green” with your company or product logo printed on refillable water bottles that are included with all full conference registrations.

City Map/Program-At-A-Glance................................................. $35,000 Pocket-sized guide with conference schedule and Orlando highlights such as restaurants, shopping and official conference hotels. These guides will be provided to every attendee in their conference badge. Your company logo will be placed prominently on the map.

Speaker Ready Room............................................................................... $30,000 Treat more than 500 NACFC faculty members to light refreshments while gaining exposure for your company by supporting the Speaker Ready Room. Recognition: company name or logo displayed as splash page on 24 computers terminals; signage in the room and acknowledgement in Final Program.

Hydration stations will be placed in a variety of highly visible locations throughout the convention center. Hydration station water will be infused with fresh citrus for a refreshing treat! Make a green statement by providing support for these refillable hydration stations. Recognition: Company or product logo on the NACFC website and signage at each station. Multiple locations available.

*Presentation Management System.................................... $15,000 NACFC faculty will post their presentations on this website prior to the conference, which opens approximately two months prior to the NACFC. Your company logo will be placed directly on the presentation management system website, providing significant exposure.

*Relaxation Station..................................................................................... $15,000 Guaranteed to be one of the most popular booths at the conference, attendees can enjoy a brief, refreshing massage by a licensed professional massage therapist. Increase your company’s exposure by providing t-shirts with your corporate logo.

Carpet Logo (10’ x 10’ logo).......................................................... $20,000 Carpet logos are a prominent visual force for over 4,000 attendees; located directly at the entrance to the exhibit hall. Your company name/logo will be the first thing attendees see as they enter the exhibit hall each day! Show your support with an exclusive carpet logo display or share with other NACFC Supporters.

*Exclusive Opportunity 14  |  2016 North American Cystic Fibrosis Conference

NACFC SUPPORT & MARKETING OPPORTUNITIES

*Power Bar............................................................................................................. $10,000

Attendee Mailing List.............................................................................. $2,000+

Attendees recharge at the very popular Power Bar. Power is available to charge a variety of hand-held electronics such as multi-media devices, cell phones and laptops. These stations will be equipped with numerous charging connectors designed to fit most small electronic devices. Surge protectors for charging laptops will also be available. Recognition: Prominent signage on and around the power station, company or product logo on each charging unit. Expand your recognition by providing refreshments at the “bar.”

Don’t wait until you are onsite to start promoting your company’s presence at NACFC. Start generating leads by drawing attention to the product(s) and/or service(s) your company will be highlighting in Orlando. Mailing List Applications and payment are due by September 26th.

*Junior Investigators Sessions..................................................... $10,000

Final Program Acknowledgements.............................................$800+ The NACFC will sell acknowledgement space within its Final Program. Each registered attendee will receive a Final Program in their conference bag. Gain maximum visibility through acknowledgement pages. Contact us at [email protected].

This non-CME session highlights the abstracts of junior investigators in the area of basic science and clinical research. The top five abstracts in each category will be chosen for a 5-10 minute oral presentation at special sessions. Awards will be furnished by your company name or product. Award certificate with your company name will be presented to winners.

Exhibitor & Supporter Signage.... Contact CFF for Pricing

*Medical Bag....................................................................................................... $12,000

Regulatory Requirements & Professional Codes

Be the first message attendees see when they receive their Medical Bag in their hotel room on Thursday, October 27th. Your company logo will be placed prominently on the outside for maximum exposure. Includes (1) insert; company to provide 3,000 copies of insert.

Medical Bag Inserts**.............................................................. $8,000 (each) Your company provides 3,000* copies of a flyer, up to 8.5” x 11”, to be included in a hotel room drop Thursday, October 27th. All flyers must be approved by the CF Foundation. A maximum of 10 inserts will be accepted on a first-come, first-served basis. *Please be advised that quantities may change due to hotel room block fluctuation. **A minimum of 4 inserts must be reserved for the Medical Bag to be delivered.

Showcase Theaters................................................. $8,000 (per session) Scheduled in the Exhibit Hall, 20-minute showcase theaters give attendees an opportunity to learn about the most recent developments regarding your company or products. Presentations are non-CME and must remain within product labeling. One small riser, projector and one LCD screen, poster board, lectern, handheld microphone, and an easel will be provided; additional equipment must be arranged and paid for by the supporting company. Forms are due by September 26th; contact us at [email protected] for availability. Showcase Theater schedule is published in Exhibitor Guide.

*Pen for Tote Bag.............................................................................................. $8,000

The Orange County Convention Center offers unique and visible signage opportunities. We will offer window clings, electronic monitors, signage and banners. Contact us at [email protected] for pricing information.

