Children's SPOT at St. Luke's Hospital

General Information Contact Information Nonprofit

Children's SPOT at St. Luke's Hospital

Address

4333 Pennsylvania Ave Kansas City, MO 64111 3343

Phone

(816) 932-3832

Fax

816 932-3903

Website

www.saintlukesgiving.org/spot

Facebook

facebook.comwww.facebook.com/thechildrensspot

Twitter

twitter.com/

Email

[email protected]

At A Glance Former Names

Saint Luke's Developmental Preschool

How to donate, support, and volunteer

Checks, online, phone, and in-kind donations are gladly accepted. We also appreciate gently used toys and clothing items for preschool aged children. We have some opportunity for volunteer help in our Developmental Preschool but this must be coordinated through the Saint Luke's Hospital Volunteer Services Department.

1

Mission & Areas Served Statements Mission Statement The mission of The Children's SPOT (Speech, Physical and Occupational Therapy) is to provide early and intensive pediatric therapy services to infants and children with disabilities and developmental delays, regardless of ability to pay. Background Statement In 1980, The Children’s SPOT at Saint Luke’s Hospital of Kansas City was founded as a small pediatric rehabilitative program, focused on providing early and intensive therapy for infants and children with disabilities and developmental delays. From day one, The Children’s SPOT filled an unaddressed niche in the greater Kansas City community. Today, 36 years later, The SPOT is still one of the most intensive providers of speech, physical and occupational therapy for young children in Kansas City. The Children’s SPOT has accomplished these key milestones in its 36 year history: • In 1995, The Family Assistance Program was established to serve the growing population of uninsured and under insured patients. Since that time, the program has disbursed over $1.8 million to hundreds of children and families. • Since 1980, The Children’s SPOT served more than 7,500 children. • In 2007, a $3 million capital campaign was completed which moved The SPOT from a building that was not handicapped accessible and located on a busy street with unsafe parking -- to a new, dedicated facility at rd 43 and Pennsylvania.

• In 2013 The Children's SPOT's Endowment Fund reached a $1 million. In 2014 we began utilizing a portion of the earned revenue to cover additional expenses.

• SPOT clinicians have consistently achieved a 9.5/10 rating or better on anonymous parent satisfaction surveys for the past several years.

• The Children’s SPOT proudly employs the most experienced speech, physical and occupational therapists in Kansas City, with 232 combined years of experience working with special needs children. Impact Statement 2015 Accomplishments:

• Served 749 children with a wide range of developmental delays and disabilities during 11,775 patient visits. • Provided financial scholarships through SPOT's Family Assistance Fund to 92 children whose parents could not afford the cost of care. Total scholarships provided equaled $137,605.

• Continued using earned interest from Endowment fund to offset operating losses. • Maintained a 30+ year collaboration with two nearby private schools, providing therapy services on-site. • Continued to provide integrated care to families with sick and fragile infants in Saint Luke's Neonatal Intensive • • •

Care Unit. Infants are followed by SPOT clinicians for the first two years of life to assess challenges and tailor interventions. Celebrated 35 years of providing developmental therapy to infants and children. Integrated technology into patient treatment plans. Earned an average patient/parent satisfaction rate of 9.69 on a 10 point scale.

Goals for 2016:

• • • •

Raise $400,000 in philanthropic support for general operating and The Family Assistance Fund. Increase scholarship support for families struggling to pay for their child's therapies. Prepare for 2016 implementation of electronic medical record system. Improve method for capturing patient outcomes.

Needs Statement 1) Family Assistance Fund, $130,000 2) Staff support for a receptionist, $40,000 3) General Operating Support, $200,000

