colon cancer challenge foundation

THE COLON CANCER CHALLENGE FOUNDATION 10 New King Street, Suite 202 White Plains, NY 10604 (914) 305-6674 (914) 305-6675 (Fax) [email protected]

BOARD OF DIRECTORS Thomas K. Weber MD, FACS President Richard E. Schneyer, Esq. Secretary Michael Redmond Treasurer Sanjay Bery Lisa Hoffman, MA Robin Nureck-Bramswig Christina Puglisi Karen Smith-Hagman, RN, MSN STAFF Cindy Borassi Director Communications & Operations

Over 140,000 new cases of colon cancer will be diagnosed in the United States this year and nearly 51,000 people will die. The good news is that with early screening, colorectal cancer is preventable, treatable and beatable. Your tax-deductible donation and/or involvement with the Colon Cancer Challenge Foundation helps us to achieve our vision of A World Without Colorectal Cancer™. With your support we can continue to develop strategic partnerships with like-minded organizations, both profit and non profit, throughout the world to Promote Colorectal Cancer Awareness, Prevention, Screening and Research.

Executive Message President and Founder Dr. Thomas K. Weber, M.D., F.A.C.S. After more than 10 years of fighting for A World Without Colorectal Cancer™, we at the Colon Cancer Challenge Foundation (CCCF) are excited to report that there is global momentum to significantly decrease colorectal incidence and death. We are working closely with public health leaders, professionals from local and state health departments, hospitals, community-based health organizations, private physician practices, international academic institutions and committed individuals just like you who are concerned about reducing the incidence of colorectal cancer through community interventions to modify risk factors and increase screening. And we are bringing their attention to the drastically increased rates of incidence and mortality among those ages 20-29. With your generous support we were able to fund the development of a unified national campaign that will bring clarity and consistency to March National Colorectal Cancer Awareness Month programming among more than 60 National Colorectal Cancer Roundtable members. Working together we can more effectively reduce mortality, suffering and costs of colorectal cancer by getting people to take a more active role in colorectal cancer screening and prevention. As a result of your efforts 2012 was our most successful year to date. Over 190 teams raised nearly $600,000. With your generous help we are providing funding that allows postdoctoral fellows, residents, and clinical fellows, junior faculty and junior genetic counselors to present cutting edge translational research projects focused on earlyage onset of colorectal cancer to national and international scientific organizations. The goal is to provide a comprehensive update on the status of research and to stimulate collaborations, recruitment of subjects, and ideas for the development of other studies. In the end we all share the same goal: sparing our family members, friends, and colleagues from having to battle colorectal cancer. In the pages that follow, as well as in the information on our website, coloncancerchallenge.org you will see how the Foundation’s public awareness programs, funding for prevention, screening and research are leading the way. Our work is possible because of the generosity of many donors and volunteers. We thank you, and all our supporters, for your continued commitment to our mission of A World Without Colorectal Cancer™. Sincerely, Thomas K. Weber, MD, FACS, President and Founder

2012 Strategic Initiatives and Outcomes Public Awareness The Foundation’s signature event, The New York Colon Cancer Challenge, celebrated its 9th year with over 6,000 participants and thousands of spectators. The Challenge is a unique opportunity for survivors and affected family members to honor loved ones they may have lost or to celebrate their own victory over colorectal cancer. The post-race Wellness Festival included the Rollin’ Colon – an inflatable, educational walk-through colon that models gastrointestinal disorders as well as the various stages of colorectal cancer – and the opportunity to learn more about preventing and beating colorectal cancer from qualified health professionals.

Research CCCF continues to support and recognize excellence in translational research focused on the molecular biology of colorectal cancer by providing Colorectal Cancer Research Scholar Awards for the top ranking abstracts submitted by trainees or junior faculty members attending national and international conferences. Awards provide funding to cover meeting, registration and travel expenses to the conferences. In providing these awards, the CCCF seeks to both support and promote colorectal cancer research. The CCCF has a special interest in the biology of early age onset and hereditary colorectal cancer. However research into other areas of colorectal cancer (eg, novel treatments, innovative minimally invasive screening technologies) is also considered. Participating conferences and organizations currently include: * T he Collaborative Group of the Americas on Inherited Colorectal Cancer (CGA-ICC); * The Human Variome Project (HVP); * T he International Society for Gastrointestinal Hereditary Tumors (InSiGHt); and * The Society for Surgical Oncology (SSO)