The NACFC adheres to Accreditation Council for Continuing Medical Education regulations to provide continuing education units for most sessions. ACCME regulations require specific measures to maintain accreditation, some of which pertain to industry support. PhRMA and AdvaMed have developed voluntary guideline principals to industry’s marketing relationships with health care professionals. Please check with your company’s regulatory or compliance department before applying for support opportunities. NACFC adheres to all state and federal regulations surrounding regulatory requirements and professional codes.

Sunshine Act (Open Payments) The Sunshine Act is a common name for the National Physician Payment Transparency Program or Open Payments. and a section of the Patient Protection and Affordable Care Act of 2010. The Sunshine Act is a federal law that requires certain pharmaceutical and device manufacturers to annually report to the secretary of Health and Human Services certain payments or other transfers of value (both direct and indirect) furnished to U.S. licensed physicians and teaching hospitals. The Sunshine Act does not ban any payments but simply requires reporting of payments and transfers of value. For more information go to https://www.cms.gov/openpayments/index.html.

Something everyone needs! Your company or product logo will be printed on pens and provided in the tote bags for all conference attendees. *Exclusive Opportunity 15  |  2016 North American Cystic Fibrosis Conference

EDUCATIONAL SESSION SUPPORT

Session Support

Session Support Opportunities

The conference is designed to educate physicians and allied health professionals on recent advances in basic and clinical research related to CF, and to discuss issues, problems and new approaches to the diagnosis and clinical management of CF patients. The conference is directed to physicians, other health care professionals and researchers involved in CF.

Plenary Sessions

Education Support Guidelines

Thursday, October 27th – Saturday, October 29th Your company name will be visible at one or each of the keynote topics. Plenary sessions are a highlight of the NACFC and can typically draw nearly 3,500 attendees.

Short Courses Wednesday, October 26th

CME credit will be provided for most sessions. Educational grant support is accepted after the conference sessions are programmed. Educational grants are used to help offset session costs, such as speaker honoraria and expenses, session catering, audio/visual equipment, syllabus/handout production, as well as to contribute to the overall financial viability of the conference. In accordance with its adherence to the accreditation requirements and policies of the ACCME, control of the development and operation of all NACFC educational sessions are through the joint providership of Medical Education Resources and the CF Foundation. MER is accredited by the ACCME to provide continuing medical education for physicians. MER and the CF Foundation will ensure that all CME activities are fair-balanced, scientifically rigorous, and appropriate for CME.

Choose one or more 4-hour mini-courses ranging in size from 40-120 people each. Short courses are intended to instruct and provide focused education about a specific topic matter. Two refreshment breaks are provided.

No corporate or product-specific advertisements, invitations to events or promotional literature are permitted in NACFC educational sessions. Additionally, companies may not engage in any activity to drive attendance to specific sessions.

These sessions offer the latest information on basic scientific research, clinical research, clinical trials and practices, behavioral aspects of CF, and other areas of current interest. There are 21 symposia and 30 workshop sessions from which to choose. Average attendance ranges from 150-1,000 people, depending on the subject matter.

A letter of agreement is required by Medical Education Resources for support of the educational sessions that will offer CME credit. Support for these CME sessions will not create any payments or transfers of value that will be reportable to the CMS Open Payments program.

Special Classes Wednesday, October 26th Special classes are 8-hour courses geared toward training that includes targeted instruction on a specific area of interest. The audience size ranges from 40-120 people. Select one or more of the courses. Two coffee breaks, breakfast, and lunch are provided.

Symposia & Workshop Sessions Thursday, October 27th – Saturday, October 29th

Contact us at [email protected] for more information.

Educational Session signage will be as follows: This session (course) is supported by an educational grant from (company name). Medical Education Resources and the Cystic Fibrosis Foundation take responsibility for the content and scientific integrity of this CME activity. All conference sessions are controlled by MER and the CFF and are free of the control of commercial interests.

*Please note that due to recent guideline changes, corporate logos are no longer allowed to be displayed along with recognition of support.