2

Board Chair Statement The Children’s SPOT Advisory Board was established in 1994 as a fundraising and advocacy vehicle. Our mission is to help SPOT achieve and maintain financial stability and community awareness through beneficial relationships, strategic planning, donor cultivation and stewardship. I am proud to serve as president of this board. As we look to the future, two fundraising needs stand out: the need to raise approximately $400,000 each year for Family Assistance and operating funds, while simultaneously continuing to grow the endowment, which we are proud to say reached $1million in 2013. Unfortunately, the gap is widening in the amount insurance plans will cover for children with disabilities needing targeted, early therapies. The Children’s SPOT is committed to increasing access to these services for all families, including families receiving Medicaid and those with no insurance. Our therapies are designed for children in their earliest years. In fact, the short window of time between birth and three is ideally suited for intensive treatment and usually results in significant gains in children's social skills, physical mastery and cognitive-linguistic capabilities. However, paying for this care is a struggle for many families. Those with insurance are given a limited number of visits as most insurance companies consider disabilities a “short-term” care issue or not rehabilitative in nature. Others receive Medicaid or have no insurance and already struggle to provide basic care for their children, let alone paying for the added cost of pediatric therapies. At The Children's SPOT, we are proud to serve children and families from every socio-economic stratum, coming to us from more than 30 counties in Missouri and Kansas. We are committed to helping them all. Sincerely, Jason Wright President, The Children's SPOT Advisory Board

Service Categories Rehabilitative Care Pediatrics Special Education

Areas of Service Areas Served Areas MO KS MO - Jackson County MO - Clay County MO - Platte County KS - Wyandotte County KS - Johnson County MO - Eastern Jackson Co MO - Jackson County Urban Core KS - Wyandotte County Urban Core

3

Programs Programs Developmental Preschool Description

SPOT's cornerstone therapy program is Developmental Preschool which serves children with the most severe disabilities and developmental delays. The program offers Kansas City's most intensive pediatric approach in occupational and speech therapies. Preschoolers meet for 2 1/2 hours, four days a week in classrooms led by a speech language pathologist and an occupational therapist, who integrate therapy into every activity. Children advance through indivdual treatment plans using art, dance, music and creative play. The agency's state-of-the-art facility compliments therapies and features a sensory integration playground complete with a puppet stage, jungle gym, ball pit, zip line, trampoline, swings and climbing wall.

Category

Education, General/Other Special Education

Population Served

Infants to Preschool (under age 5), People/Families with People of Developmental Disabilities,

Short-Term Success

Short term success of the Developmental Preschool is measured by looking at each child’s overall progress and developmental growth. Because our patients have varying diagnoses and degrees of ability, success can look very different from one child to the next. Regardless, it is critical to individually evaluate and continually monitor the children’s progress to assure they are thriving under our care. If successful, therapy culminates in each child’s successful transition to the least restrictive educational setting possible.

Long- Term Success

Children with disabilities and developmental delays will receive the therapy they need to reach their highest level of functional ability and quality of life, regardless of ability to pay for services.

Program Success Monitored By

Each child in the Developmental Preschool has an individualized treatment plan based the child’s needs, family priorities, and the therapists’ knowledge of childhood development. Goals are designed to incrementally challenge and enhance each child’s skill level, while also building self confidence. Therapists maintain a medical record for each child that charts progress in monthly notes and more extensive bi-annual reports. Data collection tools include standardized testing, weekly measurement of progress toward goals, observation in the context of natural play, and family/caretaker feedback. Speech/language pathologists track progress toward goals in the areas of receptive and expressive language, articulation, cognition and oral motor skills; occupational therapists measure progress in the areas of fine motor, gross motor skills, sensory integration and self-care skills; and physical therapists track address gross motor development.

4

Examples of Program Success

Throughout 2015, our Developmental Preschool program was at capacity and had a waiting list. Feedback from families and referring physicians indicated high satisfaction with services, while philanthropy helped provide scholarship assistance to any family lacking insurance coverage or the ability to pay for services. All patient discharges were planned, and staff assisted with appropriate transitions to public schools. In fact, 90% of children discharged in 2015 showed moderate to significant improvement. All of these graduating preschool children were still in need of continued intervention to some degree but all required less intensive therapy and could function in larger classrooms. These outcomes translated to highly satisfied parents who were pleased with their child's overall care.

Individual Therapy Description

Some children come to The Children's SPOT by physician referral for individual speech, physical and/or occupational therapy sessions. Generally, this program is for children needing a less intensive therapy plan. Standardized eveluations are administered to help pinpoint areas to address and each child is then given a set of unique treatment goals. SPOT clinicians strive to ensure that 100% of patients achieve their therapy goals.

Category

Health Care, General/Other Occupational Therapy

Population Served

Infants to Preschool (under age 5), ,

Short-Term Success

Short term success of individual treatment is measured by looking at each child’s overall progress. Steady incremental growth should be occurring with goals updated regularly, and discharge criteria set so that therapist, child and family are prepared and satisfied at the conclusion of treatment.