Leading up to the event the Foundation launched its most ambitious media outreach campaign with WABC. PSAs about colorectal cancer hit the New York Metro air waves, even in taxi cabs, throughout the month of March. Our media outreach continued throughout the year with WPIX11 and included a Father’s Day campaign as well as the WPIX Health Expo at the Jacob Javits Center where an estimated 7500 people walked through the Rollin’ Colon. Prevention & Screening CCCF continued its support of and collaboration with the C5 Summit (Citywide Colon Cancer Control Coalition), an initiative of The New York City Department of Health and Mental Hygiene (NYCDOHMH). In addition, CCCF began working with the American Cancer Society (ACS) and the NYCDOHMH on the development of a new initiative focused on addressing the disparities in CRC Screening, Treatment and Outcome through Federally Qualified Health Center (FQHC) in New York City and the five boroughs. The foundation also continued its work with the National Colorectal Cancer Roundtable (NCCRT) and provided the NCCRT with a grant that would enable NCCRT to develop and promote a national March strategy that unifies and magnifies the CRC awareness efforts of NCCRT members. The long-term objectives would include: leveraging NCCRT’s diverse membership around unified efforts; integrating and maturing current Colon Cancer Awareness Month efforts; consolidating existing resources and inviting new funding; and strengthening collective energy behind goal to increase public awareness of CRC screening through collective and collaborative efforts. NCCRT can be found on the Web at www.nccrt.org.

“Of cancers that affect both men and women, colorectal cancer is the second leading cause of cancer-related deaths in the United States and the third most common cancer in men and women.” † Source: U.S. Cancer Statistics Working Group. United States Cancer Statistics: 1999–2007 Incidence and Mortality Web-based Report. Atlanta (GA): Department of Health and Human Services, Centers for Disease Control and Prevention, and National Cancer Institute; 2010.

2012 CORPORATE AND FOUNDATION SPONSORS We are so grateful to some very special friends who helped CCCF continue its work toward A World Without Colorectal Cancer™. Emblem Health Exact Sciences Remco Press

Sundheimer Foundation WPIX 11 Weil Gotshal & Manges

BLUE STAR CORPORATE AWARD

SANOFI BLUE STAR SPONSOR AND CAUSE-MARKETING OPPORTUNITES Join us in the fight against colorectal cancer by becoming a Blue Star Sponsor. In addition to supporting an important cause, you can create a unique cause-marketing opportunity for your company through a sponsorship option tailored to your company’s brand and client base. Contact us today to discuss ways your company can partner with the Colon Cancer Challenge Foundation. Your contribution is truly an investment in our future. We hope we can count on you!

Top Fundraisers We would like to thank everyone who joined us for the Challenge and the Charity Runner Program especially our top Individual and Team Fundraisers. Each year our events gain momentum – we couldn’t have done it without your support. New York Colon Cancer Challenge 2012 Institutional Teams # 1 Fundraising Institutional Team SANOFI #2 Fundraising Institutional Team SUNY DOWNSTATE #3 Fundraising Institutional Team EMBLEMHEALTH Individual Fundraiser #1 Fundraiser – Robin Maxwell #2 Fundraiser – Amy Trapp #3 Fundraiser – Dana Serling #4 Fundraiser – Eugene Weinstein #5 Fundraiser – Frank Garritano Team Colon Cancer Challenge #1 Fundraiser – Vared Frank #2 Fundraiser – Carolyn Carpenter #3 Fundraiser – Thomas Murphy

Financial Highlights Fiscal Year Ended Dec. 31, 2012 – Audited

SUPPORT AND REVENUE Special events - Revenues Less: Cost of Direct Benefits to Donors Net Revenue from Special Events

649,567 (85,696) 563,871

Contributions (Note B) 82,753 Contributed goods and services (Notes B and D) 171,868 Total Support and Revenue 818,492 EXPENSES Program Services Management and General Fundraising Total Expenses

423,260 36,255 136,360 595,875

Change in Net Assets

222,617

Up to 71% of funds raised in 2012 directly supported the foundation’s Mission and Strategic Initiatives of public awareness, prevention, screening and research.