16  |  2016 North American Cystic Fibrosis Conference

FUNCTION SPACE & INDUSTRY SUPPORTED SEMINARS

Function Space Requests

Available Function Hours

The CF Foundation permits Exhibitors and Supporters to reserve space for private functions and Industry Supported Seminars. Companies wishing to hold functions in conjunction with the NACFC must first obtain NACFC Show Management approval. The CFF is holding limited space at the official conference hotels for corporate and affiliate functions. While every effort will be made to secure function space at the Headquarter Hotel, given the high number of requests and limited space, your functions may be assigned to an alternate official conference hotel. Groups are strictly prohibited from holding functions at hotels other than where authorized and assigned by NACFC Show Management. Organizations that have been granted approval for function space will receive a contract from the hotel detailing food, beverage, audio visual and/or other services the hotel is providing. Payment for private functions is the responsibility of the booking company. Booking function space constitutes an agreement that your company will be responsible for any damages incurred by your guests, invitees, employees, independent contracts, or other agents under your control. Advertising of activities to be held in meeting space may be done through distribution of individual invitations, printed flyers, and the like, at all official conference hotels. Promotions and marketing items that will be distributed to NACFC attendees must be pre-approved by NACFC Show Management prior to production. Arrangements for distribution of such materials are the exhibitor or supporters’ responsibility and expense. No signs, pamphlets, flyers, etc. promoting such activities will be allowed in the public areas of the Orange County Convention Center or any official conference hotels.

Tuesday, October 25th.......................................3:00 p.m. – 11:59 p.m. Wednesday, October 26th............................. 7:00 a.m. – 11:59 p.m. Thursday, October 27th.....................................8:00 p.m. – 11:59 p.m. Friday, October 28th.............................................8:00 p.m. – 11:59 p.m. • Organizations must adhere to CFF regulations and may not hold functions that compete or conflict with NACFC programming and interests. • Companies hosting corporate functions are responsible for all costs associated with all services ordered. • Function space for affiliate groups is available on a first-come, first-served basis during the above dates and times ONLY.

Industry Supported Seminars The CF Foundation is pleased to provide a venue for Industry Supported Seminars in conjunction with the NACFC. An ISS is any autonomous, CME or CEU-accredited educational activity that is independently organized and offered by another organization. The ISS is not part of the 2016 NACFC Official Conference Program, will not compete or conflict with NACFC programming and interests, and is not sponsored or endorsed by the CFF. Organizations interested in hosting an ISS must submit a written application to the CF Foundation by September 1st. For more information about hosting an Industry Supported Seminar, contact [email protected] or 301-907-2593.

17  |  2016 North American Cystic Fibrosis Conference

PROGRAM-AT-A-GLANCE as of March 17; subject to change.

9) SW/PSYCH: Reducing Isolation: Connecting Patients & Families (A. Daggett, C. Toth) 10) PT & RT: *Exercise: Current Research in Exercise & Physical Activity in People With CF (J. Agnew, J. Schneiderman) 11:15 a.m. - 1:45 p.m. Poster Session I (All numbers) 11:15 a.m. - 1:45 p.m. Lunch Break/Visit Exhibits/View Posters 11:15 a.m. - 4:15 p.m. Exhibit Hall Open 2:00 p.m. - 3:25 p.m. Symposium Session I 1) APP&D: *Mucociliary Transport & Ion Flux: Lessons Learned From New Models & New Drugs (A. Cantin, B. Hurley) 2) CFTR: Understanding Missense & Misfolding Mutations in CFTR (M. Amaral, B. Kleizen) 3) CLIN: Review of the New CF Diagnosis Consensus Guidelines (N. Derichs, C. Ren) 4) INF/MIC: *Non-tuberculous Mycobacteria: Now That the Guidelines Are Published (M. Aitken, S. Martiniano) 5) NRS: *Growing Older With CF (P. Pfahler, R. Wetmore) 6) NT: *CFTR Gene Repair & Replacement: New Progress Toward Cystic Fibrosis Therapy (B. Davis, J. Engelhardt) 7) PT & RT: *The Management of the Critically Ill CF Patient (B. Button, A. Rao) 3:25 p.m. - 4:20 p.m. Coffee Break & Poster Viewing 4:30 p.m. - 6:00 p.m. ALL: Plenary Session I: A Cure For All: Leaving No One Behind (E. Sorscher) ALL: Welcome Reception 6:15 p.m. - 7:45 p.m.