Long- Term Success

Children with mild to moderate deficits in one or more areas of development will receive individual therapy sessions that target specific needs and essentially resolve any identified problems.

Program Success Monitored By

Each patient seen for individual therapy has an individual chart that eventually becomes part of their permanent medical record at Saint Luke’s Hospital once treatment has concluded. Each chart contains: results of initial and subsequent standardized tests, plan for treatment, statement of prognosis, weekly notes describing response to goals, monthly summaries of overall progress, documentation of dates of treatment and length of sessions, physician orders approving treatment, any necessary demographic information and notations of any communication with insurance companies or approved contacts.

Examples of Program Success

For some children, program success can mean developing one or more of the following: articulate sounds correctly, use appropriate grammar and syntax, accurately process auditory and visual information, form letters correctly and age appropriate handwriting skills, balance and coordination, enhanced feeding skills and nutrition, or increased self-care skills. In all cases, success means helping children reach their full potential; eager to learn in Kindergarten and beyond. In 2015, 92% of children discharged from individual therapy demonstrated moderate to significant progress, while 8% made limited gains. 66% achieved all goals and/or reached age appropriate status.

5

Neonatal Intensive Care Unit (NICU) Follow-up Clinic Description

SPOT's Neonatal Intensive Care Unit (NICU) Follow-up Clinic assesses infants at risk for developmental problems due to prematurity or other complications before or during birth. Babies are referred for screenings by neonatologists and undergo a team evaluation conducted by a speech pathologist and physical or occupational therapist. Infants are followed at approximately 6, 9, 15 and 21 months of age to determine if developmental milestones are being achieved within age-appropriate time frames. These screenings provide important developmental information to parents and also help identify potential problems early in the child's life. As necessary, referrals for additional therapy or support services are made so problems can be quickly addressed.

Category

Health Care, General/Other Health Diagnostic, Intervention & Treatment Services

Population Served

Infants to Preschool (under age 5), People/Families with of People with Disabilities,

Short-Term Success

Infants will receive timely and appropriate screenings and primary caregivers will receive important developmental information that, in some cases, prevents problems from occurring or worsening. Those babies needing additional therapy or support services will be given immediate attention and/or options for treatment. .

Long- Term Success

All developmental delays or complications from premature birth will be identified during the screenings and, as necessary, referrals made to quickly and successfully treat potential problems or delays. Parents will also feel empowered to provide appropriate and nurturing developmental care enabling each infant to meet their highest potential.

Program Success Monitored By

Each child has an individual record that documents dates of visits and whether developmental norms are being met at each stage. Records also note those referred for follow-up care, as well as specific recommendations given to the families. Additionally, overall program statistics provide the annual number of: infants/families involved in the program, screenings completed, infants referred for therapy as well as the type of therapy recommended, and infants who received financial assistance. Comparison of annual statistics indicates program success when a high percentage of families are taking advantage of this voluntary program and additionally are choosing to return for subsequent developmental screenings. Conversely, a low percentage of babies requiring referrals indicates the high quality of neonatal care provided at Saint Luke’s Hospital and that developmental information offered to families in the early stages can avoid need for additional therapies.

Examples of Program Success

Example of Success: Last year, 293 infants were seen for a total of 446 visits. 15% were referred for additional services such as: physical therapy, orthopedics, nutrition services, vision consultation, and speech therapy. This is considered a relatively low percentage, given it this is such a high risk population. In addition, 16% of babies followed last year demonstrated signs of torticollis - a condition where the baby develops tight neck muscles causing the baby to hold his head tilted and/or turned to one side. When caught early, this condition can be corrected. Parent education about torticollis during these clinic visits alleviated need for physical therapy and/or a corrective helmet in most cases.

6

Inpatient Therapy Description

Infants born prematurely or with a disability are monitored by a Children’s SPOT Occupational Therapist in the Neonatal Intensive Care Unit. The therapist monitors infants for specific feeding difficulties and implements treatments to help them grow and thrive. Ultimately, this therapy leads to decreased stays in the NICU.