Net Assets at Beginning of Year -As Originally Stated 261,479 Prior Period Adjustments (Note F)

(51,000)

Net Assets-Beginning of Year -Restated 210,479 Net Assets-End of Year

433,096

Support and Revenue

Dr. Thomas Weber (right) congratulates Marjun Philip Duldulao, MD, as he receives the Colorectal Cancer Research Scholar Award in recognition of his highly-rated paper on “KRAS Codon 13 Mutations Predict Response to Neoadjuvant Chemoradiation Therapy in Patients with Rectal Adenocarcinoma.”

Net Revenue from Events

69%

Contributions

10%

Contributed Goods/Services

21%

Program Services

71%

Expenses

Management and General Fundraising

6% 23%

Thank you to our special friends.

Your support fuels our dedication, momentum and progress in the fight against colorectal cancer.

Matching Gifts AIG

Citizens Bank

Elmwood Country Club

Lord & Taylor

Rockefeller Foundation

Allianz Asset Management

Combined Jewish Philanthropies

Genentech Giving Station

Macy's Foundation

Sanofi-Aventis

Goldman Sachs & Co

Microsoft Matching Gifts Program

Schwab

American Express Employee Giving Program

Comerica Bank

Bank of America

ConnectiCare

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Boston Consulting Group, Inc.

Davidson Companies

ITG Inc.

Novartis

Deutsche Bank Americas Foundation

JP Morgan Chase

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GREATER THAN $1,000.00 Monica Ahrens Jeff R Carpenter Kyle Taylor Puneet Bery

5000.00 3380.00 2502.50 1500.00

Thomas Fahey Kalpana Rhodes Carrie Rhodes Amy Murphy

1200.00 1200.00 1200.00 1195.00

Carolyn Carpenter Gina Flood-Cohen Peter Gibson Charles Kligman

1180.00 1035.50 1000.00 1000.00

Mitchell Trellis Michelle DeVerna Douglas Waite Jason Goldstein

1000.00 1000.00 1000.00 1000.00

Tanya Iovine David Lefkowitz Carrie Rhodes Alfred Egli

1000.00 1000.00 1000.00 1000.00

GREATER THAN $500.00 Sanjay Bery Steven East Nancy Haystrand William Brakefield Matt Britton Gregg Wasser Kathleen Cloherty Kelly McWilliams Marissa Purdy

910.00 850.00 800.00 750.00 750.00 750.00 600.00 600.00 587.00

Michael DiMarco Briel Zagarow Yitzchak Frank Raymond Stern Jason Goldstein Sudeep Dhillon Sanjay Balan Robin Nureck-Bramswig Jeffrey Davidson

564.00 560.00 502.50 502.50 502.50 501.00 500.00 500.00 500.00

Nael Farsakh David Dunlap Minter Judith Fishlow Mary Ellen Mascia J Kato John Livingston Jared Prushansky Shail Jain John & Therese Curran

500.00 500.00 500.00 500.00 500.00 500.00 500.00 500.00 500.00

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500.00 500.00 500.00 500.00 500.00 500.00 500.00 500.00 500.00

Mary Duke Sallie Anne George Steven Housberg A P Randazzo III Linda Ewig Mary Ellen Guthenberg David Khasidy Jenny Cavaliere

500.00 500.00 500.00 500.00 500.00 500.00 500.00 500.00

Manish Patel Kenichi Okochi Chihyang Yang Barbara Davis Nan Kurzman Nancy Sun Brian Perman Margo Hanan Ellen Marshall Joseph Hanan Robert O’Hara Leonard Sass Fredric Zaino Lee Wiederkehr Marjorie Danz Owen G Dwyer David Dubin James Morris Ellen Auster James Nason Cynthia Norman Richard Silva Nancy Euchner Jay Levy Stephen Shepard Margie Lea Andrea and Kieth Rieger Peter Baumgartner Brian Bannister Nora Glenn Anthony Skalicky Kipperman Beth Patricia Potts Roberta Plotycia Valery Dorshimer Laraine A George Kaitlin Davis Nathaniel Gerlich Jeffrey Tomcsik Brad Coleman Robert Yost Maureen C. Barrett Daniel Martin Ellen Weinstein