FRIDAY, OCT. 28 7:00 a.m. - 6:00 p.m. General & Exhibitor Registration (OCCC) 7:30 a.m. - 8:45 a.m. Poster Viewing/Continental Breakfast/View Exhibits 7:30 a.m. - 4:45 p.m. Exhibit Hall Open 9:00 a.m. - 10:00 a.m. ALL: Plenary Session II: Worldwide Collaboration: We Are All In This Together (J. Pilewski/P. Flume, C. De Boeck) 10:00 a.m. - 10:20 a.m. Coffee Break 10:30 a.m. - 11:55 a.m. Symposium Session II 8) CFTR: Corrector MOA: No Longer MIA (A. Aleksandrov, P. Thomas) 9) CLIN: *CF Gastroenterology Comes of Age: Best Practices & DIGEST (M. Kowalczyk, S. Lusman) 10) CLIN: *The Challenging Landscape of Cost of Care in CF (TBD) 11) CLIN-NRS-SW/PSYCH: *Collaborative Mental Health Care: It Takes a Village (K. Killeen, K. Reno) 12) GMS: CF Models: From Cell to Organism (J. Beekman, L. Clarke) 13) INF/MIC: Hot Off the Press: New Insights Into CF Lung Infections (D. Nguyen, A. Hauser) 14) NT: Small Molecule Intervention for Uncommon CFTR Mutations: Achieving Treatment for Every CF Patient (D. Bedwell, I. Sermet-Gaudelus) 12:15 p.m. - 1:35 p.m. Lunch Break/View Posters/Visit Exhibits 12:15 p.m. - 1:35 p.m. U.S. Pediatric/Adult/Affiliate Program Directors Meetings

12:15 p.m. - 1:35 p.m. Brown Bag Luncheons 1) GMS: Genetics & Genetic Counseling for CF (K. Raraigh) 2) INF/MIC: *Fungal Infection: Where Are We Now-Where Are We Going? (L. Saiman ) 3) NRS-PT & RT: *One Size Does Not Fit All: CF Strategies to Improve Outcomes (S. Gray, M. Lester) 4) NTR: Nutrition-focused Physical Assessment (M. Oberle, P. Rose) 5) SW/PSYCH: Mental Health Guidelines: Lessons Learned the First Year (A. Moog) 12:15 p.m. - 1:35 p.m. Junior Investigators Best Abstract in Basic Science 12:15 p.m. - 1:35 p.m. Junior Investigators Best Abstract in Clinical Research 2:00 p.m. - 3:20 p.m. Workshop Session II 11) APP&D: Mucins & Mucus in CF (B. Button, C. Evans, A. Livraghi) 12) CFTR: Understanding & Stabilizing CFTR Structure (C. Broulette, C. Govaerts) 13) CLIN: Quality Improvement & Best Practices in Clinical Research (D. Durham, K. Poch) 14) CLIN: Endocrine (K. Larson-Ode, V. Tangpricha) 15) CLIN: *Pulmonary Medicine (M. McCown, M. Pricket) 16) INF/MIC: Microbial Ecology in the CF Airway (L.Caverly, B. Coburn) 17) NRS: *Supporting Patients With Advanced Disease (ME Corrigan, L. Fries) 18) NT: *Biomarkers to Evaluate Treatment (N. Hamblett, A. Ziady) 19) NTR: *Nutrition Research (D. Kalnins, K. Maguiness) 20) PT & RT: *AWC: So Many Devices, So Little Evidence: Choosing the Best AWC Method (D. Conrad, D. Eidson) 3:20 p.m. - 3:50 p.m. Coffee Break /Poster Viewing 4:00 p.m. - 6:00 p.m. Fellows Sessions (Pediatric & Adult) 4:00 p.m. - 6:00 p.m. Special Basic Science Poster Session 4:00 p.m. - 6:00 p.m. Caregivers Sessions by Discipline-See Caregivers Program-at-a-Glance Speakers & Fellows Reception (By Invitation Only) 6:00 p.m. - 7:30 p.m.

SATURDAY, OCT. 29 6:30 a.m. - 3:00 p.m. General & Exhibitor Registration (OCCC) 7:30 a.m. - 8:45 a.m. Poster Viewing/Continental Breakfast 7:30 a.m. - 2:20 p.m. Exhibit Hall Open 7:30 a.m. - 8:45 a.m. Consultation Clinics 1) NRS: Palliative Care Challenges (J. Goggins, M. Hendry) 2) NTR: GI/Nutrition (M. Marcus, J. Sullivan) 3) SW/PSYCH: Psychosocial Soup: Sorting Out Roles With Challenging Cases (J. Cary, N. Concotelli, M. Pedrotty) 4) PT & RT: Success Stories Using Adherence Strategies (W. Demeray, B. Owens) 9:00 a.m. - 10:00 a.m. ALL: Plenary Session III: Observational Research (W. Morgan) 10:00 a.m. - 10:20 p.m. Coffee Break