Category

Health Care, General/Other Inpatient/Hospital Care

Population Served

Infants to Preschool (under age 5), People/Families with of People with Disabilities,

Short-Term Success

In the short-term, the Inpatient Therapy program will successfully monitor infants for specific feeding difficulties and provide the best possible treatment plan. This will lead to decreased stays in the NICU.

Long- Term Success

In the long-term, the NICU Follow-up Clinic or the Individual Therapy program will provide the building blocks for an infant's normal growth and development.

Program Success Monitored By

Program success is monitored by staff in the Neonatal Intensive Care Unit. Together, physicians and the Inpatient Therapy provider will determine the best possible treatment methods and evaluate outcomes from patient discharge data.

Examples of Program Success

The Children's SPOT has provided Inpatient Therapy services at Saint Luke's Hospital since 1980. Designed to provide a seamless continuum of care, the program's success has led to decreased stays in the NICU and problem identification at the earliest possible age.

In the Community Description

Speech and Occupational Therapy services are provided on-site at two local private schools, offering convenience for parents and limited time out of the classroom for patients.

Category

Health Care, General/Other Early Intervention & Prevention

Population Served

Children Only (5 - 14 years), People/Families with of People with Disabilities,

Short-Term Success

In the short-term, the program will make it possible to meet developmental milestones and function well in a mainstream classroom.

Long- Term Success

In the long term, the developmental therapy provided in the community will give children the potential to function at their highest possible ability.

Program Success Monitored By

Program success is monitored by weekly progress notes and annual evaluations that demonstrate progress toward treatment goals.

Examples of Program Success

The program is considered a success when children are able to meet motor and speech goals, are functioning well in the mainstream classroom, and spend as little time as possible out of the classroom.

CEO Comments The Children's SPOT touches the lives of more than 650 children and families annually. We serve approximately 25 children daily who attend our Developmental Preschool, while another 275 children receive weekly individual speech, physical or occupational therapy (including children served at two nearby private

7

schools). An additional 300 or more infants recently discharged from Saint Luke's NICU receive developmental screenings from staff clinicans, and one of our therapists rounds daily in the NICU to assist with feeding issues that are common in premature infants. The majority of our therapists have worked at The Children's SPOT for more than 20 years. We believe their experience and dedication speak favorably to parents who are sometimes at a vulnerable stage in seeking help for their child. Our staff works diligently to process referrals as quickly as possible, obtain the necessary insurance authorizations, and work together with families to determine the best course of treatment for each child. We are extremely grateful for philanthropic support from the community that enables us to offer financial assistance to families who lack insurance benefits or are unable to pay for services.

8

Leadership & Staff Executive Director/CEO Executive Director

Mrs. Jeanette Worthington

Term Start

May 1986

Email

[email protected]

Experience Jeanette Worthington has been a full-time staff member of The Children's SPOT since 1985 and Director since 1986. She holds a B.S. in Speech/Language Pathology from the University of Kansas and a M.S. in Speech/Language Pathology from Southern Methodist University. She is licensed as a speech/language pathologist in the states of Kansas and Missouri. Jeanette holds a Certificate of Clinical Competence from the American Speech/Language/Hearing Association. In addition to overseeing the clinical and development efforts for the program, she also provides direct patient care services focusing primarily on evaluations and treatment within the NICU Follow-up Clinic.

Former CEOs Name

Term

Deedra Hartung

Jan 1980 - Dec 1986

Senior Staff Cindy Hale Title

Level II Occupational Therapist

Experience/Biography

Cindy is a full-time staff member of The Children's SPOT with primary responsibilities in the Saint Luke's Hospital's Neonatal Intensive Care Nursery. She has been employed at The Children's SPOT since 1985. Cindy holds a B.S. in Occupational Therapy and is licensed as an occupational therapist in the states of Kansas and Missouri. Cindy has special training in treating feeding disorders in infants and preschool age children.

Beverly Renfro Title

Level III Physical Therapist

Experience/Biography

Beverly has been a full-time staff member with Saint Luke's Hospital since 1988 and with The Children's SPOT since 1990. She holds a B.S. in Physical Therapy from the University of Kansas Medical Center and is licensed as a physical therapist in the states of Missouri and Kansas. Beyond treating children with developmental delays and disorders, she specializes in treating infants diagnosed with torticollis.