250.00 250.00 250.00 250.00 250.00 250.00 250.00 250.00 250.00 250.00 250.00 250.00 250.00 250.00 250.00 250.00 250.00 250.00 250.00 250.00 250.00 250.00 250.00 250.00 250.00 250.00 250.00 250.00 250.00 250.00 250.00 250.00 250.00 250.00 250.00 250.00 250.00 250.00 250.00 250.00 250.00 250.00 250.00 250.00

Susan Bannon Robert Regal Rajinder Mahil Mare Henderson Peter Shanley Eric Wenzel Lawrence Weisler Kathryn Alsdorf Karl Waite Sarah Wolf Diane Fuller Mark Pascale Tal Hacohen Dianna Linekin Anthony Nardi John Rieger Robin Kennedy Gerard Cappelli William Eimicke Robert Friedman Thomas Iovine Barbara Cardenas Craig Purdy Kalpana Rhodes Stephen Shepard Matthew Swegles Patrick Dennehy Madeline Morris Sonya Amin Katherine Pile-Spellman Beth Taubes Andrew Bilodeau David Gutwald Stephen Richard Peter Costiglio Robert Ulrich John O’Connell Jr. Howard Jaslow Alexander Gutkin Ryan McDonald Dennis Griffin Jennifer Johe Joseph Stancato Karen Webb

250.00 250.00 250.00 250.00 250.00 250.00 250.00 250.00 250.00 250.00 250.00 250.00 250.00 250.00 250.00 250.00 250.00 250.00 250.00 250.00 250.00 250.00 250.00 250.00 250.00 250.00 250.00 250.00 250.00 250.00 250.00 250.00 250.00 250.00 250.00 250.00 250.00 250.00 250.00 250.00 250.00 250.00 250.00 250.00

Minda Berbeco Shannon Brown Albert Rosa Stephen O’Connor Norma Kimble Debra Stickley Matthew Richenthal David Islinger Adam Wolf Abe Varkovitzky Laurie Gottlieb Regan Fitzpatrick Carolyn Lis Mark Scherer Kevin Fardella Liz Owens Nick Giovanniello David Janash Linda Brandon Liz Migneco Sue Biersbach Joshua Lipman Hemant Jaiswal Steven Berbeco Philip Cook Rami McShane Margaret Murphy Michael DiMarco Dana Serling Noman Shaikh Jared Blank Jay McGuire Hanna Alster Marlene Goldfarb Jeanine Egan Renee Murray Skender Murtezani Brian Lowy Kristen Doherty Paul and Karen Mlynarski

250.00 250.00 250.00 250.00 250.00 250.00 250.00 250.00 250.00 250.00 250.00 250.00 250.00 250.00 250.00 250.00 250.00 250.00 250.00 250.00 250.00 250.00 250.00 250.00 250.00 250.00 250.00 250.00 250.00 250.00 250.00 250.00 250.00 250.00 250.00 250.00 250.00 250.00 250.00 250.00

GREATER THAN $250.00 Cassandra Kramer Jody Servo Elizabeth Owens Andrew Donofrio Elizabeth Fell Ross Downing Yanai Frank Joanne Fahey Bernadette Dennehy Joel Kushins Sarah Dobrowski Brandon Davis Rachelle Sideris Deb Airey S Mainwaring Roberts Hannah Klein Joanna & Rich Segal Joseph Samuel N S Kathirithamby Tien Chay Chen Diane Silver Andrew Garritano Lisa Moreland Colleen Cappola Diane Menard Amy Carriello John Fahey John Jalbrzykowski Karen Madden Julia Zilberquit Kenichi Okochi Kevin Shanley Daniel Agoglia Andrew Lackmann Erica Boeckle Stephen Kushins Linda Schoenthaler Kevin Ruane Sunil Bhavnani Alison Beltzer Breda Cloherty-Coffey Rachel Mullervy Laura Neuner Andrew Garritano

450.00 440.00 435.50 420.50 412.50 407.00 402.50 400.00 400.00 400.00 400.00 400.00 400.00 372.00 363.00 360.00 360.00 360.00 350.00 350.00 340.00 314.00 305.00 300.00 300.00 300.00 300.00 300.00 300.00 300.00 300.00 300.00 300.00 300.00 300.00 300.00 300.00 300.00 300.00 300.00 300.00 300.00 300.00 300.00