18  |  2016 North American Cystic Fibrosis Conference

10:30 a.m. - 11:50 a.m. Workshop Session III 21) APP&D: Ion & Fluid Transport in CF (R. Pickles, V. Saint-Criq) 22) CFTR: Rare CFTR Mutants & How to Fix Them (K. Aurora, L. Galietta) 23) CLIN: *Epidemiology in CF (B. Quon, G. Sawicki) 24) CLIN: *Emerging Issues in CF Lung Transplantation (A. Faro, J. Pilewski) 25) CLIN-NT: Imaging Modalities in CF (S. Nagle, J. Woods) 26) GMS: CF Model Systems (S. Burkitt, A.C. Naren) 27) INF/MIC: *Epidemiology & Management of Infection (C. Keating, M. Parkins) 28) NRS: *Appreciating the Complexity With Transplant Referrals (S. Sullivan, E. Wells) 29) NT: Emerging Strategies for Correcting the Basic CFTR Gene Defect (A. Firth, P. McCray, E. Mendenhall) 30) NTR-SW/PSYCH: Dynamic Duo: SW & RD Collaboration on Challenging Cases (E. McElroy, S. Muenzel, J. Taylor) 12:15 p.m. - 1:35 p.m. Luncheon Roundtables 12:15 p.m. - 1:35 p.m. Brown Bag Luncheons 6) APP&D: Multiple Breath Washout & LCI: Measurement & Interpretation (F. Ratjen, TBD) 7) CLIN: Recruiting & Referrals (B. Noren, K. Simmons) 8) CLIN: The Orkambi Effect: Drug & Disease Interaction (Z. Bhakta, R. Pettit) 9) NRS: The Struggle for New Therapies: Obtain, Maintain & Sustain (C. Chacon, A. Willis) 10) NTR: *Addressing Challenging Feeding Behaviors (S. Salzedo, S.Filigno) 11) SW/PSYCH: Sexuality, Intimacy & Reproduction (E. Cohen-Engel, J. Nash) 12) SW/PSYCH: *Employment & Education Advocacy for Adults with CF (A. Lew, B. Sufian) 12:15 p.m. - 2:20 p.m. Lunch Break/View Posters/Visit Exhibits 12:15 p.m. - 2:05 p.m. U.S. Center & Program Directors Meeting 2:20 p.m. Exhibit Hall Closed 2:30 p.m. - 3:55 p.m. Symposium Session III 15) APP&D: *The Interface of Innate Immunity in the CF Lung (S. Elborn, D. Nguyen) 16) CLIN: *Women’s Health (J. Billings, R. Jain) 17) CLIN: The Role of CFTR in Beta-cell Function (M. Rayas, A. Kelly) 18) INF/MIC: Challenges in CF Microbiology: Light Amid the Fog (L. Hoffman, M. Tunney) 19) NTR: *Update on Enteral Feeding & Colorectal Cancer Screening Guidelines (D. Agrawal, J. Dorsey) 20) PT & RT: *Presentation of Best Exercise Practices Throughout the Lifespan (L. Lands, J. Lohman) 21) SW/PSYCH: Transition: Trials, Tribulations & Truimphs (D. Genyk, A. Montgomery) 4:15 p.m. - 6:15 p.m. Caregivers Sessions by Discipline-See Caregivers Program-at-a-Glance 7:30 p.m. Closing Event CONFERENCE ADJOURNS

PLEASE NOTE: Sessions with an * before the title have been suggested for live streaming. These suggestions are not final. They are being vetted by the CFF. The final list will be distributed when available.

TUESDAY, OCT. 25 3:30 p.m. - 7:30 p.m. General & Exhibitor Registration at the Orange County Convention Center (OCCC) 3:30 p.m. - 7:30 p.m. Remote General & Exhibitor Registration (TBD) Large Group Exhibitor Registration (By Appointment Only)

WEDNESDAY, OCT. 26

Special Session by Invitation Only: Quality Improvement (M. Godfrey) Poster Set-up

7:00 a.m. - 6:00 p.m. General & Exhibitor Registration (OCCC) 7:00 a.m. - 6:00 p.m. Remote General & Exhibitor Registration (TBD) 8:00 a.m. - 5:00 p.m. Special Classes 1) NRS: Nuts & Bolts for New CF Caregivers (E. Bryson, L. Feenan) 2) PT & RT: Advanced Airway Clearance Techniques Throughout the Lifespan (B. Button, M. McIlwaine) 11:00 a.m. - 3:00 p.m. Psychosocial Working Group 12:30 p.m. - 2:30 p.m. CF Registry Meeting 3:30 p.m. - 7:30 p.m. Short Courses 1) CLIN: Nuts & Bolts for the New Research Coordinator (C. Dunn, K. Hilliard) 2) CLIN-NRS: Walking the Therapeutic Tight Rope (J. Weiland, D. Young) 3) CLIN-SW/PSYCH: Patient-centered Communication Strategies to Enhance Partnerships (S. Larowe) 4) CLIN-SW/PSYCH: Depression & Anxiety Treatment in CF: Therapy, Medications & Preventative Strategies (A. Georgiopoulos, B. Smith) 5) SW/PSYCH: *No More NO! Helping Parents Gaining Cooperation With Self Care & More (L. Greene, J. Cary, A. Tluczek) 6) NTR: Advanced Nutrition (L. Mannik, E. Sefrood) 7) PT & RT: Comprehensive Exercise Testing & Prescription Implementation (F. Cerny, TBD) 3:30 p.m. -7:30 p.m. 4:00 p.m. - 6:00 p.m.