9

Celeste Haas Title

Level IV Speech Language Pathologist

Experience/Biography

Celeste has worked as a speech/language pathologist at The Children's SPOT for 28 years. She holds a Bachelor of General Studies and a M.A. degree from the University of Kansas. She is licensed in Missouri and holds a Certificate of Clinical Competence from the American Speech, Language and Hearing Association. In addition to providing daily therapy in our Developmental Preschool, she oversees and provides direct treatment at one of our off-site contracts. Additionally, she serves as assistant to the Director.

Staff Paid Full-Time Staff

6

Paid Part- Time Staff

9

Volunteers

59

Retention Rate

100%

Paid Contractors

0

Formal Evaluations CEO Formal Evaluation

Yes

CEO/Executive Formal Evaluation Frequency

Annually

Senior Management Formal Evaluation

Yes

Senior Management Formal Evaluation Frequency

Annually

NonManagement Formal Evaluation

Yes

Non Management Formal Evaluation Frequency

Annually

Plans & Policies Organization Has a Fundraising Plan

Yes

Organization Has a Strategic Plan

Yes

Management Succession Plan

Under Development

Organization Policy and Procedures

Yes

Nondiscrimination Policy

Yes

Whistleblower Policy

Yes

Document Destruction Policy

Yes

Collaborations The Children’s SPOT partners with many external organizations/individuals to ensure the most efficient delivery of pediatric therapy services is available in Kansas City. These relationships are contractual and/or longstanding in nature: • 225 Kansas City pediatricians, including physicians from Children’s Mercy Hospitals and Clinics and Pediatric

10

Associates, refer patients to The SPOT.

• Together, Saint Luke’s Labor and Delivery, Neonatal ICU and The SPOT provide seamless care for patients. • The SPOT Board provides fundraising direction to sustain The Family Assistance Fund. • The SPOT has contractual agreements with two private schools for delivery of therapy services.

External Assessment and Accreditations Assessment/Accreditation

Year

Joint Commission on Accreditation of Healthcare Organizations (JCAHO) - Critical Access Hospital Accreditation

2014

Awards Awards Award/Recognition

Organization

Year

Malcolm Aldridge Nation Quality Award

Malcolm Badridge Nation Quality Award

2003

Missouri Quality Award

Missouri Quality Award

2007

Government Licenses Is your organization licensed by the government?

Yes

CEO Comments The Children's SPOT is a department of Saint Luke's Hospital and as such is governed by the hospital Board of Directors. This lends great strength, stability and leadership to our program. Experienced health care administrators and managers also oversee our program and provide excellent guidance in determining program needs and growth. The SPOT benefits from numerous resources throughout the Saint Luke's Health System which saves substantial costs, thus enabling our staff to focus on patient care. Examples of resources include: Patient Accounting for insurance contracts and billing, Medical Records for storing patient records, Human Resources for employee compensation and benefits, Information Services for computer and equipment needs, Engineering for building maintenance, Security for patient safety, and Marketing and Public Relations to promote community awareness.

11

Board & Governance Board Chair Board Chair

Mr. Jason Wright

Company Affiliation

JE Dunn Construction

Term

July 2015 to June 2017

Board Members Name

Affiliation

Mrs. Amie Bybee

Community Volunteer

Dr. Kevin Bybee

Saint Luke's Hospital

Mrs. Jennie Carter Mr. Carson Cates

Central Industrial Sheet Metal Works, Inc.

Mrs. Lauren Dowling Mrs. Amanda Durkin Ms. Lorra Embers

Saint Luke's Hospital

Ms. Anne Gagel Ms. Amy Graham

Community Volunteer

Mr. Mark Hammett

Commerce Bank of Kansas City

Mr. Weston Heide

Lansing Trade Group

Ms. Marcela Holder

American Century Investments

Ms. Susan Johnson

DST Systems

Ms. Sarah McGee Jury

Community Volunteer

Mrs. Kirsten Schalekamp

The Children's SPOT

Ms. Christy Smith

Pulse Design Group

Mrs. Elizabeth Wallace Ms. Jeanette Worthington

The Children's SPOT

Mr. Jason Wright

JE Dunn

Board Demographics - Ethnicity African American/Black

0

Asian American/Pacific Islander

0

Caucasian

19

Hispanic/Latino

0

Native American/American Indian

0

Other

0

Board Demographics - Gender Male

5

Female

14

12

Unspecified

0

Governance Board Term Lengths

0

Board Term Limits

0

Board Meeting Attendance %

69%

Written Board Selection Criteria?