Dana Ruggeri 300.00 Carmela Barone 296.00 John Molnar 282.00 Robert Ryan 270.50 Mike Werner 268.00 Sanjay Bery 262.00 Frank Claudia Oberweger 252.50 Dan Bolger 252.50 Gerard McCarthy 252.50 Jason Lynn 252.50 Don Plaus 252.50 Brian Prunier 252.50 Redza Ibrahim 252.50 Adam Lipson 252.50 Doug Spence 252.50 Ana Jernestaal 252.50 David Hurdle 252.50 David Freedman 252.50 Mary Ann Petrilena 252.50 Peter Puglisi 252.50 Tim Opler 252.50 Amanda SantaMaria 252.00 Taruni Seth 251.00 Suresh Subramaniam 250.00 Jason Hull 250.00 Eugene Kenny 250.00 Tejal and Ketan Karia 250.00 Teresa Sarno 250.00 Lori West 250.00 Laura Lozada 250.00 Sonja Metius 250.00 Matthew Baxley 250.00 Jose Claxton 250.00 Sriram Iyer 250.00 Angela Bullock 250.00 Pete Chronis 250.00 Joseph Pichamuthu 250.00 Jignesh Prajapati 250.00 Amy Trapp 250.00 Arjun Mahajan 250.00 Jim Damask 250.00 Ramit Luthra 250.00 Susan Roth 250.00 Valerie Hodge 250.00

TEAM COLON CANCER CHALLENGE BY GINA DIAZ

My dad, Jose Diaz, was born in a tiny village in Ribota, Spain on October 6, 1942. He would have been 70 years old this year if he had not been taken from us, much too soon, after his fight with colon cancer. My dad was first diagnosed with colon cancer in 1999, my senior year in high school. He and my mom were told that he could get surgery and that everything would be alright. He did the surgery and that summer we went to visit our family in Spain. My dad was so uncomfortable flying for 12 hours after the surgery and traveling, but as usual he toughed it out and we had a great trip. 2 years after that he was told that the cancer was back. This time it was not just in the colon, it was also in the liver. They said that we should have done chemo after the surgery to be sure, even though the surgeon had told us it wasn’t necessary. Sometimes you learn terrible and important things through these experiences. He went to chemo and fought hard and my mom supported all of us and try to encourage himpretty sure if he heard, “eat some blueberries, they have antioxidants” one more time he might have thrown the bowl. :) On September 28, 2002 my dad lost his fight against colon cancer and we lost a big part of our hearts. My dad was a vivacious and courageous man. He moved to the United States from Spain when he was 27, not knowing a soul, or the language and with only a name tag pinned to his shirt with his name and where he was going. He was an incredibly loving, curious, funny and generous man. He could make friends with anyone and he worked hard so that his family had everything they needed. He pushed my brother and I to achieve more in our lives than he was able to in his. If I am able to fully live in each moment as he did I will have achieved a great deal. I can truly say that he loved me unconditionally and made my world a better place. I decided to run 10 half-marathons this year in celebration of his 10-year anniversary and to celebrate his life and my own. My dad was always up for an adventure, a laugh, another glass (or bottle) of wine and lived his life to the fullest. I miss him every single day, especially in the quiet moments. I have found my Dad with me in so many moments during this journey- the smell of the hills in Ohio, the friends I made on the run in Idaho, the moments I wanted to give up when I ran my own race in Central Park in November, with family in Georgia, pushing through in New Orleans after a weekend of really living in ALL the moments with friends, the peaceful moments of the NYC half, my central park race with my best friend and her husband when I wanted to give up, and my last solo half through the streets of Manhattan, Queens and Brooklyn. My final race on September 29, 2013, the day after the 11th anniversary of his death, really brought everything together. My mom, brother and my best friend ran the last mile with me. We crossed the finish line together and all celebrated. We had a huge party at the house later that day and our home was filled with joy, love and noise and so many friends and family members. It was everything that he would have loved and it’s everything that I love. Losing my dad is the worst thing that has ever happened to me, and when he was first diagnosed with colon cancer I had no idea how my life would be forever changed. 11 years later I am more healed and more committed to doing whatever I can to raise awareness of the need for colon cancer screenings and the disease itself so no one has to go through what my family went through. This journey has changed my life in so many ways and I’m so grateful to my mom and day, my family, my friends, CCCF and everyone who has supported me along the way.