THURSDAY, OCT. 27 7:00 a.m. - 6:00 p.m. General & Exhibitor Registration (OCCC) 7:30 a.m. - 9:30 a.m. Physicians Grand Rounds 7:30 a.m. - 9:30 a.m. Caregivers Sessions by Discipline-See Caregivers Program-at-a-Glance 8:00 a.m. - 10:00 p.m. Special Interest & Related Study Groups 9:00 a.m. - 10:00 a.m. Poster Set-up 9:15 a.m. - 9:45 a.m. Coffee Break 9:45 a.m. - 11:05 a.m. Workshop Session I 1) APP&D: Bench to Bedside in CF Inflammation (M. Konstan, D. Nichols) 2) CFTR: CFTR 2016 (A. Abu-Arish, J. Hong) 3) GMS: CF Disease Modifiers: From Genes to Function (S. Blackman, C. Hodges) 4) CLIN: Gastroenterology & Hepatology (M. DiMagno, A. Freeman) 5) CLIN: Noteworthy Publications 2015-2016 (S. Bell, B. Ramsey) 6) INF/MIC: Pathogenesis of Airway Infection (K. Hisert, D. Wozniak) 7) NT: *Clinical Advances in Cystic Fibrosis Research (C. De Boeck, D. Dorgan) 8) NRS: *The Minute Clinic: Partnering to Create the Ideal Visit (C. George, W. Gore)

30 TH ANNUAL NORTH AMERICAN

EXHIBITOR APPLICATION & AGREEMENT OCTOBER 27-29, 2016 • OR ANGE COUNT Y CONVENTION CENTER • ORL ANDO, FL

EXHIBITOR APPLICATION & AGREEMENT COMPANY INFORMATION

PAYMENT INFORMATION

Applying as: Company Name

Company Name (as displayed on printed materials)

 Pharmaceutical Company

 Pharmacy

 Medical Device Company

 Other

Title

EXHIBIT SPACE SELECTION

Booth Type

Contact Name

Early Bird Rate After August 19th (Per 10' X 10')

(Per 10' X 10')

 In-line

$5,200

$5,500

 Corner

$5,800

$6,100

 Island

$6,600

$6,900

*Please note that if the configuration of your booth impacts the sale of another booth due to reconfiguration of the floor plan, there will be a 50% fee per 10’ x 10’ removed. If a corner booth is larger than 10’ x 10’ and includes additional In-line booths, both 10’ x 10’ spaces are charged at the Corner Booth rate.

Preferred Booth Location: If preferred space is not available, comparable space will be assigned.

Email Phone (Office)

Phone (Cell)

Amount Due: 50% (due if submitted on or before July 29 th)

$ ____________

100% (due if submitted on or after July 30 th)

$ ____________

FINAL payments are DUE September 24, 2016 Amount Included

$ ____________

Form of Payment:  Check (Make checks payable to Cystic Fibrosis Foundation, Attn: NACFC)  Credit Card (Contact Rebekah Kim at 240-200-3763 )

1 Choice st

2 Choice

3 Choice

nd

rd

PO Number: __________________________________________ Please indicate if there is a company you would like to be near

I am authorized by my company to provide the payment information above:

Please indicate if there is a company you do not wish to be placed near Authorized Signature

Booth Size Configuration: _______ X _______ Cancellations & Downsizing:

Date

* A receipt will be sent after payment has been processed * PO numbers must be accompanied to guarantee hold on exhibit space

Exhibiting companies wishing to cancel or reduce the size of their exhibit space are required to submit a written request. Official cancellation date will be in effect the date written notification is received.

• Deposits and fifty percent (50%) of the total exhibit fee will be retained for cancellations received on or before August 19th. NO REFUNDS AFTER AUGUST 19, 2016.