No

Written Conflict of Interest Policy?

No

Percentage Making Monetary Contributions

93%

Percentage Making In-Kind Contributions

100%

Constituency Includes Client Representation

No

Number of Full Board Meetings Annually

5

Standing Committees

CEO Comments The Children's SPOT Advisory Board was established in 1994 as a fundraising and advocacy vehicle. Our mission is to help SPOT achieve and maintain financial stability and community awareness through beneficial relationships, strategic planning, donor cultivation and stewardship.

13

Financials Fiscal Year Fiscal Year Start

Jan 01, 2016

Fiscal Year End

Dec 31, 2016

Projected Revenue

$1,359,165.00

Projected Expenses

$1,507,194.00

Endowment Value

$983,839.00

Spending Policy

Income Only

Percentage

0%

Detailed Financials Revenue and Expenses Fiscal Year Total Revenue Total Expenses Revenue Sources Fiscal Year Foundation and Corporation Contributions Government Contributions Federal State Local Unspecified Individual Contributions Indirect Public Support Earned Revenue Investment Income, Net of Losses Membership Dues Special Events Revenue In-Kind Other

2015 $1,319,425 $1,475,192

2014 $1,284,251 $1,386,488

2013 $1,318,711 $1,144,946

2015 $407,721

2014 $374,567

2013 $373,127

$0 $0 $0 $0 $0 $0 $0 $883,367 $28,337 $0 $0 $0 $0

$0 $0 $0 $0 $0 $0 $0 $838,446 $71,238 $0 $0 $0 $0

$0 $0 $0 $0 $0 $0 $0 $882,526 $63,058 $0 $0 $0 $0

14

Expense Allocation Fiscal Year Program Expense Administration Expense Fundraising Expense Payments to Affiliates Total Revenue/Total Expenses Program Expense/Total Expenses Fundraising Expense/Contributed Revenue Assets and Liabilities Fiscal Year Total Assets Current Assets Long-Term Liabilities Current Liabilities Total Net Assets Short Term Solvency Fiscal Year Current Ratio: Current Assets/Current Liabilities Long Term Solvency Fiscal Year Long-Term Liabilities/Total Assets

2015 $1,070,774 $322,333 $82,085 $0 0.89 73% 20%

2014 $1,000,907 $304,022 $81,559 $0 0.93 72% 22%

2013 $901,547 $161,059 $82,340 $0 1.15 79% 22%

2015 $1,332,034 $1,332,034 $0 $0 $1,332,034

2014 $1,505,434 $30,736 $0 $41,474 $1,456,080

2013 $1,522,698 $123,150 $0 $30,900 $1,491,798

2015 --

2014 0.74

2013 3.99

2015 0%

2014 0%

2013 0%

2014 Sarli Family Foundation $75,000 William G. McGowan Charitable Fund $50,000 Anonymous Charitable Foundation $40,000

2013 --

Top Funding Sources Fiscal Year Top Funding Source & Dollar Amount

2015 Sarli Family Foundation $75,000 Second Highest Funding Source & Dollar William G. McGowan Amount Charitable Fund $50,000 Third Highest Funding Source & Dollar Anonymous Amount Charitable Foundation $40,000

---

Capital Campaign Currently in a Capital Campaign?

No

Goal

$0.00

Capital Campaign Anticipated in Next 5 Years?

No

Organization Comments Please note, as a small department under Rehabilitation Services of Saint Luke's Hospital, our program revenue and expenses are not delineated in the hospital's IRS 990 forms or their audit. • In 2014, calculation for Indirect Overhead Expenses (Administration Expenses) was changed by Saint Luke's Hospital. • In 2014, began transferring earned interest from endowment to support operating expenses. Foundation Comments • FY 2015, 2014, 2013: Financial data reported using internal financial documents. • The Children's SPOT is a program offered through St. Luke's Hospital and does not complete independent 990's and audits.

Created 01.20.2017.

Copyright © 2017 Greater Kansas City Community Foundation 15