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19  |  2016 20 | 2016 North American Cystic Fibrosis Conference

30 TH ANNUAL NORTH AMERICAN

EXHIBITOR APPLICATION & AGREEMENT OCTOBER 27-29, 2016 • OR ANGE COUNT Y CONVENTION CENTER • ORL ANDO, FL

EXHIBITOR APPLICATION & AGREEMENT EXHIBITING COMPANY CONTACT INFORMATION

Company Name Contact

Title

Address City

State

Zip Code

Country Email Company Website Fax

Phone On-site Contact Email

WILL YOU BE USING A THIRD PARTY TRADE SHOW MANAGEMENT COMPANY?  Yes

 No

AGREEMENT Application is hereby made for exhibit space at the 2016 North American CF Conference, October 27-29, 2016.  I am an authorized representative of the company named above and with full authority to sign and deliver this application and payment.  I understand my signature below commits my company to the exhibit booth square footage requested on this form.  If I wish to decrease square footage, I will refer to the Cancellation and Downsizing clause indicated on this form.  All correspondence will be with the person listed above, and this contact person will be responsible for forwarding all materials to agents and/or representatives hired by the exhibiting company.  My signature below indicates that I have read, accept, and agree to all 2016 Exhibitor Rules and Regulations. Authorized Signature

Date

Please return this form with payment to: Rebekah Kim, Senior Coordinator, Medical Meetings 6931 Arlington Rd., Suite 200, Bethesda, MD 20814 Email: [email protected] 20  |  2016 21 | 2016 North American Cystic Fibrosis Conference

30 TH ANNUAL NORTH AMERICAN

SUPPORTER APPLICATION & AGREEMENT OCTOBER 27-29, 2016 • OR ANGE COUNT Y CONVENTION CENTER • ORL ANDO, FL

SUPPORTER APPLICATION & AGREEMENT ALL sections of the application must be completed • Right of First Refusal Form, as applicable (ROFR forms must be submitted by June 21st). • Thoroughly review Support and Marketing Opportunities & Guidelines. • Must be an exhibiting company (some exceptions may apply). • 50% deposit due with application (if application is submitted on or before July 29th). • Full payment is required with applications beginning July 30th. • Late applications will be considered based on availability.

Application acceptance determined by ‘Items to be Supported’ and timeliness of submission.

• Final payments are due by September 24th. Company Name (as it should appear in conference materials)

MEMBER LEVEL Support levels are determined by total contributions, including Exhibit Booth fees, but excluding Meeting Space fees.

PAYMENT INFORMATION

Company Name

• Platinum Circle Minimum $150,000 support required to qualify • Diamond Circle Minimum $100,000 support required to qualify • Gold Circle Minimum $75,000 support required to qualify

Contact Name Title

• Silver Circle Minimum $25,000 support required to qualify • Corporate Minimum $10,000 support required to qualify • Non-profit/Junior Contributor

Email Phone Number

Minimum $5,000 support required to qualify

$

ITEMS TO BE SUPPORTED See Support & Marketing Opportunities pages (13-15) in the Exhibitor Prospectus.

Amount Included  Check (Make checks payable to Cystic Fibrosis Foundation, Attn: NACFC)  Credit Card (Contact Rebekah Kim, 240-200-3763)

PO Number:___________________________________ $ 1) Item

Amount

I am authorized by my company to provide the payment information above

$ 2) Item

Amount $

3) Item

Amount $

4) Item

Amount

Authorized Signature

Date

* A receipt with application acceptance will be sent after payment has been processed * PO numbers must be accompanied by credit card to guarantee hold of activity.

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21  |  2016 22 | 2016 North American Cystic Fibrosis Conference

30 TH ANNUAL NORTH AMERICAN

SUPPORTER SUPPORTER APPLICATION APPLICATION & AGREEMENT & AGREEMENT OCTOBER 27-29, 2016 • OR ANGE COUNT Y CONVENTION CENTER • ORL ANDO, FL

SUPPORTER APPLICATION & AGREEMENT SUPPORTING COMPANY CONTACT INFORMATION

Company Name Contact

Title

Address: City

State

Postal Code

Country Email Company Website Fax

Phone On-site Contact Email

WILL YOU BE USING A THIRD PARTY TRADE SHOW MANAGEMENT COMPANY?  Yes

 No

 I have already provided the CFF with requested company contact information, and no changes are required. Application is hereby made for non-educational support activity at the 2016 NACFC, October 27-29, 2016. I am an authorized representative of the company named above with full authority to sign and deliver this application. The company listed on this application agrees to comply with the 2016 NACFC Support & Marketing Opportunities and Guidelines  I have read and agree to the terms, as described in the 2016 NACFC Support & Marketing Opportunities and Guidelines.  I understand that my application will not be considered unless/until all sections & requirements (including deposit and/or full payment) are received and completed.  I agree that if application is accepted, confirmation will be sent by NACFC Show Management via email, payments will be processed and all terms of this application are considered an agreement unless otherwise notified by NACFC Show Management. Authorized Signature

Date

If yes, you must provide third party contact information, authorization & insurance certificates with this application.

Please return this form with payment to: Rebekah Kim, Senior Coordinator, Medical Meetings 6931 Arlington Rd., Suite 200, Bethesda, MD 20814 Email: [email protected] 22  |  2016 23 | 2016 North American Cystic Fibrosis Conference

30 TH ANNUAL NORTH AMERICAN

RIGHT SUPPORTER OF FIRST APPLICATION REFUSAL & AGREEMENT FORM OCTOBER 27-29, 2016 • OR ANGE COUNT Y CONVENTION CENTER • ORL ANDO, FL

RIGHT OF FIRST REFUSAL FORM (excludes educational sessions) To be considered for right of first refusal this form must be completed and the following is required with your submission: • Use this form only to exercise your right of first refusal for specific activities/items/services your company supported in 2015. • Support items/activities/services that are not included with your right of first refusal should NOT be included on this form. Submit other items/activities on the Support & Marketing Opportunities Application.

• Must be an exhibiting company (some exceptions may apply). • 50% deposit is due with this form to hold right of first refusal activities. • Full/final payment is due by June 21st. If full payment is not received your right of first refusal will be forfeited/cancelled.

Company Name (as it should appear in conference materials)

MEMBER LEVEL

PAYMENT INFORMATION

Support levels are determined by total contributions, including Exhibit Booth fees, but excluding Meeting Space fees.

• • • • • •

Platinum Circle Minimum $150,000 support required to qualify Diamond Circle Minimum $100,000 support required to qualify Gold Circle Minimum $75,000 support required to qualify Silver Circle Minimum $25,000 support required to qualify Corporate Minimum $10,000 support required to qualify Non-profit/Junior Contributor

Company Name Contact Name Title Email

Phone Number

$ Amount Included

Minimum $5,000 support required to qualify

 Check (Make checks payable to Cystic Fibrosis Foundation, Attn: NACFC)

ITEMS TO BE SUPPORTED

See Support and Marketing Opportunities pages in the Exhibitor Prospectus.

 Credit Card (Contact Rebekah Kim, 240-200-3763)

PO Number:___________________________________ 1) Item

Amount

2) Item

Amount

3) Item

Amount

4) Item

Amount

I am authorized by my company to provide the payment information above Authorized Signature

Date

* A receipt with application acceptance will be sent after payment has been processed * PO numbers must be accompanied by credit card to guarantee hold of activity.

Application is hereby made for non-educational support activity at the 2016 NACFC, October 27-29, 2016. I am an authorized representative of the company named above with full authority to sign and deliver this application and payment. The company listed on this application agrees to comply with the 2016 NACFC Support & Marketing Opportunities and Guidelines  I have read and agree to the terms as described in the 2016 NACFC Support & Marketing Opportunities and Guidelines.  I understand that my application will not be considered unless/until all sections & requirements (including deposit and/or full payment) are received and completed.  I agree that if application is accepted, confirmation will be sent by NACFC Show Management via email, payments will be processed and all terms of this application are considered an agreement unless otherwise notified by NACFC Show Management. Authorized Signature

Date

Please return this form with payment by June 21, 2016 to: Rebekah Kim, Senior Coordinator, Medical Meetings 6931 Arlington Rd., Suite 200, Bethesda, MD 20814

Email: [email protected]

23  |  2016 24 | 2016 North American Cystic Fibrosis Conference

ANNOUNCING FUTURE NORTH AMERICAN CYSTIC FIBROSIS CONFERENCES Sponsored by

The Cystic Fibrosis Foundation Indianapolis, Indiana – November 2-4, 2017 Denver, Colorado – October 18-20, 2018 Nashville, Tennessee – October 31-November 2, 2019

CONTACT FOR INFORMATION Questions regarding company participation at the 30th Annual North American Cystic Fibrosis Conference should be directed to:

Kristin Piasecki, Manager, Medical Meeting Logistics [email protected] 301-907-2695 Rebekah Kim, Senior Coordinator, Medical Meetings [email protected] 240-200-3763 www.nacfconference.org  [email protected]

24  |  2016 North American Cystic Fibrosis Conference